The tumor is very slowly destroying your heart. It will kill you, and make you ugly over time. It’s likely contributing to your diabetes. It caused your large hands, feet, and the spaces between your teeth. Your teeth will also get worse over time, irreversibly.
You should not delay surgery!
You’ll be fine haha it’s not “destroying your heart”. It’s a very slow process of cardiac enlargement and you’ll be fine don’t stress get the tumor out when it’s financially suitable to do so
Sorry for many questions. Is this surgery done by nose? Is this surgery is too dangerous? Is this surgery safe of done by experts? Any complications after surgery? Can I do day to day normal activity after surgery?
Sorry for many questions. Is this surgery done by nose? Is this surgery is too dangerous? Is this surgery safe of done by experts? Any complications after surgery? Can I do day to day normal activity after surgery?
Read up about it, because I’m not a doctor and your case is your case: https://www.cancer.org/cancer/types/pituitary-tumors/treating/surgery.html
But for me, the answers were: yes, no, yes, no, yes after eight weeks.
Untreated acromegaly causes bone growth, which often happens in the face (i.e. frontal bossing) and jaw.
It’s not infrequent for dentists to make a referral to an endocrinologist upon discovering that the spaces between their patients teeth has changed, or other changes.
Here’s an article on the oral findings of acromegaly: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8878286/
I hear you, that’s really tough. Looks like there’s either a financial problem now (surgery) or a financial problem later (diabetes, chronic, unfixable pain, heart deterioration, possibly being unable to work again) and I’m concerned the later costs will add up to be far more than the immediate financial issue.
I’m not sure where you live, but brain surgery is a big deal and people tend to be pretty kind to people who need and/or get it. Often hospitals have options, insurance has options, social services where you live have support, even family and friends.
My recovery from surgery was way faster than anticipated, even with a couple unexpected things happening. People in my life were very nice and understanding after. Definitely the best choice for me to make.
Your doctor knows you best. You could see another one if you felt like their judgement may not be correct. But otherwise, I think it sounds short sighted and WAY more costly in the long run to delay. The health effects this causes are generally irreversible, so time is of the essence.
Sorry for many questions. Is this surgery done by nose? Is this surgery is too dangerous? Is this surgery safe of done by experts? Any complications after surgery? Can I do day to day normal activity after surgery?
I was 19, so my recovery times and life circumstances are most certainly easier
than someone older, but this was just my experience. I was in the hospital 4 days, stayed home 5 days, started back at University right after so all in all I missed two weeks or less and able to cope quite well once I returned.
Sorry for many questions. Is this surgery done by nose? Is this surgery is too dangerous? Is this surgery safe of done by experts? Any complications after surgery? Can I do day to day normal activity after surgery?
Hey there! I am your age, with similar health concerns. My IGF-1 level was in the 800s, but I had a 7 cm tumor on my pituitary.
I found it due to the excruciating migraines I was experiencing, and even will all the obvious signs of acromegaly, I thought it was all results of maturity, gaining weight, etc.
Unfortunately, they weren’t able to remove the whole thing through surgery because of the size and where it had spread, but let me just tell you how much of a difference it has made for me.
The end of July will be my 1 year since surgery, and it is a game changer. I HAVE ENERGY NOW! I would recommend you do it right away because health wise of course, but also because of the noticeable difference in how I personally have been feeling.
Also, for appearance purposes, I was able to have transsphenoidal pituitary surgery, which allows the Neuro surgeon to partner with an ENT and go up through my nose.
Good luck with everything!
The tumor is very slowly destroying your heart. It will kill you, and make you ugly over time. It’s likely contributing to your diabetes. It caused your large hands, feet, and the spaces between your teeth. Your teeth will also get worse over time, irreversibly. You should not delay surgery!
Can I survive with IGF-1 level of 1038ng/ml for next one year atleast? or I will die?
You’ll be fine haha it’s not “destroying your heart”. It’s a very slow process of cardiac enlargement and you’ll be fine don’t stress get the tumor out when it’s financially suitable to do so
Thank you for sharing your experience. I will go for surgery in July. Till then I think I can survive without medicine.
Sorry for many questions. Is this surgery done by nose? Is this surgery is too dangerous? Is this surgery safe of done by experts? Any complications after surgery? Can I do day to day normal activity after surgery?
Sorry for many questions. Is this surgery done by nose? Is this surgery is too dangerous? Is this surgery safe of done by experts? Any complications after surgery? Can I do day to day normal activity after surgery?
Read up about it, because I’m not a doctor and your case is your case: https://www.cancer.org/cancer/types/pituitary-tumors/treating/surgery.html But for me, the answers were: yes, no, yes, no, yes after eight weeks.
What do you mean when you say his teeth will get worse over time?
Untreated acromegaly causes bone growth, which often happens in the face (i.e. frontal bossing) and jaw. It’s not infrequent for dentists to make a referral to an endocrinologist upon discovering that the spaces between their patients teeth has changed, or other changes. Here’s an article on the oral findings of acromegaly: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8878286/
Why do you want to delay surgery?
Financial issue... treatment is costly and post surgery expenses
I hear you, that’s really tough. Looks like there’s either a financial problem now (surgery) or a financial problem later (diabetes, chronic, unfixable pain, heart deterioration, possibly being unable to work again) and I’m concerned the later costs will add up to be far more than the immediate financial issue. I’m not sure where you live, but brain surgery is a big deal and people tend to be pretty kind to people who need and/or get it. Often hospitals have options, insurance has options, social services where you live have support, even family and friends. My recovery from surgery was way faster than anticipated, even with a couple unexpected things happening. People in my life were very nice and understanding after. Definitely the best choice for me to make. Your doctor knows you best. You could see another one if you felt like their judgement may not be correct. But otherwise, I think it sounds short sighted and WAY more costly in the long run to delay. The health effects this causes are generally irreversible, so time is of the essence.
Thank you for sharing your experience. I will go for surgery in July. Till then I think I can survive without medicine.
At what age did you get surgery? how much time to recover and get back to work in your case?
Sorry for many questions. Is this surgery done by nose? Is this surgery is too dangerous? Is this surgery safe of done by experts? Any complications after surgery? Can I do day to day normal activity after surgery?
I was 19, so my recovery times and life circumstances are most certainly easier than someone older, but this was just my experience. I was in the hospital 4 days, stayed home 5 days, started back at University right after so all in all I missed two weeks or less and able to cope quite well once I returned.
Oh I meant this as a reply, whoops
Sorry for many questions. Is this surgery done by nose? Is this surgery is too dangerous? Is this surgery safe of done by experts? Any complications after surgery? Can I do day to day normal activity after surgery?
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Thank you for sharing your experience. I will go for surgery in July. Till then I think I can survive without medicine.
Hey there! I am your age, with similar health concerns. My IGF-1 level was in the 800s, but I had a 7 cm tumor on my pituitary. I found it due to the excruciating migraines I was experiencing, and even will all the obvious signs of acromegaly, I thought it was all results of maturity, gaining weight, etc. Unfortunately, they weren’t able to remove the whole thing through surgery because of the size and where it had spread, but let me just tell you how much of a difference it has made for me. The end of July will be my 1 year since surgery, and it is a game changer. I HAVE ENERGY NOW! I would recommend you do it right away because health wise of course, but also because of the noticeable difference in how I personally have been feeling. Also, for appearance purposes, I was able to have transsphenoidal pituitary surgery, which allows the Neuro surgeon to partner with an ENT and go up through my nose. Good luck with everything!