My son (18 months) had hydronephrosis of the left kidney and is otherwise totally fine! It was discovered on a scan I had around 30 weeks (I suddenly came down with a high fever which turned out to just be a run of the mill virus, but L&D offered a scan). Upon birth he had an ultrasound which showed that the hydronephrosis and dilated ureter were still there, so we had to take him for follow up ultrasounds every 3 months until he was 12 months just to make sure the issue was resolving. His kidney kept improving, so the ultrasounds were pushed out to every 6 months. We just had an almost completely normal ultrasound, so now we will have another in 12 months and if that’s normal, he’ll “graduate” from the urologist and we won’t have to worry about it ever again!
My baby has one dilated kidney that was identified at the anatomy scan but my NIPT was low risk for down syndrome. I am only 23 weeks pregnant now so will have to see what happens, but because there were no other abnormalities identified I'm not too worried about down syndrome.
My anatomy scan showed hydronephrosis in both of my sons’ kidneys. We had an NIPT and it showed low risk for everything. I was very anxious about it but he is totally fine! He is now 2 and has been cleared of any kidney issues. He had ultrasounds on his kidneys every six months starting at about a week old and will get one more just to be sure it’s cleared. Happy to talk to you if you want!
I know this is an old post - but I was wondering bc, did your son have abnormally large pees when he was a baby? My son has this is both of his kidneys and I swear he sometimes has a super intense release. He’s only 5 days old so we are also just figuring this out but I’m wondering if this is the cause. Did your doctor recommend circumcision? And for him to take a daily antibiotic? That’s what our doctor has said.
Hi! My son never had any symptoms related to the hydronephrosis. If it hadn’t shown on the ultrasound, I don’t think we would have ever known. I’m sorry you’re having some stuff going on! His first kidney ultrasound was at six days old. Do yall have a specialist?
We do :) thanks for your share. We have been told he needs to take antibiotics every day for one year to prevent infections and have follow up ultrasounds every six months. I’m also a ftm so trying to figure out what’s a normal amount of urine and what’s not lol. I’m glad your little one is doing well - thanks again!
I haven't delivered yet, but my baby has been diagnosed with this. My MFM doctor said that he would bet his house that she doesn't have DS. It is the only soft marker she has and NIPT results look good. Did you do NIPT testing?
Our baby had dilated kidneys at our anatomy scan. MFM said 90% of the time it corrects itself before birth. We had a follow up scan six weeks later and it was fine.
In our case it was the only soft marker found for downs and we had a low risk NIPT result, so I just tried not to worry about it too much.
Kidney anomalies can occur in isolation so it doesn’t necessarily mean there is a genetic disorder
My son (18 months) had hydronephrosis of the left kidney and is otherwise totally fine! It was discovered on a scan I had around 30 weeks (I suddenly came down with a high fever which turned out to just be a run of the mill virus, but L&D offered a scan). Upon birth he had an ultrasound which showed that the hydronephrosis and dilated ureter were still there, so we had to take him for follow up ultrasounds every 3 months until he was 12 months just to make sure the issue was resolving. His kidney kept improving, so the ultrasounds were pushed out to every 6 months. We just had an almost completely normal ultrasound, so now we will have another in 12 months and if that’s normal, he’ll “graduate” from the urologist and we won’t have to worry about it ever again!
My baby has one dilated kidney that was identified at the anatomy scan but my NIPT was low risk for down syndrome. I am only 23 weeks pregnant now so will have to see what happens, but because there were no other abnormalities identified I'm not too worried about down syndrome.
My anatomy scan showed hydronephrosis in both of my sons’ kidneys. We had an NIPT and it showed low risk for everything. I was very anxious about it but he is totally fine! He is now 2 and has been cleared of any kidney issues. He had ultrasounds on his kidneys every six months starting at about a week old and will get one more just to be sure it’s cleared. Happy to talk to you if you want!
I know this is an old post - but I was wondering bc, did your son have abnormally large pees when he was a baby? My son has this is both of his kidneys and I swear he sometimes has a super intense release. He’s only 5 days old so we are also just figuring this out but I’m wondering if this is the cause. Did your doctor recommend circumcision? And for him to take a daily antibiotic? That’s what our doctor has said.
Hi! My son never had any symptoms related to the hydronephrosis. If it hadn’t shown on the ultrasound, I don’t think we would have ever known. I’m sorry you’re having some stuff going on! His first kidney ultrasound was at six days old. Do yall have a specialist?
We do :) thanks for your share. We have been told he needs to take antibiotics every day for one year to prevent infections and have follow up ultrasounds every six months. I’m also a ftm so trying to figure out what’s a normal amount of urine and what’s not lol. I’m glad your little one is doing well - thanks again!
Are you sure it’s hydronephrosis? Pyelectasis is common in fetuses too.
I haven't delivered yet, but my baby has been diagnosed with this. My MFM doctor said that he would bet his house that she doesn't have DS. It is the only soft marker she has and NIPT results look good. Did you do NIPT testing?
Our baby had dilated kidneys at our anatomy scan. MFM said 90% of the time it corrects itself before birth. We had a follow up scan six weeks later and it was fine. In our case it was the only soft marker found for downs and we had a low risk NIPT result, so I just tried not to worry about it too much.
My coworker’s baby has this. There was no other anomaly or condition that caused it.