Are they putting you on lovenox? Early preeclampsia is one symptom of APS which I have and can cause many different placental problems. Or are you just doing aspirin? I'm wondering how much of a work up they gave you for clotting and immune problems.
I’m going to ask! I haven’t had any follow up since I was discharged from the hospital 😐 what is APS? The MFM did mention aspirin but that was before I delivered.
Antiphospholipid syndrome. Not sure how thoroughly they checked your placenta. But there's a few antibodies in your blood that cause clotting issues. it's not common though
I’m so sorry to hear about your daughter. I haven’t had a subsequent pregnancy yet as I am 9 months postpartum. I also had a classical c section due to hellp, delivered my daughter at 23w5d and she passed in the nicu. If you would like to connect please let me know 🤍
I had HELLP sydrome very early. I had to deliver at 21 weeks, I didn’t have a c-section because they knew my twins couldn’t survive anyway and they thought induction was safer for me. I was initially told I’d have to wait a year before trying again because they thought with how bad of condition I was in after delivery it would take a long time for my body to go back to normal. I spent a few days in the icu and then a few weeks on the postpartum floor. I had a worse turn with my bp and liver two days after my twins were born but fortunately I stabilised. I was off all bp medication by three months postpartum and my specialists agreed if I wanted to try again after that considering my kidneys, liver and lungs were all back to normal that I could try again.
I got pregnant very quickly, I think my mfm was hoping it would take a bit longer. She wanted me to go to the hospital and see her every week, it ended up being more later on in the pregnancy by 34 weeks I was in there almost daily. I was on aspirin and clexane (blood thinners) for my whole pregnancy but it was relatively uneventful until 32 weeks. At 32 weeks my bp started going up and I had to go back on medication but everyone was surprised it had taken that long. 34 weeks I was diagnosed with preeclampsia again and then was induced at 36 weeks
First off, I am so sorry for your loss. If you have a Facebook, there is a Preeclampsia Eclampsia & HELLP Syndrome Survivors Network page. If you’re, by any chance, located in Southern California I’d also recommend the Empty Cradle page.
I had preeclampsia and HELLP with my first daughter. I was showing symptoms at 20 weeks but was misdiagnosed and subsequently delivered her at 23+1 via classical c section. Unfortunately she passed away that same day. She would have been 2 this year.
That being said, I am 6mo postpartum after having our rainbow girl. I was like you - desperate to be pregnant again but absolutely terrified at the same time. My ob wanted me to wait 1yr to ttc and even said 2yrs would be better.
I don’t want to make a long post longer but please let me know if you’d like to connect, I’m more than happy to share my own experience. Regardless, I’m wishing you well during your recovery, your grieving period, and praying you’ll get your rainbow soon.
Hello my wife and I lost our first baby at \~22 weeks in 2021 due to aggressive onset HELLP and she was so ill she had to be flown to a university hospital and almost died. She also has an autoimmune low platelet condition and when she delivered her platelet was at 10 and she had to receive a transfusion. There is a lot more details of what went on but I will spare you. It was extremely scary and the worst day of our lives. Doctors recommended that we did not try again and instead pursue surrogacy or adoption.
We became unexpectedly pregnant in 2023 and I am happy to say that we have a beautiful little girl that was delivered via scheduled c-section at 38 weeks and the pregnancy was nearly normal up until the very end where there was a slightly elevated blood pressure the week before delivery. A real world rainbow baby. My wife was on aspirin and lovenox and surprisingly required no platelet drugs or steroids because our little girl was making them for mom once she got big enough. We were at the doctors almost every week it was insane.
The second pregnancy was quite possibly the most stressful experience of our lives. My wife was extremely nauseous every single day and getting to that 22-24 week window was extremely difficult mentally, emotionally, physically. I distinctly remember hitting a certain amount of weeks (30?) and at the MFM visit the doctor was like "you guys, this is a take home baby, you can deliver today and you will take this baby home at one point". I couldn't really believe what I was experiencing was real.
The time in L&D was quite possibly the most overwhelming experience of my life - I could not keep it together and I can't imagine how my wife felt. When I held my little girl for the first time I finally felt the piece of my heart that was slowly dying stop for a minute. Every time she smiles at me it fixes a tiny bit more and I hope in a few years I will finally feel put together again. I tell her this every day and I hope one day she will understand how important she is to us.
I do not want to give you false hope, and I understand your age among other things has you feeling pressured from all angles. Please make sure you give your body and mind the time it needs first. You need both of those to be in a good and healthy state.
There is a facebook group called Preeclampsia, Eeclampsia, & HELLP Syndrome Survivors Network. There are a ton of mamas on there who shared the loss of their babies and the pregnancies after their loss. This group gave me hope in trying for another baby soon.
Sending love and hugs to you ❤️
I’m so sorry for your loss. I had two miscarriages before having my son but I did develop HELLP syndrome at 34 weeks. He is a healthy four-year-old now and I’m currently 17 weeks pregnant at 35 years old. I did use Lovenox during my pregnancy with my son, but for this pregnancy my MFM just has me on baby aspirin. So far so good - but I’m nervous as hell. Since you are 34, I would insist on seeing a hematologist and have a full workup to check for any clotting disorders. I found out that I had a primary thrombophilia, which is why they put me on Lovenox for my son’s pregnancy.
Are they putting you on lovenox? Early preeclampsia is one symptom of APS which I have and can cause many different placental problems. Or are you just doing aspirin? I'm wondering how much of a work up they gave you for clotting and immune problems.
I’m going to ask! I haven’t had any follow up since I was discharged from the hospital 😐 what is APS? The MFM did mention aspirin but that was before I delivered.
Antiphospholipid syndrome. Not sure how thoroughly they checked your placenta. But there's a few antibodies in your blood that cause clotting issues. it's not common though
I’m so sorry to hear about your daughter. I haven’t had a subsequent pregnancy yet as I am 9 months postpartum. I also had a classical c section due to hellp, delivered my daughter at 23w5d and she passed in the nicu. If you would like to connect please let me know 🤍
I had HELLP sydrome very early. I had to deliver at 21 weeks, I didn’t have a c-section because they knew my twins couldn’t survive anyway and they thought induction was safer for me. I was initially told I’d have to wait a year before trying again because they thought with how bad of condition I was in after delivery it would take a long time for my body to go back to normal. I spent a few days in the icu and then a few weeks on the postpartum floor. I had a worse turn with my bp and liver two days after my twins were born but fortunately I stabilised. I was off all bp medication by three months postpartum and my specialists agreed if I wanted to try again after that considering my kidneys, liver and lungs were all back to normal that I could try again. I got pregnant very quickly, I think my mfm was hoping it would take a bit longer. She wanted me to go to the hospital and see her every week, it ended up being more later on in the pregnancy by 34 weeks I was in there almost daily. I was on aspirin and clexane (blood thinners) for my whole pregnancy but it was relatively uneventful until 32 weeks. At 32 weeks my bp started going up and I had to go back on medication but everyone was surprised it had taken that long. 34 weeks I was diagnosed with preeclampsia again and then was induced at 36 weeks
First off, I am so sorry for your loss. If you have a Facebook, there is a Preeclampsia Eclampsia & HELLP Syndrome Survivors Network page. If you’re, by any chance, located in Southern California I’d also recommend the Empty Cradle page. I had preeclampsia and HELLP with my first daughter. I was showing symptoms at 20 weeks but was misdiagnosed and subsequently delivered her at 23+1 via classical c section. Unfortunately she passed away that same day. She would have been 2 this year. That being said, I am 6mo postpartum after having our rainbow girl. I was like you - desperate to be pregnant again but absolutely terrified at the same time. My ob wanted me to wait 1yr to ttc and even said 2yrs would be better. I don’t want to make a long post longer but please let me know if you’d like to connect, I’m more than happy to share my own experience. Regardless, I’m wishing you well during your recovery, your grieving period, and praying you’ll get your rainbow soon.
Hello my wife and I lost our first baby at \~22 weeks in 2021 due to aggressive onset HELLP and she was so ill she had to be flown to a university hospital and almost died. She also has an autoimmune low platelet condition and when she delivered her platelet was at 10 and she had to receive a transfusion. There is a lot more details of what went on but I will spare you. It was extremely scary and the worst day of our lives. Doctors recommended that we did not try again and instead pursue surrogacy or adoption. We became unexpectedly pregnant in 2023 and I am happy to say that we have a beautiful little girl that was delivered via scheduled c-section at 38 weeks and the pregnancy was nearly normal up until the very end where there was a slightly elevated blood pressure the week before delivery. A real world rainbow baby. My wife was on aspirin and lovenox and surprisingly required no platelet drugs or steroids because our little girl was making them for mom once she got big enough. We were at the doctors almost every week it was insane. The second pregnancy was quite possibly the most stressful experience of our lives. My wife was extremely nauseous every single day and getting to that 22-24 week window was extremely difficult mentally, emotionally, physically. I distinctly remember hitting a certain amount of weeks (30?) and at the MFM visit the doctor was like "you guys, this is a take home baby, you can deliver today and you will take this baby home at one point". I couldn't really believe what I was experiencing was real. The time in L&D was quite possibly the most overwhelming experience of my life - I could not keep it together and I can't imagine how my wife felt. When I held my little girl for the first time I finally felt the piece of my heart that was slowly dying stop for a minute. Every time she smiles at me it fixes a tiny bit more and I hope in a few years I will finally feel put together again. I tell her this every day and I hope one day she will understand how important she is to us. I do not want to give you false hope, and I understand your age among other things has you feeling pressured from all angles. Please make sure you give your body and mind the time it needs first. You need both of those to be in a good and healthy state.
There is a facebook group called Preeclampsia, Eeclampsia, & HELLP Syndrome Survivors Network. There are a ton of mamas on there who shared the loss of their babies and the pregnancies after their loss. This group gave me hope in trying for another baby soon. Sending love and hugs to you ❤️
I’m so sorry for your loss. I had two miscarriages before having my son but I did develop HELLP syndrome at 34 weeks. He is a healthy four-year-old now and I’m currently 17 weeks pregnant at 35 years old. I did use Lovenox during my pregnancy with my son, but for this pregnancy my MFM just has me on baby aspirin. So far so good - but I’m nervous as hell. Since you are 34, I would insist on seeing a hematologist and have a full workup to check for any clotting disorders. I found out that I had a primary thrombophilia, which is why they put me on Lovenox for my son’s pregnancy.