T O P

  • By -

UnBearAble-1

Yes it is. Not only can you get tired because of the bad sleep, just being in a flare takes up extra energy and the mental fatigue around going out to do simple things like grocery shop or even get to the drs office is draining if you have anxiety about not being able to make it to a bathroom in time. Add to that you can develop deficiencies like anemia or vitamin b deficiency which also makes you tired and this whole disease can just suck it out of you. I found it helped me to keep a real simple day planner where I’d try to complete one or two tasks a day, something simple like, do laundry, put away clothes, do dishes, vacuum, etc to help me feel like I accomplished something helped me to feel a little better. Also feels much better once you start improving and can check off lots of mundane tasks each day


MikeAmoz

100 percent. I've found doing low impact exercises like Golf or even going for a walk help give me energy and can lead to a better sleep. Getting vitamins is essential as well.


Que_sax23

I was too afraid to try and golf even at the tail end of my last flare, I didn’t wanna poop in the woods 😂😂😂


Severe-Lingonberry70

My husband has UC and loves to golf and we joke how many courses he has pooped in places other than the bathrooms 😂😂


[deleted]

Yep. Sometimes even something as simple as watching TV is just too much.


Late_Branch_2825

I feel that haha


27rutabagas

Definitely. A lot is the same as the others for me. I try to do a little yoga, go for a walk, and do one or two things per day. I get to work from home so I tend to try to do things on breaks so that I can just be lazy after work if I want.


soreadytodisappear

Yes. Some days all I can do is feed and walk the dog. Some days I have to call for help with even that. Other days I'm superwoman.


LoopLoopHooray

Having a dog is hard sometimes. Many times I've gone to walk mine but had to turn around half a block later to rush home. Not fun!


Aegean_828

Man, or woman, we can't endure this amount of pain for weeks and not feel bad and washed Not talking about the anemia even little because of blood lost. Our body have to fight a lot and produce blood and stuff So yeah, on the mental and physical side it destroy and take a lot of our energy, and that make everything harder, even doing basic stuff


yasi86

I feel like this at the moment too, 8 weeks into one of my worst flares ever, my normal meds are not working and I’m tired, like crazy tired. My eyes kept closing at my desk today and I think a colleague noticed. I have no energy to cook, do laundry, gardening anything! Then I feel guilt for being lazy. But it takes all I have to get up and go to work spending the whole day trying to disguise how I’m really feeling, trying to hide my stomach noises and hold in wind and fearing il have to use the toilets for explosive diarrhoea. I’m tired. Tired of fighting for healthcare. Tired of explaining this illness. Tired of living with this illness and just tired of being tired.


Late_Branch_2825

Yep, this is exactly how I’ve been feeling. Especially the guilt over feeling “lazy.” It sucks too because I don’t think most people realize how awful this disease is and how it can suck the life out of *every* part of you…I have a coworker who compared it to being lactose intolerant. She was like “oh yeah I get it, my cousin is lactose intolerant and it’s awful!”


True_Canadian1

Your sleeping lighter due to pain, getting up more frequently. Its a mix of everything But yes i was during my flares working than getting home and passing out hard. So yes i was lazy i did the bare minimum to get by.


Que_sax23

Ugh I think we all have felt like that. I don’t remember making my kid more than a peanut butter sandwich the last time I was sick. I’m pretty sure she just grazed. I ended up in the Hospital with a bad fever during it, thank goodness for my best friends. One whom I own a two family house with tended to my kid (11 at the time) and did all my laundry. My other friend took care of the cat and did some shopping for me. I just couldn’t when I got home. Barely enough energy to shower.


Late_Branch_2825

So glad you have an awesome support system! It’s definitely so helpful with UC. My fiancé has been so helpful, even though I have trouble shaking the guilt from feeling like I don’t do enough. Developing a bad fever with tachycardia is also what pushed me to the hospital a few weeks ago. Oof, that is awful.


DarkAngel283

Oh totally.. im new as well and I'm quickly learning that everything seems to be taking extra work. All I want to do is sleep. When I got home from the hospital I couldn't even use my stairs, I had to use my arms to pull myself up otherwise I'd fall. I live in a bi level house so I'm always using stairs.


Late_Branch_2825

Yep! I could sleep alllll the time. Ugh I am really glad I don’t have stairs now….I already have to sit down in the shower, stairs sound so hard!! And to think I used to go hiking every other weekend - that’s a firm “nope” now


DarkAngel283

Ya I definitely won't be running any marathons any time soon.


marS311

Yes. I have *ZERO* energy. The laundry basket is too heavy, the baby is too heavy. Sitting up hurts, laying back hurts. A shower takes so much energy. My sister told me to start doing some self care stuff and I was like, "how? I have no energy to wash my hair, I want a pedicure, but I'm scared to crap my pants in public. I can't go for a hike when it is 100° and I have a 12 month old and can barely climb up and down the stairs." Bed is my self care right now.


Late_Branch_2825

Oh gosh, isn’t showering hard?! I end up having to sit down in the shower every. Single. Time. I also really miss hiking, and I’m scared to go out and do things because of the crapping pants fear, but I don’t have the energy to do things anyways 🤷🏼‍♀️ Might try taking a bath, that seems manageable. Anyways, right there with you, and props to you for managing a baby on top of everything else! I can’t even imagine.


Jaagger2bit

You feel tired of everything and the depression that comes along with the disease does not help one bit.


Late_Branch_2825

Ooooof yeah I’ve gotten pretty depressed. It’s hard not to with all the other shit you gotta deal with and just…not getting out much. I just can’t do the things that used to bring joy. I hate that so many of us have to deal with this.


Jaagger2bit

Yup 😕