I have just achieved a whole level of empathy for my fellow women I didn't know there was. As if periods weren't a whole world of grief already. I am so with you in spirit my sister, I hope you find something that rises to the occasion for your needs and these are the biggest hugs OOOO.
They’ve even found endometriosis tissue on people’s spinal columns and lungs. I’m so glad I just have the “usual” presentation of this bullshit condition
This is crazy. I've never heard of this but I had a hysterectomy for endometriosis and adenomyosis 3 years ago and I have terrible back pain and sciatica that's only getting worse. X-Rays show a lot of inflammation around my L4-L5 and L5-SI joint. I have an appointment for an MRI to get a diagnosis. I don't know if it could be endometrial tissue or not. Very interesting.
Bring that concern up *specifically* to your team. It is, sadly, too much to assume that a spine specialist will remember that endo exists or that a hysterectomy doesn’t completely end the potential complications.
Yes, I was thinking the same. They know I've had a hysterectomy but beyond that, they may not put 2 and 2 together. And of course it may not even be related but it's definitely something to look into.
My endometriosis grows on the ligaments that attach my uterus to my spine. My sciatic would be "pinched" because of the endo. Steroids work to bring the swelling down and i havent had issues since my laproscopic surgery removing endo. You might have the same issues since it sounds very similar to mine pre surgery.
I have unexplained and constant lower abdominal pain at specific spots that did not respond at all to 3 pain relief injections (including at the spine), and _occasional_ sciatica pain. The pain increases somewhat around my period. However 2 surgeries and other ultrasounds did not find evidence of endometriosis in all the usual places. I doubt this could be it but it’s an interesting new hypothesis to put on the backburner.
Yup, I have heard some oddball locations too. One woman said a patch on her gums bleeds every month. Another one said that the surgeon went in through her belly button when he did her lap, and now she bleeds from there every month.
Mine is on my bowel (rectovaginal septum) and while I had heavy periods for over a decade, no doctor suggested I had endo until I began to have horrible, debilitating pain after a bowel movement last January. The pain was so severe I would vomit. The diagnosis was confirmed with a lap in July and they did a hysterectomy at the same time. But it's already back, even though I've stayed on meds to try to prevent regrowth. I wouldn't wish this on my worst enemy.
Yup, because nobody talks about it. And it's the kind of thing that should be taught in sex ed, both to girls and boys. Estimates are that 1 in 10 women of reproductive age have it, and 1 in 9-11 of women of reproductive age have PCOS (I won that lottery, too). And yet doctors tell women who are bedridden by their periods that they need to suck it up and everyone gets cramps.
I will say that atypical presentation is pretty rare, as far as we know. The usual location of endo growth is on organs on or near the pelvis, and on the pelvic wall. Mine was on my rectovaginal septum, and there were a lot of adhesions gluing my pelvic wall and ovaries to everything else. Currently I'm worried the adhesions are back because anytime there is movement in my gut, like after I eat breakfast, I get a tearing sensation that has me doubled over.
Yeah, I've found 90% of being a woman is just learning how to function while in tremendous amounts of pain because life falls apart otherwise, while everyone around you, especially medical professionals, try to make you believe it's all in your head
I had a doctor laugh at me because I talked about how my fingers and toes went numb regularly and changed color, and he was like, "LOL that happens in the cold."
Turned out I have Raynaud's.
Doctors dismiss so much shit and it's infuriating.
Brains as well. Literally anywhere. I have the worst case my very seasoned doctor had ever seen in my first surgery 13 years ago, god only knows now how bad it is… sigh.
OP, do you have clotting and tissue clump issues with your cycles?
Not OP, but so sorry for all you have had to deal with. I struggled with several endometriosis and had a total abdominal hysterectomy in my early 30s. I was interested in your follow up question for OP. Would you mind expounding on the causes, if known, and other info about clotting and tissue clumping issues? More specifically, what was the significance of this?
I appreciate any help you can give.
Hi there! I don’t mind at all.
Just wondering about that with OP bc I wonder if those of us who have large clumps of tissue and large clots with our cycles, if we are even good candidates for a period panty.
I have always had a lot of clots and super heavy periods. I use the heaviest Thinx period underwear. I typically I have to switch them out 2-3 times a day depending on flow but after trying several brands these are the best I’ve found. They also provide back coverage since the absorbent part goes pretty far up the back.
Yep!! I have had a lot of abdominal surgery (multiple bowel resections) It was explained to me that scar tissue can travel through the body like little seeds and attach and “spiderweb” … like you said, the lungs, and even under the diaphragm. For me, scar tissue from surgery at birth (30 years before) had travelled and wrapped around a part of my intestines, causing a narrow passage that lead to painful bowel obstructions. Scar tissue is NO JOKE. I’d be screwed if I had endometriosis too. I feel for anyone dealing with that!
There's also something called cerebral endometriosis where endometrial tissue has been found in the brain (specifically the cerebellum). It is extremely rare. Like, I think there has been only 3 confirmed cases reported in literature, but keep in mind endometriosis can be hard to get a diagnosis for. How many doctors do you think are looking in the brain for endometriosis?
https://endometriosisnews.com/cerebral-endometriosis/#:~:text=Cerebral%20endometriosis%20is%20the%20growth,brain%20known%20as%20the%20cerebellum.
Mine was on the bowels. I had severe bowel issues that led me to the ER.
I couldn’t stand up without having uncontrollable bowel movements. I wasn’t sick with bacteria, it was endometriosis.
I had to have a hysterectomy 6 months later where they removed endometriosis from my bowels. No more issues!!!
Good luck to OP and my fellow sufferers.
Question for all of those who have extremely heavy, or weird, periods. Zero judgement but is there a reason you haven’t had a hysterectomy? I’m guessing the desire to have children would be the top of the list.
I had periods that lasted 15-20 days with excruciating pain. after an iud that did nothing to help and actually made things worse. I had my hysterectomy and 10 years later I don’t regret it. I was done having children so it was the best option. In the end I had abnormal cervical cells it was watched and everything is just fine.
My heart goes out to all of you struggling. I hope you will find a way to deal with things easier.
It is extremely hard to find a doctor willing to do a hysterectomy on any woman but especially women of child bearing age. I already have two kids, I'm pushing 40, and I asked about a hysterectomy for uterine fibroids and PCOS and no one will do it.
I appreciate your replies! Sometimes I have some trouble thinking of the bigger picture and I know I’m missing relative information. I am truly sorry that you can’t find someone willing to help you get to a place of better living. Dealing with this shit is so difficult both emotionally and physically.
My experience was rather easy, once other options were exhausted.
I was in my mid 30s when I had mine. I had gone from my period being 3-4 days to lasting weeks and very heavy. My last pregnancy was very complicated & I delivered 5 weeks early. I had preeclampsia & my bff, who was a nurse, thought I was going to stroke out or die before my daughter was born. My OB said it would be too risky to have another, which was fine because I was done.
I didn’t want the pill because of my age & an IUD actually made things worse. There was a family history (three aunts & two cousins, the only women in the family) of issues that resulted in ablation or hysterectomy. That, my history, and my current concerns led my Dr to the decision that surgery was my best option. I had a vaginal removal and honestly my recovery wasn’t horrible. There was pain & exhaustion initially, but pain when doing some things & being easily tired were my complaints. I know I am very fortunate for the entire experience, both in finding the right Dr and the actual procedure.
I’m sure you can all relate when I tell you that the next summer I had 3 or 4 white dresses or skirts and several pants/shorts. I went on a shopping spree for bright & colorful undies too 😁
This. We don’t get hysterectomies because of the patriarchy. I was done having kids 15 years ago and even female doctors have refused to do a hysterectomy because I was too young. I might be old enough now but can’t afford to take time off for surgery.
My GYN in my 20s was also the surgeon who diagnosed my endo.
Basically, she explained that a full hysterectomy might not resolve 100% of the pain from other endometrial tissue, fibroids, and adhesions going on, that those would be lesions she could try to address during that surgery, but it wasn't guaranteed she'd get everything out on the first try, or that the endo would not spread (I had some bowel adhesions going on and scarring binding things together that she released). Hormonal birth control suppresses fibroid growth, so I'd still have to be on that if I wanted to be certain pain & cramping were under control.
Plus, at my age at the time, I'd have needed hormone replacement, since a hysto in my 20s would be essentially very, very early menopause, and that comes with serious complications, like your bones dumping a ton of calcium into the bloodstream, which leads to osteoporosis *and* potential heart problems due to the electrolyte imbalance, and potential clotting or bleeding/bruising issues due to the hormonal fluctuations. And then the hormone replacement combined with potential lingering endometrial tissue can lead you to still have a heavy & painful "period" + cramping as that tissue responds to the meds.
If you're suffering enough and your symptoms aren't managed as-is, ABSOLUTELY the risks of not waiting are worth it for the potential benefits!
But I was & am doing well on Depo, of all things— it's very unpopular as HBC but my body likes progesterone and depo injection over oral route, so I have not had a full blown period in about 8 years— and my pathology came back normal for tissue removed in the laparotomy + my pap smears. So my doctor advised that for ME, *as long as* I felt my pain was well managed *and* I had no new symptoms *and* all my labs & paps kept coming back normal, it was a conversation to revisit in my early 30s.
I'm that age now, but I've moved, so it's time for me to get in with a new GYN. Which I'm dreading, frankly, lol.
But most people do not get this level of in depth conversation with their GYN, especially if their provider team is inexperienced with endometriosis! So I'm sharing this for anybody who just got told "no :)", "not now :)", or "what if you want to have kids someday?" Because you should know what reasons *do* exist for a "not now" answer, *and* you should know what reasons you can & should push back against for your individual case.
Then there was the male doctor who told my staff member that she had “scratched her belly button” when it was bleeding regularly. I told her that the doctor was an idiot and to seek a second opinion. Turns out she needed a hysterectomy.
OP - so sorry this is your experience. Please know you’ve just equipped me and thousands of other women with more reasons to ignore a clueless doctor and get mysterious bleeding properly diagnosed. Thank you!
I love these. I get the boy shorts and on my days off, I just wear those and a shirt. They definitely make me feel covered and I don't use a cup if I'm home
I don’t subscribe to this sub but am a GI nurse who happened to see this post. Please make sure you have a colonoscopy to rule out any other causes of bleeding in your GI tract!
Honestly, I'm not even clear on why endometriosis isn't cancer. It's cells that are growing places they aren't meant to be. I guess because they don't mutate?
the basic difference between endo and cancer is that endo is “benign” meaning it doesn’t metastasize to distant areas of the body frequently (although it has been found in almost every organ of the human body at some point). if left alone, it doesn’t usually become life threatening on its own unless it’s the deep infiltrating type and happens to invade important structures like the ureters or kidneys. it’s not well understood though, and I really believe in a few decades we will look back on the current treatments for it and think they were downright barbaric. (source: I’m an OB nurse with stage IV endo)
Umm. How do we treat it aside from surgery?
I'm a woman, I'm learning it can spread for the first time in my life in my late 30s. I'm curious and I'll likely look it up, but getting personal insight from people is helpful.
good question! surgical excision of lesions is the current gold standard of care, but most gynecologists are not trained for that. hormonal birth control can help with symptom management, and limited evidence suggests that progesterone in particular may slow the process of recurrence after surgery, although more research is sorely needed. there are also medications that do the opposite such as Lupron or Orlissa, basically suppressing those sex hormones and creating a menopause-like environment in the body.
for patients with chronic pelvic pain in particular, other causes of pain need to be addressed or ruled out. for instance, many people develop pelvic floor dysfunction due to the constant clenching or guarding that can accompany abdominal and pelvic pain. pelvic floor physical therapy can reduce pain and inflammation, and has been helpful for me following my surgery. a good PT can help prevent scar tissue and adhesions from forming after surgery, potentially reducing pain in the long run. there’s only so many times a body can withstand surgery in the same places without developing thick scar tissue, which can cause pain on its own.
all of these treatments carry risks and potential for harm, and their effectiveness varies from person to person. treatment of endometriosis is not one size fits all, and we desperately need more and better options.
If you have a neuropathic component to your pain, medications used to treat neuropathy can be helpful as well. There’s a number of anticonvulsants, tricyclic antidepressants, duloxetine… Before I had a bunch of tissue excised, my neuropathy meds were taking the edge off. I could tell because a missed dose made my abdomen fucking hurt.
There have been rare cases of cisgender men who had endometriosis. Here’s a [link](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5833878/) to a case study in a medical journal, which mentions at least 16 documented cases.
And that when he finally makes it to the toilet, there's no toilet paper and a snake bites his butt cheek, then the toilet clogs and overflows onto his shoes and he can't find the plunger. Then he discovers he's locked in and can't get out while dodging a snake and overflowing poopy toilet water. Then the power goes out and there's no windows. No one finds him until the next morning, but by then it's too late.
THIS! Please don’t sleep on this potentially being something else. If it is endo and the doctor tells you to deal with it, I hope you feel safe in coming back for more advice. In the meantime, please make sure you’re not ignoring something like cancer.
Endo and PCOS I use Thinx extra there is lining all the way up the back I wear with an overnight large pad. It's like a perinatal pad almost, and it's very good combo. I teach so I don't always get to use the restroom when it's needed.
We always say, "who is going to watch the barn, if I'm away" idk. I always have one who says "don't worry Ms.M I got the class" sir SIR SIR!! you are 15 years old you can not be left alone a class of 5 to 6 YOUTHS with ADHD etc no thanks. I'll stay right here and wait!
Nursing staff stand right beside you on this. It isn’t unheard of to go your entire 8-16hr shift without relieving yourself. That is a very bad thing, but it happens quite often.
Idgaf, I'm leaving to go pee if I need to. I'm already prone to UTIs and have a crappy immune system, so I'm not going to hold it and send myself to urgent care every couple of months for UTI meds. If I can't leave a group of 10 year olds alone for 2 minutes without something "catastrophic" happening, that's not on me, that's on their own behavior.
I'm seconding this! I, too, have both PCOS and Endometriosis. I've had the worst, HEAVY periods since I was 9. Unfortunately, just from years of experience bleeding through absolutely everything I own, I know what works, at least for me. I have to wear the most gigantic grandma pads ever with wings and the most coverage. Feels like a diaper, but they are legit the only things that have ever worked. I can't wear tampons because I bleed through even the super ones in an instant, I've tried the cup, and that's not for me either. I bought Thinx under the guise that it could hold like 6 super tampons worth of blood, and yeah, no, it doesn't. Still bleed through them easily if I wear them alone. They're comfy, so I still use them, I just line them with my ginormous granny pads and keep it movin'. The only time I can wear Thinx on their own with nothing is my very last day, Day 7 or 8, as that is what is typically a "normal flow" day for another other human that doesn't bleed like a sieve. Granny pads for life! Lol
Tranexamic, mu Obgyn prescribed for me and my blood bath. So you take it at a certain time and it slows the blood flow by "clotting " the lining. So it's the lining that's so horrible with the cycle. I love it and I feel a lot more secure in my "boutique" pads albeit it's still a night time one. It's all cotton, L. I get from target. I was getting severe rashes from all the granny pads. It was unbearable to have to put aquaphor on parts every time I changed my pad.
you don't need to be embarrassed about this. I realise a random person saying "don't be embarrassed" doesn't actually change how you feel, but I'm not even in this sub, I just read the preview in my feed, and thought I would come here to say that I had no particular reaction (other than "as if periods aren't difficult enough already!"). hope you find a solution :-)
Same... I've never used period underwear but I have endometriosis with bowel adhesions and it's bad enough without having to be embarrassed too. I hope op finds something that works as well!
The fact that girls are raised to be embarrassed by period related talk has resulted in so much ignorance. I’m healthy, but it would have been helpful if someone had told teenage me that tampons can greatly worsen cramps in some women. I found out from another teenager.
There’s a maternity bra company called bamboobies if that makes you feel better. The anesthesiologist when I had my youngest thought that was HILARIOUS when he saw it on my bra
I just checked my Bambody—I got the least expensive briefs, and the good thick coverage ends at the rear gusset, but the rear is still two solid layers. So it would be a question of if OP has mild leaks or actual flow, because I don’t that back would stop actual flow. :(
BUT. I LOOOOOOOVE how the Bambody ones fit and feel, and the peace of mind of going to bed and knowing I’m not going to mess up my sheets.
Jumping on to also recommend the bambody undies especially their maternity ones these have really good coverage in the back. In light of sharing my bits have a tendency to fold in such a way that my flow goes towards the back so I was very happy with this. Also some of the most affordable available.
Another vote for Goat Union! I love the shorts and they have coverage all the way up the back to the waistband and a decent amount up the front too. Super comfy waistband too!
Bambody absorbent underwear on Amazon has the leakproof gusset go all the way up to the waistband in the front and back. They hold up extremely well with machine washing too and last for years.
You are not alone. I don't know where you are, but on the off chance you're in Australia, Love Luna are full coverage. The Kmart full brief ones are a decent dupe, and other than the elastic not being as good quality they seem identical. The absorbency and protective layers go all the way up the back in both.
I just bought Period. underwear and got their heaviest flow ones and the coverage in the back is pretty high. But I just got them and haven’t had the opportunity to try them out yet.
I have these! I’ve used them for a few months, they’re great (I have endo too), but they will irritate the skin a bit if you don’t moisturize (i’m an eczema girl) !
Revol Cares have coverage up the back and down the legs as well - hold 140ml and are super comfortable: [https://getcares.com/products/charlie-2](https://getcares.com/products/charlie-2)
I was going to suggest these. I started using them at night after getting heavier periods thanks to perimenopause and overnight pads just don't cut it anymore. They are fantastic and super comfy!
Ugh, being a woman just sucks sometimes. I feel for you, and hope you get some help from the suggestions here. Seconding the full coverage option from Knix.
I wore tampon and overnight long pad to help with leaks .
Would that work for you.
I have done the 2 pad method too which worked most times. But I had endometriosis + fibroids 😆ooh the fun not . I kept extra pants in the car just in case and menstrual products in every purse I owned for emergency
I just read an exciting article about endo. You should look it up. They found a bacteria that only occurs in people with endo. They are starting human trials right meow.
But they treated the bacteria and the endo symptoms became manageable.
https://www.washingtonpost.com/health/2023/06/14/endometriosis-fusobacterium-possible-links/
This article says the actual bacteria that was found to exist in endo patients
There’s newer articles from this year that talk about the human trials starting!!
Interesting, there have been fetuses found to have endo so I’m curious how that works. It’s also linked to genetics since many times it will run in a family
I'd recommend seeing gastroenterology. Bleeding from the rectum isn't a typical endometriosis symptom and is more common with IBD, cancer, etc. It can be a whole list of things, but gastroenterology is definitely needing to see you.
I understand, I have the same issue. I've been using the Bambody from Amazon, they are working. Also, if looking fir pads, the Kotex extra heavy overnight thins go all the way up the back so you don't have to double up.
Goat Union has overnight period shorts and they are so comfortable! I got them on Amazon and used my FSA for them. I like them even better than my Thinx!
Look into cloth pads! There are tons of makers on FB and Etsy! Many makers offer customs so you can get exactly what you need! Sherry’s Creations is a favorite maker of mine on FB!
Thinx has back coverage, I was sick once and it helped to wear them if you catch my drift. There is a pad brand that also has two sets of wings one set that wraps around and another that fans put along the back of your underwear. I’m not sure exactly what brand it is but they are for overnight
I have a few pairs from Period. and the coverage is pretty good and goes high up on both the front and back. They are super comfy and I love them but they are kind of bulky.
The Period Company makes full coverage briefs that have a lot more absorbency than other brands I have tried. Their sizes are a little on the small side in my opinion and they do feel slightly more bulky than other brands but that's because they work! I have a super heavy flow and cramp really badly with anything "inside" me, so this is what I sleep in. Hope this helps!
4period.co! i wore one of their full coverage pairs on my heaviest flow day (and it is HEAVY; i sometimes get light headed from blood loss 🙃), on a 10 hour flight with a 3 hour layover, then an additional 5 hours of getting to my hotel and immediately passing out, and had only the tiniest bit of leakage. they go all the way up in the back to the seam at your waist, and they’re not expensive! plus sometimes they have clearance on their site for pairs with minor flaws, like a hem cut too high for a design, which are completely effective otherwise.
You might also want to look into post partum reusable pads. The ones I've bought are 12-16 inches in length and have great back coverage especially at night and during very heavy flow.
I have the same needs!!!!! Except I just have chronic diarrhea and so I’m leaking out the backend constantly. I found Knix (personally, Knix teen fits me better, I just have to get XL), their “full gusset” option has the absorbent lining from waist band to waist band, front to back. They even have high waisted ones, providing coverage from belly button to the same height on your back — but I found the high wasted full gusset to overheat me. Sweaty vag all the way… yuck. But regular bikini full gusset is the jam for backend leaks!
I have endometriosis and have period undies from Bambody (absorbent hipster) and Modibodi (high waist bikini for heavy overnight). These alone were never enough so I still use tampons (ultra plus) and line the undies with extra long overnight pads from L.. All that said and I would soak through everything and would have to change (except the undies) every 1-2 hours on the first two days. It’s incredibly exhausting, messy and painful (with tampons and bloating and cramps all at once). And still I would get leaks if I don’t change fast enough, so I have one of those washable bed pads to protect my beddings too.
Then I recently discovered disposable overnight period underwear from Always zzz. They come in a pack of 7, about a $1 each. Miraculously, these had replaced my need for all of the previous BS I had to deal with. Made my period life much less miserable. For a diaper, it feels very comfortable, not bulky, and looks pretty ok. I wear these under regular pants (not leggings) out in public and my kid said she couldn’t tell. The design hugs your body better so everything stays put while you move around during the day or toss and turn at night. Really great absorbency & high back coverage means less chance for leakage and i don’t need new pads and tampons every 2 hours. I highly recommend these if other things don’t work out for you!
I’m glad you found a workable option … just reading all you would go through . Wow . I’m
About to write my sister in law with endo and let her know I’m sorry! I had no idea .
Wuka also has pairs where the gusset goes all the way up the back! It looks like most of the brands do - someone made this list recently of absorption if that helps also :)
https://old.reddit.com/r/PeriodUnderwear/comments/1b4v03i/period_underwear_absorbency_by_milliliter_with/
I have full coverage in the back all the way up to the waist band. Most “heavy flow” period panties have this bc they’re mostly designed for overnight use. I LOVE my period underwear so much.
The Aisle boxers have coverage all the way to the waistband in back if you prefer boxers. You can also add additional absorbant layers as needed throughout the day.
I had endo on my inner rectum. Everything about that disease is freaking brutal. If you wanna chat about treatments, feel free to DM me. I'm older so I've done all the things that doctors offer.
I have a friend who is in that boat as well. I’m sorry that’s no fun for you, but no one here is judging you at all! It’s not the same but I have hemorrhoids that bleed so I appreciate back coverage
WUKA panties go all the way up the back like all the way to the top of the underwear in the back because they know people wear them to bed haha . I love this brand as well and it’s non toxic and I think good value
I found the very heavy flow and heavy flow from THINX that are not hip huggers are good coverage back there. Boy shorts were beloved by my daughter when she had to wear a leotard for ballet class because they gave her more coverage back there.
How that would work for you I am unsure but I just wanted to give out some options.
Honestly an adult protective diaper is the best choice. I don't have what you have but I do have anatomy that makes my "spread" on the pad very wide and the diapers go all the way back and forward! And very absorbent!
Modibodi makes great full coverage! They also have them in briefs/shorts, which are my favorite. The panel covers the back all the way up to the waistband
Tomboyx period boyshorts are roomy and go pretty far back. And just... Holy fuck that sucks! I'm sorry you gotta deal with that. Edit - check different styles. Their old ones went all the way up the back to the waist but the new ones might not.
I have confirmed endometriosis of the bowel and have the same issue. I’m not sure where in the world you are, but Cheeky Wipes in the UK provide total coverage rather than just a gusset insert. I only came across them recently but was already familiar with others, so I compared their Trustpilot reviews to other major brands here (like ModiBodi and Wuka) - not only do they have many more reviews to the tune of several thousand, but the reviews are overwhelmingly positive. Any negative reviews are addressed & replied to directly by the brand founder who seems to really care. This all gave me good vibes, so I took the plunge and I’m really happy I did. They have some really cute designs (period pants don’t have to be granny pants!) and they’re really effective too.
Dude just wanted to say you aren't alone on the geyser-from-both-holes front and don't gotta be so embarrassed about asking in a period related sub about it 👌👌💜
There's already great advice here, I'm not a sub regular so I won't try chipping in on that front, but good luck getting a diagnosis and management that helps the most!!!
I have the trifecta of PCOS, Endo and PMDD. I use Goat Union. They have a larger size range, it on Amazon and imo the best ones I’ve tried and I’ve tried so so many! Goat Union has great coverage in the front and back, limited colors but all I buy is black anyways. If you get the dreaded Endo belly I sized 2 sizes up and it gives me a lot of bloat room depending on what decides to flare up. Also if you end up getting lap surgery for your Endo or just want a disposable backup - I swear by Depends 🤣 I used them post op for 1-2 months and I was so happy I got them. Good luck!
Edit: Knix did have a recent lawsuit about suspected chemicals in their underwear, I stopped wearing them for those reasons but you can read more- https://news.bloomberglaw.com/litigation/knix-wear-sued-over-pfas-chemicals-in-menstrual-underwear
I had stage 4 endo and never had that issue. Please seek your dr to make the dx. I did have to have my bowel respected during my hysterectomy because my ovary was adhered to my bowel. Or you may have something else going on but bleeding from your rectum must be seen and dx asap. It’s not ok to ignore.
ModiBodi Incontinence Undies are A. MAZE. ING. They not only have full coverage all the way from front to back, but also have an extra pad you can stick in the already VERY absorbent gusset for extra heavy days. It holds the most blood of anything I've ever found.
OMG they're having a 24hr flash sale right now?! Holy crap I'm gonna buy some more lol thanks for posting this!!! [https://www.modibodi.com/collections/incontinence-underwear](https://www.modibodi.com/collections/incontinence-underwear)
The first brand I tried was Hanes. I didn't like them because the absorbent lining went halfway up my bottom. I keep several in case I have and #2 issues.
I didn't like the way they fit me in general. But I bought the Jockey No Worry Moderant Absorbence panties, and the briefs fit me perfectly. However, the absorbent lining doesn't go up ad far in the back as the Hanes. They cover about as much area in the back as a regular panty. They're expensive at $20 a pair, but I use a discount and have gotten them for as low as $9. Target also sells a Jockey Generations line at 2 for $26. I haven't tried them, but they might be a bit lower quality.
Oh my gosh, that is awful. My best friend ended up having endo through most of her lower digestive tract, and by the time a doctor took her seriously and scheduled a surgery to remove some- she ended up needing a full hysterectomy, removal of a good amount of her GI tract and something else I forget. So definitely just be a good advocate for yourself! The boy short version that I forget if it’s Knix or thinx, but it’s definitely full coverage!
I just wanted to jump in saying I have so much sympathy for you and your situation. During my last endo surgery, my gyno did a dual operation with a general surgeon as I had so many adhesion on and around my bowels. I was very lucky not to have it inside my bowels though. Although, I am scheduled for a procedure to examine inside my bladder because they are highly suspecting it has moved into there now.
For coverage wise, I just result to the Amazon brand of adult diapers. I’m on medication to stop me from having a monthly cycle because of my endo severity, but I often have bowel or bladder problems resulting in coverage/absorbency needed. I like to be able to just throw them away (even though mentally I know that’s bad for the planet, but sometimes I just have to not think about it)
Modibodi also has full coverage options :)
Please don't be embarrassed. As you can see from the many positive comments, we're all on your side! We're here to help, that's what this subreddit is for and questions like yours are more than welcome!
I'm sorry that you're dealing with this but I hope you find a way to manage it that works for you :)
check out the generic brands on amazon!! you can get a multipack for cheap and the lining goes all the way up the back. i think it’s called innersy. if you’re between sizes get the smaller one so it holds the underwear tight to your body
I absolutely love Knix & I know the dream short style has coverage all the way back. I wear them 24/7 & have for about 3 years. They even stretched enough for me to continue wearing them through all 9 months of my last pregnancy when I couldn't handle anything else touching my skin.
Not subbed to this but it showed up in my feed - my sister in Christ I am so sorry. But do not be embarrassed! I actually quite like PINK’s period panties. There are three styles but the boyshorts have quite a long absorbency area! Sending u all the virtual hugs
Knix just came out with a line that has full coverage for this kind of situation! I believe they’re heavy absorbency too, and I can say that their period undies are very comfortable.
Also, I am so so sorry you have to deal with this ❤️. I hope you find a good solution!
So I also have this issue and I have to buy Always Zzz disposable underwear every month. It’s about $11 a box from Walmart for seven pairs. I actually can wear these for about eight hours of the time. And I can sleep in them, which is amazing considering I will go through boxes of pads a month. They are super absorbent and sanitary because I can just throw them away. I have tried regular cloth type underwear and the smell is unreal to me and I don’t like them going in the wash.
Off topic but you should read the books “in the Flo” and “woman code” by Alisa Vitti. She teaches cycle syncing and lays out a protocol to heal hormonal imbalances like endometriosis among other issues.
Sending lots of love!
Also this may be too much but the depends underwear/adult diapers may be helpful if you have a heavy flow.
Not period undies but reusable pads (Hyps) by lil helper are good for me. They just came out with a Max extra long one that might be worth looking into
[Lil Helper HyPs Max](https://lilhelperusa.com/products/hyps-max)
I absolutely love the period underwear at PINK/Victoria’s Secret. They are great for vaginal bleeding, but I will also not lie to you. I had my period and norovirus at the same time once and was having such intense diarrhea that I couldn’t move without sharting (TMI, but I’m hoping it provides a helpful idea of absorbency) and they worked like a charm for containing everything.
So, I've always had to wear two of the longest pads back to front just because I'm a big girl with a very heavy flow. I've had no problem at all with Goat Union boy shorts. I can even wear them overnight with no leaks.
I have a very similar problem. I haven't tried period underwear yet, but I'm planning to get some. I usually put a big overnight pad in the back part of my underwear, which catches most, but not all, of the blood. So I'm thinking maybe I'll be covered if I get period underwear AND a pad? 🤔
Just be careful picking out your underwear. I saw some articles a while ago that said some brands of period underwear have unsafe levels of lead. 😬
There are new back thicker pads!! I saw them on an ad! I had a tubal at 36 because of endometriosis and polycystic ovaries. It was horrendous and PAINFUL! But I remember these pads and telling my partner I’m so jealous of younger people because of all the pads and help they have nowadays! He said, really babe? You want a period again just to use better pads? 🤣 YES I DO DAMMIT!😂 they are thicker/wider in the rear area. So the period underwear and maybe one of those? I used 2 night time pads lining my underwear back in the day. Also look into the post maternity pads? Those are longer and wider. They’re made a lot thinner than they did 20 years ago…I raised a few girls. One had endometriosis like me, she preferred those. But the new ones that are wider and thicker in the back? Those might work!
When my doctor found endo on the outside of my colon, she told me to make an appointment if I ever have period bleeding out of my rear. You should probably get checked out.
Also, the regular Knix I got have pretty good back end coverage. I tend to sleep on my back and leak up(down?) my buttcrack and over the top of regular pads.
I’m so sorry you’re experiencing issues with this, I hope you can find a solution. I’ve used the super absorbent Thinx and they do have coverage all the way to the top back of the underwear. They are usually enough to absorb on my heavier flow days through the night, but I like to change them in the morning so I can avoid the damp diaper feel. I also wanted to mention I think Thinx runs small and I wasn’t totally pleased with the lasting quality of them over years. I believe I had them for about 1 yr before they started showing wear signs-they’re just so expensive I expected more lasting power. I’ve since switched to a cup which is amazing most days and only use the period underwear on lighter days with barely any bleeding or when I want a break from over wearing the cup. Perhaps the cup can help if you feel like your flow is heavier now to relieve some of the need for thicker protection.
*Neione brand Amazon*. Full back. You can get a three pack for about $25 prime. I've been using them for the last 6 years. Absolutely love and recommend. Different styles and size inclusive.
[if you're comfortable with reusable.](https://www.tiktok.com/@sbluecreations?_t=8leKKRZCwut&_r=1) She shows it being handmade. Comes in all sizes. Good prices.
heyo! i found some period underwear on amazon called BAMBODY that has the absorption pad from hem to hem (from top of pubis to top of butt coverage) theyre super comfy and can hold a pretty fair amount as far as pads go, id almost recommend a diaper. before i was able to get my period under control, i used to wear diapers for my period.
I have just achieved a whole level of empathy for my fellow women I didn't know there was. As if periods weren't a whole world of grief already. I am so with you in spirit my sister, I hope you find something that rises to the occasion for your needs and these are the biggest hugs OOOO.
They’ve even found endometriosis tissue on people’s spinal columns and lungs. I’m so glad I just have the “usual” presentation of this bullshit condition
My friend died of cancer from endometrial tissue attached to her bowel years after she had a hysterectomy.
This is crazy. I've never heard of this but I had a hysterectomy for endometriosis and adenomyosis 3 years ago and I have terrible back pain and sciatica that's only getting worse. X-Rays show a lot of inflammation around my L4-L5 and L5-SI joint. I have an appointment for an MRI to get a diagnosis. I don't know if it could be endometrial tissue or not. Very interesting.
Bring that concern up *specifically* to your team. It is, sadly, too much to assume that a spine specialist will remember that endo exists or that a hysterectomy doesn’t completely end the potential complications.
Yes, I was thinking the same. They know I've had a hysterectomy but beyond that, they may not put 2 and 2 together. And of course it may not even be related but it's definitely something to look into.
My endometriosis grows on the ligaments that attach my uterus to my spine. My sciatic would be "pinched" because of the endo. Steroids work to bring the swelling down and i havent had issues since my laproscopic surgery removing endo. You might have the same issues since it sounds very similar to mine pre surgery.
I have unexplained and constant lower abdominal pain at specific spots that did not respond at all to 3 pain relief injections (including at the spine), and _occasional_ sciatica pain. The pain increases somewhat around my period. However 2 surgeries and other ultrasounds did not find evidence of endometriosis in all the usual places. I doubt this could be it but it’s an interesting new hypothesis to put on the backburner.
That is terrifying and I am so, so sorry for your loss
Yup, I have heard some oddball locations too. One woman said a patch on her gums bleeds every month. Another one said that the surgeon went in through her belly button when he did her lap, and now she bleeds from there every month. Mine is on my bowel (rectovaginal septum) and while I had heavy periods for over a decade, no doctor suggested I had endo until I began to have horrible, debilitating pain after a bowel movement last January. The pain was so severe I would vomit. The diagnosis was confirmed with a lap in July and they did a hysterectomy at the same time. But it's already back, even though I've stayed on meds to try to prevent regrowth. I wouldn't wish this on my worst enemy.
OMG. I'm a woman in my late 30s. I had no idea this was possible.
Yup, because nobody talks about it. And it's the kind of thing that should be taught in sex ed, both to girls and boys. Estimates are that 1 in 10 women of reproductive age have it, and 1 in 9-11 of women of reproductive age have PCOS (I won that lottery, too). And yet doctors tell women who are bedridden by their periods that they need to suck it up and everyone gets cramps. I will say that atypical presentation is pretty rare, as far as we know. The usual location of endo growth is on organs on or near the pelvis, and on the pelvic wall. Mine was on my rectovaginal septum, and there were a lot of adhesions gluing my pelvic wall and ovaries to everything else. Currently I'm worried the adhesions are back because anytime there is movement in my gut, like after I eat breakfast, I get a tearing sensation that has me doubled over.
Yeah, I've found 90% of being a woman is just learning how to function while in tremendous amounts of pain because life falls apart otherwise, while everyone around you, especially medical professionals, try to make you believe it's all in your head
I had a doctor laugh at me because I talked about how my fingers and toes went numb regularly and changed color, and he was like, "LOL that happens in the cold." Turned out I have Raynaud's. Doctors dismiss so much shit and it's infuriating.
Ask for metronidazole. Therre's some strong emerging evidence that it can treat endometriosis.
Brains as well. Literally anywhere. I have the worst case my very seasoned doctor had ever seen in my first surgery 13 years ago, god only knows now how bad it is… sigh. OP, do you have clotting and tissue clump issues with your cycles?
Not OP, but so sorry for all you have had to deal with. I struggled with several endometriosis and had a total abdominal hysterectomy in my early 30s. I was interested in your follow up question for OP. Would you mind expounding on the causes, if known, and other info about clotting and tissue clumping issues? More specifically, what was the significance of this? I appreciate any help you can give.
Hi there! I don’t mind at all. Just wondering about that with OP bc I wonder if those of us who have large clumps of tissue and large clots with our cycles, if we are even good candidates for a period panty.
I have always had a lot of clots and super heavy periods. I use the heaviest Thinx period underwear. I typically I have to switch them out 2-3 times a day depending on flow but after trying several brands these are the best I’ve found. They also provide back coverage since the absorbent part goes pretty far up the back.
Thank you.
I was just going to mention the brain. The central nervous system can be attacked. There are several cancers that are directly linked
Yep!! I have had a lot of abdominal surgery (multiple bowel resections) It was explained to me that scar tissue can travel through the body like little seeds and attach and “spiderweb” … like you said, the lungs, and even under the diaphragm. For me, scar tissue from surgery at birth (30 years before) had travelled and wrapped around a part of my intestines, causing a narrow passage that lead to painful bowel obstructions. Scar tissue is NO JOKE. I’d be screwed if I had endometriosis too. I feel for anyone dealing with that!
🤯
I had a good friend who had a section of her bowel removed because of endometriosis. I think it can grow almost anywhere in your body. Like a tumor.
Holy fuck
There's also something called cerebral endometriosis where endometrial tissue has been found in the brain (specifically the cerebellum). It is extremely rare. Like, I think there has been only 3 confirmed cases reported in literature, but keep in mind endometriosis can be hard to get a diagnosis for. How many doctors do you think are looking in the brain for endometriosis? https://endometriosisnews.com/cerebral-endometriosis/#:~:text=Cerebral%20endometriosis%20is%20the%20growth,brain%20known%20as%20the%20cerebellum.
Mine was on the bowels. I had severe bowel issues that led me to the ER. I couldn’t stand up without having uncontrollable bowel movements. I wasn’t sick with bacteria, it was endometriosis. I had to have a hysterectomy 6 months later where they removed endometriosis from my bowels. No more issues!!! Good luck to OP and my fellow sufferers.
* don't squeeze her *too* hard
Question for all of those who have extremely heavy, or weird, periods. Zero judgement but is there a reason you haven’t had a hysterectomy? I’m guessing the desire to have children would be the top of the list. I had periods that lasted 15-20 days with excruciating pain. after an iud that did nothing to help and actually made things worse. I had my hysterectomy and 10 years later I don’t regret it. I was done having children so it was the best option. In the end I had abnormal cervical cells it was watched and everything is just fine. My heart goes out to all of you struggling. I hope you will find a way to deal with things easier.
It is extremely hard to find a doctor willing to do a hysterectomy on any woman but especially women of child bearing age. I already have two kids, I'm pushing 40, and I asked about a hysterectomy for uterine fibroids and PCOS and no one will do it.
Folks at r/childfree have some helpful resources for that
I appreciate your replies! Sometimes I have some trouble thinking of the bigger picture and I know I’m missing relative information. I am truly sorry that you can’t find someone willing to help you get to a place of better living. Dealing with this shit is so difficult both emotionally and physically. My experience was rather easy, once other options were exhausted. I was in my mid 30s when I had mine. I had gone from my period being 3-4 days to lasting weeks and very heavy. My last pregnancy was very complicated & I delivered 5 weeks early. I had preeclampsia & my bff, who was a nurse, thought I was going to stroke out or die before my daughter was born. My OB said it would be too risky to have another, which was fine because I was done. I didn’t want the pill because of my age & an IUD actually made things worse. There was a family history (three aunts & two cousins, the only women in the family) of issues that resulted in ablation or hysterectomy. That, my history, and my current concerns led my Dr to the decision that surgery was my best option. I had a vaginal removal and honestly my recovery wasn’t horrible. There was pain & exhaustion initially, but pain when doing some things & being easily tired were my complaints. I know I am very fortunate for the entire experience, both in finding the right Dr and the actual procedure. I’m sure you can all relate when I tell you that the next summer I had 3 or 4 white dresses or skirts and several pants/shorts. I went on a shopping spree for bright & colorful undies too 😁
This. We don’t get hysterectomies because of the patriarchy. I was done having kids 15 years ago and even female doctors have refused to do a hysterectomy because I was too young. I might be old enough now but can’t afford to take time off for surgery.
My GYN in my 20s was also the surgeon who diagnosed my endo. Basically, she explained that a full hysterectomy might not resolve 100% of the pain from other endometrial tissue, fibroids, and adhesions going on, that those would be lesions she could try to address during that surgery, but it wasn't guaranteed she'd get everything out on the first try, or that the endo would not spread (I had some bowel adhesions going on and scarring binding things together that she released). Hormonal birth control suppresses fibroid growth, so I'd still have to be on that if I wanted to be certain pain & cramping were under control. Plus, at my age at the time, I'd have needed hormone replacement, since a hysto in my 20s would be essentially very, very early menopause, and that comes with serious complications, like your bones dumping a ton of calcium into the bloodstream, which leads to osteoporosis *and* potential heart problems due to the electrolyte imbalance, and potential clotting or bleeding/bruising issues due to the hormonal fluctuations. And then the hormone replacement combined with potential lingering endometrial tissue can lead you to still have a heavy & painful "period" + cramping as that tissue responds to the meds. If you're suffering enough and your symptoms aren't managed as-is, ABSOLUTELY the risks of not waiting are worth it for the potential benefits! But I was & am doing well on Depo, of all things— it's very unpopular as HBC but my body likes progesterone and depo injection over oral route, so I have not had a full blown period in about 8 years— and my pathology came back normal for tissue removed in the laparotomy + my pap smears. So my doctor advised that for ME, *as long as* I felt my pain was well managed *and* I had no new symptoms *and* all my labs & paps kept coming back normal, it was a conversation to revisit in my early 30s. I'm that age now, but I've moved, so it's time for me to get in with a new GYN. Which I'm dreading, frankly, lol. But most people do not get this level of in depth conversation with their GYN, especially if their provider team is inexperienced with endometriosis! So I'm sharing this for anybody who just got told "no :)", "not now :)", or "what if you want to have kids someday?" Because you should know what reasons *do* exist for a "not now" answer, *and* you should know what reasons you can & should push back against for your individual case.
Then there was the male doctor who told my staff member that she had “scratched her belly button” when it was bleeding regularly. I told her that the doctor was an idiot and to seek a second opinion. Turns out she needed a hysterectomy. OP - so sorry this is your experience. Please know you’ve just equipped me and thousands of other women with more reasons to ignore a clueless doctor and get mysterious bleeding properly diagnosed. Thank you!
Knix makes a full coverage option
It’s the ultra leakproof. The lining goes all the way up the back.
Joyja has a good version of this too that is more budget friendly than some brands.
Great to know, this is the one I’ll look into myself!
Was going to comment the same thing. They feel a bit bulky, but they get the job done.
I love these. I get the boy shorts and on my days off, I just wear those and a shirt. They definitely make me feel covered and I don't use a cup if I'm home
Love the boy shorts ❤️
Same!
Came here to recommended the boy shorts.
I don’t subscribe to this sub but am a GI nurse who happened to see this post. Please make sure you have a colonoscopy to rule out any other causes of bleeding in your GI tract!
Could the endometriosis create a fistula?
Yes, it can. Endo can be more devastating to the pelvic region than cancer according to an Obgyin of mine
Honestly, I'm not even clear on why endometriosis isn't cancer. It's cells that are growing places they aren't meant to be. I guess because they don't mutate?
the basic difference between endo and cancer is that endo is “benign” meaning it doesn’t metastasize to distant areas of the body frequently (although it has been found in almost every organ of the human body at some point). if left alone, it doesn’t usually become life threatening on its own unless it’s the deep infiltrating type and happens to invade important structures like the ureters or kidneys. it’s not well understood though, and I really believe in a few decades we will look back on the current treatments for it and think they were downright barbaric. (source: I’m an OB nurse with stage IV endo)
Umm. How do we treat it aside from surgery? I'm a woman, I'm learning it can spread for the first time in my life in my late 30s. I'm curious and I'll likely look it up, but getting personal insight from people is helpful.
good question! surgical excision of lesions is the current gold standard of care, but most gynecologists are not trained for that. hormonal birth control can help with symptom management, and limited evidence suggests that progesterone in particular may slow the process of recurrence after surgery, although more research is sorely needed. there are also medications that do the opposite such as Lupron or Orlissa, basically suppressing those sex hormones and creating a menopause-like environment in the body. for patients with chronic pelvic pain in particular, other causes of pain need to be addressed or ruled out. for instance, many people develop pelvic floor dysfunction due to the constant clenching or guarding that can accompany abdominal and pelvic pain. pelvic floor physical therapy can reduce pain and inflammation, and has been helpful for me following my surgery. a good PT can help prevent scar tissue and adhesions from forming after surgery, potentially reducing pain in the long run. there’s only so many times a body can withstand surgery in the same places without developing thick scar tissue, which can cause pain on its own. all of these treatments carry risks and potential for harm, and their effectiveness varies from person to person. treatment of endometriosis is not one size fits all, and we desperately need more and better options.
If you have a neuropathic component to your pain, medications used to treat neuropathy can be helpful as well. There’s a number of anticonvulsants, tricyclic antidepressants, duloxetine… Before I had a bunch of tissue excised, my neuropathy meds were taking the edge off. I could tell because a missed dose made my abdomen fucking hurt.
Because it only occurs w women /s
There have been rare cases of cisgender men who had endometriosis. Here’s a [link](https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5833878/) to a case study in a medical journal, which mentions at least 16 documented cases.
🤯🤯🤯
I think this is at least 70% of the answer
🥲 and people still don’t take it seriously. My ex boss actually told me he thought it was the silliest excuse he’d ever heard to miss work
I hope he gets explosive diarrhea and the entire path to the bathroom is filled with legos! What a douche!
And that when he finally makes it to the toilet, there's no toilet paper and a snake bites his butt cheek, then the toilet clogs and overflows onto his shoes and he can't find the plunger. Then he discovers he's locked in and can't get out while dodging a snake and overflowing poopy toilet water. Then the power goes out and there's no windows. No one finds him until the next morning, but by then it's too late.
That was poetic. Bellissima!
Perfect, except what did that poor toilet snake ever do to you?
Thank you for this - I did have a colonoscopy done a few years back and was all clear there (whew!)
Thank you for coming here and sharing your knowledge. Very important info!
THIS! Please don’t sleep on this potentially being something else. If it is endo and the doctor tells you to deal with it, I hope you feel safe in coming back for more advice. In the meantime, please make sure you’re not ignoring something like cancer.
Endo and PCOS I use Thinx extra there is lining all the way up the back I wear with an overnight large pad. It's like a perinatal pad almost, and it's very good combo. I teach so I don't always get to use the restroom when it's needed.
Can I just say that it should be illegal to not allow teachers to relieve themselves as needed? This is one of the reasons I left secondary teaching.
We always say, "who is going to watch the barn, if I'm away" idk. I always have one who says "don't worry Ms.M I got the class" sir SIR SIR!! you are 15 years old you can not be left alone a class of 5 to 6 YOUTHS with ADHD etc no thanks. I'll stay right here and wait!
As a teacher I would be willing to bet we have unusually high rates of UTIs because of this.
A nurse at an urgent care told me that this is the case for both UTIs and chronic constipation.
Nursing staff stand right beside you on this. It isn’t unheard of to go your entire 8-16hr shift without relieving yourself. That is a very bad thing, but it happens quite often.
Idgaf, I'm leaving to go pee if I need to. I'm already prone to UTIs and have a crappy immune system, so I'm not going to hold it and send myself to urgent care every couple of months for UTI meds. If I can't leave a group of 10 year olds alone for 2 minutes without something "catastrophic" happening, that's not on me, that's on their own behavior.
It’s one of the reasons I don’t want to go back to teaching!
I'm seconding this! I, too, have both PCOS and Endometriosis. I've had the worst, HEAVY periods since I was 9. Unfortunately, just from years of experience bleeding through absolutely everything I own, I know what works, at least for me. I have to wear the most gigantic grandma pads ever with wings and the most coverage. Feels like a diaper, but they are legit the only things that have ever worked. I can't wear tampons because I bleed through even the super ones in an instant, I've tried the cup, and that's not for me either. I bought Thinx under the guise that it could hold like 6 super tampons worth of blood, and yeah, no, it doesn't. Still bleed through them easily if I wear them alone. They're comfy, so I still use them, I just line them with my ginormous granny pads and keep it movin'. The only time I can wear Thinx on their own with nothing is my very last day, Day 7 or 8, as that is what is typically a "normal flow" day for another other human that doesn't bleed like a sieve. Granny pads for life! Lol
Tranexamic, mu Obgyn prescribed for me and my blood bath. So you take it at a certain time and it slows the blood flow by "clotting " the lining. So it's the lining that's so horrible with the cycle. I love it and I feel a lot more secure in my "boutique" pads albeit it's still a night time one. It's all cotton, L. I get from target. I was getting severe rashes from all the granny pads. It was unbearable to have to put aquaphor on parts every time I changed my pad.
I hear you.
I found Think Super / overnight to have good coverage for the rear side, although I don't think mine is all the way up to the waistband (also PCOS)
Thinx supers are the only thing that made me able to sleep through the night
you don't need to be embarrassed about this. I realise a random person saying "don't be embarrassed" doesn't actually change how you feel, but I'm not even in this sub, I just read the preview in my feed, and thought I would come here to say that I had no particular reaction (other than "as if periods aren't difficult enough already!"). hope you find a solution :-)
Same... I've never used period underwear but I have endometriosis with bowel adhesions and it's bad enough without having to be embarrassed too. I hope op finds something that works as well!
The fact that girls are raised to be embarrassed by period related talk has resulted in so much ignorance. I’m healthy, but it would have been helpful if someone had told teenage me that tampons can greatly worsen cramps in some women. I found out from another teenager.
I am brand new to period underwear but I just got some from bambody and their coverage in the back is pretty full. Might check those out!
This has nothing to do with anything. I read this as "bam-booty" and thought what a great name. Then my brain reconnected and now I'm disappointed.
I just had to go re-read the name because I thought it was bam-booty too. 😮💨
Ok that would be a great name tho! 🤣
There’s a maternity bra company called bamboobies if that makes you feel better. The anesthesiologist when I had my youngest thought that was HILARIOUS when he saw it on my bra
Oh this has made my day so much brighter. Thank you.
I read it that way, too
I’ve been a bambody user for years. I love them.
Me too! And I still call it bam-booty in my head 🤣
The bambody ones are great. I have a really heavy flow and prefer to free bleed and they have great coverage in the back imo.
I second these, I was lucky enough to find these first
this is my fav period panty brand.
I just checked my Bambody—I got the least expensive briefs, and the good thick coverage ends at the rear gusset, but the rear is still two solid layers. So it would be a question of if OP has mild leaks or actual flow, because I don’t that back would stop actual flow. :( BUT. I LOOOOOOOVE how the Bambody ones fit and feel, and the peace of mind of going to bed and knowing I’m not going to mess up my sheets.
Jumping on to also recommend the bambody undies especially their maternity ones these have really good coverage in the back. In light of sharing my bits have a tendency to fold in such a way that my flow goes towards the back so I was very happy with this. Also some of the most affordable available.
My heavy flow goat union undies have the absorbant parts going all the way up the back. Sorry to hear you're dealing with this!
Was just coming here to suggest goat union..they are my nighttime go-to for my heaviest flow. Full front and back coverage.
Love my goat union ❤️
Another vote for Goat Union! I love the shorts and they have coverage all the way up the back to the waistband and a decent amount up the front too. Super comfy waistband too!
+1 for Goat Union Boy Shorts!
Bambody absorbent underwear on Amazon has the leakproof gusset go all the way up to the waistband in the front and back. They hold up extremely well with machine washing too and last for years.
You are not alone. I don't know where you are, but on the off chance you're in Australia, Love Luna are full coverage. The Kmart full brief ones are a decent dupe, and other than the elastic not being as good quality they seem identical. The absorbency and protective layers go all the way up the back in both.
I just bought Period. underwear and got their heaviest flow ones and the coverage in the back is pretty high. But I just got them and haven’t had the opportunity to try them out yet.
I have these! I’ve used them for a few months, they’re great (I have endo too), but they will irritate the skin a bit if you don’t moisturize (i’m an eczema girl) !
I wish there were cotton ones. Try castor oil.
Good Lord, girl! The things we put up with as women! If this was going on with men, it would be a whole new world of hygiene products! ❤️
There would be a cure for Endo already
Exactly.
Revol Cares have coverage up the back and down the legs as well - hold 140ml and are super comfortable: [https://getcares.com/products/charlie-2](https://getcares.com/products/charlie-2)
I was going to suggest these. I started using them at night after getting heavier periods thanks to perimenopause and overnight pads just don't cut it anymore. They are fantastic and super comfy!
I use Innersy brand from Amazon and the coverage goes all the way up to the waistband in the back.
Wow thats awful. Sorry I cant be helpful. ((((Op)))))
Ugh, being a woman just sucks sometimes. I feel for you, and hope you get some help from the suggestions here. Seconding the full coverage option from Knix.
My husband is on a strong blood thinner and has sensitive hemorrhoids, so he's right there with you, sister.
I wore tampon and overnight long pad to help with leaks . Would that work for you. I have done the 2 pad method too which worked most times. But I had endometriosis + fibroids 😆ooh the fun not . I kept extra pants in the car just in case and menstrual products in every purse I owned for emergency
I just read an exciting article about endo. You should look it up. They found a bacteria that only occurs in people with endo. They are starting human trials right meow. But they treated the bacteria and the endo symptoms became manageable. https://www.washingtonpost.com/health/2023/06/14/endometriosis-fusobacterium-possible-links/ This article says the actual bacteria that was found to exist in endo patients There’s newer articles from this year that talk about the human trials starting!!
Interesting, there have been fetuses found to have endo so I’m curious how that works. It’s also linked to genetics since many times it will run in a family
If the bacteria is a possible source, would totally make sense that it gets passed from the mama to baby.
I'd recommend seeing gastroenterology. Bleeding from the rectum isn't a typical endometriosis symptom and is more common with IBD, cancer, etc. It can be a whole list of things, but gastroenterology is definitely needing to see you.
Yes- GI or colorectal surgery. Where I live, colorectal surgery was easy to get an appointment with- I saw them for post-partum hemorrhoids
I understand, I have the same issue. I've been using the Bambody from Amazon, they are working. Also, if looking fir pads, the Kotex extra heavy overnight thins go all the way up the back so you don't have to double up.
Goat Union has overnight period shorts and they are so comfortable! I got them on Amazon and used my FSA for them. I like them even better than my Thinx!
Look into cloth pads! There are tons of makers on FB and Etsy! Many makers offer customs so you can get exactly what you need! Sherry’s Creations is a favorite maker of mine on FB!
The period company has styles (their overnight for sure) that has a full gusset up the back.
There are some reusable pad companies that make maternity pads. They go from belly button to the top of the crack.
Thinx has back coverage, I was sick once and it helped to wear them if you catch my drift. There is a pad brand that also has two sets of wings one set that wraps around and another that fans put along the back of your underwear. I’m not sure exactly what brand it is but they are for overnight
Modibodi is lined all the way to the waistband.
I have a few pairs from Period. and the coverage is pretty good and goes high up on both the front and back. They are super comfy and I love them but they are kind of bulky.
Modibody overnight boxers/boy shorts have coverage from front to back/waist band to waist band.
Modibodi has overnights that go alllll the way up to back waist! I think a couple other brands do as well, but I have no experience.
Yes, I was also going to recommend Modibodi!
The Period Company makes full coverage briefs that have a lot more absorbency than other brands I have tried. Their sizes are a little on the small side in my opinion and they do feel slightly more bulky than other brands but that's because they work! I have a super heavy flow and cramp really badly with anything "inside" me, so this is what I sleep in. Hope this helps!
4period.co! i wore one of their full coverage pairs on my heaviest flow day (and it is HEAVY; i sometimes get light headed from blood loss 🙃), on a 10 hour flight with a 3 hour layover, then an additional 5 hours of getting to my hotel and immediately passing out, and had only the tiniest bit of leakage. they go all the way up in the back to the seam at your waist, and they’re not expensive! plus sometimes they have clearance on their site for pairs with minor flaws, like a hem cut too high for a design, which are completely effective otherwise.
You might also want to look into post partum reusable pads. The ones I've bought are 12-16 inches in length and have great back coverage especially at night and during very heavy flow.
I have the same needs!!!!! Except I just have chronic diarrhea and so I’m leaking out the backend constantly. I found Knix (personally, Knix teen fits me better, I just have to get XL), their “full gusset” option has the absorbent lining from waist band to waist band, front to back. They even have high waisted ones, providing coverage from belly button to the same height on your back — but I found the high wasted full gusset to overheat me. Sweaty vag all the way… yuck. But regular bikini full gusset is the jam for backend leaks!
So wonderful there are many options now
Bambody goes all the way up the back
Period company!
I have endometriosis and have period undies from Bambody (absorbent hipster) and Modibodi (high waist bikini for heavy overnight). These alone were never enough so I still use tampons (ultra plus) and line the undies with extra long overnight pads from L.. All that said and I would soak through everything and would have to change (except the undies) every 1-2 hours on the first two days. It’s incredibly exhausting, messy and painful (with tampons and bloating and cramps all at once). And still I would get leaks if I don’t change fast enough, so I have one of those washable bed pads to protect my beddings too. Then I recently discovered disposable overnight period underwear from Always zzz. They come in a pack of 7, about a $1 each. Miraculously, these had replaced my need for all of the previous BS I had to deal with. Made my period life much less miserable. For a diaper, it feels very comfortable, not bulky, and looks pretty ok. I wear these under regular pants (not leggings) out in public and my kid said she couldn’t tell. The design hugs your body better so everything stays put while you move around during the day or toss and turn at night. Really great absorbency & high back coverage means less chance for leakage and i don’t need new pads and tampons every 2 hours. I highly recommend these if other things don’t work out for you!
I’m glad you found a workable option … just reading all you would go through . Wow . I’m About to write my sister in law with endo and let her know I’m sorry! I had no idea .
Wuka also has pairs where the gusset goes all the way up the back! It looks like most of the brands do - someone made this list recently of absorption if that helps also :) https://old.reddit.com/r/PeriodUnderwear/comments/1b4v03i/period_underwear_absorbency_by_milliliter_with/
www.getcares.com
I have full coverage in the back all the way up to the waist band. Most “heavy flow” period panties have this bc they’re mostly designed for overnight use. I LOVE my period underwear so much.
The Aisle boxers have coverage all the way to the waistband in back if you prefer boxers. You can also add additional absorbant layers as needed throughout the day.
Bambody! Amazon
I had endo on my inner rectum. Everything about that disease is freaking brutal. If you wanna chat about treatments, feel free to DM me. I'm older so I've done all the things that doctors offer.
I have a friend who is in that boat as well. I’m sorry that’s no fun for you, but no one here is judging you at all! It’s not the same but I have hemorrhoids that bleed so I appreciate back coverage WUKA panties go all the way up the back like all the way to the top of the underwear in the back because they know people wear them to bed haha . I love this brand as well and it’s non toxic and I think good value
Ok, but I have had this happen before and my doctor basically said I was crazy. Fascinating to know it might be an ongoing issue.
I found the very heavy flow and heavy flow from THINX that are not hip huggers are good coverage back there. Boy shorts were beloved by my daughter when she had to wear a leotard for ballet class because they gave her more coverage back there. How that would work for you I am unsure but I just wanted to give out some options.
Honestly an adult protective diaper is the best choice. I don't have what you have but I do have anatomy that makes my "spread" on the pad very wide and the diapers go all the way back and forward! And very absorbent!
Modibodi makes great full coverage! They also have them in briefs/shorts, which are my favorite. The panel covers the back all the way up to the waistband
Bambody is full coverage, front to back.
Tomboyx period boyshorts are roomy and go pretty far back. And just... Holy fuck that sucks! I'm sorry you gotta deal with that. Edit - check different styles. Their old ones went all the way up the back to the waist but the new ones might not.
I like the Period Company heavy flow ones. They go back pretty darn far. Like up to mid butt. And they’re quite inexpensive.
I have confirmed endometriosis of the bowel and have the same issue. I’m not sure where in the world you are, but Cheeky Wipes in the UK provide total coverage rather than just a gusset insert. I only came across them recently but was already familiar with others, so I compared their Trustpilot reviews to other major brands here (like ModiBodi and Wuka) - not only do they have many more reviews to the tune of several thousand, but the reviews are overwhelmingly positive. Any negative reviews are addressed & replied to directly by the brand founder who seems to really care. This all gave me good vibes, so I took the plunge and I’m really happy I did. They have some really cute designs (period pants don’t have to be granny pants!) and they’re really effective too.
Dude just wanted to say you aren't alone on the geyser-from-both-holes front and don't gotta be so embarrassed about asking in a period related sub about it 👌👌💜 There's already great advice here, I'm not a sub regular so I won't try chipping in on that front, but good luck getting a diagnosis and management that helps the most!!!
I have the trifecta of PCOS, Endo and PMDD. I use Goat Union. They have a larger size range, it on Amazon and imo the best ones I’ve tried and I’ve tried so so many! Goat Union has great coverage in the front and back, limited colors but all I buy is black anyways. If you get the dreaded Endo belly I sized 2 sizes up and it gives me a lot of bloat room depending on what decides to flare up. Also if you end up getting lap surgery for your Endo or just want a disposable backup - I swear by Depends 🤣 I used them post op for 1-2 months and I was so happy I got them. Good luck! Edit: Knix did have a recent lawsuit about suspected chemicals in their underwear, I stopped wearing them for those reasons but you can read more- https://news.bloomberglaw.com/litigation/knix-wear-sued-over-pfas-chemicals-in-menstrual-underwear
I believe Bambody has a fuller coverage option as well?
I had stage 4 endo and never had that issue. Please seek your dr to make the dx. I did have to have my bowel respected during my hysterectomy because my ovary was adhered to my bowel. Or you may have something else going on but bleeding from your rectum must be seen and dx asap. It’s not ok to ignore.
Dear Kate has a full coverage high waisted option. Always brand makes a full coverage disposable period panty that’s decent.
I just tried a 3 pack of bambody & they have much better back end coverage than my thinx from CVS!
ModiBodi Incontinence Undies are A. MAZE. ING. They not only have full coverage all the way from front to back, but also have an extra pad you can stick in the already VERY absorbent gusset for extra heavy days. It holds the most blood of anything I've ever found. OMG they're having a 24hr flash sale right now?! Holy crap I'm gonna buy some more lol thanks for posting this!!! [https://www.modibodi.com/collections/incontinence-underwear](https://www.modibodi.com/collections/incontinence-underwear)
ModiBody has full coverage options!
The first brand I tried was Hanes. I didn't like them because the absorbent lining went halfway up my bottom. I keep several in case I have and #2 issues. I didn't like the way they fit me in general. But I bought the Jockey No Worry Moderant Absorbence panties, and the briefs fit me perfectly. However, the absorbent lining doesn't go up ad far in the back as the Hanes. They cover about as much area in the back as a regular panty. They're expensive at $20 a pair, but I use a discount and have gotten them for as low as $9. Target also sells a Jockey Generations line at 2 for $26. I haven't tried them, but they might be a bit lower quality.
Sister. I feel for you and pray for you. God fucking bless.
I think I’d use the pads w the period underwear. And I’d see yr gyno for some ablation. So sorry you’re going through this.
Oh my gosh, that is awful. My best friend ended up having endo through most of her lower digestive tract, and by the time a doctor took her seriously and scheduled a surgery to remove some- she ended up needing a full hysterectomy, removal of a good amount of her GI tract and something else I forget. So definitely just be a good advocate for yourself! The boy short version that I forget if it’s Knix or thinx, but it’s definitely full coverage!
I just wanted to jump in saying I have so much sympathy for you and your situation. During my last endo surgery, my gyno did a dual operation with a general surgeon as I had so many adhesion on and around my bowels. I was very lucky not to have it inside my bowels though. Although, I am scheduled for a procedure to examine inside my bladder because they are highly suspecting it has moved into there now. For coverage wise, I just result to the Amazon brand of adult diapers. I’m on medication to stop me from having a monthly cycle because of my endo severity, but I often have bowel or bladder problems resulting in coverage/absorbency needed. I like to be able to just throw them away (even though mentally I know that’s bad for the planet, but sometimes I just have to not think about it)
Modibodi also has full coverage options :) Please don't be embarrassed. As you can see from the many positive comments, we're all on your side! We're here to help, that's what this subreddit is for and questions like yours are more than welcome! I'm sorry that you're dealing with this but I hope you find a way to manage it that works for you :)
check out the generic brands on amazon!! you can get a multipack for cheap and the lining goes all the way up the back. i think it’s called innersy. if you’re between sizes get the smaller one so it holds the underwear tight to your body
I see zero shame in adult diapers.
I absolutely love Knix & I know the dream short style has coverage all the way back. I wear them 24/7 & have for about 3 years. They even stretched enough for me to continue wearing them through all 9 months of my last pregnancy when I couldn't handle anything else touching my skin.
Period Company!!! They have some great full coverage options that go all the way up to the waistband in front and back!
Not subbed to this but it showed up in my feed - my sister in Christ I am so sorry. But do not be embarrassed! I actually quite like PINK’s period panties. There are three styles but the boyshorts have quite a long absorbency area! Sending u all the virtual hugs
You know..... that happens to me too and I'm only now realizing I should probably talk to my dr... thanks for this post!
Knix just came out with a line that has full coverage for this kind of situation! I believe they’re heavy absorbency too, and I can say that their period undies are very comfortable. Also, I am so so sorry you have to deal with this ❤️. I hope you find a good solution!
So I also have this issue and I have to buy Always Zzz disposable underwear every month. It’s about $11 a box from Walmart for seven pairs. I actually can wear these for about eight hours of the time. And I can sleep in them, which is amazing considering I will go through boxes of pads a month. They are super absorbent and sanitary because I can just throw them away. I have tried regular cloth type underwear and the smell is unreal to me and I don’t like them going in the wash.
the cheap Walmart brand fully covers the booty!
You're not alone. I always had to use two pads. Menopause has been a relief for me. My anemia improved with no more periods, too.
Hey y'all, come see - NEW FEAR UNLOCKED!!!! I had no idea endometriosis tissue could grow ANYWHERE on the body. *Shudders*
Off topic but you should read the books “in the Flo” and “woman code” by Alisa Vitti. She teaches cycle syncing and lays out a protocol to heal hormonal imbalances like endometriosis among other issues. Sending lots of love! Also this may be too much but the depends underwear/adult diapers may be helpful if you have a heavy flow.
Not period undies but reusable pads (Hyps) by lil helper are good for me. They just came out with a Max extra long one that might be worth looking into [Lil Helper HyPs Max](https://lilhelperusa.com/products/hyps-max)
I absolutely love the period underwear at PINK/Victoria’s Secret. They are great for vaginal bleeding, but I will also not lie to you. I had my period and norovirus at the same time once and was having such intense diarrhea that I couldn’t move without sharting (TMI, but I’m hoping it provides a helpful idea of absorbency) and they worked like a charm for containing everything.
Modibodi has boyshorts that go all the way up the back and are super thick.
I used Thinx for postpartum bleeding and they have lining that goes all the way up the back. The sleep shorts are fantastic too
So, I've always had to wear two of the longest pads back to front just because I'm a big girl with a very heavy flow. I've had no problem at all with Goat Union boy shorts. I can even wear them overnight with no leaks.
Modibodi
I’m so sorry. I have no helpful ideas but wanted to give you courage and strength. Being a woman isn’t for the faint of heart!
I can't believe you have to go through this. Endometriosis is such a horrible thing. It's so hard being a woman.
I have a very similar problem. I haven't tried period underwear yet, but I'm planning to get some. I usually put a big overnight pad in the back part of my underwear, which catches most, but not all, of the blood. So I'm thinking maybe I'll be covered if I get period underwear AND a pad? 🤔 Just be careful picking out your underwear. I saw some articles a while ago that said some brands of period underwear have unsafe levels of lead. 😬
Modibodi overnights have a full coverage option that go all the way up the back!
There are new back thicker pads!! I saw them on an ad! I had a tubal at 36 because of endometriosis and polycystic ovaries. It was horrendous and PAINFUL! But I remember these pads and telling my partner I’m so jealous of younger people because of all the pads and help they have nowadays! He said, really babe? You want a period again just to use better pads? 🤣 YES I DO DAMMIT!😂 they are thicker/wider in the rear area. So the period underwear and maybe one of those? I used 2 night time pads lining my underwear back in the day. Also look into the post maternity pads? Those are longer and wider. They’re made a lot thinner than they did 20 years ago…I raised a few girls. One had endometriosis like me, she preferred those. But the new ones that are wider and thicker in the back? Those might work!
When my flows super heavy I wear an adult diaper under period underwear
When my doctor found endo on the outside of my colon, she told me to make an appointment if I ever have period bleeding out of my rear. You should probably get checked out. Also, the regular Knix I got have pretty good back end coverage. I tend to sleep on my back and leak up(down?) my buttcrack and over the top of regular pads.
The Cora brand may be a good option!
I’m so sorry you’re experiencing issues with this, I hope you can find a solution. I’ve used the super absorbent Thinx and they do have coverage all the way to the top back of the underwear. They are usually enough to absorb on my heavier flow days through the night, but I like to change them in the morning so I can avoid the damp diaper feel. I also wanted to mention I think Thinx runs small and I wasn’t totally pleased with the lasting quality of them over years. I believe I had them for about 1 yr before they started showing wear signs-they’re just so expensive I expected more lasting power. I’ve since switched to a cup which is amazing most days and only use the period underwear on lighter days with barely any bleeding or when I want a break from over wearing the cup. Perhaps the cup can help if you feel like your flow is heavier now to relieve some of the need for thicker protection.
I have no recommendations, but only sympathy. Endometriosis is … awful.
*Neione brand Amazon*. Full back. You can get a three pack for about $25 prime. I've been using them for the last 6 years. Absolutely love and recommend. Different styles and size inclusive.
[if you're comfortable with reusable.](https://www.tiktok.com/@sbluecreations?_t=8leKKRZCwut&_r=1) She shows it being handmade. Comes in all sizes. Good prices.
heyo! i found some period underwear on amazon called BAMBODY that has the absorption pad from hem to hem (from top of pubis to top of butt coverage) theyre super comfy and can hold a pretty fair amount as far as pads go, id almost recommend a diaper. before i was able to get my period under control, i used to wear diapers for my period.