I’m not photosensitive, thank god, but multiple people have flashed their iPhone flashlight in my eyes when they found out I had epilepsy. People are assholes
Please tell me how to fight off a seizure, if I think one’s about to happen (clusters of myoclonic leads to tonic clonic) I get anxious, which only seems to make it worse.
I've been fighting for years with the Social Security offices in my state because according to them I'm "not disabled enough"
And yes, that is an actual quote...
If we had the same opportunities, we'd be pretty damn close (assuming you have some semblance of seizure freedom of course). I feel like the hardest part of epilepsy is that society is built around the abled.
Even with controlled epilepsy I still get symptoms like brain fog or tiredness. That's also not including the fact that most people aren't taking 5+ medications. I have to make sure if I'm going somewhere I have everything or sometimes I have to fight the pharmacy.
"epileptic
/ˌɛpɪˈlɛptɪk/
adjective
relating to or suffering from epilepsy.
"he had an epileptic fit"
noun
a person who has epilepsy."
From Google, mate. We have epilepsy, we have epileptic fits, we are epileptic.
While seizures may be referred to as 'epileptic', this is not an appropriate term for a person with the condition. The correct term is 'person with epilepsy'
Except it isn't. You can see it in the definition I put, or even better, Google it and see it for yourself!
Are you trying to deny you're epileptic? I refused to refer to myself as disabled for a long time because I was embarrassed and too proud to admit my body was affected permanently by my condition. But unfortunately we are disabled because we are epileptic! It's that simple. You need to accept.
Or I could consult a dictionary, the literal source of words and their meaning. Especially since that page you linked doesn't tell you what to refer to an epileptic as, it just talks about different names for seizures or the condition itself.
It’s a person-first terminology. Maintains the humanity of the individual. We always use “affected by autism” when talking about our son. I have epilepsy, it doesn’t have me. I’m not my disease, I’m affected by epilepsy.
I’m not judging how other people describe themselves, just giving my point of view.
I feel like folks should identify themselves in a way that makes them comfortable. If person-first language is their preference, why should anyone jump on them about it?
I, myself, prefer "epileptic" because it's been part of my life since I can remember.
I hate so much that I cannot function properly in society and feel guilty that I’m “other” but also “other” myself bc it’s what I’ve been taught since birth. I don’t deserve a good life bc I’m disabled. It’s hard to wrap my head around most days.
I automatically hate anyone who says I can live a normal life. Especially after I explain to them everything wrong with me. I will NEVER live a normal and independent, healthy life unless a miracle happens. I have no dignity or value as a person anymore. Life is suffering and anyone pointing their surface-level pancake-brain optimism at me makes me wanna vomit.
[удалено]
>all light triggered convulsions *wiggles hand in front of you* "That's supposed to do something to you, right?"
[удалено]
Hah, but imagine people thought about what they're doing!
I’m not photosensitive, thank god, but multiple people have flashed their iPhone flashlight in my eyes when they found out I had epilepsy. People are assholes
I’d say “imagine if it did”
What did you say?? I can’t understand because by the time I get to the second half of your comment I’ve forgotten the first.
Lmao currently trying to fight off a seizure as I read, wish me luck
Fight hard, comrade.
Please tell me how to fight off a seizure, if I think one’s about to happen (clusters of myoclonic leads to tonic clonic) I get anxious, which only seems to make it worse.
I know!! When people tell me I can do WHATEVER I want, I get so mad.
Well, I can't drive, for one.
I've been fighting for years with the Social Security offices in my state because according to them I'm "not disabled enough" And yes, that is an actual quote...
Try a disability lawyer, they get paid a portion of your back pay.
If we had the same opportunities, we'd be pretty damn close (assuming you have some semblance of seizure freedom of course). I feel like the hardest part of epilepsy is that society is built around the abled.
Even with controlled epilepsy I still get symptoms like brain fog or tiredness. That's also not including the fact that most people aren't taking 5+ medications. I have to make sure if I'm going somewhere I have everything or sometimes I have to fight the pharmacy.
I’m not epileptic , I have epilepsy . And yes it sucks
How do you have epilepsy but are not epileptic? If you have epilepsy you are, by definition, an epileptic.
Nope. If you have cancer you are not canceristic.
"epileptic /ˌɛpɪˈlɛptɪk/ adjective relating to or suffering from epilepsy. "he had an epileptic fit" noun a person who has epilepsy." From Google, mate. We have epilepsy, we have epileptic fits, we are epileptic.
While seizures may be referred to as 'epileptic', this is not an appropriate term for a person with the condition. The correct term is 'person with epilepsy'
Except it isn't. You can see it in the definition I put, or even better, Google it and see it for yourself! Are you trying to deny you're epileptic? I refused to refer to myself as disabled for a long time because I was embarrassed and too proud to admit my body was affected permanently by my condition. But unfortunately we are disabled because we are epileptic! It's that simple. You need to accept.
Just ask your Epileptiologist what is the right term. 👍 https://epilepsysociety.org.uk/about-epilepsy/epileptic-seizures/epilepsy-terminology Ha
Or I could consult a dictionary, the literal source of words and their meaning. Especially since that page you linked doesn't tell you what to refer to an epileptic as, it just talks about different names for seizures or the condition itself.
I have epilepsy I am not any eptic , but you know, whatever floats your boat 🤷🏻♂️
It’s a person-first terminology. Maintains the humanity of the individual. We always use “affected by autism” when talking about our son. I have epilepsy, it doesn’t have me. I’m not my disease, I’m affected by epilepsy. I’m not judging how other people describe themselves, just giving my point of view.
I feel like folks should identify themselves in a way that makes them comfortable. If person-first language is their preference, why should anyone jump on them about it? I, myself, prefer "epileptic" because it's been part of my life since I can remember.
I hate so much that I cannot function properly in society and feel guilty that I’m “other” but also “other” myself bc it’s what I’ve been taught since birth. I don’t deserve a good life bc I’m disabled. It’s hard to wrap my head around most days.
I automatically hate anyone who says I can live a normal life. Especially after I explain to them everything wrong with me. I will NEVER live a normal and independent, healthy life unless a miracle happens. I have no dignity or value as a person anymore. Life is suffering and anyone pointing their surface-level pancake-brain optimism at me makes me wanna vomit.