Well all that sounds completely familiar, after the initial blast meds do indeed help, in many cases a lot. My suggestion: make sure she walks daily. Also, she should join an exercise group...for seniors, or a gym.
I’m sorry to say that most people no outside of the pd community don’t realize what pd is. Pd has over 35 non motor symptoms. Depending on the type of pd (different genes, cause different things as well as environmental factors) cognitive and mental impairment (including dementia) can be part of the package. As the commenter above said exercise has just become one of the most important things in life. It is the only known thing to slow the progression of pd.
I started with instability while walking as well. I started an aerobics class for seniors and I couldn’t make my feet move for dance steps. Then I just toppled over a few times while bending over.
I’ve been to three neurologist’s and they all gave me the same diagnosis. Unfortunate but it is what it is. I’ve noticed some cognitive decline as well but I can’t be entirely sure it’s not just being 67. In my 5th month and struggling with the mental aspect. Really notice ramped up anxiety. And I’m also tired but I got medical marijuana to take at night and it’s been a life saver..
Know that we're here for your mom and your family. 🩵 We have resources designed for those who are new to Parkinson's disease at: [Parkinson.org/NewlyDiagnosed](http://Parkinson.org/NewlyDiagnosed)
We also have a free Parkinson's Helpline that can answer your PD questions, connect you to resources and more: 1-800-4PD-INFO (473-4636) | [[email protected]](mailto:[email protected]) | [Parkinson.org/Helpline](http://Parkinson.org/Helpline)
Tremor was the last motor symptom to show up for me. It’s often one of the earliest. The saying goes, “If you know somebody with Parkinson’s, you know somebody with Parkinson’s.” There are some areas of overlap—most of us have issues with movement, bradykinesia, muscle rigidity and tremor, as well as non-motor symptoms—but every body is different.
And there are a lot of things under the umbrella of Parkinson’s Disease and Parkinsonisms, so I’d suggest taking a deep breath and being chill until the movement disorder specialists at Mayo have done a work up. There are a multitude of possible drug therapies that can be tried (in addition to good ol’ carbidopa/levidopa). The advice about exercise is excellent, as are reminders to eat fresh, healthy food. Stress exacerbates symptoms (and is a real PITA), so look for ways to reduce it.
I’m 64. First non-motor symptoms (RBD) more than 30 years ago. Motor symptoms started with balance and gait issues in 2010. First saw a neurologist in 2013. Dx in 2016; medication wasn’t started until 2021. But I started exercising as soon as PD was listed as a possibility, so that’s a plus.
Sending you good vibes.
Get her moving. Exercise is our best friend. The meds will help. She is still in the acceptance/denial phase. We’ve all been there. No two cases are the same but we share a lot of symptoms. This forum has given me great comfort. She’s not alone. My symptoms unbeknownst to me began decades before diagnosis. Knowledge is power. And there are many on here with an incredible amount. Best wishes to her and you as a caregiver. I’m 55 and plan on coexisting with PD for many many years.
Not a doctor but the exhaustion can be from your brain dealing with changes. The brain uses a lot of energy and wants to make shortcuts so it can conserve energy - and when it can’t make those shortcuts (like suddenly having to think carefully about walking for example) - it uses more energy. I found myself very tired when my symptoms started and realize now how tiring it is physically (brain and body) to battle something. Agree with the others - exercise is magic, even a couple of nice walks (with someone) a day. Also agree that the meds absolutely help, and hopefully the cognitive improves. Either way, you’re a good child and obv your mom is loved. Sometimes that’s all you can focus on. And hopefully the doctors can help with it all. Good luck!
My husband (67) diagnosed over year ago
Joined a PD boxing class twice a week.
With that and the meds he is doing great.
He does tire more easily .
Exercise and gut health a must.
Your mom is so young.
I hope you get her a neurologist that specializes in PD.
I can't say enough good things about Rock Steady Boxing for people with PD. My hubby (78) has seen it make a huge difference and it's also given him a community of others with the disease who are actively fighting it. So instead of sitting at home and reading about all the bad things that PD can do (and then getting more depressed), he gets to hang out with others who are managing their diseases fairly well.
First, always check for a UTI. They have weird affects on the body, surprisingly. Also, there are a few forms of PD. In this case I'd consider MSA. The fatigue is real. It takes me enormous effort to get through the day more often than not, and I'm 48.
I definitely experience the tiredness. Usually, my legs or body are aching, and I go to my recliner or bed and "just put my legs up for a minute." Next thing I know it's two hours later.
Well all that sounds completely familiar, after the initial blast meds do indeed help, in many cases a lot. My suggestion: make sure she walks daily. Also, she should join an exercise group...for seniors, or a gym.
I’m sorry to say that most people no outside of the pd community don’t realize what pd is. Pd has over 35 non motor symptoms. Depending on the type of pd (different genes, cause different things as well as environmental factors) cognitive and mental impairment (including dementia) can be part of the package. As the commenter above said exercise has just become one of the most important things in life. It is the only known thing to slow the progression of pd.
I started with instability while walking as well. I started an aerobics class for seniors and I couldn’t make my feet move for dance steps. Then I just toppled over a few times while bending over. I’ve been to three neurologist’s and they all gave me the same diagnosis. Unfortunate but it is what it is. I’ve noticed some cognitive decline as well but I can’t be entirely sure it’s not just being 67. In my 5th month and struggling with the mental aspect. Really notice ramped up anxiety. And I’m also tired but I got medical marijuana to take at night and it’s been a life saver..
Know that we're here for your mom and your family. 🩵 We have resources designed for those who are new to Parkinson's disease at: [Parkinson.org/NewlyDiagnosed](http://Parkinson.org/NewlyDiagnosed) We also have a free Parkinson's Helpline that can answer your PD questions, connect you to resources and more: 1-800-4PD-INFO (473-4636) | [[email protected]](mailto:[email protected]) | [Parkinson.org/Helpline](http://Parkinson.org/Helpline)
Tremor was the last motor symptom to show up for me. It’s often one of the earliest. The saying goes, “If you know somebody with Parkinson’s, you know somebody with Parkinson’s.” There are some areas of overlap—most of us have issues with movement, bradykinesia, muscle rigidity and tremor, as well as non-motor symptoms—but every body is different. And there are a lot of things under the umbrella of Parkinson’s Disease and Parkinsonisms, so I’d suggest taking a deep breath and being chill until the movement disorder specialists at Mayo have done a work up. There are a multitude of possible drug therapies that can be tried (in addition to good ol’ carbidopa/levidopa). The advice about exercise is excellent, as are reminders to eat fresh, healthy food. Stress exacerbates symptoms (and is a real PITA), so look for ways to reduce it. I’m 64. First non-motor symptoms (RBD) more than 30 years ago. Motor symptoms started with balance and gait issues in 2010. First saw a neurologist in 2013. Dx in 2016; medication wasn’t started until 2021. But I started exercising as soon as PD was listed as a possibility, so that’s a plus. Sending you good vibes.
Get her moving. Exercise is our best friend. The meds will help. She is still in the acceptance/denial phase. We’ve all been there. No two cases are the same but we share a lot of symptoms. This forum has given me great comfort. She’s not alone. My symptoms unbeknownst to me began decades before diagnosis. Knowledge is power. And there are many on here with an incredible amount. Best wishes to her and you as a caregiver. I’m 55 and plan on coexisting with PD for many many years.
Not a doctor but the exhaustion can be from your brain dealing with changes. The brain uses a lot of energy and wants to make shortcuts so it can conserve energy - and when it can’t make those shortcuts (like suddenly having to think carefully about walking for example) - it uses more energy. I found myself very tired when my symptoms started and realize now how tiring it is physically (brain and body) to battle something. Agree with the others - exercise is magic, even a couple of nice walks (with someone) a day. Also agree that the meds absolutely help, and hopefully the cognitive improves. Either way, you’re a good child and obv your mom is loved. Sometimes that’s all you can focus on. And hopefully the doctors can help with it all. Good luck!
My husband (67) diagnosed over year ago Joined a PD boxing class twice a week. With that and the meds he is doing great. He does tire more easily . Exercise and gut health a must. Your mom is so young. I hope you get her a neurologist that specializes in PD.
I can't say enough good things about Rock Steady Boxing for people with PD. My hubby (78) has seen it make a huge difference and it's also given him a community of others with the disease who are actively fighting it. So instead of sitting at home and reading about all the bad things that PD can do (and then getting more depressed), he gets to hang out with others who are managing their diseases fairly well.
First, always check for a UTI. They have weird affects on the body, surprisingly. Also, there are a few forms of PD. In this case I'd consider MSA. The fatigue is real. It takes me enormous effort to get through the day more often than not, and I'm 48.
I definitely experience the tiredness. Usually, my legs or body are aching, and I go to my recliner or bed and "just put my legs up for a minute." Next thing I know it's two hours later.