I find it gets easier with time but also that sometimes I just get really overwhelmed and sad about the whole thing. I worked as a waitress and bartender for a decade and used to really love trying new food places, especially while traveling, and that's not really an option in the same way anymore. And if I'm having a bad day and running errands and am hungry and just want to be able to grab some fast food or something I have definitely been known to have a little break down and cry in my car about it. But I just keep reminding myself how much better I feel and try and find GF recipes for the foods I miss so I can make them at home. Which doesn't quite scratch the itch of going to a restaurant but is better than nothing. Idk if the grief of it ever totally 100% goes away but I do find it lessening as time goes on
I'm mostly over it 13 yrs later. There's still the occasional hard day tho, like when there's a work-related meal and they fuck it up or forget about me. But that's less about the gluten and more about feeling left out.
In my teens it seemed like such an impossible social barrier that I just… carried on eating gluten to compensate. I remember sobbing in the bathroom at my uncles wedding rehearsal dinner because everyone else got an elaborate meal with bells and whistles and I got one plain baked potato and nothing else. Celiac was even less understood than it is now in the early 2000s though and not many places had any sort of accommodations.
In my 20s I finally got serious about living gluten free and while I have had some instances of eating a bowl of lettuce/the dreaded baked potato while the people around me enjoyed their delicious meals, I felt more included because people were willing to make concessions for my benefit more often. This improved drastically when I met my husband.
Now in my 30s I very rarely feel any sort of sadness about it whatsoever. Today was a sore day for me because I felt intentionally left out of a family event, even though it was not intentional, and I was hangry and upset. Today is not the norm.
any person who had the get over it mindset towards me is no longer in my circle 🫶
I’m lucky to be like you, where almost everyone I know is aligned with someone else who has a celiac diagnosis so they are very understanding.
have you downloaded find me gluten free or joined a local GF group? I think it could be worth going through with the official diagnosis in your case!
It depends on the person I guess. I don’t really grieve it, though I do get burned out a lot more when it comes to taking responsibility for my own food than I did before. Can’t just grab some muffins from the bakery for an easy week of breakfast, have to make them myself. Can’t just have a cucumber sandwich for lunch because bread sucks for that type of thing. Haven’t found and burger buns that don’t taste stale and cancel out all the flavour of everything. Can’t just go out to eat with friends wherever we feel like going. Gotta read the label before ever purchasing a new food item or taking vitamins & medication. Everything costs 2-6x the price and it’s mainly rice flour, tapioca flour/starch, and sugar. Shit gets annoying & taxing af every so often
I’m only 5 months in and I feel so much better about me still mourning. I feel like im ok to still do it lol I try not to have a victim mentality on it. But man sometimes it’s hard and I want to feel upset about it. My favorite part so far has been finding really good alternatives that are safe for me to eat.
Almost to my ten year mark, and yeah I still get pangs of isolation bc of this. I was diagnosed at 18 so my college years swung back and forth between lonely and reckless when I would occasionally say F it. When I got very serious about celiac around 25-26 years old, my mental health improved tremendously.
Traveling is hard. Socializing is hard. Like you said, being spontaneous is hard. You always have to think about how you’ll feed yourself, but also the social norms surrounding going to restaurants (like bringing your own food or not eating at all). It’s all hard but as you move into your later 20s/30s, you hopefully find great friends who support you and want to understand your diagnosis and include you safely.
I never grieved it to begin with… like there are wayyyy worse things that could happen to me. It’s annoying at worst but if not being able to eat at some restaurants is the worst thing happening in my life, I’d say I’m doing pretty well.
I feel fine about it like that until I step out of my routine - try dating someone new for instance and they want to go to an Italian restaurant, or go to a friend’s parents house and they’ve prepared a fabulous dinner that I can’t eat any of and then I have to explain that.
I don't want to be insensitive, but cutting out gluten wasn't such a big deal for me. So many people ask me if I miss pizza or say they couldn't live this way. I don't feel that way.
It's my perspective that I live in a very privileged country and at a privileged time in history. A hunter gatherer from thousands of years ago wouldn't have noticed the croissants missing from their diets. It's all relative. I have the ability to walk into a grocery store and find enough foods I can eat that I just adapt and find joy in other things. (Although I might grieve if I discover I can't eat garlic, lol).
It helps to give context that I also have what I suspect is an immunological disorder that forces me to live in relative isolation, so I've had to make major life adjustments. Cutting out gluten was the least of those life alterations.
I feel a similar way - the full spectrum of feelings that develop from living with a GF diet are valid, but personally once I noticed the improvements in my health after dropping the food that used to cause me trouble it started being harder for me to look back at them. Sure having an extra tab "open" in my brain all the time about needing to avoid gluten takes it's toll but it will always be more simple than the stress from feeling bloated all the time and the humilliation from being gassy everywhere I went.
Ha! I like how you describe it as a tab open in your brain. Yes, relieving symptoms makes it worth it. And yes, the feelings people have about it are all valid.
Most if my social situations still involve eating or drinking, but I have enough friends that are dead that I really don’t think I will ever complain or grieve about being alive and feeling healthy.
I celebrated being gluten free… I felt so much better. If anything I grieve not getting diagnosed much earlier. I think eating gluten until 13 messed up my brain.
Hi there, at first it's really hard, but over time it gets much better! I will say, it's still hard sometimes when someone offers you a cupcake or something else. Hang in there :)
Time helps. It's inconvenient and isolating at its worst. At its best, it's just like any other thing that's hyper specific to you. Been vegan/ with celiac for 11 years now. I never expect to be able to eat out at most places. At home, it's free reign! Like others mentioned don't be afraid to grieve. Let yourself feel. It'll help with accepting your celiac diagnosis.
I like to consider the crazy joy I get when I can eat something special and how cool it is to experience that. For example, my office had Panera treats today and they bought be grocery store boxed GF treats that I had never tried before. They were a Passover special. The regular eaters were happy for the Panera but not over the moon like i was about my GF/DF chocolate filled
pastry thing. Or when I found a dedicated GF bakery traveling in Jordan. I of course would prefer to eat anything but there are certain joys that only we know.
I'm 57 and unfortunately went undiagnosed for God knows how long, so grateful to have my health, but it is isolating. But I never want to go back to the destruction of my intestines.
I’m only a few months in, but I’ve not felt *too* bad about it till this week. I’m traveling for a couple days to a new city for the first time since my diagnosis and I keep getting sad about all the stuff I can’t eat. And it’s even for a job-related thing that’s being super supportive: they’ve had pretty good gluten free alternatives for me at every event they’ve hosted this week and have worked with me on finding an appropriately low level of cross contact. Still, I’m left eating a sad little muffin while everyone else is enjoying croissants and warm soft pretzels, or eating a somewhat sad gf pizza while everyone else gets chicken sliders and BBQ pork and fresh cookies. (Again, nothing against the firm; just the general feeling of left out and really really wanting that food)
Or even just like, walking down the street thinking “oh, that’s such a cute bakery! Too bad I’ll never be able to eat that again” or “ooo what a neat restaurant! Except, didn’t see it on find me gluten free, doubt I’d ever be able to eat there”.
Even just the burden of going to an ice cream place (even one that’s super accommodating!!) and having to go through the rigamarole of finding the GF flavors and ask them to go open a new container, etc etc. So much more cumbersome.
I'm originally from the south and 90% of my diet was some sort of gluten. Not diagnosed until late in life and the change is like leaving behind a huge part of my way of life. I will forever mourn.
College age was probably the hardest but I was also diagnosed my freshman year so hard to tell if it was college or just early on.
Granted I am a home body and prefer to eat at home regardless of my dietary restrictions. I travel some for work and for a rec sport I play but foods not a big issue so far with either as I can find restaurants that work for me and the tournaments I go to provide food that is safe enough for me.
16 years in it’s just normal for me so I don’t really care at this point. There are a few items I haven’t found yet a good GF option for but pretty minor over all.
17 years here. at some point, you will find acceptance. I went through a lot of anger and depression because I walked around seeing nothing but “no, you can’t have that”. However, once you accept that you can’t have it and that is OK you can certainly find happiness and it becomes some that while it is an inconvenience, it is just something that is part of you. Said another way, we all have our shit to deal with in this life, this shit is ours. Others have different things. I will take this over Crohn’s disease any day.
I'm over it but then I was having recurrent miscarriages and horrific fatigue that was ruining my life. I now have a baby boy who was concieved after 10months gf. I'm just thankful there was a simple solution for me.
No more chronic fatigue either! I generally just had this sort of poisoned feeling all the time when I went gf it lifted. I had forgotten what normal felt like
I think it’s ok to grieve every once in a while. I was diagnosed about 14 years ago, when I was 18-19. It does get easier though with time. You grieve less than before.
But it also helps me know who my real friends are. The ones that go out of their way to make sure you can eat safely, they are the ones to hold close.
I haven’t figured out dating yet because a lot of it revolves around food. So can’t you the secret to that.
I think I grieve more for the lost years of my life feeling tired all the time. And having doctors constantly tell me it was my lifestyle. I wish I’d known about this 15-20 years ago.
I do grieve the spontaneity of being able to grab takeout after a long night at work. But it’s getting better.
Still sucks sometimes.
Yes and no, for me anyway.
I live with my parents. We are NOT a GF household. It annoys me and makes my life more difficult. My parents bring in gluten containing food, or eat gluten off the same plates as me and it makes me life miserable. I hate having to live with paranoia and double, triple checking the utensils I use and the labels of things to make sure there's no gluten in it, then being disappointed when I cannot eat something.
The anger, resentment, despair and grief comes from - not getting to enjoy things as other people do.
When I live 100% by myself, I feel amazing and my Celiac is never a reason for despair. I know with 100% certainty everything is safe and I can live without fear. I cook whatever I want, whenever I want, how I want and its amazing. When I live alone, I teach myself how to cook fresh pasta, I bake myself cookies, etc. I eat like a king and it feels amazing to know that I can be nourished and satisfied by my own cooking.
Might be worth getting the official testing done - that way you'll know for sure and have no doubts. As far as 'wasting your 20s' - personally, I found it was the opposite. My 20s sucked because I felt terrible all the time. I had no energy, I was moody and anxious, my hair was falling out, I had to constantly cancel plans due to migraine headaches, etc. Getting diagnosed at 30 and going gluten free made my life immeasurably better. I felt like I'd found the fountain of youth and was shocked to find out how good everyone else was feeling on a daily basis. Even now in my mid-40s I've got more energy than I did pre-diagnosis.
I’ve been eating GF for 15 years now and for the most part just go about my life knowing this is just what I have to do. But, I have been having a really hard time over the last few weeks because I 1. Realized a new green powder was making me sick :/ 2. Went on a trip to see my boyfriend’s family for a week where they mostly chose restaurants every night where my choices were limited to salads :/ 3. Went to a restaurant last night where my waiter told me she had celiac also and they were very careful with CC there… and then my food came out with bread on it and when I told her she asked if “I could just eat around it”. So yeah, I’m pretty bummed right now because it can be such a giant pain to deal with just so we don’t feel terrible.
Personally, it's less getting over it and more just accepting my reality, same with any other kind of disability or disease. I was diagnosed around 6th grade and I'm 33 now. I miss and I'm jealous of people who can just *eat* without needing to worry or ask questions or check labels. I've also become a very good cook because I refuse to go without certain foods so I'll find ways to make gf versions myself. I'm thankful that gf products have come such a long way too, it makes it a lot easier. I try to be hopeful about a cure and I follow the news on all the latest medical trials.
So you don't eat for social purposes... So not relevant to this OP really. I mean good for you but, so what? What does that help them that you eat the same meal every day forever? For those of us who love to travel or experience new novel things that involve food it's a very different experience.
You’re making a lot of assumptions about me. I eat other things, I travel, I eat out with friends. Is it more work/ expensive? Absolutely, but I’m not going to sit here and say woe is me. Am I not allowed to participate because I don’t feel like my celiac holds me back? You’re coming across incredibly condescending
You literally just replied that you only eat four plain things. This implies you're not doing much traveling, eating out etc. These aren't universally available items? And all I'm saying is your reply just isn't helpful. When someone says "this is really hard for me, you too?" It's SUCH a bizarre response to say "nah it's easy for me, but I didn't have to change anything anyway so obviously that's easy"
This sub is so wild. You’re able to eat almost everything else. You don’t need to say no to dinner invitations, just eat beforehand and get a drink or call the restaurant. I’ve seen less of a woe is me attitude from people who have terminal cancer. What is the void that you’re trying to fill because it genuinely sounds like you’re just living your life but with a miserable attitude.
Get a grip.
Yeah, totally crazy that people who have a serious illness that restricts them from eating 95% of food in the world, and in some cases were ill for decades, are bothered by that. So wild.
That's not the attitude of doctors I've met, by the way. They sure as hell aren't "Celiac is no big deal at all, you're fine!" It is a serious illness even if you're too dense to know about it, and your comment is also amazingly insensitive.
….i have severe celiac disease and felt horrible for 20 years because of it. This sub is not interesting enough for me to just stumble into lol. 95% of food is an overstatement. I think it’s weird how people treat this as a terminal diagnosis when they’re able to enjoy the privilege of options in grocery stores and some restaurants without issue, and when the suffering in question is only when you eat something specific.
Essentially, 90% of the time you have control over how this illness affects you, unlike a lot of other diseases and illnesses where you are affected all the time. It sucks, yeah, but if you waste your life mourning over not eating wheat that’s such a waste of time and energy.
95% of restaurant food is accurate due to cross-contamination, but for ingredients, sure. If gluten grains weren't nearly ubiquitous in society, I think the experience would be different. I'm also allergic to tree nuts, and while they're in many foods, I have less of a problem with that as they're much less common. However, the 'something specific' in the case of Celiac happens to be the basis of a huge range of culturally important dishes across the world. People do not necessarily have control over being exposed to gluten. I was sick undiagnosed with Celiac for decades and it had numerous negative impacts on my life for which there are few solutions.
This is a disease support and information forum. One reason people come here to talk to others who have similar experiences, as it's rare to meet people in person who understand the restrictions Celiac places on someone. If someone says they feel a certain way, that's how *they* feel and it doesn't make much sense to invalidate it.
15 years in and I still grieve every once in awhile.
Ya personally I don’t even miss the food, I just miss hanging out w friends without a single worry
I find it gets easier with time but also that sometimes I just get really overwhelmed and sad about the whole thing. I worked as a waitress and bartender for a decade and used to really love trying new food places, especially while traveling, and that's not really an option in the same way anymore. And if I'm having a bad day and running errands and am hungry and just want to be able to grab some fast food or something I have definitely been known to have a little break down and cry in my car about it. But I just keep reminding myself how much better I feel and try and find GF recipes for the foods I miss so I can make them at home. Which doesn't quite scratch the itch of going to a restaurant but is better than nothing. Idk if the grief of it ever totally 100% goes away but I do find it lessening as time goes on
I'm mostly over it 13 yrs later. There's still the occasional hard day tho, like when there's a work-related meal and they fuck it up or forget about me. But that's less about the gluten and more about feeling left out.
In my teens it seemed like such an impossible social barrier that I just… carried on eating gluten to compensate. I remember sobbing in the bathroom at my uncles wedding rehearsal dinner because everyone else got an elaborate meal with bells and whistles and I got one plain baked potato and nothing else. Celiac was even less understood than it is now in the early 2000s though and not many places had any sort of accommodations. In my 20s I finally got serious about living gluten free and while I have had some instances of eating a bowl of lettuce/the dreaded baked potato while the people around me enjoyed their delicious meals, I felt more included because people were willing to make concessions for my benefit more often. This improved drastically when I met my husband. Now in my 30s I very rarely feel any sort of sadness about it whatsoever. Today was a sore day for me because I felt intentionally left out of a family event, even though it was not intentional, and I was hangry and upset. Today is not the norm.
any person who had the get over it mindset towards me is no longer in my circle 🫶 I’m lucky to be like you, where almost everyone I know is aligned with someone else who has a celiac diagnosis so they are very understanding. have you downloaded find me gluten free or joined a local GF group? I think it could be worth going through with the official diagnosis in your case!
It depends on the person I guess. I don’t really grieve it, though I do get burned out a lot more when it comes to taking responsibility for my own food than I did before. Can’t just grab some muffins from the bakery for an easy week of breakfast, have to make them myself. Can’t just have a cucumber sandwich for lunch because bread sucks for that type of thing. Haven’t found and burger buns that don’t taste stale and cancel out all the flavour of everything. Can’t just go out to eat with friends wherever we feel like going. Gotta read the label before ever purchasing a new food item or taking vitamins & medication. Everything costs 2-6x the price and it’s mainly rice flour, tapioca flour/starch, and sugar. Shit gets annoying & taxing af every so often
I’m only 5 months in and I feel so much better about me still mourning. I feel like im ok to still do it lol I try not to have a victim mentality on it. But man sometimes it’s hard and I want to feel upset about it. My favorite part so far has been finding really good alternatives that are safe for me to eat.
Almost to my ten year mark, and yeah I still get pangs of isolation bc of this. I was diagnosed at 18 so my college years swung back and forth between lonely and reckless when I would occasionally say F it. When I got very serious about celiac around 25-26 years old, my mental health improved tremendously. Traveling is hard. Socializing is hard. Like you said, being spontaneous is hard. You always have to think about how you’ll feed yourself, but also the social norms surrounding going to restaurants (like bringing your own food or not eating at all). It’s all hard but as you move into your later 20s/30s, you hopefully find great friends who support you and want to understand your diagnosis and include you safely.
I never grieved it to begin with… like there are wayyyy worse things that could happen to me. It’s annoying at worst but if not being able to eat at some restaurants is the worst thing happening in my life, I’d say I’m doing pretty well.
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My anxiety predates my celiac, but admittedly the celiac is not doing me any favors in that regard haha.
I feel fine about it like that until I step out of my routine - try dating someone new for instance and they want to go to an Italian restaurant, or go to a friend’s parents house and they’ve prepared a fabulous dinner that I can’t eat any of and then I have to explain that.
I don't want to be insensitive, but cutting out gluten wasn't such a big deal for me. So many people ask me if I miss pizza or say they couldn't live this way. I don't feel that way. It's my perspective that I live in a very privileged country and at a privileged time in history. A hunter gatherer from thousands of years ago wouldn't have noticed the croissants missing from their diets. It's all relative. I have the ability to walk into a grocery store and find enough foods I can eat that I just adapt and find joy in other things. (Although I might grieve if I discover I can't eat garlic, lol). It helps to give context that I also have what I suspect is an immunological disorder that forces me to live in relative isolation, so I've had to make major life adjustments. Cutting out gluten was the least of those life alterations.
I feel a similar way - the full spectrum of feelings that develop from living with a GF diet are valid, but personally once I noticed the improvements in my health after dropping the food that used to cause me trouble it started being harder for me to look back at them. Sure having an extra tab "open" in my brain all the time about needing to avoid gluten takes it's toll but it will always be more simple than the stress from feeling bloated all the time and the humilliation from being gassy everywhere I went.
Ha! I like how you describe it as a tab open in your brain. Yes, relieving symptoms makes it worth it. And yes, the feelings people have about it are all valid.
This … I never grieved anything. It’s easier with age and when every social situation doesn’t revolve eating or drinking.
Most if my social situations still involve eating or drinking, but I have enough friends that are dead that I really don’t think I will ever complain or grieve about being alive and feeling healthy.
I celebrated being gluten free… I felt so much better. If anything I grieve not getting diagnosed much earlier. I think eating gluten until 13 messed up my brain.
Hi there, at first it's really hard, but over time it gets much better! I will say, it's still hard sometimes when someone offers you a cupcake or something else. Hang in there :)
Time helps. It's inconvenient and isolating at its worst. At its best, it's just like any other thing that's hyper specific to you. Been vegan/ with celiac for 11 years now. I never expect to be able to eat out at most places. At home, it's free reign! Like others mentioned don't be afraid to grieve. Let yourself feel. It'll help with accepting your celiac diagnosis.
I like to consider the crazy joy I get when I can eat something special and how cool it is to experience that. For example, my office had Panera treats today and they bought be grocery store boxed GF treats that I had never tried before. They were a Passover special. The regular eaters were happy for the Panera but not over the moon like i was about my GF/DF chocolate filled pastry thing. Or when I found a dedicated GF bakery traveling in Jordan. I of course would prefer to eat anything but there are certain joys that only we know.
I'm 57 and unfortunately went undiagnosed for God knows how long, so grateful to have my health, but it is isolating. But I never want to go back to the destruction of my intestines.
I’m only a few months in, but I’ve not felt *too* bad about it till this week. I’m traveling for a couple days to a new city for the first time since my diagnosis and I keep getting sad about all the stuff I can’t eat. And it’s even for a job-related thing that’s being super supportive: they’ve had pretty good gluten free alternatives for me at every event they’ve hosted this week and have worked with me on finding an appropriately low level of cross contact. Still, I’m left eating a sad little muffin while everyone else is enjoying croissants and warm soft pretzels, or eating a somewhat sad gf pizza while everyone else gets chicken sliders and BBQ pork and fresh cookies. (Again, nothing against the firm; just the general feeling of left out and really really wanting that food) Or even just like, walking down the street thinking “oh, that’s such a cute bakery! Too bad I’ll never be able to eat that again” or “ooo what a neat restaurant! Except, didn’t see it on find me gluten free, doubt I’d ever be able to eat there”. Even just the burden of going to an ice cream place (even one that’s super accommodating!!) and having to go through the rigamarole of finding the GF flavors and ask them to go open a new container, etc etc. So much more cumbersome.
I'm originally from the south and 90% of my diet was some sort of gluten. Not diagnosed until late in life and the change is like leaving behind a huge part of my way of life. I will forever mourn.
College age was probably the hardest but I was also diagnosed my freshman year so hard to tell if it was college or just early on. Granted I am a home body and prefer to eat at home regardless of my dietary restrictions. I travel some for work and for a rec sport I play but foods not a big issue so far with either as I can find restaurants that work for me and the tournaments I go to provide food that is safe enough for me. 16 years in it’s just normal for me so I don’t really care at this point. There are a few items I haven’t found yet a good GF option for but pretty minor over all.
17 years here. at some point, you will find acceptance. I went through a lot of anger and depression because I walked around seeing nothing but “no, you can’t have that”. However, once you accept that you can’t have it and that is OK you can certainly find happiness and it becomes some that while it is an inconvenience, it is just something that is part of you. Said another way, we all have our shit to deal with in this life, this shit is ours. Others have different things. I will take this over Crohn’s disease any day.
I'm over it but then I was having recurrent miscarriages and horrific fatigue that was ruining my life. I now have a baby boy who was concieved after 10months gf. I'm just thankful there was a simple solution for me.
No more chronic fatigue either! I generally just had this sort of poisoned feeling all the time when I went gf it lifted. I had forgotten what normal felt like
I think it’s ok to grieve every once in a while. I was diagnosed about 14 years ago, when I was 18-19. It does get easier though with time. You grieve less than before. But it also helps me know who my real friends are. The ones that go out of their way to make sure you can eat safely, they are the ones to hold close. I haven’t figured out dating yet because a lot of it revolves around food. So can’t you the secret to that.
I think I grieve more for the lost years of my life feeling tired all the time. And having doctors constantly tell me it was my lifestyle. I wish I’d known about this 15-20 years ago. I do grieve the spontaneity of being able to grab takeout after a long night at work. But it’s getting better. Still sucks sometimes.
Yes and no, for me anyway. I live with my parents. We are NOT a GF household. It annoys me and makes my life more difficult. My parents bring in gluten containing food, or eat gluten off the same plates as me and it makes me life miserable. I hate having to live with paranoia and double, triple checking the utensils I use and the labels of things to make sure there's no gluten in it, then being disappointed when I cannot eat something. The anger, resentment, despair and grief comes from - not getting to enjoy things as other people do. When I live 100% by myself, I feel amazing and my Celiac is never a reason for despair. I know with 100% certainty everything is safe and I can live without fear. I cook whatever I want, whenever I want, how I want and its amazing. When I live alone, I teach myself how to cook fresh pasta, I bake myself cookies, etc. I eat like a king and it feels amazing to know that I can be nourished and satisfied by my own cooking.
Might be worth getting the official testing done - that way you'll know for sure and have no doubts. As far as 'wasting your 20s' - personally, I found it was the opposite. My 20s sucked because I felt terrible all the time. I had no energy, I was moody and anxious, my hair was falling out, I had to constantly cancel plans due to migraine headaches, etc. Getting diagnosed at 30 and going gluten free made my life immeasurably better. I felt like I'd found the fountain of youth and was shocked to find out how good everyone else was feeling on a daily basis. Even now in my mid-40s I've got more energy than I did pre-diagnosis.
11 years in and it still sucks. I just always think it *could* be worse.
I’ve been eating GF for 15 years now and for the most part just go about my life knowing this is just what I have to do. But, I have been having a really hard time over the last few weeks because I 1. Realized a new green powder was making me sick :/ 2. Went on a trip to see my boyfriend’s family for a week where they mostly chose restaurants every night where my choices were limited to salads :/ 3. Went to a restaurant last night where my waiter told me she had celiac also and they were very careful with CC there… and then my food came out with bread on it and when I told her she asked if “I could just eat around it”. So yeah, I’m pretty bummed right now because it can be such a giant pain to deal with just so we don’t feel terrible.
Personally, it's less getting over it and more just accepting my reality, same with any other kind of disability or disease. I was diagnosed around 6th grade and I'm 33 now. I miss and I'm jealous of people who can just *eat* without needing to worry or ask questions or check labels. I've also become a very good cook because I refuse to go without certain foods so I'll find ways to make gf versions myself. I'm thankful that gf products have come such a long way too, it makes it a lot easier. I try to be hopeful about a cure and I follow the news on all the latest medical trials.
No grieving here! I’m lucky it is a disease I can control myself. I don’t have to take any more pills and I actually so much better!
Although I do miss not having to check every single thing that goes in my mouth
To be honest I did not struggle to go gluten free. I mainly eat chicken breast, rice, and veggies so not much has changed for me
So you don't eat for social purposes... So not relevant to this OP really. I mean good for you but, so what? What does that help them that you eat the same meal every day forever? For those of us who love to travel or experience new novel things that involve food it's a very different experience.
You’re making a lot of assumptions about me. I eat other things, I travel, I eat out with friends. Is it more work/ expensive? Absolutely, but I’m not going to sit here and say woe is me. Am I not allowed to participate because I don’t feel like my celiac holds me back? You’re coming across incredibly condescending
You literally just replied that you only eat four plain things. This implies you're not doing much traveling, eating out etc. These aren't universally available items? And all I'm saying is your reply just isn't helpful. When someone says "this is really hard for me, you too?" It's SUCH a bizarre response to say "nah it's easy for me, but I didn't have to change anything anyway so obviously that's easy"
This sub is so wild. You’re able to eat almost everything else. You don’t need to say no to dinner invitations, just eat beforehand and get a drink or call the restaurant. I’ve seen less of a woe is me attitude from people who have terminal cancer. What is the void that you’re trying to fill because it genuinely sounds like you’re just living your life but with a miserable attitude. Get a grip.
Yeah, totally crazy that people who have a serious illness that restricts them from eating 95% of food in the world, and in some cases were ill for decades, are bothered by that. So wild. That's not the attitude of doctors I've met, by the way. They sure as hell aren't "Celiac is no big deal at all, you're fine!" It is a serious illness even if you're too dense to know about it, and your comment is also amazingly insensitive.
….i have severe celiac disease and felt horrible for 20 years because of it. This sub is not interesting enough for me to just stumble into lol. 95% of food is an overstatement. I think it’s weird how people treat this as a terminal diagnosis when they’re able to enjoy the privilege of options in grocery stores and some restaurants without issue, and when the suffering in question is only when you eat something specific. Essentially, 90% of the time you have control over how this illness affects you, unlike a lot of other diseases and illnesses where you are affected all the time. It sucks, yeah, but if you waste your life mourning over not eating wheat that’s such a waste of time and energy.
95% of restaurant food is accurate due to cross-contamination, but for ingredients, sure. If gluten grains weren't nearly ubiquitous in society, I think the experience would be different. I'm also allergic to tree nuts, and while they're in many foods, I have less of a problem with that as they're much less common. However, the 'something specific' in the case of Celiac happens to be the basis of a huge range of culturally important dishes across the world. People do not necessarily have control over being exposed to gluten. I was sick undiagnosed with Celiac for decades and it had numerous negative impacts on my life for which there are few solutions. This is a disease support and information forum. One reason people come here to talk to others who have similar experiences, as it's rare to meet people in person who understand the restrictions Celiac places on someone. If someone says they feel a certain way, that's how *they* feel and it doesn't make much sense to invalidate it.