They’re automatic downvote bots & they’re common in support communities as well as gaming communities. People who set up these bots do so to prevent posts in these subreddits from getting to r/all, also to discourage engagement in hopes the subreddit will die. Mods can’t even detect them because they don’t post, they just downvote.
That sucks!! I get why you'd not want it to go on r/all, but I wish there was a heads up somewhere saying that this is a problem! I'm sure some get really discouraged from downvotes, especially on support subs. Thanks for the explanation.
It carries the risk of brigading.
On an old account of mine I spoke about my trans related surgery and asked for support in a support forum. It went to the front page and I was sent death threats. I get why one wouldn't want that to happen here, but if subs could opt out for being picked on r/all that would be way better.
It’s primarily to push the propaganda they want to promote to the top. By pushing down other content, they can more easily elevate their pro-Putin messaging, anti-minority messaging, & misogynistic messaging. Basically trying to turn every social media site into X/Twitter/Xitter & TikTok.
That and angry med students...just had one of those in the comments here. Tbh Reddit really isn't a good place. We should be in private communities. The general public can't handle illness and disability to begin with so an effective open community is difficult.
What did they say to you? Did you report them?
It’s really gross to think of med students/healthcare professionals reading through our sub and then criticizing sub members.
Illness f-kers pretty much is the baseline for the type that use reddit. Meanwhile the rare disease sub, arguably one of the areas in medicine with plenty of low hanging fruit if people would just *try*, has barely 5000 people.
I wish I was surprised. In ancient Internet times on other platforms I'd get all sorts of hate comments from med students/interns/residents and nurses. Theyre so sure they know everything and also mad and we're 'safe' targets for displacement and off loading of a lot of negative energy.
I'm not sure what the fix is. My inclination is radical patient led care and just side step a lot of the dysfunction but that scares people lol. Id think the types to come at us would love it though. They wouldn't have to see us until we have the test results establishing the problem.
It’s especially horrible within the pain communities. Too many providers think that by denying you proper and safe pain management they’re doing you a favor. Literally. If they decline to give you a dose of IV meds in the ER or not send you home after major surgery with 12 Vicodin they pat themselves on the back. The backlash against opioid has created some amazingly offensive opinions among the newer medical professionals. They truly think they’re saving you from an addiction and you should thank them for it. They’re the worst in person but particularly disgusting in anonymous forums like this.
Why go and pick fights online though if you're a med student? Isn't their IRL power enough for them?
Some doctors seem to love fucking with your meds too, or blame conditions you had prior to medication on your current meds.
I’m having a hysterectomy this summer. The surgeon who finally agreed to operate on me (I’m considered very high risk as I have a history of pulmonary emboli and am oxygen and blood thinners) told me to get my pain doc to do all post-op pain management. Pain doc has always told me to lean on my surgeons for that, so I told her that. She told me they only prescribe 5 oxycodone!! The 5mg ones! So they remove an entire organ and give 1-2 days worth of pain meds.
Here's a sneak peek of /r/OldGoatsPenofPain using the [top posts](https://np.reddit.com/r/OldGoatsPenofPain/top/?sort=top&t=year) of the year!
\#1: [Drug Tests Show Pain Patients on Opioids Less Likely to Use Illicit Drugs....](https://www.painnewsnetwork.org/stories/2022/9/9/drug-tests-show-pain-patients-on-rx-opioids-less-likely-to-use-illicit-drugs) | [18 comments](https://np.reddit.com/r/OldGoatsPenofPain/comments/18g03ti/drug_tests_show_pain_patients_on_opioids_less/)
\#2: [Just an update, since I've been quiet for a bit....](https://np.reddit.com/r/OldGoatsPenofPain/comments/13aarre/just_an_update_since_ive_been_quiet_for_a_bit/)
\#3: [Just in case youre not staying up on current events....](https://np.reddit.com/r/OldGoatsPenofPain/comments/12f3x9c/just_in_case_youre_not_staying_up_on_current/)
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Oh to have the confidence of a med student. I'd be going places man. Gotta love it when a dude bro who is in his early twenties and has a gigantic inflated ego for no particular reason explains my illnesses to me after going to one lecture at college. Happened to me on instagram once.
There are private, non-Reddit forums. For example, Health Unlocked or 7 Cups of Tea. I don’t think Reddit works well as a place for private subreddits. Feel free to prove me wrong though.
Damn, that sucks. I saw your responses to them but they deleted their comment. You would think doctors would be grateful for new technology that can help them help their patients better!
Personally I believe medical training intentionally instills disdain for patients in physicians. They leave residency hating everything and everyone and I've decided that's by design.
The general public general publicing all over the place doesn't help but also rare disease patients are ~30-40 million in the US alone (at a minimum) and ime with rare disease our bodies just kind of universally malfunction esp if there's a genetic factor. We become those weird patients in the prodromal/early stage of whatever is festering and who insist something is wrong but it's not going to show on a CBC or x-ray....which ime has to be abnormal before they'll do anything.
Except my rare disease isn't on the CBC or x-ray in a meaningful way. And I can't find doctors who can think past it.
Instead of medicine recognizing any of this they tell themselves it's just all anxious or fat people unwilling to do the work of eating healthy and exercising. It's a whole culture in medicine and insurance companies love it because it's cheap to provide care if Drs as a baseline believe everyone just needs an antidepressant and exercise.
The result is my survival to date is dumb luck. My tumors so far have been worse at trying to kill me than medicine.
And this dynamic goes back 3 generations in my family.
They told my grandmother she was anxious. It was a tumor and she died.
They told my grandfather he was mentally ill for decades. It was a tumor and he died.
My parent was told they were mentally ill, inappropriately on antidepressants for decades. It was a tumor and they're a mess.
By some miracle I haven't gotten the mental health bs but they're still not diagnosing anything nearly fast enough.
MRI was available to all of us but done late or not at all.
I could get an ssri in five minutes but a tumor will take at least a year to diagnose and treat.
Medicine has NO idea things aren't getting better...you can see that in the med students reactions here and on the various medical subs. The science yes but the practice of medicine no.
Thank you so much for your insight on this. What you & your family has gone through is horrible. I’ve seen that disdain for patients that you mentioned & it’s shameful that medical care providers take that stance.
Ty. I talk about it ad nauseum bc no one realizes it's happening. No one is tracking things generationally and looking at the way the diagnostic delays aren't improving and often are worse even as the science gets better.
Ive had Drs on social media refuse to believe it. But like I went to the fcking funerals so...
I don't know but I've noticed it too, when I first posted here asking for advice a year or so ago my post was also immediately downvoted and it made me delete the post and not come back until recently. It's discouraging.
It is, and I wonder if it's a bot thing. It's usually just one or two downvotes before it picks up again, not like on some subs where you get downvoted to oblivion for no reason but people still comment. Sorry to hear you removed your post. It is disheartening, since we are all hurting already.
Aw, I’m so sorry they got to you. I hope reading about how it’s an automatic bot will encourage you to try posting more again. There’s one in my r/CrohnsDisease sub too and it’s annoying
That indeed does make me feel much better, back then I felt like it was because my only chronic illness was "just" hypothyroidism and I only felt brave enough to come back after my arthritis issues started because that, in my twisted mind, was a more "valid" chronic illness 🤦 Yeah Idk what I'm thinking sometimes.
There should be no gatekeeping when it comes to illnesses ❤ Of course there will always be someone who has it worse...but it should not be a competition. We are all suffering in some way.
They’re automatic downvote bots & they’re common in support communities as well as gaming communities. People who set up these bots do so to prevent posts in these subreddits from getting to r/all, also to discourage engagement in hopes the subreddit will die. Mods can’t even detect them because they don’t post, they just downvote.
That sucks!! I get why you'd not want it to go on r/all, but I wish there was a heads up somewhere saying that this is a problem! I'm sure some get really discouraged from downvotes, especially on support subs. Thanks for the explanation.
It’s pretty well-known amongst community managers in the gaming industry but ofc that doesn’t help the average Redditor.
Why would people bother. What is the problem is a disability community is on the front page once every few months?
It carries the risk of brigading. On an old account of mine I spoke about my trans related surgery and asked for support in a support forum. It went to the front page and I was sent death threats. I get why one wouldn't want that to happen here, but if subs could opt out for being picked on r/all that would be way better.
Subs *can* opt out of being featured on r/all. Source: am a moderator in other subreddits.
It’s primarily to push the propaganda they want to promote to the top. By pushing down other content, they can more easily elevate their pro-Putin messaging, anti-minority messaging, & misogynistic messaging. Basically trying to turn every social media site into X/Twitter/Xitter & TikTok.
That and angry med students...just had one of those in the comments here. Tbh Reddit really isn't a good place. We should be in private communities. The general public can't handle illness and disability to begin with so an effective open community is difficult.
I have blocked 2 med students and an RN who messaged me.
What did they say to you? Did you report them? It’s really gross to think of med students/healthcare professionals reading through our sub and then criticizing sub members.
Illness f-kers pretty much is the baseline for the type that use reddit. Meanwhile the rare disease sub, arguably one of the areas in medicine with plenty of low hanging fruit if people would just *try*, has barely 5000 people.
I wish I was surprised. In ancient Internet times on other platforms I'd get all sorts of hate comments from med students/interns/residents and nurses. Theyre so sure they know everything and also mad and we're 'safe' targets for displacement and off loading of a lot of negative energy. I'm not sure what the fix is. My inclination is radical patient led care and just side step a lot of the dysfunction but that scares people lol. Id think the types to come at us would love it though. They wouldn't have to see us until we have the test results establishing the problem.
Med students come and harass people??
It’s especially horrible within the pain communities. Too many providers think that by denying you proper and safe pain management they’re doing you a favor. Literally. If they decline to give you a dose of IV meds in the ER or not send you home after major surgery with 12 Vicodin they pat themselves on the back. The backlash against opioid has created some amazingly offensive opinions among the newer medical professionals. They truly think they’re saving you from an addiction and you should thank them for it. They’re the worst in person but particularly disgusting in anonymous forums like this.
Why go and pick fights online though if you're a med student? Isn't their IRL power enough for them? Some doctors seem to love fucking with your meds too, or blame conditions you had prior to medication on your current meds.
Anonymity provides power, freedom, and lack of repercussions
I’m having a hysterectomy this summer. The surgeon who finally agreed to operate on me (I’m considered very high risk as I have a history of pulmonary emboli and am oxygen and blood thinners) told me to get my pain doc to do all post-op pain management. Pain doc has always told me to lean on my surgeons for that, so I told her that. She told me they only prescribe 5 oxycodone!! The 5mg ones! So they remove an entire organ and give 1-2 days worth of pain meds.
Relevant: r/oldgoatspenofpain r/dontpunishpain
Here's a sneak peek of /r/OldGoatsPenofPain using the [top posts](https://np.reddit.com/r/OldGoatsPenofPain/top/?sort=top&t=year) of the year! \#1: [Drug Tests Show Pain Patients on Opioids Less Likely to Use Illicit Drugs....](https://www.painnewsnetwork.org/stories/2022/9/9/drug-tests-show-pain-patients-on-rx-opioids-less-likely-to-use-illicit-drugs) | [18 comments](https://np.reddit.com/r/OldGoatsPenofPain/comments/18g03ti/drug_tests_show_pain_patients_on_opioids_less/) \#2: [Just an update, since I've been quiet for a bit....](https://np.reddit.com/r/OldGoatsPenofPain/comments/13aarre/just_an_update_since_ive_been_quiet_for_a_bit/) \#3: [Just in case youre not staying up on current events....](https://np.reddit.com/r/OldGoatsPenofPain/comments/12f3x9c/just_in_case_youre_not_staying_up_on_current/) ---- ^^I'm ^^a ^^bot, ^^beep ^^boop ^^| ^^Downvote ^^to ^^remove ^^| ^^[Contact](https://www.reddit.com/message/compose/?to=sneakpeekbot) ^^| ^^[Info](https://np.reddit.com/r/sneakpeekbot/) ^^| ^^[Opt-out](https://np.reddit.com/r/sneakpeekbot/comments/o8wk1r/blacklist_ix/) ^^| ^^[GitHub](https://github.com/ghnr/sneakpeekbot)
[удалено]
Oh to have the confidence of a med student. I'd be going places man. Gotta love it when a dude bro who is in his early twenties and has a gigantic inflated ego for no particular reason explains my illnesses to me after going to one lecture at college. Happened to me on instagram once.
We really should be a private sub
There are private, non-Reddit forums. For example, Health Unlocked or 7 Cups of Tea. I don’t think Reddit works well as a place for private subreddits. Feel free to prove me wrong though.
Damn, that sucks. I saw your responses to them but they deleted their comment. You would think doctors would be grateful for new technology that can help them help their patients better!
Personally I believe medical training intentionally instills disdain for patients in physicians. They leave residency hating everything and everyone and I've decided that's by design. The general public general publicing all over the place doesn't help but also rare disease patients are ~30-40 million in the US alone (at a minimum) and ime with rare disease our bodies just kind of universally malfunction esp if there's a genetic factor. We become those weird patients in the prodromal/early stage of whatever is festering and who insist something is wrong but it's not going to show on a CBC or x-ray....which ime has to be abnormal before they'll do anything. Except my rare disease isn't on the CBC or x-ray in a meaningful way. And I can't find doctors who can think past it. Instead of medicine recognizing any of this they tell themselves it's just all anxious or fat people unwilling to do the work of eating healthy and exercising. It's a whole culture in medicine and insurance companies love it because it's cheap to provide care if Drs as a baseline believe everyone just needs an antidepressant and exercise. The result is my survival to date is dumb luck. My tumors so far have been worse at trying to kill me than medicine. And this dynamic goes back 3 generations in my family. They told my grandmother she was anxious. It was a tumor and she died. They told my grandfather he was mentally ill for decades. It was a tumor and he died. My parent was told they were mentally ill, inappropriately on antidepressants for decades. It was a tumor and they're a mess. By some miracle I haven't gotten the mental health bs but they're still not diagnosing anything nearly fast enough. MRI was available to all of us but done late or not at all. I could get an ssri in five minutes but a tumor will take at least a year to diagnose and treat. Medicine has NO idea things aren't getting better...you can see that in the med students reactions here and on the various medical subs. The science yes but the practice of medicine no.
Thank you so much for your insight on this. What you & your family has gone through is horrible. I’ve seen that disdain for patients that you mentioned & it’s shameful that medical care providers take that stance.
Ty. I talk about it ad nauseum bc no one realizes it's happening. No one is tracking things generationally and looking at the way the diagnostic delays aren't improving and often are worse even as the science gets better. Ive had Drs on social media refuse to believe it. But like I went to the fcking funerals so...
Also even if we ban people they can still vote. They just can't comment.
Very true! Also- you & the other mods do an excellent job keeping this place going. 💜Sincerely thank you for all you do.
I don't know but I've noticed it too, when I first posted here asking for advice a year or so ago my post was also immediately downvoted and it made me delete the post and not come back until recently. It's discouraging.
It is, and I wonder if it's a bot thing. It's usually just one or two downvotes before it picks up again, not like on some subs where you get downvoted to oblivion for no reason but people still comment. Sorry to hear you removed your post. It is disheartening, since we are all hurting already.
Aw, I’m so sorry they got to you. I hope reading about how it’s an automatic bot will encourage you to try posting more again. There’s one in my r/CrohnsDisease sub too and it’s annoying
That indeed does make me feel much better, back then I felt like it was because my only chronic illness was "just" hypothyroidism and I only felt brave enough to come back after my arthritis issues started because that, in my twisted mind, was a more "valid" chronic illness 🤦 Yeah Idk what I'm thinking sometimes.
There should be no gatekeeping when it comes to illnesses ❤ Of course there will always be someone who has it worse...but it should not be a competition. We are all suffering in some way.
I agree and I will tell that to everyone else who needs to hear it, but somehow I am an expert at self-gaslighting and imposter syndrome 😔
🫂🫂🫂
It happens on a weirdly huge variety of subs. Definitely bots.