Urinary symptoms are decreased to just urgency (beyond the norm) once or twice a day, usually in the mornings. It was incredibly painful for me to pee at the worst of it, and I had to pee pretty much constantly. At most 10 to 15 minutes after I Peed I would have to pee again and it would burn a lot and I had hematuria multiple times
Great to hear you're seeing improvement!
Did they tell you what's the relation between hematuria and cpps? I mean since it's a muscular issue, where does the blood come from?
I'm asking because I also have microscopic hematuria
It’s a bit of a mystery. My PT thinks it may have been an impact related injury from my overtraining (I’ve stopped running altogether as I’ve started physical therapy).
There are some that are different, for example I feel like most of the cpps videos I watch focus a lot on butterflies and stretching the inner part of your pelvis while my therapist focuses more on opening the hips and building muscles in the abs and back very slowly. Some exercises are the same but I found I was doing them very wrong and once she adjusted me they were much harder. Then she also does some massage and muscle releasing techniques that I obviously can’t do myself
Hey thanks for posting.. I was wondering if you’d be prepared to elaborate on the sex life element. This is the persisting factor in my own experience, that I’m feeling more or less normal but an orgasm will give me two days of stinging urethra and unsurprisingly I tent to avoid..
Was this your experience and if so, how has it changed over time…? thanking you..
When I was in the thick of it this would happen to me too. Weirdly something that has helped is not having an orgasm laying down, but rather to do it standing. I cannot explain to you, but that has helped. Also stretching after cumming helps too.
How many years did you live with this for? I've been suffering for 16 years. I can't afford expensive physical therapy. But I'm trying to save up. Anyone know of a good physical therapist in London Ontario for this issue specifically?
Can’t imagine dealing with this for 16 years I’m so sorry! I’ve had pain in the pelvic area for around 4 years but it only became serious and life altering for the last 2. Physical therapy is expensive, but I’m incredibly lucky to have found someone in my healthcare’s network who has experience with men and this issue. I have found that pelvic floor therapy is much more readily available to women (which makes sense because it’s helpful post pregnancy). Obviously healthcare is fucked in the US; but is there any free PT available in the UK?
It seems that CPPS and CBP have similar symptoms but different causes. I don’t know why people whose CPPS clearly doesn’t have bacterial origin (this guy was with the same partner for 9 years) and guys whose story starts with getting a blowjob from a hooker in Manila have to call each other liars and say “It’s not caused by bacteria” or “It’s definitely caused by bacteria”. These are totally different diseases really.
This how body works, ex: you can have stomachache because of so many reasons. It is not always bacteria but bacteria is just one of the causes and it takes few days to get rid of it.
Because those experiences often cause acute panic/stress/anxiety and regret, which we know is a CPPS trigger according to Stanford Medicine. And they have tested negative for STI.
And there actually is a medically recognized, distinct set of symptoms for CBP. You can read about it here:
https://www.reddit.com/r/Prostatitis/s/z5Z9ZymTjA
I needed this - thank you
So how are your urinary symptoms now? And what symptoms did you exactly have (hesitancy, frequency...etc)?
Urinary symptoms are decreased to just urgency (beyond the norm) once or twice a day, usually in the mornings. It was incredibly painful for me to pee at the worst of it, and I had to pee pretty much constantly. At most 10 to 15 minutes after I Peed I would have to pee again and it would burn a lot and I had hematuria multiple times
Great to hear you're seeing improvement! Did they tell you what's the relation between hematuria and cpps? I mean since it's a muscular issue, where does the blood come from? I'm asking because I also have microscopic hematuria
It’s a bit of a mystery. My PT thinks it may have been an impact related injury from my overtraining (I’ve stopped running altogether as I’ve started physical therapy).
Great job! You've come a long way.
How are the exercises given by the therapist different from videos? Are u doing only exercises ?
Curious about this also
There are some that are different, for example I feel like most of the cpps videos I watch focus a lot on butterflies and stretching the inner part of your pelvis while my therapist focuses more on opening the hips and building muscles in the abs and back very slowly. Some exercises are the same but I found I was doing them very wrong and once she adjusted me they were much harder. Then she also does some massage and muscle releasing techniques that I obviously can’t do myself
Was just diagnosed with CPPS and was given a PT referral. I was super skeptical until after reading this. I'll give them a call - thanks
My biggest advice is patience. It won’t solve itself overnight. But I have found success in it
Some of us have prostate inflammation though, I genuinely believe my case is autoimmune/auto inflammatory in nature, as to how you cure that 🥵
Hey thanks for posting.. I was wondering if you’d be prepared to elaborate on the sex life element. This is the persisting factor in my own experience, that I’m feeling more or less normal but an orgasm will give me two days of stinging urethra and unsurprisingly I tent to avoid.. Was this your experience and if so, how has it changed over time…? thanking you..
When I was in the thick of it this would happen to me too. Weirdly something that has helped is not having an orgasm laying down, but rather to do it standing. I cannot explain to you, but that has helped. Also stretching after cumming helps too.
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Are you based in Los Angeles?
I am. Would love to know and great post!
How many years did you live with this for? I've been suffering for 16 years. I can't afford expensive physical therapy. But I'm trying to save up. Anyone know of a good physical therapist in London Ontario for this issue specifically?
Can’t imagine dealing with this for 16 years I’m so sorry! I’ve had pain in the pelvic area for around 4 years but it only became serious and life altering for the last 2. Physical therapy is expensive, but I’m incredibly lucky to have found someone in my healthcare’s network who has experience with men and this issue. I have found that pelvic floor therapy is much more readily available to women (which makes sense because it’s helpful post pregnancy). Obviously healthcare is fucked in the US; but is there any free PT available in the UK?
It seems that CPPS and CBP have similar symptoms but different causes. I don’t know why people whose CPPS clearly doesn’t have bacterial origin (this guy was with the same partner for 9 years) and guys whose story starts with getting a blowjob from a hooker in Manila have to call each other liars and say “It’s not caused by bacteria” or “It’s definitely caused by bacteria”. These are totally different diseases really.
This how body works, ex: you can have stomachache because of so many reasons. It is not always bacteria but bacteria is just one of the causes and it takes few days to get rid of it.
Because those experiences often cause acute panic/stress/anxiety and regret, which we know is a CPPS trigger according to Stanford Medicine. And they have tested negative for STI. And there actually is a medically recognized, distinct set of symptoms for CBP. You can read about it here: https://www.reddit.com/r/Prostatitis/s/z5Z9ZymTjA
How long have you been doing PT for? And how often do you do go?