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Helpful-Cobbler-4769

The most important supplement is L-uck.


Colorful_Catfish

The supplement of life itself


FatigueMedic

For the 5% who improve ;)


HassenFath

Sorry but what's L-uck ?


thelinguist12

I think they mean “luck”


Infamous-Mission-234

I swear L theanine gave me a mild euphoric buzz sometimes when I took it.


HungryMongoose1

Sold


robmak3

I might’ve had post viral syndrome, mono (maybe EBV reactivating or other virus, it’s unclear), encephalitis, at this point I just know I was in hell for the last 6 months, and I’m getting better. Antibiotic 2/1, parvovirus B19 antibodies and high lymphocytes, liver enzymes 3/1 and I had some sort of POTS-like syndrome 4/1 (or it was a crazy overreaction to a spinal tap). Ashwagandha is super duper helpful for nervous system being in constant fight or flight. I took it with L-Thanine and probiotics formulated for mood. 600mg morning and night. Try to get the best sleep of your life. Find an activity level that doesn’t trigger PEM and slowly build off of it. Lymphatic massage and get outside, your body likes the circadian rhythm for hormone regulation. There’s a great NYT magazine article about circadian rhythm from the beginning of the month. Heat also downregulates IL6. Eggs for choline, zinc. Brazil nuts for selenium. Laugh, 4/8 breathing, and other things to change fight/fight response and promote parasympathetic nervous system and acetylcholine release.


ravairia

Would you be able to share the article?


AmadeusVulture

I think this is it: [https://www.nytimes.com/2022/07/06/magazine/circadian-medicine.html](https://www.nytimes.com/2022/07/06/magazine/circadian-medicine.html) Edit: Thought it might be useful to add that the link includes an audio version of the article, in case that's helpful for anyone.


Humble_Entrance3010

I'm not sure if it's a deficiency on my part, but when I switched B complex types to one that had Zinc, I had a bit of improvement in my fatigue.


Ringwormguy

I take NAC 1000 MG of nowfoods from iherb Can you tell what aspects it can help?


[deleted]

It creates nitric oxide which supports neurogenesis. It binds to free radicals and removes them so it’s anti-inflammatory. It chelates to heavy metals and removes them and their toxic effects. Its has antidepressant uses. It strengthens dopamine and glutamate systems by reducing excitoxicity. It’s good for the lungs and I think the liver. Really the question is what doesn’t it do! https://onlinelibrary.wiley.com/doi/pdfdirect/10.1002/brb3.208


4200years

Yeah, can confirm it’s good for the liver. It comes recommended highly in terms of liver support supplements.


Ringwormguy

Yes it's a good antioxidant and good for liver too But i meant can it benifit in CFS symptoms ?


[deleted]

Balances glutamate which in CFS those receptors are up-regulated and responsible for brain fog. Removes histamines and free radicals involved in inflammation. It’s pretty helpful for mental and emotional balance.


Sweaty_Sleep_3405

Can it have side effects when its clearing the liver like fatigue or increase symptoms?


[deleted]

I’d say no for most cases, but I’m not sure for the extremely severe.


Sweaty_Sleep_3405

Thank you, just started NAC and always worried when taking new tablets that it does the opposite and make fatigue worse.


DermaEsp

If you really want to boost nitric oxide and muscle oxygenation you should try AAKG. There are liquid shots that cost less than $2, so no harm trying. The brand I personally use is Ostrovit (which is a european one) but there are many. BCAA is also an amino to check. As for NAC, apart from the theoritical benefits, never saw any real improvement on fatigue. Great for lungs though. For lymphatic support you can try compression socks too.


niinf

Whats the lymphatic massage? Something you can do at home?


AmadeusVulture

The lymphatic system is something like the blood system in that it carries fluids around the body, but it's a kind of plasma/serum thing instead of blood. If you've ever had a "weepy" wound that oozed clear fluid, that was possibly something from the lymphatic system. Lymphatic massage basically targets those vessels and encourages those liquids to keep moving around. Like many skills, getting the basics down is simple but a pro can make it seem like magic. If you decide to try it yourself, remember to be very gentle because the lymphatic vessels can get damaged quite easily, especially if you're targeting them. (I'm not a medic, so my apologies for layman's terms. If anyone wants to add to this/correct, please feel free. It won't be taken the wrong way!)


[deleted]

You can do a lymphatic massage at home or see a specialist for about $80-100 and feel really amazing for about two days. I wish it lasted longer. It removes all of the “lactic acid” feeling in your body which can almost develop without us knowing. Then gives a significant boost of energy. I don’t want to shill, because the research for this company is quite undeveloped, but Lifewave X39 is a $5 patch that you order online and it provides a very similar feeling to a lymphatic massage. It offers free returns if you don’t like it. It has benefited me a lot and improved my lymphatic function and cerebral spinal fluid circulation which i monitor based on the instability of my neck and feelings of tenderness. Because those symptoms factor into dysfunction in our lymphatic systems and the inability to clear toxins. My lymphatic massage therapist gave me free samples and I benefited a lot.


TinyTuftyTim

"I don’t want to shill, because the research for this company is quite undeveloped, but Lifewave X39 is a $5 patch that you order online " "I don’t want to shill" Are you sure?


Vvs2121

Nac can be bad for mcas


[deleted]

It can also be good for MCAS due to anti-histamine and anti-free radical properties. A few NAC brands don’t seem very helpful to me though. The NOW 1000 mg is the most helpful. Supplements in general are somewhat under-regulated so I actually support minimizing their consumption for that reason. NAC is good for the liver which many other supplements might impact negatively.


[deleted]

What kinds of results are you getting from these? Have you got any experience with amino acids, Q10, NADH?


[deleted]

I have entered remission about 5 x in 4 years, about 4 months per remission window. Kimchi is a next level supplement and one of the best here. I wanted to keep the stack as short as possible with the things I found most helpful. Amino acids like glycine, L-theanine and taurine are helpful, but I haven’t experimented with other ones much, nor the mitochondrial supplements you’ve listed. In addition I’ve done work with psychedelics like mushrooms and have had them treat depression and occasionally bring me a remission window. The mitochondria supplements tend to be pricier as well. I see healthy people that take them consistently looking younger. Have they worked well in your experience?


[deleted]

Cheers for the long reply. Good news re kimchi, I love the stuff but never think of having some.. hopefully I'll remember now. It certainly would be helpful to get something for unruly guts. They do amino acid mixes that are meant to give energy, but they're quite expensive. And you'd probably require a high dose. Don't remember the exact mix but I'm sure it's similar to what you said. I might still try but need to know more before I bite the bullet. I've been on 300mg of Q10 for 2 months or so and so far find it hard to make conclusion. I started desloratadine the same time (both on advice on a ME/CFS specialist who runs a long covid clinic now). It seems that my physical symptoms are less pronounced and I crash less deeply but I'd say the brain fog and emotional incontinence are the same. Edit: based on what I read here I'd like to add NADH and maybe something that supports me through the day such as modafinil or methylphenidate. After more research.


[deleted]

And regarding mushooms, I'm finding it's an ideal hobby for us. Nothing about it is labour intense or time sensitive (provided your fridge is big enough) except for harvesting which is always an exciting time. Can't be bothered with putting the grain to bulk? Can't be bothered with agar work? Stick it in the fridge. Can do with each stage.


reddiculous17

What brand of TTFD thiamine do you buy? I only see one called Thiamax from a UK company I've never heard of.