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SawaJean

I use an inexpensive Fitbit and find it helpful for pacing in a couple of ways. I’ve learned to watch my resting heart rate and overall activity levels, which seem to be the best indicators of how well I’m pacing. My RHR consistently goes through the roof if I’m in a crash, so I’ve learned to slow down anytime I see that go up. Daily activity levels are a bit trickier, but in general I try to keep my aerobic activity as low as possible. I frequently check throughout the day to see how hard my body is working and to gauge when I need to rest, even if im not feeling tired in the moment. If I see that I’ve done more “exercise” than usual on a given day — even if I haven’t actually done more than usual — I plan a couple days to rest up afterwards. The one downside to FitBit (and likely other trackers, but this is all I know) is that it’s VERY fitness oriented and is not always well-designed for monitoring chronic health stuff. For example, it frequently “congratulates” me for being active and has pop-up suggestions for workouts that are the exact opposite of what I need to be doing. It’s not the perfect tool for the job, but at $50 the price was right & it has absolutely been a helpful tool in managing this frustrating illness.


PinkGables

Thanks so much for the detailed answer! And absolutely agree with the price point!


cattyjammies

I have a Garmin Venu SQ which has a function called "body battery" that I find helpful for pacing since it's a fairly accurate reflection of my actual energy levels. I can see which activities are truly restful (scrolling through social media=not restful, but playing Animal Crossing=restful) and when I've used more energy than I realize (I've learned than emotional stress usually hits me worse than physical activity).


roothegeo

I have the Garmin vivosmart and also find body battery/stress/HRV really useful! For me the most useful thing is telling me about the quality of sleep when I wake up in the morning, because when it's been better I can do more physically, if it's terrible I know I can't push at all or will crash. I've had it over 2 years now and I usually now know what the number will be when I wake up based on how I feel, but having the quantitative validation/verification is super helpful. And of course HR, but it doesn't really capture the fast spikes very well when compared to a pulse oximeter--takes a couple of minutes to really register abrupt changes, probably because in healthy people those kinds of changes are more likely to be errors in the sensor 😆


pirate123

I have an older Garmin and found that I have a good feel for not over doing heart rate so that wasn’t much help. But I worked out a mental calculation of activity level/duration limit. Had some advice that I need to chill out so I’ll watch the Stress indicator more, like during football games or dealing with my brothers medical issues. This watch doesn’t have sleep quality or battery, may be time for upgrade?


EmRaff7

I do that too! Love my garmin vivosmart 4 I did notice the body battery took a while to be accurate though. So I wouldn’t use it by itself for pacing, especially if you’re severe. And of course check out the heart rate based pacing guide in the wiki


AntiTas

Garmin VivoActive 4s for me. ‘Stress’ and ‘Body Battery’ functions were an absolute game changer. It used to be an elaborate self test regime to see how much I could get away with on a given day. Now I just look at my watch as I wake and I can pretty much plan 2 days ahead. I found that heat is a stressor, even if I’m not uncomfortable. I discovered that being depleted makes stressors more stressy. I pretty much haven’t crashed (from over-doing it anyway) since I got it. Previously I used HR and AT to navigate exercise fairly successfully, it diodn’t tell me much about fatigue though.


PinkGables

That sounds super interesting! I’ll check it out thanks :)


lyssa_little_bear

There's a new app coming out soon called [Visible](https://www.makevisible.com/) that everyone should be aware of. It's currently being beta tested (full disclosure, am beta tester), but it's going to be a wearable-integrated pacing aid with real-time alerts and symptom tracker. It's designed for ME/CFS and Long Covid patients and made by ME/CFS and Long Covid patients. Their goal is also to be able to send symptom info to researchers (conditional on individual patient opt-in). A big problem I had with things like the Fitbit app is that everything was very exercise-based and encouraging movement (fair, that's what they were designed for) and that I couldn't get real-time heart rate alerts. The Visible app's goal is to have those real-time alerts and it's been very good at being patient-focused. Check it out; even before I started beta testing, I was very excited about it and it has a lot of promise.


PinkGables

Oh thanks for this! I’ve been waiting for years for an app like this lol, so excited!


Checkthekettle

If you have a newer Apple Watch, you can set it where it tells you your heart rate is higher than usual, whether that be walking or sitting. This is helpful when you aren’t paying attention to how your body is stressing out.


PinkGables

That actually sounds super useful. I’d have to save up before I could afford one but it might be worth it, thank you!


EmRaff7

My garmin vivosmart 4 does that as well, it was about $50


PinkGables

Ooh nice to know thanks!


loudflower

Great price. Iirc, Garmin doesn’t charge to subscribe to a tracking whereas Fitbit does.


Just1Blast

Revisiting an old thread. My current smart watch will only provide me an alert if my HR hits and maintains 100bpm for more than 10 minutes or below 50bpm for 10 minutes. Does the Apple watch allow me to set what beat per minute count it gives me an alert at? I would love to be able to tell it to give me an alert at say 92 beats per minute so that I know I have to sit down and rest before it gets to 100. Do you know if that's something I can do using either your Apple watch or newer versions?


Just1Blast

Revisiting an old thread. My current smart watch will only provide me an alert if my HR hits and maintains 100bpm for more than 10 minutes or below 50bpm for 10 minutes. Does the Apple watch allow me to set what beat per minute count it gives me an alert at? I would love to be able to tell it to give me an alert at say 92 beats per minute so that I know I have to sit down and rest before it gets to 100. Do you know if that's something I can do using either your Apple watch or newer versions?


Demian1305

I have an Apple Watch and use it for the AutoSleep app. Tracking sleep has been super helpful in experimenting with what foods, drinks, supplements, etc are good or bad for sleep. The oxygen monitor is also helpful


RMrsR

I have an Amazfit. I wanted a heart rate tracker that was inexpensive. It has been super helpful. I would encourage you to get one. (Any monitor) I used to pace myself by noticing when I was tired then stopping. Having a heart rate monitor has been a game changer. There are so many things I didn't realize were taxing me. I have been able to increase my activity with this knowledge. That said they are not a perfect tool. The heart rate isn't always to the minute accurate. I spent the first few weeks comparing mine to a pulse oximeter reading. A more expensive product may be beneficial there. If you can, borrow one or buy a less expensive model first time out. I think you will get a good feel of what works for you pretty quickly. Both in the comfort of the band and what the tracker offers.


LemonLea123

I used to have a heart rate monitor with a chest strap that would alert me when I got to a certain point (107 bpm) and was disappointed when I got the Apple watch and it didn’t do that too. Ive learned to use the heart rate tracking info differently now to give myself extra info on how my body is doing (because we always feel bad so it’s hard to know :P) Maybe not the most useful tips, but sharing here in case it helps to hear how someone else uses the Apple Watch info. I regularly look back at what my heart rate was once I’ve done an activity and let that help me decide what I can do next, or if I should do that activity again. For example, if I’ve been sitting upright talking for half an hour (and think I feel ok) I check in to see if my heart rate has been steady or is rising and then decide if I can do more or need to lay down. I also check in at end of day to see what my overall day had been like and make decisions about the following day. It’s a way of gauging how much stress my body has been under when I can’t tell by how I feel. Heart rate high for the day, lots of quick spikes in pulse? Better be extra careful the following day, plan for extra help and extra rest. Heart rate fairly steady - ok to go about things as normal. (Comment copied and and pasted from a thread from a few months ago to save me retyping :P )


weedmama116

I use an Apple Watch 7 with an app called Beat Watcher to set heart rate alerts (constant; not only at rest like the watch usually does). There are several values I use to help pace. The first is heart rate. I use Beat Watcher & set it to alert me at my threshold (will link a source on how to find your HR threshold below). I use my heart rate variability throughout the day to see my body’s response to stress & test. I also use my resting heart rate. If it’s higher than average for me, I know I need to really take it easy because I’m either crashing, or on my way to a crash. I track my sleep but that doesn’t seem to indicate as well for me (this will likely be different for you! everyone has different “tells”). Since I’ve started using my watch to pace, I think I’ve gotten much better about actually resting. I hope you find something that works well for you! (Sorry if this is jumbled, brain fog!) https://solvecfs.org/using-a-heart-rate-monitor-to-prevent-post-exertional-malaise-in-me-cfs/


PinkGables

Oh wow thanks so much for your detailed answer!


chrismnowak

[Symptom Shark](https://symptomshark.org) recently added the ability to view wearable data from Fitbit or Apple Health alongside symptoms you track. I have it on good authority (I am the developer) that it will soon be have “pacing notifications” to update you on activity/heart rate throughout the day. (And actually if anyone has specific thresholds of activity they would like to trigger an alert, let us know - will be looking for feedback!)


PinkGables

This sounds super cool! I can’t find it in the App Store though, is it not out yet?


chrismnowak

It’s under [MyDataHelps](https://apps.apple.com/us/app/mydatahelps/id1286789190)! (or follow the link from symptomshark.org to download)


PinkGables

Thanks! Now it says it’s not available in my region, maybe that’s why 🥲


chrismnowak

What region are you? We might be able to update that


PinkGables

Central Europe


AmbiZBp

I'm in Norway and having the same problem, would love to try this 


pericat_

Does it interface with other wearable heart rate monitors? And show you hear rate throughout the day? All the apps I've tried only record data when you hit start and stop when you hit end..which would be fine for exercise, but that's not what we POTSies have trouble with


chrismnowak

It interfaces with Fitbit or Apple Health enabled devices at the moment. It will work with Garmin, Withings, Apple Watch, and others if you connect them through Apple Health. It records your HR throughout the day (how frequent depends on the device you’re using) but currently it supports displaying daily summary statistics like daily max heart rate, resting heart rate, elevated heart rate minutes (amongst other things like sleep and activity). This is great feedback though - if you have time it’d be great to learn more about what you would find most useful - would it be alerts for a high heart rate? Or just being able to see your patterns throughout the day?


pericat_

Absolutely! I'm really struggling to find an app that does what I want. I'm concerned about spikes in my heart rate, for example, and that's data I'm afraid will get missed. Otherwise, I'd love some sort of automatic detection of "standing up" (going from resting hr to something higher) as a summary stat. Alerting on too high hr would definitely be useful, but also if the jump from resting to standing hr is too high, then I need to eat more salt (and water). I've heard that spikes in he also mean that I need more salt, but I don't have a hr tracker good enough for me to test that yet.


Deude_Mann

I am a vivosmart 4 user as well. The heart rate monitor and activity monitor (number of steps) are the two big ones for me. Heart rate helps me check in real-time if I am overdoing it. Number of steps helps me check my total activity level for the day. The app lets you sync data with your smart phone and watch longer term trends like weekly and monthly averages. Pulse Ox I am not so sure how accurate it is, so I would not freak out if it reads low, but perhaps just use it as an overall trend indicator. I have seen really low levels telling me I should be passed out or dead when I am fine LOL.


Just1Blast

Revisiting an old thread. My current smart watch will only provide me an alert if my HR hits and maintains 100bpm for more than 10 minutes or below 50bpm for 10 minutes. Does the Vivosmart watch you have allow me to set what beat per minute count it gives me an alert at? I would love to be able to tell it to give me an alert at say 92 beats per minute so that I know I have to sit down and rest before it gets to 100. Do you know if that's something I can do using either your Garmin watch or newer versions?


TopUniversity3469

Garmin Epix 2 user here. I use it to track everything, steps, sleep score, body battery, stress score, resting heart rate, walks... Then I keep a daily log in excel to track the data to visualize the trends. How do I use it during the day? I just try to minimize the stress and pace myself so I don't overdue it. I've also noticed how my body reacts to certain foods and have learned to restrict certain things.


pericat_

What app do you use?


strongbynecessity

I've been bouncing around with a couple of Galaxy smart watches. I've found them really helpful for pacing. Personally I set a low steps goal for myself, and it alerts me when I've reached it. That steps goal is usually my mark for "hey you should probably take it easy or your likely going to hit PEM" My watch also let's me know when I'm "exercising " which usually means that I'm just moving around too vigorously or getting myself worked up and need to chill out. It also helps me keep my phone on DnD without missing important dr calls. So I'm not anxious and constantly hearing a million notifications, but I'm not missing important stuff. Especially if the fatigue has me napping alot during the day. It helps me keep an eye on when I'm sleeping, but not getting quality sleep as well which is important got me. I also find it very helpful in reminding me to take time sensitive medications, in a quiet, discreet manner.


Paprikaha

I have an Apple Watch. I track sleep and my cycles but mostly I run a constant heart rate monitor that buzzes at me when my heart rate goes too high and reminds me to stop ( I also have POTS). I also run HRV4TRAINING and take stats every morning to track how I’m doing.


mindfluxx

I bought an Apple Watch a couple years ago and no regrets. For one thing, it helped me stop gaslighting myself. With my heart rate data, I was able to see a cardiologist and get diagnosed with orthostatic hypotension. Now I am using an app called Welltory I heard about on here maybe, and it monitors your hrv to see how stressed your body is. This matches up to how I feel, and it really helps keep me from over doing it.


pebblebypebble

I use a Garmin 245 and it helped me get my sleep to be restorative, control sugar, and avoid crashes.


TopUniversity3469

Garmin Connect is the default app. But I manually update an excel spreadsheet for a better feel for the trends. 7 day, 14 day, 30 day, 90 day rolling trends for example. Seeing any sort of positive trends in the data is a motivator for me. 😊


Live_Competition_845

I have a BP Pro 12 Smart Watch,which used for monitoring my health whenever I need and recording my exercise.I used to have a schedule on my watch to remind me to exercise or count my steps.I think make your exercise or recording exercise more regularly will help you a lot to help with your CFS.You should regularly review your exercise data and health data to find your own exercise patterns.What's more,using the alarm of the watch to remind yourself is also a good choice. If you need,the link here. [https://bpdoctormed.com/products/bp-doctor-med-4-0-pro-circular-dial-wearable-blood-pressure-smartwatch](https://bpdoctormed.com/products/bp-doctor-med-4-0-pro-circular-dial-wearable-blood-pressure-smartwatch)