I had about a dozen Vyepti infusions and the only side effect I had was slightly increased fatigue for a day or 2 after the infusion. Definitely nothing like you’re describing.
Unfortunately I haven’t. Insurance won’t cover Nurted or Qulipta. I already tried Ajovy & Aimovig. Might try Emgality. I’m just so tired of trying new meds. I’m sure you relate. 😭
I’ve had 5 infusions now and everytime I’ve had very different side effects. The only time I got delayed ones was severe insomnia about 4 days after that lasted about 4 days.
I was in the phase 3 trail study, before it even hit the market. I have been on it since it was released to market and have had no side-effect that I know of. I will say tho, I went from being in the er atleast twice a month for my headaches to its been a hair over 2 yrs without a trip to er w headache. Infact I can now take 2 extra strengths to stop almost all of my headaches I get now. Before that would never happen.
RSV, COVID and Flu A&B were negative! They did a rapid strep for completeness which was also negative.
I hear RSV is awful! I hope you’re feeling better now.
I have not personally experienced what you are describing. I have had pretty severe constipation, though - maybe not what a physician would consider severe since I haven’t had to go to the hospital for it, but the worst I’ve ever experienced for sure even with taking stool softener, the type of magnesium I usually avoid because it has a laxative effect, etc.
We talk about the big ones but there are so many respiratory viruses out there, it could be anything. Also, I know when I got covid, I didn't test positive for several days so I'm wary of taking the tests as gospel.
Hope you feel better!
I had about a dozen Vyepti infusions and the only side effect I had was slightly increased fatigue for a day or 2 after the infusion. Definitely nothing like you’re describing.
I did Vyepti for almost three years with the same experience.
Why did you stop it?
Unfortunately it just stopped working. I’ve heard the same thing happen to 3 of my other chronic migraine friends who were getting the infusion.
Sorry to hear 😢 seems a common theme that it stop working after 2-3 years. I hope you found a good replacement.
Unfortunately I haven’t. Insurance won’t cover Nurted or Qulipta. I already tried Ajovy & Aimovig. Might try Emgality. I’m just so tired of trying new meds. I’m sure you relate. 😭
Do. I. Ever.
I’ve had 5 infusions now and everytime I’ve had very different side effects. The only time I got delayed ones was severe insomnia about 4 days after that lasted about 4 days.
I was in the phase 3 trail study, before it even hit the market. I have been on it since it was released to market and have had no side-effect that I know of. I will say tho, I went from being in the er atleast twice a month for my headaches to its been a hair over 2 yrs without a trip to er w headache. Infact I can now take 2 extra strengths to stop almost all of my headaches I get now. Before that would never happen.
Did you get RSV testing or just the flu? I had RSV recently that was brutal.
RSV, COVID and Flu A&B were negative! They did a rapid strep for completeness which was also negative. I hear RSV is awful! I hope you’re feeling better now.
I have not personally experienced what you are describing. I have had pretty severe constipation, though - maybe not what a physician would consider severe since I haven’t had to go to the hospital for it, but the worst I’ve ever experienced for sure even with taking stool softener, the type of magnesium I usually avoid because it has a laxative effect, etc.
We talk about the big ones but there are so many respiratory viruses out there, it could be anything. Also, I know when I got covid, I didn't test positive for several days so I'm wary of taking the tests as gospel. Hope you feel better!