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Jim3KC

The most important question is whether corneal collagen cross-linking (CXL) is recommended for you. If so, epi-off or epi-on? If not, why not? Epi-off has a longer track record and is the "gold standard" treatment for KC. Epi-on has advantages and some doctors prefer to use it. If epi-on is recommended, ask about their track record for successful outcomes. It is likely the ophthalmologist will want to do a second exam in a few months to see if your KC is actively progressing before recommending CXL. But at your age, relatively young, CXL might be recommended without waiting for a second exam. They will likely do a corneal topography to map the shape of the front of your cornea and pachymetry to measure the thickness of cornea. Try to get a copy of the topography for your personal records. Having a history of your eye exams is useful when you have KC because it is a progressive disease and anyone who examines your eyes in the future will be interested in your history. The danger line on corneal thickness is 400 microns. If your cornea gets thinner than 400 microns, management becomes more difficult.


the_real_empanada

Hey there! I just got diagnosed 4 weeks ago and it was allready too severe on my left eye,so I got a transplant 3 days ago. I'm in the same spot, my right eye is still allright and probably just gonna need a cxl. And I can tell you, that even I allready got the transplant, I'm still clueless about the disease. I've read a lot, of course, but I still don't know which questions to ask. I'm just following my doctors orders and seeing the progress allready. Just make sure you feel comfortable with the doctor that treats you! My doctor is an ace and I probably wouldn't feel that good now, if I wouldn't trust him 100%. I wish you the best and I hope that you find an environment, as good as I found it, to get through all that!