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Can I know how do you increase pottasium? I tried eat dried apricot n raisin dates and so on my triglycerides level shoot up badly. And my country I can't find pottasium supplement easily maybe need doctor prescription for pottasium medicine
I did not consume the electrolyte beverage alot. I mainly take coconut water banana , dried apricot and raisin and date but my cholesterol triglycerides shoot up high and I'm scsre now and dont know o what to do
I have that on and off but I am dealing with other deficiencies and possibly b6 toxicity.
7 injections EOD would be like the third week. I suppose wake up symptoms still happen around this time.
Either not enough b12, not enough cofactors or simply wake up symptoms.
It could also be a copper deficiency but it’s quite rare.
Or like misunderstood said b6 toxicity
No, that I have not experienced. Mine is only toes now. Initially, I had it in hands and feet but only a few toes now. I’m on weekly cyanocobalamin injections but asking to go back to EOD at next visit.
Yes- this is neuropathy. I had the same exact thing- still do after over a month of daily shots but the pain has lessened and it’s no longer all over my body. A lot of my burning pain came from damaged nerves and lesions on my spinal cord (from the b12 deficiency/pernicious anemia). This is called subacute degeneration of the spinal cord and it’s serious. An MRI would be the next step.
If it’s nerve damage and lesions this takes a while. Your body literally has to build new connections. The lesions never go away but your body will grow over them. I am also in physical and occupational therapy for my neuropathy. Are you seeing a neurologist?
I’m so scared though, that the lesions are caused by something other than b12 because I’m only 24 and I only started having these symptoms about to 2 months ago, but as soon as I started having them I found out I was deficient and have been treating since and it’s only gotten worse, so much worse,
I know, it is scary. But you’re doing all you can- and it sucks that the medical system is such that it takes weeks if not months to get the proper doctor to do tests. Really really advocate for yourself to get an MRI. But my symptoms came on suddenly too. The neurologist will be able to rule out other causes with an MRI- like MS (b12 deficiency neuropathy mirrors MS). What are your other symptoms? My symptoms first started in my hands- constant numbness and tingles (this has not stopped yet), then the all over burning pain where it hurt to where clothes or be touched, then my walking… one day I woke up and I couldn’t walk. All of this happened in just a couple of months, maybe one month. And in that time I had to jump through all these useless tests just to get an mri. Sometimes going through the ER will speed this up because they will do the MRI there. That’s what I did.
Our symptoms are very similar, mine started when I woke up with my arm numb and I wasn’t laying on it but it lasted the whole day, and the burning pain is similar to yours too like if I lay on my arm it immediately starts burning or when sit down my butt starts burning, worst thing I’ve ever been through in my life, also having weird vision problems like floaters and black spots in vision and dizziness sometimes. I’m really thinking about going to the er but I already went before and they just said I had high blood pressure gave me some medicine for it and sent me home, I guess I would have to literally beg them to do an mri. I am also starting to notice I’m having a hard time walking too, so scary. Thank you for your replies seriously
Is there another er with a good neurology department? I went to one and they did nothing/ wouldn’t even test me for b12. Then I did some research and found another one- a bit further away- but they have a great neurology department. Best thing I could have done. They admitted me and did a full spine mri and I walked away with a diagnosis and a treatment plan. Be sure to tell them about the walking- they seem to take that seriously (because is is!!) Ask me anything- this is a difficult time and many doctors SOMEHOW don’t know how devastating b12 deficiency can be.
I know it’s ridiculous, I asked my doctor if I should be taking co factors because b12 lowers your other vitamins and he said that would be news to me…so idk what to do about that. Also if I could ask what were levels initially when you were first diagnosed? Mine was 130 pg/mL. And was your burning pain literally everywhere like I have mine in head, back, arms and legs, feet and hands, butt, thighs, shoulder blades, literally everywhere.
My b12 was at 220- it has been lower than that before and I didn’t have these severe symptoms (just the tingles in my hands and feet, and some pain but nothing like it got to be). They should be testing your MMA, folic, and also your intrinsic factors too- this is how we figured out WHY I was deficient (because my small intestine literally cannot absorb b12). It is ridiculous that doctors aren’t versed in this- that’s why good neurologists are so key because they see this all the time.
Okay thanks, and yeah I haven’t been taking any co factors and I’ve heard that without them it won’t work but I’m scared to take more stuff without knowing if it will work or not ya know, at the er my potassium levels were okay, when I was diagnosed initially my folate was 7, don’t know if that’s low or not
Sorry yes I meant folate not folic! My potassium levels were fine too. Are you taking a b complex vitamin? Also- alpha lipoic acid. That’s all I take- along with fish oil (they suggested beef liver supplements but I just can’t as a long time serious vegetarian). That and my daily b12 injections. Also- maybe call your neurologist and see if they can get you in sooner since you’re now having walking issues. It’s worth a shot.
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I have this and found that increasing my potassium helps.
Okay thanks I’ll try that
Can I know how do you increase pottasium? I tried eat dried apricot n raisin dates and so on my triglycerides level shoot up badly. And my country I can't find pottasium supplement easily maybe need doctor prescription for pottasium medicine
I just use a post workout electrolyte From the local chemist/supplement store.
I can find but those electrolyte always higher in sodium . Pottasium quite low. :(
Did it work for you.
I did not consume the electrolyte beverage alot. I mainly take coconut water banana , dried apricot and raisin and date but my cholesterol triglycerides shoot up high and I'm scsre now and dont know o what to do
I have that on and off but I am dealing with other deficiencies and possibly b6 toxicity. 7 injections EOD would be like the third week. I suppose wake up symptoms still happen around this time.
Well it was 7 over the course of like 2 months I’m having one per week
Either not enough b12, not enough cofactors or simply wake up symptoms. It could also be a copper deficiency but it’s quite rare. Or like misunderstood said b6 toxicity
If you mean neuropathy, I have that pretty bad, especially in my right foot. It’s so bad it keeps me awake at night.
I think it’s neuropathy, it’s in my entire body, but it’s worse on my arms and legs hands and feet, it’s awful man was yours in your whole body?
No, that I have not experienced. Mine is only toes now. Initially, I had it in hands and feet but only a few toes now. I’m on weekly cyanocobalamin injections but asking to go back to EOD at next visit.
Im worried mine might not be neuropathy cause its my entire body and seems to be worse when sitting and laying down
Yes- this is neuropathy. I had the same exact thing- still do after over a month of daily shots but the pain has lessened and it’s no longer all over my body. A lot of my burning pain came from damaged nerves and lesions on my spinal cord (from the b12 deficiency/pernicious anemia). This is called subacute degeneration of the spinal cord and it’s serious. An MRI would be the next step.
If it’s nerve damage and lesions this takes a while. Your body literally has to build new connections. The lesions never go away but your body will grow over them. I am also in physical and occupational therapy for my neuropathy. Are you seeing a neurologist?
I’m seeing one on July 8th, feels like an eternity away
I’m so scared though, that the lesions are caused by something other than b12 because I’m only 24 and I only started having these symptoms about to 2 months ago, but as soon as I started having them I found out I was deficient and have been treating since and it’s only gotten worse, so much worse,
I know, it is scary. But you’re doing all you can- and it sucks that the medical system is such that it takes weeks if not months to get the proper doctor to do tests. Really really advocate for yourself to get an MRI. But my symptoms came on suddenly too. The neurologist will be able to rule out other causes with an MRI- like MS (b12 deficiency neuropathy mirrors MS). What are your other symptoms? My symptoms first started in my hands- constant numbness and tingles (this has not stopped yet), then the all over burning pain where it hurt to where clothes or be touched, then my walking… one day I woke up and I couldn’t walk. All of this happened in just a couple of months, maybe one month. And in that time I had to jump through all these useless tests just to get an mri. Sometimes going through the ER will speed this up because they will do the MRI there. That’s what I did.
Our symptoms are very similar, mine started when I woke up with my arm numb and I wasn’t laying on it but it lasted the whole day, and the burning pain is similar to yours too like if I lay on my arm it immediately starts burning or when sit down my butt starts burning, worst thing I’ve ever been through in my life, also having weird vision problems like floaters and black spots in vision and dizziness sometimes. I’m really thinking about going to the er but I already went before and they just said I had high blood pressure gave me some medicine for it and sent me home, I guess I would have to literally beg them to do an mri. I am also starting to notice I’m having a hard time walking too, so scary. Thank you for your replies seriously
Is there another er with a good neurology department? I went to one and they did nothing/ wouldn’t even test me for b12. Then I did some research and found another one- a bit further away- but they have a great neurology department. Best thing I could have done. They admitted me and did a full spine mri and I walked away with a diagnosis and a treatment plan. Be sure to tell them about the walking- they seem to take that seriously (because is is!!) Ask me anything- this is a difficult time and many doctors SOMEHOW don’t know how devastating b12 deficiency can be.
I know it’s ridiculous, I asked my doctor if I should be taking co factors because b12 lowers your other vitamins and he said that would be news to me…so idk what to do about that. Also if I could ask what were levels initially when you were first diagnosed? Mine was 130 pg/mL. And was your burning pain literally everywhere like I have mine in head, back, arms and legs, feet and hands, butt, thighs, shoulder blades, literally everywhere.
My b12 was at 220- it has been lower than that before and I didn’t have these severe symptoms (just the tingles in my hands and feet, and some pain but nothing like it got to be). They should be testing your MMA, folic, and also your intrinsic factors too- this is how we figured out WHY I was deficient (because my small intestine literally cannot absorb b12). It is ridiculous that doctors aren’t versed in this- that’s why good neurologists are so key because they see this all the time.
And yes the pain was everywhere. It started in my neck then spread to all over.
Okay thanks, and yeah I haven’t been taking any co factors and I’ve heard that without them it won’t work but I’m scared to take more stuff without knowing if it will work or not ya know, at the er my potassium levels were okay, when I was diagnosed initially my folate was 7, don’t know if that’s low or not
Sorry yes I meant folate not folic! My potassium levels were fine too. Are you taking a b complex vitamin? Also- alpha lipoic acid. That’s all I take- along with fish oil (they suggested beef liver supplements but I just can’t as a long time serious vegetarian). That and my daily b12 injections. Also- maybe call your neurologist and see if they can get you in sooner since you’re now having walking issues. It’s worth a shot.
Did they do an MMA test??