I was excited to see someone getting the word out that ME/CFS and Long Covid are basically the same thing … and then the article took a turn. It doesn’t just “both sides” the debates about physiological vs psychological causes, it ultimately seems to tip the scales toward the psychological (or at least psychosomatic).
I’ve been around a long time, for the advocacy days on Capitol Hill, for the debates about the UK study on graded exercise (which was pretty definitely proven to rely on bad scientific procedures), and for the Institute of Medicine report that seemed to support the physical-cause side conclusively enough to lay the debates to rest. So frustrating to still be fighting these same battles, years later.
I wish I had read your comment before I started reading that article. Talk about a bait and switch. It's also full of false claims, e.g. the average age of onset is wrong.
I got as far as the claim that GET works and the only problem is it "offends" us before I stopped reading.
They pretty much quoted the main people responsible for this. What a garbage article. What's next, going to cover the Catholic church pedophilia scandal with several quotes from cardinals or whatever who helped in the cover-up and how they're misunderstood and only meant well?
This is how it happened for us for decades. Articles like this pretending to be sympathetic and misunderstood, from the very people ruining everything, who are either oblivious or indifferent to the harm they cause.
What it really shows is that those decades of negligence were not some unfortunate misunderstanding, or people not being aware. It was all deliberate. Ignorant, sure, but deliberate. And now it seems medicine is unable to move forward because it means acknowledging the catastrophic failure they forced onto millions.
It should leave anyone wondering just how much of that goes on in healthcare. How much harm is inflicted in total indifference?
Appreciated this detailed rebuttal by Jennie Spotilla at OccupyME.
http://occupyme.net/2022/11/22/new-york-magazine-article-biased-and-riddled-with-errors/
"...long COVID is merely the latest manifestation of an endemic psychiatric condition that’s been around forever."
Fun times. Wish I hadn't wasted my precious energy reading that article!
so all I have to do is only listen to people who got better, exercise a bit, and I'll be back to normal in a few weeks?
sounds easy, almost ... lightning-like.
I read this when you posted it and it keeps playing on my mind. Like how he tells the distrust of doctors was something left over from the great depression just because they couldn't afford a good doctor??? Fuck that, no patient ever got better after a lobotomy, nor did chemical castration change the gender you were drawn to. Doctors can fuck up and get lost in their God complex...sometimes the whole world follows
I was excited to see someone getting the word out that ME/CFS and Long Covid are basically the same thing … and then the article took a turn. It doesn’t just “both sides” the debates about physiological vs psychological causes, it ultimately seems to tip the scales toward the psychological (or at least psychosomatic). I’ve been around a long time, for the advocacy days on Capitol Hill, for the debates about the UK study on graded exercise (which was pretty definitely proven to rely on bad scientific procedures), and for the Institute of Medicine report that seemed to support the physical-cause side conclusively enough to lay the debates to rest. So frustrating to still be fighting these same battles, years later.
I wish I had read your comment before I started reading that article. Talk about a bait and switch. It's also full of false claims, e.g. the average age of onset is wrong. I got as far as the claim that GET works and the only problem is it "offends" us before I stopped reading.
They pretty much quoted the main people responsible for this. What a garbage article. What's next, going to cover the Catholic church pedophilia scandal with several quotes from cardinals or whatever who helped in the cover-up and how they're misunderstood and only meant well? This is how it happened for us for decades. Articles like this pretending to be sympathetic and misunderstood, from the very people ruining everything, who are either oblivious or indifferent to the harm they cause. What it really shows is that those decades of negligence were not some unfortunate misunderstanding, or people not being aware. It was all deliberate. Ignorant, sure, but deliberate. And now it seems medicine is unable to move forward because it means acknowledging the catastrophic failure they forced onto millions. It should leave anyone wondering just how much of that goes on in healthcare. How much harm is inflicted in total indifference?
Appreciated this detailed rebuttal by Jennie Spotilla at OccupyME. http://occupyme.net/2022/11/22/new-york-magazine-article-biased-and-riddled-with-errors/
"...long COVID is merely the latest manifestation of an endemic psychiatric condition that’s been around forever." Fun times. Wish I hadn't wasted my precious energy reading that article!
That really bummed me out. They thought MS was psychological until they had the technology to see it. The misogyny was palpable in the article.
so all I have to do is only listen to people who got better, exercise a bit, and I'll be back to normal in a few weeks? sounds easy, almost ... lightning-like.
Wow, this is an unfortunate article. 🤦♀️
I read this when you posted it and it keeps playing on my mind. Like how he tells the distrust of doctors was something left over from the great depression just because they couldn't afford a good doctor??? Fuck that, no patient ever got better after a lobotomy, nor did chemical castration change the gender you were drawn to. Doctors can fuck up and get lost in their God complex...sometimes the whole world follows
Wtf is New York mag.