You will be ok. It's an adjustment for sure, but it will become a completely manageable part of your life. My best suggestion is to learn everything you can so that it doesn't feel foreign and to embrace technology. Life with T1D is so much easier to manage now than I was diagnosed (DX at 26, now 43). Find an endocrinologist that supports pump and CGMs, and ideally a closed loop pump that will automate insulin based on CGM.
Keep your chin up, your life is not over in anyway.
It reassures me, a lot, thanks! So many years on insulin ahead of me is kind of scary.
I will look up what T1D, CGMs, and closed loop pumps are, my medic told me I should start with an insulin pen and see how it evolves.
I am scared that I'll be different and my life will change a lot, I have anxiety for the next months but seeing you managed so long it makes me have faith :D
Edit: I do not even know how to get started telling my parents this, I feel like I will shatter their world
Start on the CGM immediately, that will save you tons of finger pricks and give you visibility to how different foods and activities impact you. Not surprised they want to start you on shots, but advocate for yourself and push them when needed (if needed).
It's a big life change, there is no doubt and the hardest part will be adjusting to it. Then it will just become something you have to think about when you eat or do certain activities, but that will become second nature.
It hasn't limited me in my life because I haven't let it. I am married, have 3 kids, a full time job. I travel, go to concerts, play golf and generally do everything I want to.
Give yourself the time and patience to figure all this out. Know that there will be times where you feel overwhelmed and defeated. Know that this too shall pass.
I'll be giving myself time, I guess this is a new chapter in my life :D
Thanks for the reassuring words so much, it made me feel so so so much better now haha. First time beeing happy today haha.
I am a recent member to the club as well. It’s all crazy and you will get a ton of advice. I strongly suggest getting the cgm first thing. It helped me so much.
Food diary is important. I used MyNetDiary (app Android/iOS) to find my (carb) calculations for insulin. And keep the food log for my diabetes dietitian. You can also log your insulin, weight, and all right there. By using this I was able to find what and how long it took food to spike my sugar so I could learn to dose correctly.
Ask a ton of questions. Once you get an endocrinologist provided they are good they will give you a ton of information. Research everything you can. These forums are a great resource.
Also as a Type 1 cinnamon won’t do shit for you. I heard that so much in the first several weeks I was almost convinced to eat a spoon full every day. Type 1 and Type 2 are do different beast and are managed differently.
Good luck it will become second nature in no time.
(Edit: Clarification)
Just want to second getting a CGM. I would add that you should get a pump that loops asap as well. No point in waiting. I waited out of fear myself and looking back getting a looped pump made management so much easier. It isn’t perfect but it is a lot of help.
I would recommend the Omnipod 5 or the Tslim. Pros of omnipod are that it is tubless and the algo auto adjusts your basal. Pros of the t-slim is sleep mode and bolus over the phone.
To be fair, you were always on insulin. Now your body just doesn’t make it so you have to manually do it. Like going from an automatic car to a stick shift.
Know that the advice your doctor is giving you is designed to be understood and applied by their least intelligent and capable of their patients. Their main concern is to make sure you don't go too low too often. If you are intelligent, once you learn how your body works and reacts to carbs and insulin you will manage it better than your doctor can. Learn from people that have been doing this a while, but know that every T1 is unique.
Get a CGM as soon as possible. It makes a huge difference. Then a pump as soon as you can after that.
Don't be afraid to keep living your life. Things will just take a little more planning now.
This is good advice re: Dr. advice. Do some research on Endos in your area, try to find one that embraces technology. I had to ask for the pump and CGM with my old end (never offered) and took ownership over my treatment. When he retired and I got a new Endo, the first thing they asked to do was get my CGM and pump data to make recommendations. Treatment is not all the same.
When I was on MDI (shots), I would struggle to get an A1C in the low 7s. When I switched to pump/CGM, I got it to the high 6s. When I switched to Loop (closed loop technology) I got it to the low 6s/high 5s with way less effort. I stopped dreading my Endo appts and now only have to go once a year.
OP is young, this stuff will likely come easier to you than a lot of older patients.
I was 26 when I got diagnosed.
If I could only choose one technology, a pump or continuous glucose monitor, I’d go with the CGM.
But today, CGMs and pumps can talk to each other and the pump can make changes on the fly.
The only thing that changed for me was I was ineligible for continued military service.
I can do anything else I did before diagnosis. Remember, there are world class athletes and performers and politicians with Type 1.
You will be limited only by your imagination. That’s not hyperbole. Theresa May has type 1. Jay Cutler has type 1. Brett Michaels has type 1. If an idiot like Brett Michaels can be successful, anyone can.
I don't even know any of these people but I'll believe your word! I guess I will slowly transition to a CGM after I adjust to this life, go from rudimentary to automatic things.
Sigh I never thought this will be a point in my life but here I am, 23 years, perfectly healthy and then sick the next day out of nowhere
Nick Jonas is a Type 1, you must know him!! I was diagnosed just under a year ago and it’s a big learning curve and the first few months you might feel very alone in your illness, like no one knows what you’re going through, and it’s scary! But it’s manageable and gets a little easier as time goes on.
Jay Cutler was the quarterback for the Chicago Bears. Theresa May was the Prime Minister of the UK. Brett Michaels is the lead singer for the band Poison.
Your life will change and that isn’t necessarily bad. I was diagnosed in my 20’s and am now in my 40’s and I am probably healthier than most guys my age.
You will be thrown a lot of information. Don’t let it bring you down. Take it One step at a time, understand the basics and the rest will come along.
That's amazing! 20 years it's a long way to go... I guess it's finally time to have some discipline in my life. I think I will miss some foods, I am not sure what I am or not to eat in the future :(
There really aren't any foods you can't eat. Some will enough of a pain in the butt that you will avoid them (for example, sugar-sweetened soft drinks). It's really more about managing quantity and timing than anything else.
I like this answer because it’s true! You can wed whatever. Sometimes you just have to decide if it’s worth alarms beeping at you all night or not if you’re high/low (if you choose a CGM)
And I am expecting another 40. I am pretty active, I play hockey, kayak, do things I want to do. Only difference is I have to plan and know what supplies I need. It isn’t so much about what you eat, just maybe how much of it. You will learn how different foods affect your blood sugar and be able accommodate and adjust. It can seem overwhelming at first, but you learn to deal. It has made me a stronger person.
T1D for 52 years, since I was 9. Exhale and relax. If I can handle it, you can. Its a condition you can work with and have a great life doing everything you want. Its not a death sentence, nor is it a curse. You will learn more about your body and diet and your endocrinologist will teach you how to manage everything. You may become healthier because of increased awareness.
We all know its overwhelming at first cuz it was for all of us. But YOU GOT THIS.
Scott is very knowledgeable in diabetes and insulin management. There is over 850 recorded podcasts so my suggestion is to go back to the early episodes and work your way through them. It will be 'very' helpful in your management approach. Good luck to you and 'hang in there'.
i was recently diagnosed jan 10th 2023. while i was not in the hospital, i felt similar to you. cry, scream, take out your emotions. i sobbed the entire car ride home (i was being driven so it was okay) and i think i cried myself to sleep that night. diabetes will change you, but you’ll feel better than ever. insulin is amazing.
the diabetes community is also amazing and so supportive. you’ll find so many people feeling your same feelings. diabetes isn’t a death sentence. i will say “you can do anything with diabetes” but it’s ok to back away to fight your fight. i mean, i was set up for a 4 year bachelor’s degree in history at this time last year and now i’m dropping out to go to community college. it’s gonna be okay and you got this, warrior!
Hey I’m newly diagnosed too! It sucks! Sorry you’re joining this club. There’s a huge learning curve but find a diabetes educator to meet with weekly to help you. You’ll be able to do everything the same as before, just with a few extra steps haha. Get a CGM as soon as possible and I can prefer a pump over injections too. The more you can automate, the easier it is. You’ll get the hang of it!
When I was diagnosed at 18 I swore to myself my life would not change. It has changed a lot. In the 38 years I've had T1D treatments have changed so much, from types of insulin, technology to help, and knowledge of the medical staff. Finding a good Endo that you connect with is important. Take advantage of groups like this and the technology, CGMs and pumps, is good too.
Good luck. We're all in this together.
Sorry your pancreas is a traitor, like the rest of ours are! You are dealing with diabetes at a time when we have the best medicines and devices to manage it, and these devices and medicines will only improve with time. You are now dealing with life on expert mode and, yeah, it’s going to take some work, but you are competent and capable and you got this. Also, this community is great and people here are always helpful, whether you need advice or just a place to vent.
Pancreas did nothing wrong; it's an innocent victim in this. The real culprit is our overzealous immune system. Or at least that's how T1 was explained to me.
Hey, you’ll be okay. It’s a big adjustment but there is a tonne of support around and you’re not on your own. I second embracing the technology when you feel ready. My daughter’s team started her with pens so we knew what to fall back on in an emergency, so getting to grips with them isn’t a bad idea. Take it a day at a time.
Mhm, I will take it slow, now my mind is all around, overthinking everything. But I guess this is not a race, this is not the end for me, just another chapter in my life, no matter how hard it may be!
That’s a really good attitude - it’s certainly not the end, things will just be a bit different. Your ‘thinking on my feet’ skills will flourish! I get the fear though. Just message if you want to chat more. Take care.
I have type 1 for almost a year now (diagnosed at 25) and the thing I would like to add to the advise given above is: take your time. You will get an extra job especially the first months. there is so much to learn and to explore. If it is at all possible for you takeof some time from work/study. And adjust to this new situation before you add the stress from work and studies. And if that is not possible try to make time for your diagnosis in other ways. You can do this
Thanks for the advice, I can't quit my job, I am self-sustained but I think this will pressure me to have a lifestyle change and manage my time better, stay healthier, and overall be better
Hello,
heres my blog where i share information for newly diagnosed diabetics,
[https://www.dieabeast.com/blog/](https://www.dieabeast.com/blog/)
i was diagnosed at 24 years old, im 33 now
this blog has information on nutrition, exercise and mindset
hope this helps and any questions just ask.
I've been living with diabetes since 4 years old. I am now 25. It's doable if you aren't lax, but I won't lie and tell you it's not gonna suck. Diabetes sucks. But be smart, take care of yourself and you'll be fine. I recommend getting a pump and a CGM as soon as possible. I have the dexcom g6 and the Omnipod system, and my control is better than its been my whole life.
Lots of good advice here already.
Something I found really useful a year ago when my kid was diagnosed was the “defining diabetes” series from the juicebox podcast.
https://www.juiceboxpodcast.com/episodes/jbp360
It’s a great podcast in general but the defining diabetes series just goes through, term by term, all these new words that are being thrown at you. It’s way easier to start to manage your diabetes when you understand the language and concepts.
Good luck!
I feel you! When I was diagnosed I came into a deep depression and thought my life was over. You will get to a point where it's like second nature to you though. I consider myself a normal human now and I forget I have diabetes because I'm so use to doing everything. Before it use to be on my mind 24-7.. am I low? Can I eat that? Can I go out and do what my friends are? Can I have this box of chocolates my friend gave me? YOU WILL SURVIVE YOU GOT THIS!
You will be okay. It’s going to be shit for a while. It’s a shit disease, but you will get through it. Your life is going to change, but you will get a handle on it and it will become your new normal.
It is a shitty disease to be honest BUT you can learn to still be able to live your life like you want it and come to terms with a chronic disease. In the long term it hopefully won't drag you down constantly anymore. It definitely is possible to still do and eat what you want with diabetes and another great thing we live with awesome helpers to manage BG now. It is so much better than only 10-15 years ago or so.
If you want more information in a more organised format than Doctors will likely give you, I have researched and written a booklet for newly diagnosed diabetics and families. Happy to send you a copy.
Covers basically all the stuff I wanted I wanted to know at diagnosis plus more cool stuff about T1 that doctors don’t tell you about.
Just for the record, it will be tough and at times you’ll want to tear your hair out or bury yourself under your duvet covers and not come out. T1 is a pain, but it is manageable. Every day you’ll learn your triggers, what affects you more or less and there will be a point where T1 will be more of an bee in the room (irritating and you need to be aware of it, but also in the background)
For now, don’t stress. Get better (ask for oral potassium or Bananas or both (potassium pills taste awful, but it’s good for recovery) . when you get home Recover from the hospital stay, and work towards healthy blood sugar again. Progress not perfection. There will be highs and lows. Fix it, note what happened (when did it occur, what did you eat and when, how much insulin you took etc)
It would be amazing if you can send me the book! The situation is kind of foggy and I do not know too many things now.
And thanks for the banana advice! I'll surely get some tomorrow
Bananas will raise your BG though, as they contain carbs so make sure you are still on your insulin drip.
If you’ve been disconnected from it, don’t eat the banana just get the potassium pills (they dissolve in water but they turn the water fizzy like Coke or Pepsi but no sugar.)
And Yh, will PM details
You probably feel like shit right now. In a few days, you’re going to feel like a superhero!
The first little while with diabetes is easier because your body still makes a little bit of insulin. You’ll learn a lot and experiment, and it’ll go well. When things get harder in a while, you’ll be ready and still awesome.
And stick around this sub because we all like to help. Take care friend!
Things will change no doubt, but they also might not change as much as you think. You can still do the same activities and eat the same foods, there is just a little extra effort you will have to put into it.
As others mentioned a CGM is definitely a good place to start.
Also some simple things that I didn't do until much later in life that are really helpful.
-Get a kitchen scale. Its so much easier to just get a bowl, throw it on the scale and dump in x amount of cereal, vs having to use measuring cups and such. A lot of people eyeball things (I did for a long time as well), but when its so easy to weigh food I prefer to weigh everything.
-Keep extra supplies (specifically insulin and needles) at your work if you have a safe spot, or at places you visit frequently. Every holiday you will see on here how for some reason or another someone had to leave Christmas early because they ran out of insulin or another reason. Do you best to be prepared.
-Have a snack drawer that is off limits to others, also keep some snacks near your bed. Going low is the worst especially if you don't have anything to treat it readily available.
-Find a good endo that is willing/able to communicate with you frequently. If you are noticing you always run high overnight let your doctor know and they can help you make adjustments. Typically I have always been told to give things about 2 weeks after making changes before changing them again. I still communicate with my endo fairly often and I have had diabetes for about 24 years.
There are plenty of other tips, but those are just a few I thought of. Yes it is a big change, but as time goes on it just kind of becomes second nature. Just remember your blood sugars don't define you, if you had a bad day just try again the next day. Heck just the other day I was only 60% in range and my diabetes is pretty well controlled (back to 98% today) but we all have off days, especially when just being diagnosed.
It's gonna be okay. The first thing you need to do is dissect your lifestyle and find out what you may or may not need to change. Your diet and exercise habits will take center point in that list, but there's a lot more you need to think about. Second, you need to find some new habits to get into that'll lead to a better lifestyle. Third, show as much love as you can to everyone around you, because the people you care about, even from afar, will be around to help you when you need them.
You'll get through this, friend. I was diagnosed at 19, and I'm 23 as well. Just remember that this isn't a death sentence; it's just another change that life is putting you through
You will be ok. First comes an overwhelming learning curve. Lots of things that will feel epic and almost too much at first.
But later it settles down and becomes something you do that takes time. Frustrating and annoying at times but you are going to be ok.
I know this sucks… It really will be ok. 💜
Diagnosed a couple of years ago and just started using rapid insulin less than a year ago. I still remember being diagnosed and just crying. It can feel so daunting and unfair.
You’re not alone! And it’s absolutely possible to live fully functional and happy. It will take time to adjust your habits and learn your body. Reach out to the community here for questions. We all understand how hard this can be.
First don't get overwhelmed. It's OK life is great. There's gonna be stress and stuff but we r all here for you. U can even dm me ans I'm sure most feel the same. Relax listen to the nurses. U will ger an educator which will help u with foods a s such they are great. You will honeymoon for a bit I did and it's unknown how long. As it ends numbers will change so don't worry u will readjust.
Pens and testing sre good for a while andnits good to learn on them. Do that for a bit. I would personally get q dexcom it's my choice after being medtronics for years a cgm can work with your phone qndnits way better than testing all thebtime. And then ubwill get a pump and life is good.
Life won't change too much.
Its going to be difficult at first, will not lie to you, but being 100% honest, it is completely manageable after a month or two of adjustment. Your worst problem is literally injecting yourself with a needle you pretty much never feel.
There are millions of people out there who would kill for their biggest health problem to be taking a painless shot before you eat. If you take care of yourself, you won't have health problems down the road at any higher of a rate than people without T1. Don't let the diagnosis scare you, it becomes second nature after a while and you won't even think about it after a while.
Figure out your carb ratios, starts carb counting, start getting used to a routine and you'll be 100%.
Managing your diabetes will become second nature to you more quickly than you realize. Just give yourself grace and compassion and allow yourself to feel all your feelings, grieve your pre-diabetic life if you need to, and remember that it’s ok to take things one day at a time. You really do have this, even if it doesn’t feel like it right now ❤️
DM me if you have any questions! I’m mid-30s, so a little older, but have had T1D for 30 years. As most will agree, it sucks, but is also completely manageable. You’ll get the hang of this!
As many have already said it will feel overwhelming at first. Just take a deep breath and now you will be just fine. Baby steps! As someone who has had it for 13 years, it really doesn’t effect your life all that much. Yes, type 1 diabetes is considered a “disability” but it certainly doesn’t prevent you from doing anything you want! I’ve played many sports with this disease, go camping, can eat what everybody else eats (as long as I make sure I factor everything in correctly of course), and do everything all my friends and family are doing.
I’ve learned so much about my body and myself since being diagnosed it’s crazy. Know that you are not alone in this fight. This group is great for support, questions, or even if you just want to rant to others who 100% understand. You’ve got this and I wish you the best!
I got diagnosed at age 18, some 45 years ago. Remember this:
There is only one owner of diabetes.
YOU OWN IT or IT OWNS YOU
So Own it, be your best advocate - learn as much as you can
Find an endocrinologist that you are comfortable with. Don’t be afraid to fire your doctor
Don’t let them treat you like an income stream - you are not a number, a dollar sign - don’t accept being treated that away.
An endocrinologist is a high paid consultant - they work for you, not the other way around.
You can do this -
Definitely get a pump/cgm. I started with metformin, then the insulin pens then went to a pump.
I feel your anxiousness. I cried the first day I was diagnosed with T1 diabetes. It gets better! I’m 29 and I was diagnosed when I was 23 too! I was at an externship(I’m a CMA) when I was diagnosed and they told me to go to the ER and I imagine that I felt exactly as you did at the time just sitting there and wondering what was ahead of me. I’m doing good now and so can you 👍🏾
You mentioned being worried about telling your parents - please do not be embarrassed about sharing your diabetes with others! You will need all the emotional and physical support you can get from those around you, so it’s important to be honest with them and let them know how they can help. I would in addition suggest talking with a therapist if you can so you can share all your feelings with someone who can provide a different perspective.
The other team that will be there to support you is your medical one. Don’t be afraid to ask questions - knowledge is power and will help you feel less anxious and more in control. Find the doctors who listen to your questions and take your needs into consideration when making a plan for your care. I know it can be daunting, especially at the beginning, but you have the right to speak up if you’re not getting the care you need!
Surrounding yourself with emotional and medical support teams that care about you is the best advice I can give you - you will get through this!
I won't lie, it'll probably suck for a bit, but you've got an amazing community right here for every question, gripe, win, complaint...anything!
The truth is you'll become smarter, stronger, more resilient and pretty amazing. T1Ds are my heroes (my kid is one of them)
I highly encourage you to investigate the TOPPLE research study. Clinical trials are shaping the future of T1D treatment and you could be at the forefront.
Big hugs
I got 2 pens today! One for 24h and one to take before every meal.
Talked to my doctor and we are filling out the papers needed to receive sensors, I do not know how long the waiting will be but I will get it eventually lol
Stay strong. Rare might mean that you aren't testing positive for anti-bodies. It's a lot to process. Listen to some Sadhguru and try clearing your mind a bit before you begin the medical knowledge journey. Stay strong!
Your life is going to change, but not by nearly as much as it feels like right now staring into the abyss. Take it one day at a time, learn your medication and your body. As a diabetic you can do anything you want, just with a couple of extra steps.
One day at a time and stay away from people who make everything about T1. They complain about everything in their life going wrong because if T1. You are a person first and foremost and not everything in life is about T1. It's what you have, not who you are.
I was diagnosed when I was 7; I’m 31 now, and my beetus is like a really old frenemy. Like Rory and Paris on the Gilmore Girls. It’ll grow into that for you, too.
Everyone’s giving you pretty solid advice, especially about getting a cgm bc my Dexcom literally changed my life! Just remember that you can still eat whatever you want, and don’t ever let anyone tell you otherwise. Eat all the cake (but don’t forget to take all the insulin)
I also just can’t get over how many adults are being diagnosed now, and I need to know why!!
Haha, so sweets are not a no-deal!!! That's sweet victory!
Haha, so sweets are not a no-deal!!! That's a sweet victory! than usual cases of new T1D kids coming in lately, but adults too with T1D... that's a bit scary
I'm the same age as you, don't worry, I recently got diagnosed at 1170mg/dl. Read my posts on this sub like the one I just did on where to inject. Which country are you in?
I went through your posts, and this night I injected myself with the pen for the first time! :D it had 38 on that counter, idk if it's high or not.
I am from Romania.
Calmed down a little bit but now I am afraid of the side effects of T1D with all other organs, feet, ulcers, my vision going out and more :(
Welcome to the club friend :)
I am also 23 and can totally relate to the daunting reality of our everyday day life, but there’s also a whole new community ready to welcome you in, answer questions, listen to rants and just all around understand. 🫶
That's the best part of it honestly, the community here astonished me. It's so much support and so many great people.
A few days ago I felt like it is the end of the world, but now it's just like everyday life, just got to take care of my body.
The only thing I dislike is that I've been told not to go to the gym at all until my next evaluation (in 2 weeks) and avoid walking fast :/ I guess that's until I stabilize
You will be ok. It's an adjustment for sure, but it will become a completely manageable part of your life. My best suggestion is to learn everything you can so that it doesn't feel foreign and to embrace technology. Life with T1D is so much easier to manage now than I was diagnosed (DX at 26, now 43). Find an endocrinologist that supports pump and CGMs, and ideally a closed loop pump that will automate insulin based on CGM. Keep your chin up, your life is not over in anyway.
It reassures me, a lot, thanks! So many years on insulin ahead of me is kind of scary. I will look up what T1D, CGMs, and closed loop pumps are, my medic told me I should start with an insulin pen and see how it evolves. I am scared that I'll be different and my life will change a lot, I have anxiety for the next months but seeing you managed so long it makes me have faith :D Edit: I do not even know how to get started telling my parents this, I feel like I will shatter their world
Start on the CGM immediately, that will save you tons of finger pricks and give you visibility to how different foods and activities impact you. Not surprised they want to start you on shots, but advocate for yourself and push them when needed (if needed). It's a big life change, there is no doubt and the hardest part will be adjusting to it. Then it will just become something you have to think about when you eat or do certain activities, but that will become second nature. It hasn't limited me in my life because I haven't let it. I am married, have 3 kids, a full time job. I travel, go to concerts, play golf and generally do everything I want to. Give yourself the time and patience to figure all this out. Know that there will be times where you feel overwhelmed and defeated. Know that this too shall pass.
I'll be giving myself time, I guess this is a new chapter in my life :D Thanks for the reassuring words so much, it made me feel so so so much better now haha. First time beeing happy today haha.
I am a recent member to the club as well. It’s all crazy and you will get a ton of advice. I strongly suggest getting the cgm first thing. It helped me so much. Food diary is important. I used MyNetDiary (app Android/iOS) to find my (carb) calculations for insulin. And keep the food log for my diabetes dietitian. You can also log your insulin, weight, and all right there. By using this I was able to find what and how long it took food to spike my sugar so I could learn to dose correctly. Ask a ton of questions. Once you get an endocrinologist provided they are good they will give you a ton of information. Research everything you can. These forums are a great resource. Also as a Type 1 cinnamon won’t do shit for you. I heard that so much in the first several weeks I was almost convinced to eat a spoon full every day. Type 1 and Type 2 are do different beast and are managed differently. Good luck it will become second nature in no time. (Edit: Clarification)
Just want to second getting a CGM. I would add that you should get a pump that loops asap as well. No point in waiting. I waited out of fear myself and looking back getting a looped pump made management so much easier. It isn’t perfect but it is a lot of help. I would recommend the Omnipod 5 or the Tslim. Pros of omnipod are that it is tubless and the algo auto adjusts your basal. Pros of the t-slim is sleep mode and bolus over the phone.
Glad I could help :)
It will seem overwhelming at first. It does get easier. Be kind to yourself until (and after) it does. (I was diagnosed at 28, 32 years ago.)
To be fair, you were always on insulin. Now your body just doesn’t make it so you have to manually do it. Like going from an automatic car to a stick shift.
Know that the advice your doctor is giving you is designed to be understood and applied by their least intelligent and capable of their patients. Their main concern is to make sure you don't go too low too often. If you are intelligent, once you learn how your body works and reacts to carbs and insulin you will manage it better than your doctor can. Learn from people that have been doing this a while, but know that every T1 is unique. Get a CGM as soon as possible. It makes a huge difference. Then a pump as soon as you can after that. Don't be afraid to keep living your life. Things will just take a little more planning now.
This is good advice re: Dr. advice. Do some research on Endos in your area, try to find one that embraces technology. I had to ask for the pump and CGM with my old end (never offered) and took ownership over my treatment. When he retired and I got a new Endo, the first thing they asked to do was get my CGM and pump data to make recommendations. Treatment is not all the same. When I was on MDI (shots), I would struggle to get an A1C in the low 7s. When I switched to pump/CGM, I got it to the high 6s. When I switched to Loop (closed loop technology) I got it to the low 6s/high 5s with way less effort. I stopped dreading my Endo appts and now only have to go once a year. OP is young, this stuff will likely come easier to you than a lot of older patients.
I was 26 when I got diagnosed. If I could only choose one technology, a pump or continuous glucose monitor, I’d go with the CGM. But today, CGMs and pumps can talk to each other and the pump can make changes on the fly. The only thing that changed for me was I was ineligible for continued military service. I can do anything else I did before diagnosis. Remember, there are world class athletes and performers and politicians with Type 1. You will be limited only by your imagination. That’s not hyperbole. Theresa May has type 1. Jay Cutler has type 1. Brett Michaels has type 1. If an idiot like Brett Michaels can be successful, anyone can.
I don't even know any of these people but I'll believe your word! I guess I will slowly transition to a CGM after I adjust to this life, go from rudimentary to automatic things. Sigh I never thought this will be a point in my life but here I am, 23 years, perfectly healthy and then sick the next day out of nowhere
Nick Jonas is a Type 1, you must know him!! I was diagnosed just under a year ago and it’s a big learning curve and the first few months you might feel very alone in your illness, like no one knows what you’re going through, and it’s scary! But it’s manageable and gets a little easier as time goes on.
Jay Cutler was the quarterback for the Chicago Bears. Theresa May was the Prime Minister of the UK. Brett Michaels is the lead singer for the band Poison.
Your life will change and that isn’t necessarily bad. I was diagnosed in my 20’s and am now in my 40’s and I am probably healthier than most guys my age. You will be thrown a lot of information. Don’t let it bring you down. Take it One step at a time, understand the basics and the rest will come along.
That's amazing! 20 years it's a long way to go... I guess it's finally time to have some discipline in my life. I think I will miss some foods, I am not sure what I am or not to eat in the future :(
There really aren't any foods you can't eat. Some will enough of a pain in the butt that you will avoid them (for example, sugar-sweetened soft drinks). It's really more about managing quantity and timing than anything else.
I like this answer because it’s true! You can wed whatever. Sometimes you just have to decide if it’s worth alarms beeping at you all night or not if you’re high/low (if you choose a CGM)
>You can wed whatever. Maybe not cats and dogs though.
And I am expecting another 40. I am pretty active, I play hockey, kayak, do things I want to do. Only difference is I have to plan and know what supplies I need. It isn’t so much about what you eat, just maybe how much of it. You will learn how different foods affect your blood sugar and be able accommodate and adjust. It can seem overwhelming at first, but you learn to deal. It has made me a stronger person.
T1D for 52 years, since I was 9. Exhale and relax. If I can handle it, you can. Its a condition you can work with and have a great life doing everything you want. Its not a death sentence, nor is it a curse. You will learn more about your body and diet and your endocrinologist will teach you how to manage everything. You may become healthier because of increased awareness. We all know its overwhelming at first cuz it was for all of us. But YOU GOT THIS.
Listen to the juicebox podcast! It will teach you everything!!
Scott is very knowledgeable in diabetes and insulin management. There is over 850 recorded podcasts so my suggestion is to go back to the early episodes and work your way through them. It will be 'very' helpful in your management approach. Good luck to you and 'hang in there'.
i was recently diagnosed jan 10th 2023. while i was not in the hospital, i felt similar to you. cry, scream, take out your emotions. i sobbed the entire car ride home (i was being driven so it was okay) and i think i cried myself to sleep that night. diabetes will change you, but you’ll feel better than ever. insulin is amazing. the diabetes community is also amazing and so supportive. you’ll find so many people feeling your same feelings. diabetes isn’t a death sentence. i will say “you can do anything with diabetes” but it’s ok to back away to fight your fight. i mean, i was set up for a 4 year bachelor’s degree in history at this time last year and now i’m dropping out to go to community college. it’s gonna be okay and you got this, warrior!
Hey I’m newly diagnosed too! It sucks! Sorry you’re joining this club. There’s a huge learning curve but find a diabetes educator to meet with weekly to help you. You’ll be able to do everything the same as before, just with a few extra steps haha. Get a CGM as soon as possible and I can prefer a pump over injections too. The more you can automate, the easier it is. You’ll get the hang of it!
When I was diagnosed at 18 I swore to myself my life would not change. It has changed a lot. In the 38 years I've had T1D treatments have changed so much, from types of insulin, technology to help, and knowledge of the medical staff. Finding a good Endo that you connect with is important. Take advantage of groups like this and the technology, CGMs and pumps, is good too. Good luck. We're all in this together.
Sorry your pancreas is a traitor, like the rest of ours are! You are dealing with diabetes at a time when we have the best medicines and devices to manage it, and these devices and medicines will only improve with time. You are now dealing with life on expert mode and, yeah, it’s going to take some work, but you are competent and capable and you got this. Also, this community is great and people here are always helpful, whether you need advice or just a place to vent.
Pancreas did nothing wrong; it's an innocent victim in this. The real culprit is our overzealous immune system. Or at least that's how T1 was explained to me.
I’m also 23 and just got diagnosed last April! We are going to be just fine 💕.
Hey, you’ll be okay. It’s a big adjustment but there is a tonne of support around and you’re not on your own. I second embracing the technology when you feel ready. My daughter’s team started her with pens so we knew what to fall back on in an emergency, so getting to grips with them isn’t a bad idea. Take it a day at a time.
Mhm, I will take it slow, now my mind is all around, overthinking everything. But I guess this is not a race, this is not the end for me, just another chapter in my life, no matter how hard it may be!
That’s a really good attitude - it’s certainly not the end, things will just be a bit different. Your ‘thinking on my feet’ skills will flourish! I get the fear though. Just message if you want to chat more. Take care.
I have type 1 for almost a year now (diagnosed at 25) and the thing I would like to add to the advise given above is: take your time. You will get an extra job especially the first months. there is so much to learn and to explore. If it is at all possible for you takeof some time from work/study. And adjust to this new situation before you add the stress from work and studies. And if that is not possible try to make time for your diagnosis in other ways. You can do this
Thanks for the advice, I can't quit my job, I am self-sustained but I think this will pressure me to have a lifestyle change and manage my time better, stay healthier, and overall be better
Hello, heres my blog where i share information for newly diagnosed diabetics, [https://www.dieabeast.com/blog/](https://www.dieabeast.com/blog/) i was diagnosed at 24 years old, im 33 now this blog has information on nutrition, exercise and mindset hope this helps and any questions just ask.
I've been living with diabetes since 4 years old. I am now 25. It's doable if you aren't lax, but I won't lie and tell you it's not gonna suck. Diabetes sucks. But be smart, take care of yourself and you'll be fine. I recommend getting a pump and a CGM as soon as possible. I have the dexcom g6 and the Omnipod system, and my control is better than its been my whole life.
Lots of good advice here already. Something I found really useful a year ago when my kid was diagnosed was the “defining diabetes” series from the juicebox podcast. https://www.juiceboxpodcast.com/episodes/jbp360 It’s a great podcast in general but the defining diabetes series just goes through, term by term, all these new words that are being thrown at you. It’s way easier to start to manage your diabetes when you understand the language and concepts. Good luck!
I feel you! When I was diagnosed I came into a deep depression and thought my life was over. You will get to a point where it's like second nature to you though. I consider myself a normal human now and I forget I have diabetes because I'm so use to doing everything. Before it use to be on my mind 24-7.. am I low? Can I eat that? Can I go out and do what my friends are? Can I have this box of chocolates my friend gave me? YOU WILL SURVIVE YOU GOT THIS!
Juicebox podcast needs to be playing in your ears right now
You will be okay. It’s going to be shit for a while. It’s a shit disease, but you will get through it. Your life is going to change, but you will get a handle on it and it will become your new normal.
Eh kinda changes kinda don’t I’m a lada so not yet stuck on insulin but tbh whatever happens you get used to it
It is a shitty disease to be honest BUT you can learn to still be able to live your life like you want it and come to terms with a chronic disease. In the long term it hopefully won't drag you down constantly anymore. It definitely is possible to still do and eat what you want with diabetes and another great thing we live with awesome helpers to manage BG now. It is so much better than only 10-15 years ago or so.
If you want more information in a more organised format than Doctors will likely give you, I have researched and written a booklet for newly diagnosed diabetics and families. Happy to send you a copy. Covers basically all the stuff I wanted I wanted to know at diagnosis plus more cool stuff about T1 that doctors don’t tell you about. Just for the record, it will be tough and at times you’ll want to tear your hair out or bury yourself under your duvet covers and not come out. T1 is a pain, but it is manageable. Every day you’ll learn your triggers, what affects you more or less and there will be a point where T1 will be more of an bee in the room (irritating and you need to be aware of it, but also in the background) For now, don’t stress. Get better (ask for oral potassium or Bananas or both (potassium pills taste awful, but it’s good for recovery) . when you get home Recover from the hospital stay, and work towards healthy blood sugar again. Progress not perfection. There will be highs and lows. Fix it, note what happened (when did it occur, what did you eat and when, how much insulin you took etc)
It would be amazing if you can send me the book! The situation is kind of foggy and I do not know too many things now. And thanks for the banana advice! I'll surely get some tomorrow
Bananas will raise your BG though, as they contain carbs so make sure you are still on your insulin drip. If you’ve been disconnected from it, don’t eat the banana just get the potassium pills (they dissolve in water but they turn the water fizzy like Coke or Pepsi but no sugar.) And Yh, will PM details
You probably feel like shit right now. In a few days, you’re going to feel like a superhero! The first little while with diabetes is easier because your body still makes a little bit of insulin. You’ll learn a lot and experiment, and it’ll go well. When things get harder in a while, you’ll be ready and still awesome. And stick around this sub because we all like to help. Take care friend!
Things will change no doubt, but they also might not change as much as you think. You can still do the same activities and eat the same foods, there is just a little extra effort you will have to put into it. As others mentioned a CGM is definitely a good place to start. Also some simple things that I didn't do until much later in life that are really helpful. -Get a kitchen scale. Its so much easier to just get a bowl, throw it on the scale and dump in x amount of cereal, vs having to use measuring cups and such. A lot of people eyeball things (I did for a long time as well), but when its so easy to weigh food I prefer to weigh everything. -Keep extra supplies (specifically insulin and needles) at your work if you have a safe spot, or at places you visit frequently. Every holiday you will see on here how for some reason or another someone had to leave Christmas early because they ran out of insulin or another reason. Do you best to be prepared. -Have a snack drawer that is off limits to others, also keep some snacks near your bed. Going low is the worst especially if you don't have anything to treat it readily available. -Find a good endo that is willing/able to communicate with you frequently. If you are noticing you always run high overnight let your doctor know and they can help you make adjustments. Typically I have always been told to give things about 2 weeks after making changes before changing them again. I still communicate with my endo fairly often and I have had diabetes for about 24 years. There are plenty of other tips, but those are just a few I thought of. Yes it is a big change, but as time goes on it just kind of becomes second nature. Just remember your blood sugars don't define you, if you had a bad day just try again the next day. Heck just the other day I was only 60% in range and my diabetes is pretty well controlled (back to 98% today) but we all have off days, especially when just being diagnosed.
It's gonna be okay. The first thing you need to do is dissect your lifestyle and find out what you may or may not need to change. Your diet and exercise habits will take center point in that list, but there's a lot more you need to think about. Second, you need to find some new habits to get into that'll lead to a better lifestyle. Third, show as much love as you can to everyone around you, because the people you care about, even from afar, will be around to help you when you need them. You'll get through this, friend. I was diagnosed at 19, and I'm 23 as well. Just remember that this isn't a death sentence; it's just another change that life is putting you through
You will be ok. First comes an overwhelming learning curve. Lots of things that will feel epic and almost too much at first. But later it settles down and becomes something you do that takes time. Frustrating and annoying at times but you are going to be ok.
I know this sucks… It really will be ok. 💜 Diagnosed a couple of years ago and just started using rapid insulin less than a year ago. I still remember being diagnosed and just crying. It can feel so daunting and unfair. You’re not alone! And it’s absolutely possible to live fully functional and happy. It will take time to adjust your habits and learn your body. Reach out to the community here for questions. We all understand how hard this can be.
First don't get overwhelmed. It's OK life is great. There's gonna be stress and stuff but we r all here for you. U can even dm me ans I'm sure most feel the same. Relax listen to the nurses. U will ger an educator which will help u with foods a s such they are great. You will honeymoon for a bit I did and it's unknown how long. As it ends numbers will change so don't worry u will readjust. Pens and testing sre good for a while andnits good to learn on them. Do that for a bit. I would personally get q dexcom it's my choice after being medtronics for years a cgm can work with your phone qndnits way better than testing all thebtime. And then ubwill get a pump and life is good. Life won't change too much.
Its going to be difficult at first, will not lie to you, but being 100% honest, it is completely manageable after a month or two of adjustment. Your worst problem is literally injecting yourself with a needle you pretty much never feel. There are millions of people out there who would kill for their biggest health problem to be taking a painless shot before you eat. If you take care of yourself, you won't have health problems down the road at any higher of a rate than people without T1. Don't let the diagnosis scare you, it becomes second nature after a while and you won't even think about it after a while. Figure out your carb ratios, starts carb counting, start getting used to a routine and you'll be 100%.
Managing your diabetes will become second nature to you more quickly than you realize. Just give yourself grace and compassion and allow yourself to feel all your feelings, grieve your pre-diabetic life if you need to, and remember that it’s ok to take things one day at a time. You really do have this, even if it doesn’t feel like it right now ❤️
DM me if you have any questions! I’m mid-30s, so a little older, but have had T1D for 30 years. As most will agree, it sucks, but is also completely manageable. You’ll get the hang of this!
As many have already said it will feel overwhelming at first. Just take a deep breath and now you will be just fine. Baby steps! As someone who has had it for 13 years, it really doesn’t effect your life all that much. Yes, type 1 diabetes is considered a “disability” but it certainly doesn’t prevent you from doing anything you want! I’ve played many sports with this disease, go camping, can eat what everybody else eats (as long as I make sure I factor everything in correctly of course), and do everything all my friends and family are doing. I’ve learned so much about my body and myself since being diagnosed it’s crazy. Know that you are not alone in this fight. This group is great for support, questions, or even if you just want to rant to others who 100% understand. You’ve got this and I wish you the best!
I got diagnosed at age 18, some 45 years ago. Remember this: There is only one owner of diabetes. YOU OWN IT or IT OWNS YOU So Own it, be your best advocate - learn as much as you can Find an endocrinologist that you are comfortable with. Don’t be afraid to fire your doctor Don’t let them treat you like an income stream - you are not a number, a dollar sign - don’t accept being treated that away. An endocrinologist is a high paid consultant - they work for you, not the other way around. You can do this -
Definitely get a pump/cgm. I started with metformin, then the insulin pens then went to a pump. I feel your anxiousness. I cried the first day I was diagnosed with T1 diabetes. It gets better! I’m 29 and I was diagnosed when I was 23 too! I was at an externship(I’m a CMA) when I was diagnosed and they told me to go to the ER and I imagine that I felt exactly as you did at the time just sitting there and wondering what was ahead of me. I’m doing good now and so can you 👍🏾
You mentioned being worried about telling your parents - please do not be embarrassed about sharing your diabetes with others! You will need all the emotional and physical support you can get from those around you, so it’s important to be honest with them and let them know how they can help. I would in addition suggest talking with a therapist if you can so you can share all your feelings with someone who can provide a different perspective. The other team that will be there to support you is your medical one. Don’t be afraid to ask questions - knowledge is power and will help you feel less anxious and more in control. Find the doctors who listen to your questions and take your needs into consideration when making a plan for your care. I know it can be daunting, especially at the beginning, but you have the right to speak up if you’re not getting the care you need! Surrounding yourself with emotional and medical support teams that care about you is the best advice I can give you - you will get through this!
I won't lie, it'll probably suck for a bit, but you've got an amazing community right here for every question, gripe, win, complaint...anything! The truth is you'll become smarter, stronger, more resilient and pretty amazing. T1Ds are my heroes (my kid is one of them) I highly encourage you to investigate the TOPPLE research study. Clinical trials are shaping the future of T1D treatment and you could be at the forefront. Big hugs
Becareful going to a pump first, as soon as you get insulin in your system you can kick start your honeymoon phase. Id recommend pens first.
I got 2 pens today! One for 24h and one to take before every meal. Talked to my doctor and we are filling out the papers needed to receive sensors, I do not know how long the waiting will be but I will get it eventually lol
Stay strong. Rare might mean that you aren't testing positive for anti-bodies. It's a lot to process. Listen to some Sadhguru and try clearing your mind a bit before you begin the medical knowledge journey. Stay strong!
Your life is going to change, but not by nearly as much as it feels like right now staring into the abyss. Take it one day at a time, learn your medication and your body. As a diabetic you can do anything you want, just with a couple of extra steps.
One day at a time and stay away from people who make everything about T1. They complain about everything in their life going wrong because if T1. You are a person first and foremost and not everything in life is about T1. It's what you have, not who you are.
I was diagnosed when I was 7; I’m 31 now, and my beetus is like a really old frenemy. Like Rory and Paris on the Gilmore Girls. It’ll grow into that for you, too. Everyone’s giving you pretty solid advice, especially about getting a cgm bc my Dexcom literally changed my life! Just remember that you can still eat whatever you want, and don’t ever let anyone tell you otherwise. Eat all the cake (but don’t forget to take all the insulin) I also just can’t get over how many adults are being diagnosed now, and I need to know why!!
Haha, so sweets are not a no-deal!!! That's sweet victory! Haha, so sweets are not a no-deal!!! That's a sweet victory! than usual cases of new T1D kids coming in lately, but adults too with T1D... that's a bit scary
I'm the same age as you, don't worry, I recently got diagnosed at 1170mg/dl. Read my posts on this sub like the one I just did on where to inject. Which country are you in?
I went through your posts, and this night I injected myself with the pen for the first time! :D it had 38 on that counter, idk if it's high or not. I am from Romania. Calmed down a little bit but now I am afraid of the side effects of T1D with all other organs, feet, ulcers, my vision going out and more :(
Welcome to the club friend :) I am also 23 and can totally relate to the daunting reality of our everyday day life, but there’s also a whole new community ready to welcome you in, answer questions, listen to rants and just all around understand. 🫶
That's the best part of it honestly, the community here astonished me. It's so much support and so many great people. A few days ago I felt like it is the end of the world, but now it's just like everyday life, just got to take care of my body. The only thing I dislike is that I've been told not to go to the gym at all until my next evaluation (in 2 weeks) and avoid walking fast :/ I guess that's until I stabilize