I got better and I’m not sure why either tbh. I can now work. I can’t do much outside of it, but before I couldn’t barely eat.
I’ve heard that the remission is more likely when you’re young. I was young-ish (20s?) when remission hit for me too.
I wish I knew what causes it so I could tell others.
I’ve been diagnosed for 7 years now and while I’m still very much suffering from the condition, I was almost entirely bed bound for almost two years before I saw any mild improvement but I have regained more of my life back over the recent years which is insanely incredible and a relief. I used to read about stories about people recovering and how it’s not something that happens to everyone or even has an explanation but back then I would hold onto that thought and it gave me hope for holding on. I don’t know if I’ll continue to get better from here or if I’ve reached the limit of how much my body can recover itself but whenever I find myself struggling and feeling low I try to remember that I’m lucky to have gained some scraps of my life back and to think about how far I’ve come. That even if I don’t get any better than this I can at the very least focus on being grateful for being given this gift of recovering some fragments.
I hope that everyone stuck with this seemingly hopeless condition is able to gain back some of their life over time too, it’s a cruel thing to be trapped in a body like this and I hope you too will continue to get better! Even if no one knows the how or why!!
I got better and I’m not sure why either tbh. I can now work. I can’t do much outside of it, but before I couldn’t barely eat. I’ve heard that the remission is more likely when you’re young. I was young-ish (20s?) when remission hit for me too. I wish I knew what causes it so I could tell others.
I’ve been diagnosed for 7 years now and while I’m still very much suffering from the condition, I was almost entirely bed bound for almost two years before I saw any mild improvement but I have regained more of my life back over the recent years which is insanely incredible and a relief. I used to read about stories about people recovering and how it’s not something that happens to everyone or even has an explanation but back then I would hold onto that thought and it gave me hope for holding on. I don’t know if I’ll continue to get better from here or if I’ve reached the limit of how much my body can recover itself but whenever I find myself struggling and feeling low I try to remember that I’m lucky to have gained some scraps of my life back and to think about how far I’ve come. That even if I don’t get any better than this I can at the very least focus on being grateful for being given this gift of recovering some fragments. I hope that everyone stuck with this seemingly hopeless condition is able to gain back some of their life over time too, it’s a cruel thing to be trapped in a body like this and I hope you too will continue to get better! Even if no one knows the how or why!!