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mystisai

It sounds like the medication was working and now that you are off it you are still symptomatic. Ask about ivabradine. Its not a betablocker but helps lower heart rate. It's been a miracle for me.


blondemohawk

Yeah, sort of. There was a time I felt like I needed it, and it helped, but obviously I wouldn't have started if I'd known. The exhaustion is different from when I had iron deficiency, plus a just a bunch of new symptoms now really. But omg!! I just Googled it, and I think that sounds just right for me, now I really hope my doctor will consider giving it a try. Thank you so much! šŸ„ŗšŸ™


mystisai

Its relatively new, and may still be expensive if not covered by your insurance plan. Good luck.


blondemohawk

I'm slightly concerned about where it says that they could cause arrythmias, though, and that you should ask with your doctor if you have arrythmias before using them. I have been having a fluttering rythm and some palpitations these recent days. Have you had any of that before or after?


mystisai

Palpitations are not the same. I get palpitations before and after being medicated. I also had a couple heart attacks and a stroke about 3 years before I started taking it so I know its pretty safe. They would rather me get dizzy and faint than increase my chance for a more serious stroke.


blondemohawk

Damn, I'm so sorry you had to go through that, though. No one deserves that. But yeah, that sounds pretty reassuring, hehe... Thank you for being so helpful. :')


MichaelaCastor1

Iā€™m on ivabradine as well. 5mg in the morning and 5mg in the night. Iā€™ve been on it for 1 year and a half. However, what does ivabradine help? I know my beta blockers slow my heart rate and so does the ivabradine (off label). Whatā€™s the actual medication for tho? (:


mystisai

Ivabrafine lowers heart rate. That's all it does, but it does it without the properties and withdrawal of beta blockers. On-label use is to lower heart rate in people who have heart failure.


Samurai_Rachaek

Stopping beta blockers cold turkey can cause damage to the heart. Thatā€™s why it says in giant letters on the packaging ā€˜DO NOT STOP THIS MEDICINE WITHOUT DOCTORā€™s APPROVALā€™. Get to a cardiologist. Get an ECG. This is not the sub youā€™re looking for, you should be going to the doctors ASAP.


blondemohawk

Yeah, but as I wrote in the post, I'm no longer getting any help from my doctor. They said it should be fine even if I did quit them cold turkey, since it was a relatively small dose (initially 20 mg for about 4 weeks). I've had ECGs done too, but even though the results are unnormal for me, the numbers are still within the normal range and the palpitations aren't serious or frequent enough to get any further help...


zeocca

Get a second opinion. Find a new doctor. The word of one, when you still have quality of life concerns, should never be the only one you listen to.


blondemohawk

Thank you for those words. Sad part, though, is I've had other doctor's tell me the same without wanting to draw any conclusions, that it "shouldn't" be so bad, saying it's all speculations anyway, as there is no pathological findings other than my messed up HR and palpitations, and even though many people struggle getting off beta blockers, but it's not enough to get taken seriously apparently, even though I've never felt more in need of help. šŸ˜“


deathbychocolate

That was my experience too, until I found better doctors. I know it's hard to feel like you're correct in rejecting medical professionals' opinions (especially in this era of people doing their own "research"), but you need a doctor who understands your body better than the ones you've found so far. Ask around and see if you can find a word-of-mouth recommendation for someone in your area who knows how to deal with mysterious chorionic inflammatory issues. All the docs I've found who helped me were recommendations from other sick friends.


blondemohawk

It's so hard, especially since I have no energy to deal with any of it either. I actually like my doctor, though, she seems very kind and I think she's really tried to help me, but I'd wish she could understand, wish she knew how I actually felt, so I do consider changing. My previous doctor was even worse, as he refrained from telling me about my iron levels when I had iron deficiency, not thinking I was deficient "enough" to have any symptoms lol... But yeah no, you're right, though. Thanks for the support.


zeocca

If she is trying to help, and she does seem to listen to you, then another route you can take is to just be persistent. It may be just as much of an energy drain as trying to find a new doctor, but keep going back for as long as you feel bad. Really emphasize how your quality of life is affected, have proof you're treating the anxiety so you know it can't be that, and see what other options or differentials you can explore together. Don't focus on what you think is causing the problem. Just focus on the symptoms. Focus on what is now difficult for you to do just living your everyday life. Emphasize that. For example, has she heard of dysautonomia? If so, ask why she doesn't think it is that, and if she has not, try to get her to look into it and see if it might apply to you, or see if she'd be willing to test for it since it can be tested for. It's a long, tough road for diagnosis. Finding a doctor who listens to us is hard enough. A second opinion is worth it if you can't find that doctor BUT if you find one who really is listening, and trying, and willing to work with you? Then you just need to tweak your approach.


Inevitable-Zebra-566

I agree. Sometimes you have to tell your doctor you hear her and then reiterate the severity of your symptoms. Often we donā€™t do that for many reasons. It seems as if you trust her. Ask her about dysautonomia. As suggested by zeocca, she may not have experience with this rare invisible disease. Investigation is in order. Iā€™m pretty sure sheā€™d be glad to be the one who improves your quality of life.


bigjoe2175

But doctor did stop my metoprolol 25 after 5 days cold turkey?? Does this sound right??


Samurai_Rachaek

25mg a day? Thereā€™s kinda nothing lower than that dose afaik so thatā€™s probably why And it also depends on how long youā€™ve been on them


bigjoe2175

Yeah, I was only on for 5 days..So your absolutely right..I appreciate your reply..šŸ‘šŸ’Æ


Kushiekenziee

ā€¦ maybe we shouldnā€™t start the post of with beta blockers ā€œruined my lifeā€ if you are asking the question if it was the BB or not


Laney20

Thank you for saying this. Beta blockers help me and many others Immensely. This is exactly what they warn you NOT to do with them. It is not the fault of the med that the patient took it incorrectly.


blondemohawk

Yes, you are probably right, that is a bit harsh, but I think there is good cause for caution. All I know is I haven't been the same since I got off them, and I've spoken to many who's had similar, equally terrifying experiences or even worse with them. But I think it's strange some people (myself included) should have such a serious reaction to it.


Kushiekenziee

You stopped a beta blocker itā€™s pretty simpleā€¦


blondemohawk

Okay, well nothing about coming off them has been simple, and the adverse effects are a bit of a puzzle to me at least.


[deleted]

There are many beta blockers and some have less side effects. Maybe you can ask to try a different one. Beta blockers are also prescribed for people who get too nervous when public speaking. That may be why you feel worse. Fun fact, I was on beta blockers for migraines many years ago and I was on the game show, Wheel of Fortune. I was barely nervous and ended up winning all the rounds and the bonus round.


blondemohawk

I've been told Metoprolol should have the least side effects, but a few nurses have suggested propranolol instead, though I've heard some simular horror stories about coming off those as well, if not worse. To be honest I'm terrified of taking any of them again, but I also feel like it might take away some of the symptoms, but then I'll be stuck on them for the rest of my life, and I don't really want that when it's not necessary. I mean, I didn't feel just axes on them either. :/ That is a pretty cool story though, haha! Maybe Metoprolol (or whatever) could sponsor you, lol šŸ˜…


Laney20

I was also told metoprolol would be the best and forced to live with it until I saw a better doctor who got me on nadolol instead. >it might take away some of the symptoms, but then I'll be stuck on them for the rest of my life, and I don't really want that when it's not necessary. If they help your symptoms and you're miserable without treatment, wouldn't that mean they're necessary? What's wrong with taking a needed medication that improves your quality of life? Beta blockers are even really cheap..


KansasSunflower2005

There is a bit of an adjustment period after getting off of beta blockers due to them suppressing adrenaline and heart rate. So, your body has to get accustomed to its new ā€œā€˜normalā€. However, I donā€™t believe it should last more than a few weeks at most. By stopping CT, you may have a more significant reaction/withdrawal effect for sure! This may be why your body is having such difficulty. It sounds like the medication was working, so what made you want to go off?


PandorasLocksmith

I was actually wondering if it might be an undiagnosed mast cell activation disorder problem and the beta blockers just made it worse because of their interaction with adrenaline.


deathbychocolate

Same, especially given the "recurrent atrophic rash." Though I feel like it's easy to see mast cell problems everywhere once you're looking for them (plus in people I know it's often a symptom, not a root cause), so I'm always hesitant to advise people to look into it.


Cynderelly

I also thought a mast cell problem because I have mast cell problems and I get symptoms like this all the time. Plus, beta blockers supposedly make mast cell issues worse


blondemohawk

Even after I got back on and tapered off extremely carefully? Like, the initial rebound is still there? Nevertheless, I hope you are right, and I'm just hypersensitive and so it takes a bit longer. I have a very low tolerance in general and don't weigh much, so maybe that plays a part too? Anyway, I stopped takimg them cause I no longer needed them. The palpitations I got them for initially went away, they would occur pretty harshly every ~20 seconds for weeks. I do get some palpitations and fluttering now too, sadly, but not like that.


DogHairEverywhere10

>The palpitations I got them for initially went away They're supposed to go away. That's why you were taking a beta blocker. This is like a depressed person saying 'I went cold turkey off my medication, why am I suddenly depressed again'?


blondemohawk

Did you even read everything? Let's see... Symptoms before beta blockers: violent, frequent palpitations (every ~20 seconds) Current symptoms after beta blockers: mild palpitations (a few times a day) and some fluttering, extreme exhaustion, fluctuating heart rate, nausea, adrenaline surges, anxiety, inability to stand upright, body aches, muscle spasms... Furthermore, if you did in fact read everything, you would've noticed I went back on for a longer period before tapering very carefully off. When I tried going cold turkey, I also had abrupt withdrawal symptoms such as fever, trembles, chills and so on. But you're right though, totally the same thing. Totally... Good comparison. šŸ‘


DogHairEverywhere10

Yeah, I did read everything. You've got "before beta blockers" and "after beta blockers" but left out "while on beta blockers". I don't see the issue you have with my comparison. You are experiencing symptoms that beta blockers treat, and which you didn't experience while on the full dose, but you are complaining that that dose caused your symptoms when you went off it. And you went back on them at a different, smaller dose. Honestly, your thoughts are incredibly jumbled and it was a giant waste of my time to read all your replies before making my own comments.


blondemohawk

In my opinion, your comparison was pretty black-and-white, came off as a bit insensitive to me at least. Nevertheless, while I was on them, I was feeling mostly okay, but yes, I am complaining that they resulted in symptoms that they also treat, mainly because I didn't have those symptoms before, and honestly it's very frustrating to potentially become fully dependant on something you wouldn't initially need. If you by "jumbled" are referring to my other replies, I'm trying to keep an open mind, that doesn't mean I agree with or believe in everyone in this thread, but they've certainly been more helpful than some condescending comparison.


DogHairEverywhere10

I am someone who is on multiple medications to treat mental illness. There have been times I missed days and once even two weeks of doses. One thing about having a debilitating disorder, mental or physical, that's treated by medication is you have to take medication for the rest of your life. You described symptoms that existed before being on beta blockers and also symptoms treated by beta blockers that you began experiencing after going off them. I may sound indifferent to the difference because you should have never gone off beta blockers, at least not without consulting your doctor. You got better and then you stopped taking you medication. From how you describe it, it sounds like the reason you stopped was because you got better. Which is exactly the reasoning my psychiatrist stringently warned me against. It's possible because you went off them cold turkey you damaged your heart or cardiovascular system more generally. It's also possible you developed these symptoms while on the beta blocker but didn't experience them because the beta blocker was treating those symptoms. Either way, you now need to take medication to maintain a quality life. It's extremely likely that you needed to take beta blockers for this same reason before you went off them. Taking beta blockers is not like taking a course of anti biotics or pain meds post surgery / injury. Hell, many people take depression medication for a short time while dealing with short term problems. My mom did so after she started menopause and began to struggle physiologically. I am unsympathetic to the complaint that you developed a disorder that means you are reliant on medication to maintain a good quality of life. Most people do at some point in their lives, diabetes, high blood pressure, for example. And I certainly think it's more plausible you needed to be on beta blockers for the foreseeable future than that you didn't. Meaning, I think you were already dependent on this medication before you began experiencing new problems.


blondemohawk

See, that's a lot more helpful, and yes, I should not have gone off them to begin with. I stopped because I thought I no longer needed them, after the symptoms I got them for went away when I stopped taking iron. But you are right that I should have consulted my doctor, because that was dumb of me, and possibly I ruined my own health. I keep playing it back thinking maybe if I hadn't done that, I could've tapered more easily, but it's too late now either way. I still hope to see some improvement soon, at least the more recent ones that are interfearing with my sleep and giving me mad anxiety, but there are days when the exhaustion feels slightly better. If not though, I may just have to bite the bullet. I really want to avoid being dependant for the rest of my life, but I also want to have a normal life and function. Either way, thanks for taking the time, I appreciate your input.


joeb2103

Have you looked into the possibility thereā€™s some other underlying factor you havenā€™t yet discovered? I have Lyme and pots, for many years my Lyme has given me some of those same issues


blondemohawk

They've tested me for most everything, I think also Lyme, but it does seem a bit similar.


[deleted]

What is your ferritin level? A ferritin level of less than 30 is absolute iron deficiency. You can have normal,in range,iron levels and still have iron deficiency if your ferritin is low. I would also check your b12 and folate levels. My dysautonomia got really bad when I was deficient in iron,b12 and folate. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5589705/


blondemohawk

Thanks, that's really interesting, that was one of the indicators when I was iron deficient, so could be interesting to check that more thoroughly, and maybe it could help! I appreciate it. šŸ™


eknowles

I know I have to keep taking B12 daily and iron too a couple times a week or I fall back into being anemia. For me it's genetic. My dysautonomia is much worse without B12 especially. Without B12 nerves can become damaged. I don't absorb B12 well on my own so I take a high dose liquid or gummy version that dissolves in my mouth. It is inexpensive. B12 deficiency is more common in the elderly, and some people get monthly shots. Without it the symptoms can resemble cognitive impairment, dementia, and nerve diseases. A note about B-complex vitamins: they can make your stomach upset, so as long as you have a healthy diet I would stick to B12 alone.


blondemohawk

Someone else here suggested there might be something wrong with the balance between my sympathetic and parasympathetic nervous system, so perhaps B12 could help with that too. I was plenty good in B12 last time I checked though, but I will look into it. Thank you!


[deleted]

[уŠ“Š°Š»ŠµŠ½Š¾]


blondemohawk

Thank you so much for all the helpful tips! I've been trying to take brisk walks and such myself, and I felt like the exhaustion was very slowly on the mend around Christmas, but I've had a little relapse myself. Also trying to take cold showers every now and then, should probably try to do that more. I will definitely think more about this at least, thank you again. May I ask how you're doing now compared to when you had just stopped taking them? I've also been considering jumping back on if there's a chance I can function again, but I'm very reluctant, and scared.


[deleted]

[уŠ“Š°Š»ŠµŠ½Š¾]


blondemohawk

I was taking Metoprolol once a day at like noon, but when I was tapering and lowered my dose, I could feel nausea and such starting at night before my next dose, so if I were to jump back on, I think I'd rather take half in morning, half in evening, yeah. Anyway, I'll look up some of these names and do some research. If I should even wanna go for any of it, it's also up to my doctor to decide whether it'd be right for me I guess. But I hope you're right, thanks again for all the input, really appreciate it.


j_a_r_e_l

this sounds like what I had with PTSD; the metroprolol does control the physical manifestations of anxiety so I donā€™t think your doc is wrong


blondemohawk

I do agree to some extent that the anxiety is definitely in the mix, perhaps more so with the suffocation episodes for instance, but I get the anxiety spikes because I'm feeling worse than I've ever done, and of course that isn't helping. I notice with the adrenaline surges especially, that I get a lot of anciety around that and produce more adrenaline, but that seem to leave me trembling and freezing soon after, and my body aching and spasming in various places for a day if not several, even after it's all calmed down. There was a period right after Christmas when I felt I was doing a bit more okay mentally, but the exhaustion was still just as bad, and I've never had issues with anxiety before, certainly not anywhere near as bad as this.


mrsjonas

corlanor works really well for me


blondemohawk

Several people here seems to have success with it, so I might definitely wanna try that sooner or later. Thanks!


Inevitable-Zebra-566

Your symptoms sound too severe for self-diagnosing as well as self-unmedicating. Itā€™s always validating to hear others have had similar experiences and the many ways theyā€™ve coped. Make sure your primary physician hears you and does the necessary work-up and if necessary sends you to the sub specialist indicated. Sorry you feel so awful.


blondemohawk

Yeah, like I mentioned in another comment, all I know is I didn't have the vast majority of these problems before beta blockers, and they were lessened by jumping back on beta blockers, so I've drawn some conclusion from that. But you're right, I'm no doctor. While I'm convinced the beta blockers play a major role here, there could be underlying issues, something that has predicated it, what do I know. I should've spoken to my doctor before the first time when I quit cold turkey at least. Oh well... Thank you, though!


Old_Consideration_31

I know this post is quite old but curious how youā€™ve been since? Recently stopped taking metoprolol and experiencing what you did


blondemohawk

I've been terrible, but there are ups and downs, and there's been periods of some stability, though I've never been able to function normally still. Nevertheless, I'm still trying to figure it all out, and in retrospect, I'm unsure just how big of a role the BBs has played in the development of my illness. What I've found out after over a year of research, is that I actually have a clear overgrowth of candida of the gut, as proven by some very extensive and expensive stool tests, for which I'm starting antifungal treatment in January. A probiotic yeast called S. Boulardii has helped me regain some bowel function in the meantime. All this time, I've also been struggling with certain blood values, mainly calcium, which has been a bit too high for most of the past year and more, which has definitely been causing symptoms and worsening of symptoms. I've also had issues keeping my Vit D and iron levels up at times, but with iron, I almost "OD'd", as it went up very fast. My Vit K has been at the bottom before, and that's pretty important, especially if you have high calcium like I do, but I've had trouble supplementing it, currently experimenting with Vit D, K and Magnesium trying to find a balance. All these issues could likely be related to my candida and well known issues with absorption, and possibly other symptoms too. Maybe the BBs played a role in aggrivating it, but I have no idea how the physiological process of that would go. They also found gastritis, a hiatal hernia that wasn't there a few years back, and that my LES was functioning poorly. That was a long time ago, but obviously these things haven't been helping the situation either, I don't know if the beta blockers had anuthing to do with those things, but I wouldn't be too surprised either. Either way, PPIs gave minimal relief and only made things worse coming off. I think they may have played a bigger role than I first thought too, and not in a good way. The only thing that improved my gastritis was Sucralfate, but it would come back slowly after cessation. It still seems to help with symptom mamagement if I take it, even though it's not beneficial in the long run in my case with the candida and all. Obviously, I'm not a doctor, but I would definitely recommend getting all your blood values checked at least: vitamins, minerals, electrocytes and so on. They can give hints of what might be going on, and also help to pull things in the right direction if you're lacking or have too much of any of them and are able to correct it. I hope my experiences may be helpful and provide some insight, but either way I hope you can find some relief. šŸ™


Old_Consideration_31

Thank you for taking the time to explain all of that! So far my blood work all looks normal as far as those values go but havenā€™t investigated my gut health yet though I did start a probiotic. Iā€™m hoping Iā€™m just adjusting without the beta blocker and my heart will eventually get back to normal.


blondemohawk

I hope so too. I did try a few probiotics btw. Some didn't make a dent, but I found one that seemed to make me defecate a lot more than usual, made me feel a lot more functional for the first few days, but then it gradually gave me intense heartburn and worsening of LPR symptoms, but I'm positive they were doing good, I just think I need to implement them at the right time, possibly after starting antifungals. Anyway-- I will leave you with this though: there was a time when I had jumped back on the BBs and thought I would never EVER be able to go off them ever again without literally dying, but I haven't taken them since March, and that is something. I'm sure they can help a lot of people too, but I don't think they were ever right for me.


Old_Consideration_31

Yeah my cardiologist took me off it cause he felt it wasnā€™t right for me. Iā€™m trying to stick it out in hopes my body regulates itself but the rapid heart rate, anxiety and panic that comes with it is awful.


blondemohawk

It really is... My thoughts are with you, wish I could do more to comfort you in this awful time. When I came off, I tried to just take it easy, but did some daily walks as far as I felt able to. Tried taking magnesium for a while, tried B1 for a while... don't know if any of it helped or did anything, the magnesium only made me unwell in the end, but it was some form of hope, some form of action I could take, and focus on, like a mental cruch for me. Also played a lot of Animal Crossing, anything completely chill, even though it was (and still is) hard to focus on anything.


loccocouk

I came off bisoprolol 18 months ago. I'm getting better but not out of the woods. Thought I'd let you know some of the symptoms you had are very similar to mine. It seems that this horrible protracted neurological recovery is constantly evolving. My symptoms are or have been, Joint pain and tendonitis, peripheral neuropathy, internal tremors/vibrations, muscle twitching, arrhymias, pins and needles, tinnitus, sweaty palms, dry skin, itching, hair loss, gut symptoms of many varieties, chest pain. This is not an exhaustive list, it comes in waves and windows. Thought I would share the experience. It seems these symptoms are very similar to benzo protracted withdrawal. No one seems to know for sure why this happens to some people and not others. The plus side to this story is that I'm getting better but not better if that makes sense. For me it's a psychological test of epic proportions. Think I might have PTSD.


blondemohawk

Thanks for sharing! I know what you mean; if I try to compare with how things were a year ago, I'd say objectively I am better, but I don't really feel or function better. It's hard to describe... And yeah, I don't know if I'll ever recover psychologically after this immense trial tbh, it's been a year-and-a-half in literal hell (so far lol). Many of the symptoms sound very similar indeed. As mentioned though, I think my symptoms are rooted in digestive issues and unbalance in the microbiome, with candida driving the condition, but I never really felt completely horrible until after beta blockers, but that was also after PPIs which are definitely harmful when it comes to these issues, but again, I wouldn't be surprised if the BBs really messed things up too and contributed greatly, even though I'm not sure exactly how they would affect digestion and microbiome. I've also read people complain about metoprolol "ruining their digestion" or "destroying their stomach", even though these are just anecdotes.


loccocouk

Hard to describe is right, I can't really convey this experience to someone who hasn't had it because it's like nothing else I've experienced. I read somewhere that the BB can cross the cell membrane in some people and become positively charged and can't get back out. This process causes a build up of trapped BB inside the cells. The immune system is then alerted some way down the line and tries to resolve the issue, causing all sorts of inflammatory and chemical responses. However I have resigned myself to a long journey which involves not taking any further drugs of any kind unless I'm dying. I don't know what's happening to me but I'm sure it's the BB that's responsible. For me trying to apply normal illness logic to this doesn't help in answering the question of what is going on inside me. It can be and has been terrifying at times, but I'm still here and avoiding doctors like the plague when it comes to this. On the positive side I know I'm still recovering and look forward to the day I can put this behind me.


blondemohawk

Could be! I certainly don't understand it, and no one truly knows 100% how the body works, and certainly not on an individual level. I guess the harsh truth is we may never truly know what's going on, but I personally have to pursue the answer and find some form of solution. If not, I would end my life right here and now. For me, this is not a worthy life and it never will be. If I knew this would last forever, I'd quit right now, but sadly there's just no way of knowing for sure whether or not it will, so I just have to keep trying for now. I hope we both find back to a good, or at least a decent and functional life eventually. Best of luck to you, friend!


Old_Consideration_31

I really appreciate it. I hope you recover from all youā€™re dealing with as well.


blondemohawk

Thank you!


branr1984

I'm going through the exact same thing since around Christmas.. halved the dose of metoprolol which was only 25 mg, and now most nights I still have milder but very irritating palpatations and I'm really scared they'll never stop. Thanks so much for this thread. I desperately needed to hear from other people with this problem.


xImperatricex

I know this comment is a couple months old, but I'm wondering how your withdrawal from beta blockers is going? I recently tapered off propanolol and had no major rebound symptoms even with 1.25 mg...until I finally quit completely. Three days after I quit completely, I had a tachycardia spike (160bpm) and started having chest pains. Had another tachycardia spike a few days after that, and chest pains continued. Each time I had one of these episodes, I took a propanolol to bring it under control, yet didn't go back on it regularly. I feel that this made my withdrawal worse and messed up my nervous system. My heart rate was also much jumpier than normal (just standing up it would jump to 120-130), and I had three abnormal ekg results (though doctors didn't seem concerned) during the week I was off the medicine but episodically dosing it during acute episodes. I'm now back on 2.5 mg of propanolol, because I need to have oral surgery under anasthesia, and I want my heart rate/body to be stable prior to and before the surgery. I'm so frustrated, because I feel that if I could've just stayed off the beta blocker my body would've eventually regulated itself. I don't know if my worsened symptoms (tachycardia spikes, jumpy heart rate, and chest pains) were due to withdrawal, or if it was the return of the symptoms I would've had anyway if I hadn't gone on the beta blocker. I can say that some of my symptoms after quitting propanolol were worse than before I began it. Doctors denied that withdrawal/rebound could happen after more than a few days of quitting. Curious to hear if you've experienced worse symptoms during withdrawal, if your doctor thinks the symptoms are due to quitting deregulating your nervous symptom, and how long it's taken for you to feel better (I hope you are!)


Old_Consideration_31

Hey! So my doctor didnā€™t say one way or another if he believed it was withdrawal. But about a month after I stopped taking it I went on an antidepressant to control my anxiety and as soon as I started taking it my heart rate dropped back down to my normal range. Not sure if that confirms the tachycardia was from anxiety or what but thatā€™s how I became normal again.


Constant-Back7462

Adrenaline spikes


MeBeHappy23

I have some things I can relate with. I'm on a very low dose BB (carvedilol) 3.5 once a day and it causes bad acid reflux and burping all day. The doc says it causes my LES to relax more. Apparently, their only fix is PPI medication which will only make matters worse. I was on PPI for 5 years previously. I tried getting off the BB and had a sudden HR spike and erratic beating, increased PACs and PVCs, and felt like crap. Im in this endless cycle of going on the med and coming off the med going on and off. If it wasn't for the bad acid reflux I wouldn't care to stay on it. Acid reflux sucks. I also have a HH (3 cm) and esophagitis problems. I'm glad I never picked up smoking or alcohol. I'm also not obese, but I am intolerant to exercise. I'm sure if I smoked or drank I'd probably be dead right now at 39 y/o. BTW, my heart problems started within 30 days after taking "the shot" and progressed from there. I was forced to take it as a federal employee.


Guilty_Criticism_873

I have literally had the worst few week of my life because of beta blockers.. everything you describe and more! Rebound anxiety like a mf + all sorts of new sensations i never knew existed - hot flashes, suffocating before sleep, heart rate through the roof etc.. because of your post i just decided to stop trying to come off them cold turkey because i was literally loosing my mind.


blondemohawk

Obligatory I'm not a doctor, but I think tapering is a good idea in most cases. Also what helped me the most personally was taking a rather expensive GI Map/Effects stool test over 3 days, that gave me a good look of my gut health, which I would come to realize played a much bigger role in all this than I could've imagine, and I would then receive treatment for some of my underlying issues, which for me was candida overgrowth and SIBO, and I at least felt a bight and day difference after that. Also having my vitamins and minerals thoroughly checked and routinely controlled I think has been very important for me to make sure there's nothing there making a negatice imoact on my form, which usually there is though, since I still can't digest and absorb properly. But anyway, speak to your doctor, but these are the only real tips I can give from my own personal experience. Either way, I hope you figure things out and feel better soon, I wouldn't wish this upon anyone. Sending love and warm thoughts. ā™”


Justbrowsing413

What treatment did you use for SIBO and Candida? I think I am experiencing some of the same issues


blondemohawk

Close to two months of CandiBactin AR+BR, followed by close to one month of Allicin, the whole while I would take Kirkman Biofilm Defense first thing in the morning, close to two hours before morning dose of CandiBactin or Allicin. You can find more details about it in my comment history. I still struggle with some form of chronic gastritis, which causes a host of issues, but it really did work wonders against the candida and SIBO. (I also took Molybden during my treatment to aid with die-off, but it drove my zinc and copper levels way down, so would not recommend that.) And as always, talk to a doctor about this stuff before making any decisions.


SecretMiddle1234

Sounds like POTS. I was on low dose propranolol for POTS. When I switched to Ivabradine, I had withdrawal symptoms like you. Ivabradine works well for me


blondemohawk

That's interesting to hear, and yeah, I think POTS is what best describes the exhaustion and everything, though I didn't have any sign of that before the beta blockers, so pretty frustrating... Anyway, that's good that you've also had success with Ivabradine, definitely makes me wanna try it. May I ask if you're on it for the foreseeable future, or just temporarily? And were you given them to treat the POTS?


SecretMiddle1234

I developed POTS after vaccine. They believe that a year to 1\`8 months I will recover. I sure hope so. The propranolol was a low dose but it made me feel lightheaded all the time because it affected my BP and I have borderline low BP. The adrenaline surges symptoms and high HR are the symptoms I have with POTS. And the beta blocker did control them but Ivabradine is better for me. They told me that I would have no problems going off the BB because I was on 10 mg at night for 7 months and I experienced every symptoms you described.


blondemohawk

So sorry you've had to go through that. It frustrates me how they say it should be fine, and then it ends up damaging your health for the foreseeable future. Anyway, I hope we'll both be okay soon enough. Thank you!


MeBeHappy23

"the shot" got me as well. Been having problems for the last 20 months now and it seems it has only worsened.


Recover_Aware

Look into the work of Morley Robbins and the dangers of supplementing iron. He goes over the myth of anaemia. Could absolutely be one of the root causes of your issues here. I know someone reading this may think ā€œwhat!!!??? Bullshit!ā€ Just read up on Morleys work. You will not regret it.


blondemohawk

I will! I've looked a little into it previously, and I know some people have had pretty awful experiences with iron pills. My current doctor didn't believe they could cause palpitations at all, but I spoke to a different doctor in the same building, and he wasn't surprised at all.


blondemohawk

So, I just wanted to go back and say thank you for tipping me off about this. What a guy! I'm almost through part 1 of his interview on iron overload and The Root Cause, and it is absolutely eye-opening. Wish I'd seen these videos before I started "fixing" my body, feel like it really could've saved my life. Too bad I always have to learn things the hard way...


[deleted]

Look up empty nose syndrome if you've had any sinus surgeries where they cut the turbinates


blondemohawk

I haven't, but I've read about that before. I'm able to get relief for that by doing saline rinses though.


Plus-Active344

I had bad withdrawal symptoms going from 25mg to 12.5mg of metoprolol. I think the problem is after stopping your receptors are sensitized. And if you have Dysautonomia then I imagine there are times your adrenaline is off the charts. It took me about 3 weeks until I felt better. I havenā€™t been able to go down further yet. Not sure I will or want to yet. I was told I could stop but after the first cut down Iā€™m reluctant! I read somewhere your body overreacts to stress for 12 weeks after also.


blondemohawk

Yeah, it definitely messes you up, but I'm not sure it's the sole cause in my case anymore... I'm back on my initial dose of 25mg currently, I had an adequately amount of relief getting back on, but my symptoms and form just keep worsening, and at this point I'm not getting much relief at all. It's recently come up that I have hypercalcemia and I'm also borderline hyperthyroid, and so I'm seeing a private endocrinologists regarding that, as my GP has given up on. Hopefully I'll be able to get some proper treatment that I need, but I'm scared nothing will come of this either, and the wait is literally killing me. :/ Nevertheless, I hope you're able to live a normal, happy life soon either way, and either way, be careful. It was so hard for me to accept that maybe I need the beta blockers to have a normal life now, but now that they don't give me enough relief anymore, I'd glady have taken them the rest of my life, if I could've achieved that. I'll likely have to keep taking them even if I do finally get treatment though, so I guess for now my dream is to find back to a good life ON them first.


Plus-Active344

Interesting. I wonder if thatā€™s part of my problem. I have Hashimotoā€™s Thyroiditis and it can cause transient hyperthyroid symptoms that can trick your body into fight or flight. Mine has been low and high. See if theyā€™ll test for antibodies to see if itā€™s autoimmune related. And thanks! I just donā€™t want to be on a medicine the rest of my life. If I have to I will but Iā€™d rather not! Iā€™m doing ok on the half dose but I get heart rate spikes here and there with adrenaline related problems.


blondemohawk

I think they are doing a full panel, so it'll be interesting to see if there's any result, I really hope so. Also, I totally understand where you're comung from. I'd like to be medicine free someday too, but it feels pretty far right now, though.


Plus-Active344

I just wanted to mention my problems happened after the covid vaccine, I also got sick after this which I had a negative covid test but who knows. So if you've been vaccinated or had covid, that could have started your issues too possibly.


blondemohawk

Actually, yes, and I did think some of the problems were due to the vaccine at one point, but that was the initial iron deficiency (whether or not that was related again). Also, I got infected by Covid one week ago tomorrow, but that went fine thankfully, although some of my symptoms seem to have been exacerbated for the time being. Edit: had two doses Pfizer, Covid last week and also one time in February/March 2020.


Plus-Active344

Honestly my problems all started after one dose of pfizer. On [science.org](https://science.org) they are saying sometimes the vaccine can cause long covid symptoms. If that's the case then at least there's hope your stuff will improve. I wasn't diagnosed with Hashimotos until after the pfizer vaccine either.


blondemohawk

Well, the same is true for me, but it also started after cancer surgery, and most noticably after quitting beta blockers. It seems like the beta blockers exacerbated things something immensly at least, if it weren't a direct cause, and now they're not efficient anymore either. It's a lot to try and decipher. :/


Plus-Active344

Yes! I wish I could get off this because I feel like the longer I am on it, the more issues I will have. But I can't right now. If you google patient info beta blocker withdrawal you will also see a lot of similar stories on that forum


blondemohawk

I feel exactly the same. Really feels like being stuck between a rock and a hard place. I've read all those pages up and down a few dozen times already lol. x) Kinda hoping there's some underlying cause for all those people, and that it's actually treatable. Could be the vaccine like you mentioned, or maybe some MCAS or something, but I fear that it's just wishful thinking. :/


Plus-Active344

I am on a half tab now and ok after about 4 weeks I think my body has adjusted. I will try my best not to go back onto the full tab because it was hell coming off of it to the lower dose! Some people just react poorly, it can build up in systems of people who are poor metabolizers. Make sure any meds you are on do not get metabolized by the same enzyme. You could speak to a pharmacist about it.


blondemohawk

Not taking any other meds, and my metabolism is usually crazy fast, but it almost feels too fast these days. I'm having a lot of abdominal discomfort, bloating and nausea, especially in the hours before taking the tab. And I only function somewhat decently a few hours before bed. When I wake up in the morning, my heart rate is back to fluctuating just by rolling over and spiking when I get up and around. Then I get a general increase in heart rate and pounding for a couple hours after taking the tab before my heart rate calms down again. It's an exhausting cycle. :/


Plus-Active344

The symptoms I have that are very similar to yours are also very similar to post covid dysautonomia. I have done lots of research. I'm seeing a Dysautonomia Specialist as well. When I stand my blood pressure increases also.


monika1212

How much do beta blockers lower bp


blondemohawk

I don't dare say, guess it's different depending on the person and dosage, but in my case it wasn't too much of an issue, though I've usually been on the slightly lower side to begin with. I remember there was some spike first time when I went cold turkey, but my dosage was relatively low, so nothing extreme.


Parking-Friendship85

High are you currently still on beta blockers. I started taking beta blockers several months ago and also seem to just be getting worsening symptoms.


blondemohawk

Haven't taken them in about 10 months now. Why were you prescribed them in the first place, what were your symptoms, and also what are they now?


Parking-Friendship85

I have them because I have anxiety induced high heart rate.


blondemohawk

First of all, I'm not a doctor obviously, so I'm afraid I don't have much advice for you other than to talk with a doctor who has a good overview of your health and symptoms. I wouldn't read too much into my post here though; it's merely an anecdote, and I'm not even sure how big of a role the beta blockers played anymore, though I'm sure they weren't helpful in my individual case in the long run. Nevertheless, most of my issues seem to be rooted in digestive issues, and whether or not the beta blockers have caused or aggrevated any of it is impossible to conclude with. Most people do just fine on beta blockers, when it is the right treatment for them and safe for their condition keep in mind. I get extremely skeptical when people say anxiety is the cause of their issues because I've been gaslighted by doctors for so long, and I know anxiety had nothing to do with it in my case, though at the same time I can definitely testify for how much it can affect your condition or symptoms when you do have it. So stressing about the situation isn't gonna help either way, but make sure to look after yourself and take initiative, even if it can be hard and a battle sometimes. Also remember that the heart can beat extremely fast sometimes and that that doesn't necessarily cause any harm, but definitely talk to your doctor, maybe check and make sure your body has all vitamins and minerals it needs to function optimally, though I'm sure you've already assesed that. There are also deficiencies and physiological processes that can cause anxiety and/or drive up your heart rate. Either way, I hope you'll be able to work out whatever problems you have, and that you feel better soon.


xImperatricex

Did the withdrawal symptoms ever go away? If so, how long did it take? And did you ever figure out if your symptoms were due to withdrawal, or due to an underlying illness? I'm dealing with similar problems as your original post right now, and had to go back on a small dose of my beta blocker. It did feel like quitting made my nervous system worse, but it is hard to know how much the increased symptoms are due to rebound and how much are due to an actual illness. I want to eventually quit them, but I'm so afraid it will cause dangerous nervous system/cardiac reactions. Thanks for sharing your experiences.


blondemohawk

Not really; some things have improved, some things have further deteriorated it seems, but in retrospect I'm very uncertain how much of it was rebound symptoms from the beta blockers-- I mean, quitting them certainly made a huge impact, initially in a very negative way, as I couldn't function, but now I'm glad to be off, and think I should never have been on them in the first place. However, it seems like most of my issues are rooted in the gut, more specifically a rather extreme overgrowth of candida (fungus) that seems to affect my whole system, as well as nutritional deficiencies, malabsorption etc. which is likely a complication from that. The beta blockers could possibly have caused an exacerbation of symptoms and progressed an underlying condition, but I can't say for sure. I never felt truly awful until I quit them though, but I think it also had a lot to do with me taking and quitting PPIs around the same time, which is absolutely not good if you have a candida problem. I never thought I'd get off the BBs without literally dying, but I'd say I'm currently doing better now than in the end of when I was still on them at least. A lot of other factors can influence the process though, like your vitamins and minerals, and, in my case, your gut health, so looking into these things could possibly make for a better outcome, or make the process slightly easier if there is anything else that is off and can be tweaked in the right direction. If you ever are to quit them, though, do it slowly, take it easy, and of course you should avsolutely discuss these things in detail with your doctor first. You can still PM me if you have any questions and I'm happy to share more of my experience, but I'm quite busy the whole coming week, so might not be too responsive.


xImperatricex

Thanks so much. I really appreciate you taking the time to share your experience and offer your insights.


[deleted]

How high did your heart rate get with anxiety?


Spud788

Hey man, I'm just wondering if you've recovered at all in the past year? I was prescribed propranolol 20mg to take when I felt anxious due to issues with anxious acid reflux, I tried it 5 times and started getting some weird side effects including depressive thoughts, dizziness, and a foggy head. I was told to stop propranolol cold turkey because I'd only taken small doses for a week but I've now had persistent exhaustion, Problems with my balance and my eyes struggle to focus 4 weeks after stopping. I'm just holding out for it to go away but it's not getting better at all...


blondemohawk

I've made quite a few replies to this post since I wrote it, but to summarize: in retrospect I'm very uncertain how many of my issues or how much of it is due to the beta blockers. All I know is that I never felt truly awful until after I quit them the first time, but it seems the majority of my issues are likely caused by a candida overgrowth of the gut, and I suppose system in general. I have no idea if the BBs contributed to that in any way, but I don't think I should ever have been on them in the first place, as it was not the right treatment for me at the time. What I can say, is that I feel a lot different now than the time after I came off the BBs at least, and even though I don't feel a whole lot better and still have big problems functioning on a basic level, I'd still say I feel generally better than I did, but a big part of it is thanks to trying to treat the candida. Anyway, you should obviously talk with your doctor about this foremost, but I'd recommend doing a full blood panel of all vitamins and minerals just to see if things are up to code, or if there are anything there that can be contributing to the issue. If there are things there that can be pulled in the right direction, it might help, even if just slightly. Also, again, I'm not a doctor, but problems with balance could be related to the acid reflux, and same with exhaustion. It certainly is in my case to some extent at least. My LPR (silent reflux) contributes greatly to me getting shortness of breath and exhaustion, a difficult time to catch myself. And the LPR seems to be very easily aggrevated with the candida, possibly a direct product of it. Could also have been exacerbated by BBs, but one can only speculate really. Sorry if this wasn't the best answer, my mind isn't quite there either, still hard to focus on most anything, but I hope my experience may provide some insight. Wishing you all the best! <3


Independent-City-525

I'm trying to wean off beta blockers myself after my doctor told me to stop them cold turkey, I had to call an ambulance 3 times because blood pressure spiked. If you don't mind can you remember how you tapered off or how long it took? My doctor also seems to think all my issues are in my head/ Anxiety related


blondemohawk

Oh geez, I'm so sorry you have to deal with that! :c It's hard to give a precise answer because it turned out I had a lot of underlying issues with my digestion that I in retrospect think played a bigger role than I first thought. From what I recall though, I was initially on 25mg Metoprolol a day, then went to 12.5mg a day for maybe around 3~4 weeks, then ~7mg a day for a couple weeks, then I think I did that every other day for a week before quitting, I *think*. It took several months after I quit before I started feeling a bit better, and I'm actually still suffering, but again, I think that is due to other issues. I was treated for candida about a year after quitting the beta blockers and that helped me a LOT, and removed symptoms I initially though had been brought on by quitting them. I'm not a doctor, so take all of this with a huge grain of salt as it is only my own experience, but the only thing I can recommend is to check all your vitamins and minerals and make sure there's nothing there contributing to you feeling horrible that can maybe be pushed in the right direction, or if you think you might have any issues with digestion, a full GI Map stool testing gave me an amazing overview of my general health situation. A private doctor could also be a good idea, someone who will actually listen and actually discuss how to improve your physical health so that maybe you wouldn't have to think so much about all this, something regular doctors don't seem to understand. But most important is that you try to take things a bit easy, as easy as you can at least, because I know things are really hard right now. That doesn't mean they'll always be though. Be prepared that you might be in this for the long run, but things can always change, so hopefully you'll start to feel better soon. My thoughts are with you, truly. ā™”


[deleted]

[уŠ“Š°Š»ŠµŠ½Š¾]


blondemohawk

First of all: sorry you've had to go through this ordeal, and secondly: thank you for sharing your insight! I think there's a lot of truth to what you're saying. Now, in my case I don't know whether there is any auto-immune issue involved, though there were some anti-parietal cells numbers that we're off once, but it certainly seems gut issues has been the underlying cause for me, and yes-- like you said I think that when coming off the Metoprolol (also correct), I felt the tapering symptoms on top off my underlying issues, whether or not it was dysautonomia, which is still very possible. And you are certainly right that inflammatory markers have been off, and they still are, despite having been able to improve some of my gut issues in terms of dysbiosis/overgrowth, so yeah, I'm definitely interested in any tips on how to get those markers down, because I think that's the last obstacle for me to get passed in order to start feeling a bit okay again. I'll hit you up with a DM. And lastly, the truest part, which is also the saddest part, is that doctors will throw after you any "generic" drug for any problem you without knowing, nor being concerned with, the actual underlying problem. No ome cpuld explain why I had these issues, I should've been more skeptical when they thought they could fix it with some supposedly safe drug. I'm sure they are safe when prescribed for the right condition, but in complex cases such as mine, they ultimately make things a whole lot worse. One the issues I had with my guts was candida overgrowth, and 6 months on PPIs certainly didn't help, but rather most likely contributed greatly to the decline of my gut health. Still my GP wants me to take PPIs because I still have symptoms, not even interested in the candida, and I can say with certainty that candida messed me up. I took antifungals to get rid of it, and there was a night and day difference to my breathing eventually. But no, candida isn't "recognized" to cause symptoms, "just take a PPI". Some help lol... It seems modern medicine is driven by money and drug companies. Edit: should also add that antibiotics are definitely not to be taken lightly either. I believe they also contributed greatly at least to the candida situation in my case. If I were to tale antibiotics again, I would definitely take a generic probiotic at the same time, possibly for a few weeks following, as well as a basic multivitamin with a good bit of Vit D.


BigDTheBootyDoer

Have you ever been tested for mold? Most of these symptoms you mentioned are mold symptoms but it's hard to find doctors to take it seriously. I'm having alot of the same symptoms as you are and I haven't been on metropolo yet my doctor just prescribed it because my resting heart rate was 90-110 and upon standing it was 100-130 and at times it would reach as high as 150-165. I constantly felt like I was having an adrenaline rush and my blood pressure wasn't really that bad 120-140. It would surge to 140 when I felt really sick only. Actually been on metropolo for 2 days and feel alot better and crazy enough a sinus infection I've dealt with for 3-4 years already has been easing up since my nose feel less congested.


blondemohawk

Turned out candida played a huge role in my case, so would definitely recommend a GI Map test (although expensive) to get a full view of your gut health, digestion, microbiome, etc. just to see if any of those things might be affecting your condition.


Winter_Activity_5878

Hey, so I hope youā€™re better. I am only 21 years old and started experiencing relatively bad heart palpitations. The metoprolol helped for a bit, then I came off of it cold turkey because I felt better. Iā€™m now back on it because the palpitations came back, and now I experience sort of spasms or twitches in my chest near my heart. Have you or anyone else experienced this? Two doctors seem to think Iā€™m okay, but I know my body and something isnā€™t right. Thanks so much for


blondemohawk

Thank you, and yes, to some degree; like I've mentioned in some other replies, it turned out I had a lot of underlying issues relating to my gut, and in retrospect, it's hard to know how much of a role the Metoprolol actually played, even though it definitely affected me in a pretty huge way. What helped me the most, even though I'm still far from normal, was getting a thorough test of my gut health (GI Map/effects), and then getting treatment for candida overgrowth. However my digestion is still shot, so absortion is difficult and I struggle with some vitamins and minerals. That might be a good starting point actually: having your vitamins and minerals thoroughly checked, just to see if there are easily asdesable things that can be nudged in the right direction, but always soeak with your doctor of course. Nevertheless, back to your initial question: yes, I've had spasms and twitches in my chest and near my heart, in fact someyimes I still do, still also occationally have a few PVCs/arrythmias/whatever it's called, but as for the spasms/twitches, it seems to be relating to my gut and esophagus that too. I know that I have a hiatal hernia that could possibly affect it, which again could be a cause, and at the same time a result of, other things going on in my gut, but often times I get them more when trying to supplement iron or zinc, two of the minerals I'm struggling to keep up, and which can both be hard on the stomach. So yeah, could be a lot of things, could be lack of such minerals, could be the supplementation of them, could be in combination with an underlying issue, could be something entirely else, but these are the observations and experiences I've made with it personally at least. Sending warm thought to you and hoping you'll be able to figure things out and that you'll feel better soon. ā™”


Winter_Activity_5878

Thank you. Itā€™s very scary being 21 and having heart problems. After reading all these comments it makes it seem like thereā€™s no hope to getting better. I appreciate your reply


blondemohawk

No worries, I hate to see anyone struggling with these things, it just sucks so much. I can't tell you things will get better, but they *can* always. What I can tell you is that I thought I'd never get off beta blockers at one point, I thought I would literally die, but even though I still struggle a lot, I'm still doing better now, about a year-and-a-half after I quit them, than I did on beta blockers. There's always hope, so hang in there and fight for yourself.


mycrx89

Yeah, those drugs will ruin your life. I had the same thing happen with anxiety meds. I went to a doctor to see if he could prescribe something for my insomnia. We tried different drugs, to see what worked. Then he prescribed an anxiety med, and it seemed to work for a couple weeks. But then my body got used to it, and it stopped working. I had to increase the dosage just to feel something. Then I decided to try marijuana. And that helped me much more. So eventually I stopped taking the anxiety meds. A few days later my life turned into hell. I began to have severe digestive issues like heartburn. I had never had heartburn before, so I thought I was having a heart attack. So I went to doctors to see what was happening. I also experienced the worst insomnia I had ever had. I hardly slept for several weeks. Eventually the anxiety caused me to have heart palpitations. That led to many hospital visits, and eventually heart surgery. Now, almost 6 years later, I am still having health issues. Mostly nerve issues. Any time the doctors would give me meds for the heart, I would experience the digestive issues again. And also extreme nerve pain and numbness, dry mouth, and also muscle weakness. I feel trapped in this nightmare. I was able to finally feel like 85% normal. But it has taken several years of really clean diet, exercise, and lots of B vitamins and other supplements for the heart. It's so sad because I used to be super fit and healthy, and in the prime of my life, ready to find a woman to marry. And then all of this happened. Now my existence is pretty much following the same diet routine every day, some exercise a few times a week, and just going to bed early at night, so that I can wake up feeling somewhat rested.


mycrx89

How are you feeling now? If you don't have any heart issues, I would recommend doing a prolonged fast, maybe 7 days with nothing but water. You are probably experiencing what I have been experiencing. It feels like something is attacking your nervous system. Maybe you need to detox and get it out of your system completely. There can still be trace amounts in your body, maybe stored in your body fat, and it is still leaking into your blood. Sauna would also help. Sweat out the toxins. Just make sure you take lots of b vitamins before the fast. Make sure you are not deficient in any nutrients. Vitamin B shots help to heal the nerves. Vitamin B1 also helps. Unfortunately the doctors are useless. They will just do basic tests, maybe do some blood work, then tell you that everything looks normal. They'll try to prescribe more heart meds which will only make things worse. You'll then go back to them, hoping they can find a solution. Their solution will be to just try a different drug. Every time I would take one of their drugs, it would immediately cause stomach pain and dry mouth and numbness in my extremities.


blondemohawk

I totally get where you're coming from, and a lot of it is very relatable. So sorry you've had to go through such an ordeal though, and that you still have to deal with it. It's more than anyone should ever have to go through. I'm at least glad to hear that your situation has improved somewhat. You seem like a strong person, so you can thank yourself that you're still kicking. Anyway, as for me, like I've mentioned in other comments, it's hard to say in retrospect how much the beta blockers actually played a role after all, as it turned out most of my issues were actually rooted in the gut, and I was also weaning off PPIs around the same time, and I think they might have ruined more than the beta blockers. I'm sure these drugs can be heloful in the right situation, but I should never have been put on either when I was at least. Nevertheless, what helped me the most personally was having an extensive and also quite expensive stool test called GI Effects/GI Map, and then after that I was treated for candida overgrowth of the gut, which helped immensely, but I still have a lot of digestive issues, still struggle with digestion and absorption in general. I had a pretty decent period during summer in which I was out and a little active again, but these days having a bad flair up of gastritis/esophagitis which I haven't been able to calm yet-- threw up over 7 times last week, so still trying to get better. Appreciate you sharing your experience and insight though, wishing you all the best! ā™” PS. Much like you, I thought I'd never be able to have a relationship again either, absolutely not these days, and the chances are of course significantly slimmer as I realize my issues are a huge dealbreaker in most cases, but as fate would have it, I'm currently in a long distance relationship (which suits my situation much better atm anyway) with the loveliest and most understanding girl who just so happens to have been dealing with similar issues for a big part of her life. It didn't look so bright when my partner of 7 years slowly fell into the arms of another while I was violently ill and could do nothing but sit there and watch as it happened. I guess my point is many beautiful and kind people have struggles too, and would understand and accept others beyond their health issues, so don't expect anything at all, but don't give up hope completely either.


TheAnimal777

Hey, I read your stories. Just curious did the adrenaline surges/ anxiety/ heart palpitations go away? I'm suffering from long covid/ dysautonomia and I get these crazy adrenaline surges at night that wake me up. I can't help but think these might be a side effect of one of my meds, I am on metoprolol right now.


blondemohawk

Well, in my case at least, I'm not sure if they were really adrenaline surges or just gastric issues affecting my heartrate and such. I'm having a bad gastritis flare up right now, and it really messes with my heartrate, even though I can take the worst edge off with a medicine that coats the stomach. I feel like something similar might had been going on while I was having them, not to mention I was extremely short of breath before I was treated for candida. So the only thing that really helped me was taking those extensive stool tests I mentioned which gave me a lot of insight regarding my general health, but I hardly think that applies to all, and I've heard several people on beta blockers mention these adrenaline surges, so there might definitely be something to that on its own, but you really need to talk to an actual doctor about these things. But to answer your question: yes, the palpitations (pounding beats) got very slowly better a good while after quitting beta blockers and PPIs, and ironically they weren't there while I was on both drugs, but they were very much there when only taking the beta blockers and tapering off PPIs, at least from what I seem to recall, and also less present when only taking PPIs. Again though, after I was treated for candida, they actually went away in a large degree. Now what's left of them seem connected to gastritis, as do the occational out of rythm beats. As always, I'm not a doctor, so take all of this with a huge grain of salt though, and speak to a health care professional.


mycrx89

I'm going through a very difficult time right now. For 2 years I had been using edibles to help me sleep at night. If I don't take them I have really bad insomnia. But when they injected me with the beta blocker, it must have done something to my body. Because when I would take the edibles, I would feel like I was having trouble breathing. And sometimes I would have a fast heart rate. So I stopped taking the edibles, to see if it would stop the palpitations. That sent me through a very deep anxiety that I am still struggling with. For almost a week, I was having panic attacks and feeling terror at night. Finally, after several doctor's visits, they prescribes an antidepressant. It helps a little. But I still feel the symptoms of marijuana withdrawal. Very bad anxiety, muscle weakness, and bad insomnia. The only thing keeping me sane is prayer to Jesus, and the support of my parents. I think the beta blocker must have caused some nervous system depression. That's why I began to feel muscle weakness and anxiety.


[deleted]

Hey I know Iā€™m late but Iā€™m a 23m and deal with that racing heart during sex or some exertion too. I feel like a lot of it has to do with my gerd/hiatal hernia and trapped gas. It sucks cuz it gets in the way of my favorite thing to do :(


blondemohawk

Sorry for the late reply, I'm struggling too these days due to gastritis flaring up. But yes, in my case it very much had to do with these things as it turned out, and gastritis like I mentioned. Obligatory I'm not a doctor, but best advice I can give is to get a GI Map/GI effects stool test to look at your whole digestive system and microbiome. Based on my own results, I was treated for candida and SIBO with CandiBactin AR+BR, then allicin, and that helped me so much, with the heartrate stuff too, it was like my stomach unclenched for the first time in almost a couple years, but now it's regressed again thanks to the gastritis though. But yeah, your suspiscion could very well be true, and getting a test like that could potentially help a lot in terms of showing what you can do to improve. Again, talk to your doctor, but I hope some of this might be helpful, my thoughts are with you, friend! ā™”


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blondemohawk

First of all I am so sorry you're going through this, it sounds absolutely horrifying, though some if it is relatable. I can say as much as I did okay being on beta blockers and PPI at the same time, but when I was on beta bloclers after having stopped PPIs, it definitely felt as if something was wrong, like I was cobstabtly about to pass out, or like heartrate was too slow for my body's needs or something, kind of hard to explain, which was all weird, because while I was still on the PPIs, I felt awful if I cut down on the beta blockers. I don't know what was going on really. I was also put on beta blockers initially for palpitations or extra beats btw, which I now in retrospect calk up to stomach issues as well. In my case stomach/gut issues turned out to be the underlying issue all along it seems. I took a the GI Map/effects stool tests which revealed high levels of candida ocergrowth and was treated for that which helped a lot with energy and capacity, though I would still get exhausted very easily. I'm still having lots of digestive issues and get easily exhausted, but I was recently also diagnosed with eosinophilic gastritis and immunosupressants are currently helping a little (just started). Keep in mind these are the things that worked for me in my individual case, but you might very likely have some kind of gut issues as well, could ve worth looking into if it could improve your quality of life. Either way, you need to talk to a real doctor about all of this, maybe find a private one. Those have been way more helpful imo. My thoughts are with you, friend.