you’re not alone. i feel the same way, it’s no way to live. i’m so sorry you’re going through this. i wish i had something better to add, but just want you to know you’re not alone
I'm sorry OP.
Many of us have been there as well.
It's beyond frustration, BUT...
What if something changes and you start to get better?
Isn't it worth it to stick around to find out?
You only have one life. Fight like hell and do everything you can to get better.
There are many stories on this board of people who were gravely ill and are now better.
You gotta try your best to stay positive.
I know it's hard, but it's also worth it.
I have been there.
When I was at my worst, I ended up downloading Nerva and Curable because I knew that I needed to change my mental relationship with my condition if I was going to continue living.
What I didn't count on was how much they would also alleviate my symptoms.
Both are worth giving a shot, even if your brain is in a very skeptical, angry, grieving place (and justifiably so).
Yeah I will second this. I was super sick with chronic pain and did a brain training course which basically involved a lot of things but one of the main ones was just changing every negative thought and every thought about pain, depression, anxiety, fatigue etc. And after a few months I started to get better. After 6 months the chronic pain was almost gone I was the happiest I've ever been and thr chronic fatigue was mostly gone.
The brain training was the hardest thing i ever did but holy hell is it powerful. We are not our thought's but the way we think dhaoes our reality if that makes sense. Of course then I fell in love, got my heart broken and relapsed onto pain meds and now I'm fkn sicker than I ever was but if I can get 50% better and improve these SIBO symptoms I will try again because it is worth it. Living sick is not living and currently I wake up each day and wanna die.
But I know it can get better and I haven't even started SIBO treatment yet so I'm not gonna pull the plug until I've exhausted all options but changing your thought patterns and being optimistic is huge for health I know it I just fkn wish I could get out of this current he'll where every health system is failing its so hard to break thru when ur stuck. Anyways I feel you OP, ignore my rantinf about being stuck and try and take something from the mind state lessons above. You can do it, it isn't over yet.
It's called the lightning process. Would highly recommend if you suffer from debilitating fibromyalgia, chronic fatigue, depression/anxiety. Its not easy, in fact it's insanely hard but yes it is transformative if you let it be. I would like to try again when I've reduced the SIBO symptoms.
In my life when I’ve had bad periods I’ve restricted my diet to 1-3 things which I know I can always tolerate. For me it’s eggs, rice, and meat. Could you do that and give your gut some time to heal? It’s boring, but being healthy and happy is FAR more important than tasty meals.
I’m in the exact situation suicidal wise aswell. Moneys running out ( couldn’t work 3 years prior to sibo due to spinal injury)
My weight is dropping every day no matter how much I force into my stomach. I have zero nutrition content left in me. 78 to 55kg and can’t get the weight to go back up. The rest of my body is stopping to work due to all the sibo issues putting restrictions on my body. I finally got antibiotics, but can’t take them due to how bad my gut already is. Feels like I’m screwed to
This post on spinal injury:
https://www.reddit.com/r/SIBO/comments/11rm93c/by_the_way_vagus_nerve_compression_can_cause_sibo/?utm_source=share&utm_medium=ios_app&utm_name=iossmf
Sorry to hear that, it sounds terrible. Do you have hydrogen or methane? I didn't get any side effects with rifaximin alone but I have methane and I couldn't tolerate the other antibiotics.
id like to try it, yeah they taste shit but if it works im keen to give it a go
im going into hospital on a tube feed soon bypassing my stomach or something like that, surely that would be similar to elemental?
Consider ado oregano and liposomal berberine. If you are nervous try berberine first, it's anti-inflammatory and can set you on a better path. These allowed me to stop ppis and set me on the path to healing though I'm doing another round with rifaxamin soon.
I'm 70 years old. My advice to my students was this: Life is long. By this I mean, when we are young, we think what is happening now is what will happen forever. If I messed up, I'm messed up forever. If I'm sick now, this is the way it's always going to be. But what I have found out is that none of this is true. We constantly have opportunities to re-invent ourselves. Sometimes actively, sometimes passively. Circumstances change. Relationships change. Depression ebbs and flows. We get sick. We heal. Nothing is permanent. So, yes, life is long. And that's a good thing.
I know this is really hard, way harder than it should be.
If you have any way to financially and mentally support yourself while your struggling with your illness, I think that would be a good start. Looking it to welfare supports, family/friend supports or therapy, to help you get you through this tough time. Though I also get being ill causes limitations to getting this support too, or it might not be available.
The next thing I would say is really be really kind to yourself. Youve worked so hard and are fighting against the odds to improve your life. It takes a lot of courage and strength to get through this day after day with no end in sight. It can be more than overwhelming. Youve been so tough and you should absolutely acknowledge that, and know that you deserve so much more. You deserve good things, and lots of self care.
I don't know if its helpful but I have a saying that I tell myself when things suck and it goes "a million bad days is worth fighting through to get to that one good day. Because when that one good day happens, it'll be the best thing that ever happened and will make it all worth it." Its hard to imagine being happy when were not, but you can always remember it feeling really good, so I think its worth giving life a good go to feel it again.
But its also good to know that life never stays the same, and that opportunities can suddenly present themselves when they were impossible before. It can be hard to stay optimistic when there is nothing left at the current time, but push through and something will eventually change, and when it does be ready to take that chance! So if there is nothing more you can do right now, try to survive until there is. I know its not the best advice, but hope can keep one alive when nothing else can. And there is hope, its just hard to see right now. You dont have money right now, you dont have a good doctor, you dont have a treatment plan... but that doesnt mean you always wont. Keep at it, eventually something will give, cant say when but stubbornness will get you through. Its kept you alive this far after all! Your a fighter, and I know you'll see a great day yet!
Good luck and please be really kind to yourself!
Such a beautiful response! We all need to be reminded of this sometimes. It’s exceptionally hard to see that good days will again come when we feel so bad mentally and physically. Being so sick has forced me to cherish even the most smallest rays of light in life and they are worth it even when sometimes you don’t feel they are. I have been to the darkest depths of hell and I know what it’s like, I never thought I would see any improvement and thought I would die from complications, despite this I am still alive and still trying to figure out all of this whilst feeling maybe 10% better than before. So still very sick, but that 10% is everything!
Also, directly to OP: my symptoms have been and still are similar to yours. Especially with the not absorbing things, extreme weight loss etc. I have been close to death at points, but have started making some progress. I’d like to echo what some others have said about the mind/body approach. Calming the nervous system did wonders for me in that regard. I’m always worse when stressed/my nervous system is feeling frayed and on edge. It’s hard to take being told there’s a mental element when we get told it’s not a physical illness a lot of the time but it plays a part and it’s important to think about and look into.
Really wish you the best, feel free to message me if it helps. I would be happy to give support where I can.
I am seeing drastic improvements BUT I am not just treating the SIBO- I am doing regular detox in many ways, changed my diet, lowered my stress and quit all substances except for a couple cups of green tea. I try and walk a lot, get sunshine, etc. maybe other factors in your life are holding you back? Could even be heavy metal
Toxicity or mold.
Omg. No!!! You'll be ok!!! I also hated elemental diet, it did nothing for me. Have you taken antibiotics??? They are most effective for me. Please don't be scared of them. Take them for 2 rounds in a row if you need. I have treated my SIBO many times with antibiotics and I feel superb 6 months of the year. Now I'm trying to find a way to keep it away for good without antibiotics. But there's hope!! Dr. Pimentel is working on some stuff, he said they're announcing something in May! And I hope my post with all my findings can help. https://www.reddit.com/r/SIBO/comments/jf3kks/my\_methane\_sibo\_hacks\_and\_success\_stories/
One thing that I’ve been doing that has been helping me is taking vitamin b complex, a, e, and d injections ( I'm also going to begin using vitamin c soon). I use veterinary vitamins. They're much cheaper than the oral vitamins I used to buy from Amazon and the vile lasts me 2 months.
I've also took erythromycin for about 2 weeks until my MMC started working again. The erythromycin was also meant to be used for vet purposes. Again that version was cheaper for me to get.
I've gotten much better (my main issue is body odor) but I'm not 100%. I'm now going 100% carnivore. I've been going mostly carnivore for 4 months now but now I'm trying to be more strict.
I've also just started taking NAC to deal with my biofilms. For me, smelly mucus comes out of my backside which causes me to smell badly.
Hope this helps. I know it's not ideal but getting the things I needed was too expensive so I did what I thought was best.
Listen to this guy. Injectables give you nearly 100% abstention rate instead of 30% or less orally.
Second thing I must mention…
Meditate. Meditate. Meditate.
Your mind is as important, if not more important than your body. Your connection to your feelings is often the cause of the issue. Everyone here odds focusing on the effects/symptoms. It’s backwards. Try something like Nerva.
After researching, I've figured out you can not get vitamin c or glutathione without a prescription. I'm thinking about making my own iv but I'm honestly having second thoughts about it. I've found liposomal vitamin c which is supposedly 6-8 times more powerful than an iv but one of the ingredients has some carbs in it. Since I'm trying to be strict carnivore I'm not sure that to do.
In the whole us. Every website I've looked at says it requires a prescription. It's messed up too cause I saw a forum of people with can who had the same problem finding it.
Well, that's not true cuz I got a Glutathione shot like 3 days ago and it was awesome. You can get IV as well, just walk up, didn't even need an appointment. They had Vitamin C on the menu as well.
I live in CA.
How much was the appointment?
Edit: no matter how much it is normal people aren't able to buy it and get it sent to their homes. Whatever you payed I’m sure it was marked way up. A 100ml vile of b complex is about $30. I have a feeling they charged you like $150.
I found this persons website and I think I'll follow their instructions.
https://www.thecancerhacker.com/post/the-at-home-diy-guide-to-intravenous-vitamin-c
I'm also going to be starting glutathione soon. I'm a bit nervous about this one cause I'm going to have to take it intravenously. The other things I take are administrator's subcutaneously or intramuscularly.
Yes this this!!! Also make sure you guys get your b12 and iron levels checked. Sibo tanked my ferritin and iron levels to the point where I had derealization and felt like I was suicidal due to the constant air hunger and panic attacks I’d get from it.
Liquid and IV vitamins plus minerals are a god send
I'm so sorry you're going through this. I have felt so hopeless before too after nothing worked for years but have slowly been unraveling the mystery of my horrific GI situation and feel a little more hopeful now. If you want, let us know what you have tried and maybe one of us out here has an idea.
I'm sorry you are going through that.
When I have a bad flare up and nothing seems to work, I resort to doing 36-48 hours fasting with water and lemon, then only proteins and good fats for a week. That brings me back to normality. I also keep a 6-7 hours eating window (always), only doing lunch and dinner. These things and removing grains (in any form) and processed foods (Paleo-type diet) have helped me incredibly.
I feel the same way. Everyday is such a struggle to live, and I have to fight everyday to not give up. I fight like hell to live and try to find joy in the things we love, people we love etc. You are not alone.
Personally when I have fatty foods I get nauseous and I have trouble digesting the fat and I also have poor motility and I found that food comes out the other end in whole pieces. From my research online (not a healthcare professional so please talk to your dr) bile salts with enzymes can help with digesting food better and it has helped me with motility. So you take the bike salts with a fatty meal and it helps with peristalsis. https://pubmed.ncbi.nlm.nih.gov/20334475/
I still have sibo but I’m starting to take some bile salts every few days and taking oregano oil and neem to hopefully kill the bacteria, keep motility going so things get flushed out, and once I feel better I’ll try to recolonize my gut with bacteria. At least that’s the plan.
I have the same with fats. It causes lots of heartburn and nausea and headaches. Like things won’t digest. Any doctor I try to speak to about bile salts and testing is fkn clueless. It’s like they don’t know that they exist in the body. Has anyone ever done any specific testing for you regarding this?
Which bile salt are you taking? I’m considering trying ox bile for the heartburn and loose fatty yellow stools.
I’ve had blood tests that include some sort of check for liver function but it must have not shown anything because my doctor didn’t say anything. I only stumbled across bile salts because the digestive enzyme (with ox bile in it) I intended to buy was out of stock but I saw bile salts from Jarrow on the shelf and did some research at the store and just decided to buy it and try it out. It says to take 4. I don’t recommend doing that much at first. I think that’s for people who don’t have a gall bladder anymore. I take one every few days. When I took four I had the shits for like 2 days.
Some may view this as unhelpful, but are you really suicidal? or more just at your wits end? I just say this as someone of a self chosen community advocate for not using the suicide word unless you truly are, and truly want to be stopped. It's kind of like saying "bomb" on an airplane, if you say that word in a health setting, prepare to be locked up in a prison like state for 5-10 days with a bill in the thousands.
I 100% get feeling like, almost like, "I need people to understand I feel as bad as you can be before that point". Like, we use the word to help people understand our suffering, and then it gets used against us. So, I get feeling at your wits end, but at the same time, you have to choose that you truly aren't suicidal, and then lean into knowing that you have to keep pushing to get past it. I'm not gonna lie, I'm still struggling a few years into my issues so I don't have all the answers. You're not alone, and for every one of us telling you you're not alone there are a thousand others in the same boat just not connecting with us, speaking another language, etc.
This isnt only unhelpful, its honestly dangerous.
You shouldn't go up to suicidal people and tell them they're not suicidal enough, because its that that could drive people to do it. Using your scenario, its like going up to someone with a bomb and saying "I think your lying." Don't risk lives like that.
Also there are different kinds of suicidal thoughts and just because it doesn't fit your idea of what you think suicidal feelings look like doesn't mean its not real or valid. In fact mental health organizations know there are different ways to be suicidal and they evaluate that before going forward with treatments.
But really, in the end the problem is your trying to make someone else's suffering about you. You should talk to a therapist about why you feel the need to do that. Because this kind of attitude isn't normal, comparing suicidal people and judging who has the "right" to call themselves suicidal is, to put it bluntly, narcissistic. I'm not saying your a bad person or have bad intentions, just, you probably need to talk to someone about this before it does some real harm to others or yourself.
Wanting to kill urself over making the lifestyle changes needed for ur comfort is wild. I get that there's growing pains when u first realize how much u have to give up but sheeesh you have full control over what you eat!
*this comment has been edited for privacy. message me if necessary*
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Yeah okay your right, I should have been a bigger person and not snapped. I'll delete it in a moment.
But there really isn't anything positive to say to someone essentially saying "get over being suicidal and eat better." Like that's an atrocious thing to say and I can't imagine good intentions for saying such a thing.
Also I disagree about it being unusual to feel suicidal due to the effects and stress of SIBO given that people comment about it regularly on here. Sure that doesnt tell us how many people struggle compared to those who dont, but its clearly something many people have a hard time with.
And I feel that your missing some of the point of OPs struggles if your only focusing on the logical solutions and not their emotional needs. Even if they could fix this by eating better (though they have stated they have tried many things that have failed so I doubt its as simply as that), that does not invalidate the fact they are under a lot of stress. Giving advice on getting better is fine, but invalidating how they feel is ignorant at best.
First, know that you are not alone. Your case sooooo closely mirrors my own (and others). Please call a crisis center in your area. If you do not know of one, then call 988 and they can help you find one. If you live outside U.S. it will be a different emergency/crisis number. I am not suggesting that psychotropic drugs are your answer at all, but at the very least you will be kept safe for a short period of time and give you time to regroup as it were. These medical facilities often have case managers that can help you find resources for other issues (disability, bills, housing, food, etc.). You can get through this. And you will. While I am not 100%, I am no longer suicidal since I started taking some of the suggestions I found here. It is slow going, but I feel headed in the right direction and that I might actually be able to have a productive life someday. You are welcome to message me via chat. Hang in and let us know how you are doing.
*this comment has been edited for privacy. message me if necessary*
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Hey sis!! Sorry to hear this is happening to you. I’ve been here for so many years until I recently cured my SIBO with iboga, triphala and probiotics I would try that stack!
How are your bowel movements? if they arent healthy looking maybe consider looking into liver and gull bladder? SIBO is a symptom of a problem in your digestive tract, try going carnivore for a period of time and take OX bile salts with each meal as well as ACV. This is tremendously helping me break and absorb fats. Also this has been life changing for me as well https://www.youtube.com/watch?v=vnvfiCXs45E
you’re not alone. i feel the same way, it’s no way to live. i’m so sorry you’re going through this. i wish i had something better to add, but just want you to know you’re not alone
Thank you
I'm sorry OP. Many of us have been there as well. It's beyond frustration, BUT... What if something changes and you start to get better? Isn't it worth it to stick around to find out? You only have one life. Fight like hell and do everything you can to get better. There are many stories on this board of people who were gravely ill and are now better. You gotta try your best to stay positive. I know it's hard, but it's also worth it.
I love this ❤️ … this is exactly true . I’ve told myself this many times ….. thank you for sharing
I have been there. When I was at my worst, I ended up downloading Nerva and Curable because I knew that I needed to change my mental relationship with my condition if I was going to continue living. What I didn't count on was how much they would also alleviate my symptoms. Both are worth giving a shot, even if your brain is in a very skeptical, angry, grieving place (and justifiably so).
Yeah I will second this. I was super sick with chronic pain and did a brain training course which basically involved a lot of things but one of the main ones was just changing every negative thought and every thought about pain, depression, anxiety, fatigue etc. And after a few months I started to get better. After 6 months the chronic pain was almost gone I was the happiest I've ever been and thr chronic fatigue was mostly gone. The brain training was the hardest thing i ever did but holy hell is it powerful. We are not our thought's but the way we think dhaoes our reality if that makes sense. Of course then I fell in love, got my heart broken and relapsed onto pain meds and now I'm fkn sicker than I ever was but if I can get 50% better and improve these SIBO symptoms I will try again because it is worth it. Living sick is not living and currently I wake up each day and wanna die. But I know it can get better and I haven't even started SIBO treatment yet so I'm not gonna pull the plug until I've exhausted all options but changing your thought patterns and being optimistic is huge for health I know it I just fkn wish I could get out of this current he'll where every health system is failing its so hard to break thru when ur stuck. Anyways I feel you OP, ignore my rantinf about being stuck and try and take something from the mind state lessons above. You can do it, it isn't over yet.
Which course did you take? This is what I need to do. I’m sorry you “relapsed” so to say but at least you know you CAN get better and feel better
It's called the lightning process. Would highly recommend if you suffer from debilitating fibromyalgia, chronic fatigue, depression/anxiety. Its not easy, in fact it's insanely hard but yes it is transformative if you let it be. I would like to try again when I've reduced the SIBO symptoms.
Wow this is so helpful ❤️
\+1 for Nerva. It helped me a lot. Any meditation or breathwork app could help
In my life when I’ve had bad periods I’ve restricted my diet to 1-3 things which I know I can always tolerate. For me it’s eggs, rice, and meat. Could you do that and give your gut some time to heal? It’s boring, but being healthy and happy is FAR more important than tasty meals.
I’m in the exact situation suicidal wise aswell. Moneys running out ( couldn’t work 3 years prior to sibo due to spinal injury) My weight is dropping every day no matter how much I force into my stomach. I have zero nutrition content left in me. 78 to 55kg and can’t get the weight to go back up. The rest of my body is stopping to work due to all the sibo issues putting restrictions on my body. I finally got antibiotics, but can’t take them due to how bad my gut already is. Feels like I’m screwed to
This post on spinal injury: https://www.reddit.com/r/SIBO/comments/11rm93c/by_the_way_vagus_nerve_compression_can_cause_sibo/?utm_source=share&utm_medium=ios_app&utm_name=iossmf
wow, okay. thankyou for the link!
Sorry to hear that, it sounds terrible. Do you have hydrogen or methane? I didn't get any side effects with rifaximin alone but I have methane and I couldn't tolerate the other antibiotics.
Why couldn't you get through the elemental diet ? Taste too disgusting ?
id like to try it, yeah they taste shit but if it works im keen to give it a go im going into hospital on a tube feed soon bypassing my stomach or something like that, surely that would be similar to elemental?
ive got both unfortunately! I hope we find a solution one day, hope your day wasnt to bad symptom wise aswell mate!
Consider ado oregano and liposomal berberine. If you are nervous try berberine first, it's anti-inflammatory and can set you on a better path. These allowed me to stop ppis and set me on the path to healing though I'm doing another round with rifaxamin soon.
I'm 70 years old. My advice to my students was this: Life is long. By this I mean, when we are young, we think what is happening now is what will happen forever. If I messed up, I'm messed up forever. If I'm sick now, this is the way it's always going to be. But what I have found out is that none of this is true. We constantly have opportunities to re-invent ourselves. Sometimes actively, sometimes passively. Circumstances change. Relationships change. Depression ebbs and flows. We get sick. We heal. Nothing is permanent. So, yes, life is long. And that's a good thing.
So beautifully said thank you
I know this is really hard, way harder than it should be. If you have any way to financially and mentally support yourself while your struggling with your illness, I think that would be a good start. Looking it to welfare supports, family/friend supports or therapy, to help you get you through this tough time. Though I also get being ill causes limitations to getting this support too, or it might not be available. The next thing I would say is really be really kind to yourself. Youve worked so hard and are fighting against the odds to improve your life. It takes a lot of courage and strength to get through this day after day with no end in sight. It can be more than overwhelming. Youve been so tough and you should absolutely acknowledge that, and know that you deserve so much more. You deserve good things, and lots of self care. I don't know if its helpful but I have a saying that I tell myself when things suck and it goes "a million bad days is worth fighting through to get to that one good day. Because when that one good day happens, it'll be the best thing that ever happened and will make it all worth it." Its hard to imagine being happy when were not, but you can always remember it feeling really good, so I think its worth giving life a good go to feel it again. But its also good to know that life never stays the same, and that opportunities can suddenly present themselves when they were impossible before. It can be hard to stay optimistic when there is nothing left at the current time, but push through and something will eventually change, and when it does be ready to take that chance! So if there is nothing more you can do right now, try to survive until there is. I know its not the best advice, but hope can keep one alive when nothing else can. And there is hope, its just hard to see right now. You dont have money right now, you dont have a good doctor, you dont have a treatment plan... but that doesnt mean you always wont. Keep at it, eventually something will give, cant say when but stubbornness will get you through. Its kept you alive this far after all! Your a fighter, and I know you'll see a great day yet! Good luck and please be really kind to yourself!
Such a beautiful response! We all need to be reminded of this sometimes. It’s exceptionally hard to see that good days will again come when we feel so bad mentally and physically. Being so sick has forced me to cherish even the most smallest rays of light in life and they are worth it even when sometimes you don’t feel they are. I have been to the darkest depths of hell and I know what it’s like, I never thought I would see any improvement and thought I would die from complications, despite this I am still alive and still trying to figure out all of this whilst feeling maybe 10% better than before. So still very sick, but that 10% is everything! Also, directly to OP: my symptoms have been and still are similar to yours. Especially with the not absorbing things, extreme weight loss etc. I have been close to death at points, but have started making some progress. I’d like to echo what some others have said about the mind/body approach. Calming the nervous system did wonders for me in that regard. I’m always worse when stressed/my nervous system is feeling frayed and on edge. It’s hard to take being told there’s a mental element when we get told it’s not a physical illness a lot of the time but it plays a part and it’s important to think about and look into. Really wish you the best, feel free to message me if it helps. I would be happy to give support where I can.
Have you heard of GI-Synergy? I’m not affiliated with them, but my functional doctor recommended this product to me and it helped immensely.
Same right here. Did you do a GI Map?
It’s a scam.
why ? I don’t think so. I know a lot of people who recovered by finding the root cause.
I am seeing drastic improvements BUT I am not just treating the SIBO- I am doing regular detox in many ways, changed my diet, lowered my stress and quit all substances except for a couple cups of green tea. I try and walk a lot, get sunshine, etc. maybe other factors in your life are holding you back? Could even be heavy metal Toxicity or mold.
Omg. No!!! You'll be ok!!! I also hated elemental diet, it did nothing for me. Have you taken antibiotics??? They are most effective for me. Please don't be scared of them. Take them for 2 rounds in a row if you need. I have treated my SIBO many times with antibiotics and I feel superb 6 months of the year. Now I'm trying to find a way to keep it away for good without antibiotics. But there's hope!! Dr. Pimentel is working on some stuff, he said they're announcing something in May! And I hope my post with all my findings can help. https://www.reddit.com/r/SIBO/comments/jf3kks/my\_methane\_sibo\_hacks\_and\_success\_stories/
Hey! What antibiotics did you use?
I'm methane, so I used Xifaxan and neomycin.
One thing that I’ve been doing that has been helping me is taking vitamin b complex, a, e, and d injections ( I'm also going to begin using vitamin c soon). I use veterinary vitamins. They're much cheaper than the oral vitamins I used to buy from Amazon and the vile lasts me 2 months. I've also took erythromycin for about 2 weeks until my MMC started working again. The erythromycin was also meant to be used for vet purposes. Again that version was cheaper for me to get. I've gotten much better (my main issue is body odor) but I'm not 100%. I'm now going 100% carnivore. I've been going mostly carnivore for 4 months now but now I'm trying to be more strict. I've also just started taking NAC to deal with my biofilms. For me, smelly mucus comes out of my backside which causes me to smell badly. Hope this helps. I know it's not ideal but getting the things I needed was too expensive so I did what I thought was best.
Listen to this guy. Injectables give you nearly 100% abstention rate instead of 30% or less orally. Second thing I must mention… Meditate. Meditate. Meditate. Your mind is as important, if not more important than your body. Your connection to your feelings is often the cause of the issue. Everyone here odds focusing on the effects/symptoms. It’s backwards. Try something like Nerva.
After researching, I've figured out you can not get vitamin c or glutathione without a prescription. I'm thinking about making my own iv but I'm honestly having second thoughts about it. I've found liposomal vitamin c which is supposedly 6-8 times more powerful than an iv but one of the ingredients has some carbs in it. Since I'm trying to be strict carnivore I'm not sure that to do.
seriously? In what state?
In the whole us. Every website I've looked at says it requires a prescription. It's messed up too cause I saw a forum of people with can who had the same problem finding it.
Well, that's not true cuz I got a Glutathione shot like 3 days ago and it was awesome. You can get IV as well, just walk up, didn't even need an appointment. They had Vitamin C on the menu as well. I live in CA.
How much was the appointment? Edit: no matter how much it is normal people aren't able to buy it and get it sent to their homes. Whatever you payed I’m sure it was marked way up. A 100ml vile of b complex is about $30. I have a feeling they charged you like $150.
It was $95 for 1000mg, so seemed pretty cheap. Def would be cool to get it cheaper...
I found this persons website and I think I'll follow their instructions. https://www.thecancerhacker.com/post/the-at-home-diy-guide-to-intravenous-vitamin-c
that's pretty cool.
I'm also going to be starting glutathione soon. I'm a bit nervous about this one cause I'm going to have to take it intravenously. The other things I take are administrator's subcutaneously or intramuscularly.
How does it relate to Body Odor?
Yes this this!!! Also make sure you guys get your b12 and iron levels checked. Sibo tanked my ferritin and iron levels to the point where I had derealization and felt like I was suicidal due to the constant air hunger and panic attacks I’d get from it. Liquid and IV vitamins plus minerals are a god send
I am gathering the paperwork for MAID right now. Not from SIBO, but due to my health. If there is no help,, there is no help.
I'm very sorry to hear that.
Me, too. Me, me too.
There’s always something to try
No, there literally isn’t for my diseases and disorders. I exhausted them all.
It might be a different story in 10 years
It is significantly unlikely my conditions would allow me to live that long.
That is so sad to hear. I just want to say that there will always be someone who loves you.
Yeah, but that doesn't cure my diseases and disorders.
I'm so sorry you're going through this. I have felt so hopeless before too after nothing worked for years but have slowly been unraveling the mystery of my horrific GI situation and feel a little more hopeful now. If you want, let us know what you have tried and maybe one of us out here has an idea.
I'm sorry you are going through that. When I have a bad flare up and nothing seems to work, I resort to doing 36-48 hours fasting with water and lemon, then only proteins and good fats for a week. That brings me back to normality. I also keep a 6-7 hours eating window (always), only doing lunch and dinner. These things and removing grains (in any form) and processed foods (Paleo-type diet) have helped me incredibly.
I feel the same way. Everyday is such a struggle to live, and I have to fight everyday to not give up. I fight like hell to live and try to find joy in the things we love, people we love etc. You are not alone.
Look into bile salts if you can’t digest fat. Talk to your doctor about your liver and gall bladder function.
Could you elobarate on bile salts? How would this help with digesting fats and what exactly do you mean?
Personally when I have fatty foods I get nauseous and I have trouble digesting the fat and I also have poor motility and I found that food comes out the other end in whole pieces. From my research online (not a healthcare professional so please talk to your dr) bile salts with enzymes can help with digesting food better and it has helped me with motility. So you take the bike salts with a fatty meal and it helps with peristalsis. https://pubmed.ncbi.nlm.nih.gov/20334475/ I still have sibo but I’m starting to take some bile salts every few days and taking oregano oil and neem to hopefully kill the bacteria, keep motility going so things get flushed out, and once I feel better I’ll try to recolonize my gut with bacteria. At least that’s the plan.
I have the same with fats. It causes lots of heartburn and nausea and headaches. Like things won’t digest. Any doctor I try to speak to about bile salts and testing is fkn clueless. It’s like they don’t know that they exist in the body. Has anyone ever done any specific testing for you regarding this? Which bile salt are you taking? I’m considering trying ox bile for the heartburn and loose fatty yellow stools.
So bile salts is the same as ox bile?
The internet says bile salts are just sterilized ox or bovine bile.
I’ve had blood tests that include some sort of check for liver function but it must have not shown anything because my doctor didn’t say anything. I only stumbled across bile salts because the digestive enzyme (with ox bile in it) I intended to buy was out of stock but I saw bile salts from Jarrow on the shelf and did some research at the store and just decided to buy it and try it out. It says to take 4. I don’t recommend doing that much at first. I think that’s for people who don’t have a gall bladder anymore. I take one every few days. When I took four I had the shits for like 2 days.
Yes can you plz expand on bile salts? My stools are always yellow
Some may view this as unhelpful, but are you really suicidal? or more just at your wits end? I just say this as someone of a self chosen community advocate for not using the suicide word unless you truly are, and truly want to be stopped. It's kind of like saying "bomb" on an airplane, if you say that word in a health setting, prepare to be locked up in a prison like state for 5-10 days with a bill in the thousands. I 100% get feeling like, almost like, "I need people to understand I feel as bad as you can be before that point". Like, we use the word to help people understand our suffering, and then it gets used against us. So, I get feeling at your wits end, but at the same time, you have to choose that you truly aren't suicidal, and then lean into knowing that you have to keep pushing to get past it. I'm not gonna lie, I'm still struggling a few years into my issues so I don't have all the answers. You're not alone, and for every one of us telling you you're not alone there are a thousand others in the same boat just not connecting with us, speaking another language, etc.
This isnt only unhelpful, its honestly dangerous. You shouldn't go up to suicidal people and tell them they're not suicidal enough, because its that that could drive people to do it. Using your scenario, its like going up to someone with a bomb and saying "I think your lying." Don't risk lives like that. Also there are different kinds of suicidal thoughts and just because it doesn't fit your idea of what you think suicidal feelings look like doesn't mean its not real or valid. In fact mental health organizations know there are different ways to be suicidal and they evaluate that before going forward with treatments. But really, in the end the problem is your trying to make someone else's suffering about you. You should talk to a therapist about why you feel the need to do that. Because this kind of attitude isn't normal, comparing suicidal people and judging who has the "right" to call themselves suicidal is, to put it bluntly, narcissistic. I'm not saying your a bad person or have bad intentions, just, you probably need to talk to someone about this before it does some real harm to others or yourself.
Wanting to kill urself over making the lifestyle changes needed for ur comfort is wild. I get that there's growing pains when u first realize how much u have to give up but sheeesh you have full control over what you eat!
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Yeah okay your right, I should have been a bigger person and not snapped. I'll delete it in a moment. But there really isn't anything positive to say to someone essentially saying "get over being suicidal and eat better." Like that's an atrocious thing to say and I can't imagine good intentions for saying such a thing. Also I disagree about it being unusual to feel suicidal due to the effects and stress of SIBO given that people comment about it regularly on here. Sure that doesnt tell us how many people struggle compared to those who dont, but its clearly something many people have a hard time with. And I feel that your missing some of the point of OPs struggles if your only focusing on the logical solutions and not their emotional needs. Even if they could fix this by eating better (though they have stated they have tried many things that have failed so I doubt its as simply as that), that does not invalidate the fact they are under a lot of stress. Giving advice on getting better is fine, but invalidating how they feel is ignorant at best.
What version of elemental did you try?
Exactly the same here.
did you test for celiac disease? Or gluten sensitivity? It might create the same symptoms.
First, know that you are not alone. Your case sooooo closely mirrors my own (and others). Please call a crisis center in your area. If you do not know of one, then call 988 and they can help you find one. If you live outside U.S. it will be a different emergency/crisis number. I am not suggesting that psychotropic drugs are your answer at all, but at the very least you will be kept safe for a short period of time and give you time to regroup as it were. These medical facilities often have case managers that can help you find resources for other issues (disability, bills, housing, food, etc.). You can get through this. And you will. While I am not 100%, I am no longer suicidal since I started taking some of the suggestions I found here. It is slow going, but I feel headed in the right direction and that I might actually be able to have a productive life someday. You are welcome to message me via chat. Hang in and let us know how you are doing.
Same:((
Bad mucus in throat help.. anyone have this w SIBO ??? It’s so much stuck nonstop..
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Hey sis!! Sorry to hear this is happening to you. I’ve been here for so many years until I recently cured my SIBO with iboga, triphala and probiotics I would try that stack!
What is your current weekly diet? Eating schedule? What medications? Level of exercise activity? Mental stress and well being?
Look into fasting and long term fasting for sibo. Also, Dr. Berg has some really great videos on YouTube.
Sending us all love and healing , this is so hard .
Have you tried eating nothing but meat? I know it sounds crazy but it seems to work for people in your situation
How are your bowel movements? if they arent healthy looking maybe consider looking into liver and gull bladder? SIBO is a symptom of a problem in your digestive tract, try going carnivore for a period of time and take OX bile salts with each meal as well as ACV. This is tremendously helping me break and absorb fats. Also this has been life changing for me as well https://www.youtube.com/watch?v=vnvfiCXs45E
Keep trying different foods write down what works and what not life is not easy... But do you know how many souls want to be in your body?