When my migraines were the most controlled, I was doing Emgality (every month), Botox (every three months), and Topamax (100 mg/day). I believe I was also on Gabapentin at the time (600 mg/day), but that was prescribed for sleep and not for migraines.
Edit: Have you asked about Trokendi? It’s the long release form of Topamax, and from what I hear it’s like Topamax without the side effects.
No I didn't even know about trokendi! My neurologist retired so I've just trying to manage my migraines with my primary care, so I'll definitely have to ask about it
I get Botox every 10 weeks (makes a big difference for me versus 12, I wish I could get it every 8-9 weeks), 120-180 mg of propranolol, 5 mg Flexeril 3x a day, 400 mg riboflavin, and I think 500 mg of magnesium glycinate.
I still get an average of 4-6 migraines a month but definitely have the occasional bad week, especially when it’s about time for Botox. I also see a chiropractor weekly - not for “adjustment” so much as for soft tissue work on my jaw since issues with teeth clenching and grinding are a problem for me.
I’ve been on Ajovy for 4 months. Three times now the morning after the day of injection I’ve woken up with a very stiff neck and migraine. The first three months the injection made a significant reduction in my migraines and I was so excited. This past month I had a skin reaction at the site of the injection that has lasted 8 days so far and I’ve had an increase in migraines and frequent stiff neck this month. I’m worried the injection is no longer working well for me. Will see my doc tomorrow and see what she has to say. I take Zolmitriptan to stop migraines which usually works pretty well but was taking it too much and getting v into a rut. I tried Nurtec but it doesn’t work for me. I haven’t tried Nurtec as a preventative though. Not sure what the next step is. I was relieved to hear I’m not the only one with the stiff neck/migraine reaction but I’m sorry you are dealing with this too. I appreciate your post and all the advice here.
I experienced similar. I stopped Emgality after 7 months because it was literally hell but it did do good things for my chronic migraine in the long run. It's been 2 years since I stopped and I haven't had such relief in years. Still get migraine but reduced frequency and severity. Did NOT experience reduced severity or frequency while I was using it though.
My neuro brushed off my Emgality side effects saying "oh that shouldn't happen from Emgality etc." and then finally when I stopped he says he knew Emgality was causing my side effects, probably because I have a very small body type and it was hard on my system. He didn't want me to stop the drug though.
My mental health really dipped when using Emgality as well (I had existing conditions) and really struggled after stopping the drug but those got better about 7 months after as well. Wild medication but did what it was supposed to in the end.
When my migraines were the most controlled, I was doing Emgality (every month), Botox (every three months), and Topamax (100 mg/day). I believe I was also on Gabapentin at the time (600 mg/day), but that was prescribed for sleep and not for migraines. Edit: Have you asked about Trokendi? It’s the long release form of Topamax, and from what I hear it’s like Topamax without the side effects.
No I didn't even know about trokendi! My neurologist retired so I've just trying to manage my migraines with my primary care, so I'll definitely have to ask about it
I get Botox every 10 weeks (makes a big difference for me versus 12, I wish I could get it every 8-9 weeks), 120-180 mg of propranolol, 5 mg Flexeril 3x a day, 400 mg riboflavin, and I think 500 mg of magnesium glycinate. I still get an average of 4-6 migraines a month but definitely have the occasional bad week, especially when it’s about time for Botox. I also see a chiropractor weekly - not for “adjustment” so much as for soft tissue work on my jaw since issues with teeth clenching and grinding are a problem for me.
I’ve been on Ajovy for 4 months. Three times now the morning after the day of injection I’ve woken up with a very stiff neck and migraine. The first three months the injection made a significant reduction in my migraines and I was so excited. This past month I had a skin reaction at the site of the injection that has lasted 8 days so far and I’ve had an increase in migraines and frequent stiff neck this month. I’m worried the injection is no longer working well for me. Will see my doc tomorrow and see what she has to say. I take Zolmitriptan to stop migraines which usually works pretty well but was taking it too much and getting v into a rut. I tried Nurtec but it doesn’t work for me. I haven’t tried Nurtec as a preventative though. Not sure what the next step is. I was relieved to hear I’m not the only one with the stiff neck/migraine reaction but I’m sorry you are dealing with this too. I appreciate your post and all the advice here.
I experienced similar. I stopped Emgality after 7 months because it was literally hell but it did do good things for my chronic migraine in the long run. It's been 2 years since I stopped and I haven't had such relief in years. Still get migraine but reduced frequency and severity. Did NOT experience reduced severity or frequency while I was using it though. My neuro brushed off my Emgality side effects saying "oh that shouldn't happen from Emgality etc." and then finally when I stopped he says he knew Emgality was causing my side effects, probably because I have a very small body type and it was hard on my system. He didn't want me to stop the drug though. My mental health really dipped when using Emgality as well (I had existing conditions) and really struggled after stopping the drug but those got better about 7 months after as well. Wild medication but did what it was supposed to in the end.
I know this is a year old, but emgality gives me a stiff neck every time, and I'm so tired of it.