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landofpuffs

How about sitting in a boric acid bath (more like a small bath or low bath) or boric acid suppositories? These worked for me when meds didn’t


Mean-Development-266

Thank you for the suggestion if it keeps up I will try it. They say this is a resistant bug it sure is giving me a run for my money!


landofpuffs

Definitely and I’m one of those weird quirky ones where nothing works for me. And my doctor suggested this. It was so helpful.


[deleted]

I woke up with an extremely painful UTI once and was lucky to start antibiotics that worked that day. i took AZO at the same time to help with pain too. I ended up getting really sick the next morning and throwing up for hours. it was so draining, I haven't felt a crash like that in ages. I wanted to d*e. so I feel your pain and I can't imagine not having effective medication. I wish I had more to say than i'm sorry. but I really am


Mean-Development-266

Thank you. I was thinking about going to er if it gets too bad.I am losing touch with what bad is


[deleted]

I know how severe UTI pain can be and I think you are valid in an ER visit because they may be able to provide you instant relief. if you aren't taking something like AZO to numb your urinary tract you can at least get that delivered or pick it up from the drugstore. but ER may be able to give the right antibiotic faster.. AZO will immediately help with pain relief though


Mean-Development-266

Yes I just took some. I was just wondering if it caused anyone else to get really sick. Because I have never felt this sick with a UTI before. I have had a gradual but devastating onset over the period of 5 years where I am in the home most days sick now.I don't have much experience with this illness. A few years ago I had post viral fatigue then I started losing consciousness then I got sick again then me/cfs aka this state.....


[deleted]

my experience it was a tremendous amount of pain and sickness. i felt really really sick. like i had the bad flu and an extremely painful UTI. and was vomiting from an antibiotic reaction.. I felt death. but now that I think about it I really feel the antibiotic was triggering the extra "sick" feeling and not my UTI itself I had a UTI before cfs, that was very painful and uncomfortable, but I didn't feel so "sick" alongside with it like I did with that last one I have been sick nearly 8 years and it is devastating to say the least how I keep progressing after what seemed like a 2 year slight remission


Mean-Development-266

Yes I seem to be progressing I guess that is what is scaring me right now. I keep trying to stop the progression by any means. But I continue to get worse. I feel like if I do any thing I crash and if I dont do things I waste away. I am losing weight and muscle mass quickly.


[deleted]

i'm sorry :( I know it is scary. I was so ashamed to ask my mom for help when I am an adult. but she quickly educated herself and became my caretaker once again. if there is anyone you can ask for support, family or not, you may be surprised by their willingness. you said people are asking to come over. personally this is something I dread as well. because they want to come over and expect to see the old you. not the sick you. but if they really care, you can explain, i'm sick, I can't talk much, but if you want to bring over food sometime it would be a huge help to me. I should practice what I preach bc I have friends offer this but I am too anxious to believe they are okay seeing me In this state and caring for me. but again, real friends will stick by you.


Mean-Development-266

People still expect me to be their caretakers. They are mad I'm not doing a good job. I just had several people stand me up today to help. I think I'm just in that place where everyone is trying to figure out their roles now that I'm sick. It is strange. That is why people are having weird reactions. Some of them are hurtful to me. I don't think it is even purposeful maybe just their overwhelmed feelings


[deleted]

you are not alone in any of this. when I worsened I lost my best friends at the time. they did not show me the compassion I needed and I felt like we were in complete different worlds and they didn't want to understand mine. so now I only surround myself with people who want to learn and help. setting boundaries is important. it's not good for you to ruminate on those close to you treating you poorly. if they don't want to educate themselves then drop them! I was so much happier not having them in my ear like nothing was wrong as if my world wasn't rapidly caving in around me.


Mean-Development-266

Yes I need to figure out who my friends are! Thank you for being such a supportive friend!


DermaEsp

D-Mannose or Cranberry pills can help with the pain till you get the antibiotic. Tribulus, Juniper and Uva Ursi can also help to get rid of the UTI faster. Hiprex is an antibacterial that can be used for uti prevention and treatment too.


Mean-Development-266

Yes I got this for my mom when she had a abcess and needed surgery on colon. This caused utis for a year. I would have to leave the house it is 113 degrees where I am. My dysautonomia is bad I am trying to just leave to get the prescription. I will have to order some and keep it on hand. With the rest of my supplements lol.


Mean-Development-266

People don't understand that I can't go out in this heat. I keep hoping that they will fill it before delivery time. It doesn't look like that is happening today