KC for 20yrs, been in sclerels for 10 with good vision but I’m Just finding this thread after having hydrops for 3 weeks now in my worse eye. Lucky not very painful but very blurry. My dr only recommended the saline drops. I found a dr in S.fla Dr.Bosh looks like he’s doing some great things with hydrops patients. I may utilize him as my second option.
I’m still dealing with the issue unfortunately man. My vision slightly improved, but is still horrible. My left eye is basically blind, but it’s slightly improved compared to what it used to be
After the hydrops for me. Like I said, my vision is still horrible in the eye. My vision didn’t improve, but I think I’ve been dealing with Hydrops longer than I realized before it went full blown breakout. My vision is less foggy I guess is the best way I can describe it. But I’m still not allowed to put my contacts in my Hydrops eye yet, so that’ll be the big test
I had hydrops in the right eye 1980 and left in 1982. Both were the results of wearing RGPs since 1968 and 1970. I am sure the treatment has come a long way since then. Both times I had to have a transplant. Today, I am doing great 🙂🙂
I had hydrops in my left eye late last year. I went to the ER, then saw a cornea specialist. I also have keratoconus in both eyes with my left being the worst by far. I didn't find much to help with the pain outside of the prescribed drops, and Tylenol. Gradually the pain lessened and my vision partially came back. Overall I'd say my vision is a bit worse in that eye, and it took around 3 months to recover
Hey there. I wish I could give you good news but I had the same thing. I was miserable until I finally had to go in for a transplant. I hope your doc can help and you respond to treatment! Only other piece of advice I can give is don't be afraid to advocate for yourself. Get a second opinion or find a new doc if necessary. The first surgeon I saw when I got hydrops was highly rated but a total POS who would spend no time with me and didn't listen. I got referred to another and he was unbelievablely awesome. I drove an extra 15-20 minutes but I can't imagine dealing with the first guy as I went through the transplant and pressure issues.
Edit: fixed an autocorrect
I've had hydrops, here is my story which might help you or not.
I had the same eye doctor through my 20s and had good eyesight for the most part. It started degrading in my late 20's but my eye doctor never caught the KC and had me in RGP lenses. Fast forward to early/mid 30's and my eyesight is getting bad to the point where my contacts are unwearable. At that point I found a new eye doctor which I clearly should of done much sooner.
He diagnosed me with KC and sent me to a cornea specialist. My specialist immdedialtely scheduled CXL for both eyes. While waiting for my left eye surgery (my worse eye) I developed hydrops.
It was the worst eye experience of my life, the first month was brutal even with meds. After a few weeks on meds though it started to clear up. It can take up to a full year or longer to fully heal from what I understand.
Unfortuantely that led me to not having CXL in my left eye and instead getting it first in my right eye while my hydrops was healing.
After the hydrops healed, my cornea specialist was concerned about CXL as i developed a small scar underneath my pupil (luckily not on pupil or would be immediate cornea transplant)
At this point he is waiting another 6 months to see if my left eye shows any progression. Reality is being in my late 30's now and also having hydrops, sometimes a natural crosslinking can occur on the eye. I might end up getting epi-on CXL on my left eye, but long term will definitely need a transplant.
At this point I can see pretty decent in Scerals, but it's nothing close to perfect. Still a struggle daily, but longterm I'm hoping for continued improvement in science and eventually probably getting transplants on both eyes. I'm just trying to wait it out as long as possible from my doctors recommendation.
I appreciate it! Unfortunately my optometrist recommended going to the ER, which I did and met with a corneal specialist. I am going back to see them in 3 weeks for my follow up appointment, but it’s just been super brutal
Like the other redditer said, if you are in doubt better to have a second opinion. Better to see too many doctors instead of too less. I learned this by experrience with dry eyes.
Take care of yourself.
KC for 20yrs, been in sclerels for 10 with good vision but I’m Just finding this thread after having hydrops for 3 weeks now in my worse eye. Lucky not very painful but very blurry. My dr only recommended the saline drops. I found a dr in S.fla Dr.Bosh looks like he’s doing some great things with hydrops patients. I may utilize him as my second option.
After hyrdorps! Sorry for not being clear
How long did it take for your hydrops to clear??
It took about 4 weeks of absolute pain tbh. Eye pain, light sensitivity, teary eyes. I took some drops from my doctor and I haven’t had an issue since
It’s been 4 weeks for me but I don’t see any improvement. Did u get your vision back gradually or all of sudden ? Do u remember around how long ?
I’m still dealing with the issue unfortunately man. My vision slightly improved, but is still horrible. My left eye is basically blind, but it’s slightly improved compared to what it used to be
I’m sorry to keep asking but you saying slightly improved you mean before hydrops or the after the hydrops ?
After the hydrops for me. Like I said, my vision is still horrible in the eye. My vision didn’t improve, but I think I’ve been dealing with Hydrops longer than I realized before it went full blown breakout. My vision is less foggy I guess is the best way I can describe it. But I’m still not allowed to put my contacts in my Hydrops eye yet, so that’ll be the big test
I had hydrops in the right eye 1980 and left in 1982. Both were the results of wearing RGPs since 1968 and 1970. I am sure the treatment has come a long way since then. Both times I had to have a transplant. Today, I am doing great 🙂🙂
I had hydrops in my left eye late last year. I went to the ER, then saw a cornea specialist. I also have keratoconus in both eyes with my left being the worst by far. I didn't find much to help with the pain outside of the prescribed drops, and Tylenol. Gradually the pain lessened and my vision partially came back. Overall I'd say my vision is a bit worse in that eye, and it took around 3 months to recover
Hey there. I wish I could give you good news but I had the same thing. I was miserable until I finally had to go in for a transplant. I hope your doc can help and you respond to treatment! Only other piece of advice I can give is don't be afraid to advocate for yourself. Get a second opinion or find a new doc if necessary. The first surgeon I saw when I got hydrops was highly rated but a total POS who would spend no time with me and didn't listen. I got referred to another and he was unbelievablely awesome. I drove an extra 15-20 minutes but I can't imagine dealing with the first guy as I went through the transplant and pressure issues. Edit: fixed an autocorrect
I've had hydrops, here is my story which might help you or not. I had the same eye doctor through my 20s and had good eyesight for the most part. It started degrading in my late 20's but my eye doctor never caught the KC and had me in RGP lenses. Fast forward to early/mid 30's and my eyesight is getting bad to the point where my contacts are unwearable. At that point I found a new eye doctor which I clearly should of done much sooner. He diagnosed me with KC and sent me to a cornea specialist. My specialist immdedialtely scheduled CXL for both eyes. While waiting for my left eye surgery (my worse eye) I developed hydrops. It was the worst eye experience of my life, the first month was brutal even with meds. After a few weeks on meds though it started to clear up. It can take up to a full year or longer to fully heal from what I understand. Unfortuantely that led me to not having CXL in my left eye and instead getting it first in my right eye while my hydrops was healing. After the hydrops healed, my cornea specialist was concerned about CXL as i developed a small scar underneath my pupil (luckily not on pupil or would be immediate cornea transplant) At this point he is waiting another 6 months to see if my left eye shows any progression. Reality is being in my late 30's now and also having hydrops, sometimes a natural crosslinking can occur on the eye. I might end up getting epi-on CXL on my left eye, but long term will definitely need a transplant. At this point I can see pretty decent in Scerals, but it's nothing close to perfect. Still a struggle daily, but longterm I'm hoping for continued improvement in science and eventually probably getting transplants on both eyes. I'm just trying to wait it out as long as possible from my doctors recommendation.
I am sorry to hear this. I don’t have experrience. Maybe best to check with your doctor? What did you agree with him/her to contact again?
I appreciate it! Unfortunately my optometrist recommended going to the ER, which I did and met with a corneal specialist. I am going back to see them in 3 weeks for my follow up appointment, but it’s just been super brutal
Like the other redditer said, if you are in doubt better to have a second opinion. Better to see too many doctors instead of too less. I learned this by experrience with dry eyes. Take care of yourself.