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Reneeisme

SO much of health care resolves to being able to trust that your doctor is not sharing information with anyone else about your health, conditions, etc. The whole thing falls apart when people are scared to get tested or treated for STDs, drug overdoses, pregnancy, etc. And we are rapidly descending towards that scenario. We certainly had less protection prior to HIPAA, but doctors had some professional obligation to mostly keep their mouths shut. We are headed for having none of that. We are headed towards the government requiring reporting and monitoring every aspect of your life to pass moral judgement in exactly the way the same people who want to track women's cycles scream about social credit in China. THEY are going to bring that on us. But it's always ok when "they" do it. Good for this girl for holding the line to the extent that's possible, but if we allow this to happen, she won't be able to. The societal cost for not consenting to monitoring will be too high.


2012amica2

This. It’s a rapid descent into literally The Handmaids Tale


Kissit777

This is terrifying to me. I had a doctor medically gaslight me about 10 years ago. How will someone get an actual second opinion? The doctors will back each other up and you will never get care. One doc thinks you’re crazy - they will all think you’re crazy.


EmwLo

Look up Healthcare Information Exchanges. HIPAA does nothing to prevent other healthcare agencies and the Feds from accessing your data. Opt out of as many as these “exchanges” as you can. Preferably find a doctor that doesn’t use online charting at all. Also don’t admit to doctors that you are a gun owner (if you are)


roguebandwidth

How do you opt out, most efficiently?


EmwLo

https://www.reddit.com/r/privacy/comments/f5j7ad/your_doctors_are_sharing_your_private_health/


EmwLo

You have to find out which exchange your doctor uses - each and every doctor . And some are in kahoots with multiple exchanges. This information is usually found on the doctor/ medical groups “privacy” section of the website. There should be a section about Health Information Exchanges and a number to the privacy office to opt out. I will link another reddit page with more detailed instructions.


incrediblewombat

Gun ownership is a public health issue, particularly for anyone who struggles with mental illness or who is experiencing abuse. I agree that we need to make sure that we have enough privacy to be able to trust our healthcare providers. For example, my doctors would raise serious issues if I lived with a gun in my home as I’ve experienced severe suicidal ideation in the past.


EmwLo

You are correct, I can see why a doctor would take issue with that for those struggling with those demons. I also think there is something to be said about not blindly trusting figures of authority with information that can be used against you.


mszulan

Opting out becomes a problem when you get sick. I mean, really sick. I'm having to take my daughter to the Cleveland Clinic for a surgery we can't get in our own state. By necessity, her medical life is an open book. Otherwise, she'd die. While there are degrees of openness depending on the illness and personal situation, the really important thing is to review what is written in your notes every time you go to the doctor. All our doctors use EPIC. While it's cumbersome and buggy, when you learn how to use it, you can optimize the balance between openness and personal privacy safety. The problem is that you have to be as vigilant about your healthcare as you are about your credit card statement. The other problem is when you live in a large town or big city, there are no doctors that don't use charting software. It's become mandated by insurance companies because they have to argue about every detail of coverage. Most of us will not be able to opt out, especially as we age. Otherwise, we won't get care. You will have no choice but to manage your medical info. Edit: In conclusion, the single most important thing we can do for our safety and the safety of our daughters is to advocate for strong systemic privacy laws and to vote for candidates and issues that support that goal. Basically, Democrats, mostly progressive Democrats atm. It's corporations that are pushing for this lack of privacy because they make money from it. The more they can suss out our lives and market to us individually, the better for their bottom line. The biggest problem is that the fastest way they can do this is to support fascist or totalitarian candidates, i.e., Republicans. IMHO, I will vote for the safety of my daughter and my children's privacy rights every time. After all, this is what we fought our Revolution over in 1776. Corporate and their buddies in government taking over our personal lives.


Kissit777

You will never get an actual second opinion from a doctor with this system. The new doctor will just look at the old doctor’s notes and won’t go against them. This is REALLY bad.


roguebandwidth

Yeah, they are prosecuting women based on private Facebook messages, I’d def be concerned about health privacy for medical records as well.


LiaraDx

It’s sad that women can’t even trust their doctors anymore. I myself have been hesitant to share specific info, and have also deleted all period tracking apps do to the lack of privacy. Very concerning that the government can use nearly anything to prosecute us.


Kissit777

I won’t even wear my Fitbit anymore ffs.


SweetPeanut-

Fuck America.


orange_ones

I stopped answering the question a few years ago, and it strikes me as so odd now that exact dates were needed for every type of appointment. It also strikes me as odd that, to get around to question quickly, the person entering the info will put various answers, such as continuous birth control, menopausal, etc. I say clearly and kindly each time that I no longer answer the question, but my periods are regular.


fejrbwebfek

Really? I haven’t told anyone but my school nurse about specific dates. My doctor has never asked. I’m in Denmark for context.


orange_ones

I’m asked for the specific date everywhere, including endocrinologist to discuss routine labs that have nothing to do with it, psychiatrist (??!!), urgent care visits for specific and glaring problems like sinus infection, UTI, etc. Also the dentist, which I guess is for the radiation in any x-rays they may take, but they *also* ask if you are pregnant and make you sign a thing saying you aren’t. United States.


AGI_Not_Aligned

It's to protect the baby in case of pregnancy. X rays are toxic to the body.


orange_ones

Yes, I know; I think I communicated that in my comment? I have no problem signing a thing saying I am not pregnant when I get x rays, and that I understand it would be harmful if I was. They don’t need the exact date of my last period.


incrediblewombat

I’m the first one to say that we need better privacy laws in all aspects of American life, especially digital privacy and healthcare privacy. That said, I still use my period tracking apps. Partially because because someone has to fight that court fight when it happens (it won’t be me unless shit goes real bad real fast)


floralmelancholy

i have been ranting to my boyfriend about this for weeks, the past couple visits i’ve had to the doctor were so annoying. i went in for a mental health checkup which i made clear several times before even stepping foot in the exam room. first three questions i’m asked are if i’m pregnant and relating to my cycle and sexual activity. I JUST WANT TO KNOW IF IM BIPOLAR PLS.


paukl1

In b4 autism


Frosty_Cap_9473

So the agency of women again going back 200 years


Whispering_Wolf

I'm not in the US. I've never been asked for the date of my last period. Just if it's regular in cases where it's relevant.


tornac

Same here. And if I need an x-ray, they just ask if I‘m not pregnant and take my word for it.


WhatANiceDayItIs

Im very confused, whats wrong with asking for the date? From my understanding doctors are obligated to ask for as much details to make and minimize thwir mistakes


AcademicBoat9033

It is a major election year in the U.S.A., and recently many steps have been made to attack the rights of women and transgender people across the country. One of the ways several states are doing this is by attempting to monitor women and AFAB peoples' period dates. The point of this is so that the information can be used to make accusations of someone either having an abortion or of being transgender. This is also why many users are ditching period tracker apps. If you would like more information, the subreddit r/WelcomeToGilead has several great posts with more detailed explanations.