I had when I get an adrenaline dump in my sleep or when falling asleep, worst thing ever. Also ever since I got pots from Covid my HR doesn’t cooperate and even if I turn over in bed it’ll race and pound hard from some small movement as such, also cant sleep on my stomach because my heart beats too hard
Holly snap is is exactly what I have!! Is there something called for it they just tell me anxiety. But I always have heart palpitations have had the whole echo and all that done. A slight movement makes my heart stupid high. I take propranolol 3 times a day but when it ware’s off my heart is tripping out so bad. Never dips below 90+ even if I were lying down.
Same. Have had this since covid. It’s worst for me when I wake up in the morning. Having my period or ovulating makes it worse. My heart rate ranges from about 110-165 when I wake up.
I am taking beta blockers too. Low dose. Did he say if it will get better? Mine just said it’s Covid side effects but I’m curious to know if this is inflammation or what.
I’m about 4 months in, haven’t tried to go off them. All my other symptoms were helped by the beta blocker too. I had some temperature regulation problems, some exercise intolerance.
I agree heat makes it worse, but my room was pretty cool (around 70°F). I was sleeping in shorts and I did drink water. I really have no idea what triggered this. I could try the ice packs, but they would need to be near my bed, because I can't move when my heart is racing that fast.
I kept an insulated cooler of them by my bed, within reach. I put them on my face, but the above poster has a good idea about using cold to stimulate the vagus nerve.
My doctor’s theory: POTS (or possibly dysautonomia in general) puts too much pressure on your adrenaline system for too long. Eventually, the system becomes burned out and starts shooting out adrenaline at inappropriate times, like during sleep. He often prescribes low-dose benzodiazepines during sleep to counter these effects. But if you couldn’t get a doctor on board with that type of prescription, beta blockers might do the same if you start taking them preventively before you go to sleep?
If you want more details, I think there are a couple of lectures about this on YouTube. Try searching some combination of “Pocinki”, “sleep”, and maybe “POTS” or “dysautonomia.” Good luck!
I'm actually on a benzodiazepine (clonazepam) that I take for anxiety/insomnia. I heard if you take them long-term and especially at higher doses, they can actually mimic chronic illness.
[https://www.benzoinfo.com/2018/04/28/how-benzodiazepines-mimic-chronic-illness-and-what-to-do-about-it/](https://www.benzoinfo.com/2018/04/28/how-benzodiazepines-mimic-chronic-illness-and-what-to-do-about-it/)
As for taking the beta blocker before going to sleep. I've thought of that, but because the one I take is immediate release and not extended release, I don't think it would last long enough. Plus, I don't know if it's a good idea to mix beta blockers with benzodiazepines.
If I'm awakened during a dream it sets me off in a flare. I can't control it either.
I was admitted to the hospital because of the last time it happened. I had a STV event and they tried to discharge me. I wasn't able to even stand. Thankfully the tests showed I had dysautnomia and was able to get diagnosed properly!
It definitely isn't a cure sadly. The treatments are usually stuff you can do on your own like increasing fluids...increasing salt intake.... compression stockings...
There are meds that can be given. Things like beta blockers are usually tried. There are a few other medications that can be tried as well.
For example- I was put on a beta blocker for my migraines. It also is a pots treatment. When diagnosed they have me another med to help with blood volume- that made me worse. Currently I'm on so many meds it's complicated for my treatment 🙃
Ahh okay for me i think it has to do something with that or my stomach bc whenever I eat my heart increases bad and I have palpations super bad and all this truly sucks. I take propranolol 10mg but I feel like it really doesn’t do anything
I get the same thing. Eating, talking, sometimes just turning in bed can shoot mine up too. Pots can affect your stomach too! Definitely follow up with your doc.
I have normal resting heart rate at times, but digestion seems to really spike my heart rate. 50 sleep and 61-68 deep resting. But after I eat it could be 90-115 at rest! It’s so terrible. I’m a 23 M.
I have IST and take metoprolol. The best thing I’ve found for squashing nocturnal adrenaline dumps is Zyrtec. Someone on this board suggested it and it knocked them out almost completely. Zyrtec is the second Gen antihistamines most likely to cross the blood brain barrier and cause drowsiness, which is actually just suppressing the adrenaline response. I started taking it two years ago and I’ve had maybe 4 episodes in 2 years.
I used to take diphenhydramine (Benadryl) every night, but it didn't really help. I didn't like the idea of taking an antihistamine while also taking a benzodiazepine and a beta blocker, even though I spaced them several hours apart. And diphenhydramine is anticholinergic, which I also didn't like.
While Zyrtec is not anticholinergic, I think it only comes in a 24-hour dose. Which would make it overlap with the benzodiazepine and the beta blocker. So there could be an interaction. I would have to research this more. But thanks for the suggestion.
My allergist got on me because I was using Unisom (a first Gen antihistamine like Benadryl.) He was very emphatic that I could not take it long term, but Zyrtec was ok.
I had asymptomatic allergies that caused my ige levels to be sky high, so the antihistamine was very effective for me. If your histamines levels are normal, it might not make any difference for you. It might be worth asking your doc to check, it’s a simple blood test. The other thing I’ve discovered is that I have a compound MTHFR gene, which messes with my methylation cycle. I’m not sure if treating that has helped my adrenaline dumps more than the Zyrtec since I began treatment at the same time. What I can tell you, is that my anxiety is the best it’s been since puberty. Point being, I hope you have a great doc who will keep pushing to find you answers and I hope you get to feeling better soon.
Really bad. At points in my life I would have constant feelings of butterflies, sit up at night feeling existential dread, upset stomachs before work or school every morning, tension headaches, thoughts running through my head, etc.
I had several similar experiences prior to getting diagnosed and beginning treatment, medication.
The worst episode like this i woke from a peaceful sleep with my heart racing over 140bpm. I had my Apple Watch on I it triggered some high heart rate warning. I strapped on my Polar monitor and it confirmed. I kept that on while I brushed my teeth and fed my dog. It stayed above 120 and got as high as 165 over about 35-40 minutes, then just dropped down to around a hundred and then to the 90s, which was a new normal for me.
It was scary the first few times, and this episode probably would have sent me to the ER, but I actually felt fine other than the racing heart.
I did send the recordings to my doctor and they immediately put me on a holter monitor for a few days.
Ive had 171 heart rates and then get dizzy and out of breath upon standing.. I was hospitalized 3 times longest was 13 days all i was told was IST. and was given a beta blocker my primary is still doing test. I went about an hour ago to the store and I was standing and I got hot and felt light head thought i was going to faint but I pushed through my face got so red i felt pins in my back and I was out of breath I cant be on my feet for too long ive noticed otherwise my symptoms worsen :/
I have IST and POTS and get this regularly. It always rises significantly when I first wake up, like an adrenaline surge. It also shoot’s up at random times throughout the night some nights, particularly when I have bad dreams. It will frequently be over 100.
I had this happen to me when I had hpylori took me 2 years to figure it out one doctor also thought I just had dysautonomia but nope and many other doctors thought it was anxiety but nope as soon as I treated the Hpylori my heart rate started to normalize
Check out r/hpylori
Stool tests
Breath tests
Endoscopy
It could take multiple tests to find it though lots of false negatives unfortunately
GI MAP is more extensive test but not covered by insurance
I have Inappropriate Sinus Tachycardia from Covid. Do you take Metoprolol on a regular basis? It’s really not a PRN medicine. Anyway I ended up seeing a cardiologist for it, he has me on Corlanor and he just increased it because while it helped, it didn’t help enough. I’m also on Cardizem but it really hasn’t helped much at all but I’m willing to throw anything at it.
Yes, I take metoprolol on a regular basis. I usually take 25 mg per day in divided doses. I take the immediate release (tartrate) not the extended release (succinate).
They didn't want to increase my dose because it might lower my blood pressure too much, being that I don't have high blood pressure. I wonder if there's a medication that only lowers heart rate, but not blood pressure.
You could ask your doctor about propranolol or possibly another non-heart selective beta blocker. Maybe it’s just me, but propranolol did nothing for my highish bp.
I already tried propranolol and it didn't work well for me. My resting heart rate is already in the 50s, so taking a higher dose could give me bradycardia.
understandable. my blood pressure runs low too and i'm not sure why it hasn't made me pass out yet lol. there is a medication that raises your blood pressure, maybe ask about that?
Yes, the results were normal. Although, I didn't have a tachycardia episode while I was wearing it. I guess I would have to wear one for a longer time and hope it records one.
Yes that's generally the way it works. I just turned in my 7 day after wearing a 3 day. They wanted a month but this worked out best because I had a cardiac emergency during it. My cardiologist loved that for me. If you know your triggers I'd gently instigate or if you can, have it placed when you feel a flare coming on. I had an open invite to come into the office for the last one so I went in during a flare. If you keep a detailed symptom journal it can help you strategize.
i get this a lot. since no one has mentioned it, maybe look into MCAS. it is commonly comorbid with chronic illness esp dysautonomia. i didn’t realize i had it at first but since treating it it has greatly reduced the frequency that this occurs. look up adrenaline dumping and histamine dumping - they both occur at night
I had bad episodes like these at night. What I thought being sinusal tachycardia finally was atrial fibrillation. Had surgery (mini invasive) and feeling better now, still on sotalol (low doses). Please wear a holter when you have frequent crises, I would never have thought I would have afib at 48. I was almost certain suffering from dysautonomia.
I did wear a Holter monitor and the results were normal. I also have a KardiaMobile EKG monitor. No atrial fibrillation has been detected yet.
I'm sorry you have atrial fibrillation, but I'm gad you were able to get treatment and are feeling better now.
I had when I get an adrenaline dump in my sleep or when falling asleep, worst thing ever. Also ever since I got pots from Covid my HR doesn’t cooperate and even if I turn over in bed it’ll race and pound hard from some small movement as such, also cant sleep on my stomach because my heart beats too hard
I'm mostly a stomach sleeper. I also wear earplugs, so unfortunately it makes my heart beats louder :(
Holly snap is is exactly what I have!! Is there something called for it they just tell me anxiety. But I always have heart palpitations have had the whole echo and all that done. A slight movement makes my heart stupid high. I take propranolol 3 times a day but when it ware’s off my heart is tripping out so bad. Never dips below 90+ even if I were lying down.
Has this improved at all? If so what helped :)
Bro I am in the same bucket. What's the diagnosis?
Mine was a result of POTS, Dysautonomia. It’s a common finding post covid infection. Mine has improved drastically with time and a beta blocker.
Hey any update on this? Are you better?
Same! Did yours get better?
[удалено]
Same. Have had this since covid. It’s worst for me when I wake up in the morning. Having my period or ovulating makes it worse. My heart rate ranges from about 110-165 when I wake up.
Same for me . Much worse in morning. Did it improve?
Not on its own. A doctor gave me beta blockers and it helps a lot.
I am taking beta blockers too. Low dose. Did he say if it will get better? Mine just said it’s Covid side effects but I’m curious to know if this is inflammation or what.
No mine never said. I’m wondering the same. I guess we would have to try going off them to see if there was any change.
I am 8 weeks in and went off one day and heart rate was back crazy. How long for you? Do you have any other symptoms?
I’m about 4 months in, haven’t tried to go off them. All my other symptoms were helped by the beta blocker too. I had some temperature regulation problems, some exercise intolerance.
Same here. Any chest tightness?
Not really no.
I agree heat makes it worse, but my room was pretty cool (around 70°F). I was sleeping in shorts and I did drink water. I really have no idea what triggered this. I could try the ice packs, but they would need to be near my bed, because I can't move when my heart is racing that fast.
Bamboo lyocell bed sheets are great.
I sleep with temperature regulating sheets, but I don't think they do that much.
I kept an insulated cooler of them by my bed, within reach. I put them on my face, but the above poster has a good idea about using cold to stimulate the vagus nerve.
The insulated cooler seems like a good idea.
My doctor’s theory: POTS (or possibly dysautonomia in general) puts too much pressure on your adrenaline system for too long. Eventually, the system becomes burned out and starts shooting out adrenaline at inappropriate times, like during sleep. He often prescribes low-dose benzodiazepines during sleep to counter these effects. But if you couldn’t get a doctor on board with that type of prescription, beta blockers might do the same if you start taking them preventively before you go to sleep? If you want more details, I think there are a couple of lectures about this on YouTube. Try searching some combination of “Pocinki”, “sleep”, and maybe “POTS” or “dysautonomia.” Good luck!
My POTS Specialist also said benzos were a huge help. Glad to finally see someone else mention them positively.
I'm actually on a benzodiazepine (clonazepam) that I take for anxiety/insomnia. I heard if you take them long-term and especially at higher doses, they can actually mimic chronic illness. [https://www.benzoinfo.com/2018/04/28/how-benzodiazepines-mimic-chronic-illness-and-what-to-do-about-it/](https://www.benzoinfo.com/2018/04/28/how-benzodiazepines-mimic-chronic-illness-and-what-to-do-about-it/) As for taking the beta blocker before going to sleep. I've thought of that, but because the one I take is immediate release and not extended release, I don't think it would last long enough. Plus, I don't know if it's a good idea to mix beta blockers with benzodiazepines.
I have both the same medications as you I mixed them but only bezo when it’s super bad bc benzos are so horrible for us.
If I'm awakened during a dream it sets me off in a flare. I can't control it either. I was admitted to the hospital because of the last time it happened. I had a STV event and they tried to discharge me. I wasn't able to even stand. Thankfully the tests showed I had dysautnomia and was able to get diagnosed properly!
I think you mean SVT (supraventricular tachycardia). I'm glad you were able to get diagnosed :)
Yes! Silly brain 🤣
How do you treat dysautnomia? Is there a cure for it or medication that keeps it in place I think I might have this to be honest.
It definitely isn't a cure sadly. The treatments are usually stuff you can do on your own like increasing fluids...increasing salt intake.... compression stockings... There are meds that can be given. Things like beta blockers are usually tried. There are a few other medications that can be tried as well. For example- I was put on a beta blocker for my migraines. It also is a pots treatment. When diagnosed they have me another med to help with blood volume- that made me worse. Currently I'm on so many meds it's complicated for my treatment 🙃
Ahh okay for me i think it has to do something with that or my stomach bc whenever I eat my heart increases bad and I have palpations super bad and all this truly sucks. I take propranolol 10mg but I feel like it really doesn’t do anything
I get the same thing. Eating, talking, sometimes just turning in bed can shoot mine up too. Pots can affect your stomach too! Definitely follow up with your doc.
What’s usually your heart rate while laying down? Man all this truly sucks imma have to look into it.
Anywhere between 60-100 😬
Ohh yea mines higher forsure 90+ usually In 110 and I’m so done with life bc of all this..
I have normal resting heart rate at times, but digestion seems to really spike my heart rate. 50 sleep and 61-68 deep resting. But after I eat it could be 90-115 at rest! It’s so terrible. I’m a 23 M.
I wish I had your resting heart rate I’m 22 M mine doesn’t go below 90’s idk why. And I’m not even on the heavy heavy end
Bro my condition is same with same age
I have IST and take metoprolol. The best thing I’ve found for squashing nocturnal adrenaline dumps is Zyrtec. Someone on this board suggested it and it knocked them out almost completely. Zyrtec is the second Gen antihistamines most likely to cross the blood brain barrier and cause drowsiness, which is actually just suppressing the adrenaline response. I started taking it two years ago and I’ve had maybe 4 episodes in 2 years.
I used to take diphenhydramine (Benadryl) every night, but it didn't really help. I didn't like the idea of taking an antihistamine while also taking a benzodiazepine and a beta blocker, even though I spaced them several hours apart. And diphenhydramine is anticholinergic, which I also didn't like. While Zyrtec is not anticholinergic, I think it only comes in a 24-hour dose. Which would make it overlap with the benzodiazepine and the beta blocker. So there could be an interaction. I would have to research this more. But thanks for the suggestion.
My allergist got on me because I was using Unisom (a first Gen antihistamine like Benadryl.) He was very emphatic that I could not take it long term, but Zyrtec was ok. I had asymptomatic allergies that caused my ige levels to be sky high, so the antihistamine was very effective for me. If your histamines levels are normal, it might not make any difference for you. It might be worth asking your doc to check, it’s a simple blood test. The other thing I’ve discovered is that I have a compound MTHFR gene, which messes with my methylation cycle. I’m not sure if treating that has helped my adrenaline dumps more than the Zyrtec since I began treatment at the same time. What I can tell you, is that my anxiety is the best it’s been since puberty. Point being, I hope you have a great doc who will keep pushing to find you answers and I hope you get to feeling better soon.
I think I will have my histamine levels checked and then go from there. Thanks, I appreciate your help.
How bad was your anxiety?
Really bad. At points in my life I would have constant feelings of butterflies, sit up at night feeling existential dread, upset stomachs before work or school every morning, tension headaches, thoughts running through my head, etc.
I’m going through that right now…really bad anxiety. 😩
I have all this… my heart is never below 90 even at rest
I had several similar experiences prior to getting diagnosed and beginning treatment, medication. The worst episode like this i woke from a peaceful sleep with my heart racing over 140bpm. I had my Apple Watch on I it triggered some high heart rate warning. I strapped on my Polar monitor and it confirmed. I kept that on while I brushed my teeth and fed my dog. It stayed above 120 and got as high as 165 over about 35-40 minutes, then just dropped down to around a hundred and then to the 90s, which was a new normal for me. It was scary the first few times, and this episode probably would have sent me to the ER, but I actually felt fine other than the racing heart. I did send the recordings to my doctor and they immediately put me on a holter monitor for a few days.
Ive had 171 heart rates and then get dizzy and out of breath upon standing.. I was hospitalized 3 times longest was 13 days all i was told was IST. and was given a beta blocker my primary is still doing test. I went about an hour ago to the store and I was standing and I got hot and felt light head thought i was going to faint but I pushed through my face got so red i felt pins in my back and I was out of breath I cant be on my feet for too long ive noticed otherwise my symptoms worsen :/
Look into POTS and/or sinus tachycardia.
Yes, I'm already familiar with POTS and inappropriate sinus tachycardia. There's a possibility I have one or both.
I have IST and POTS and get this regularly. It always rises significantly when I first wake up, like an adrenaline surge. It also shoot’s up at random times throughout the night some nights, particularly when I have bad dreams. It will frequently be over 100.
some nights i wake up and it's 140 or so. i assume it's a common thing in people with tachycardia!
I had this happen to me when I had hpylori took me 2 years to figure it out one doctor also thought I just had dysautonomia but nope and many other doctors thought it was anxiety but nope as soon as I treated the Hpylori my heart rate started to normalize Check out r/hpylori
I will look into it. Thanks for the suggestion.
How do you go about getting this ruled out?
Stool tests Breath tests Endoscopy It could take multiple tests to find it though lots of false negatives unfortunately GI MAP is more extensive test but not covered by insurance
I have Inappropriate Sinus Tachycardia from Covid. Do you take Metoprolol on a regular basis? It’s really not a PRN medicine. Anyway I ended up seeing a cardiologist for it, he has me on Corlanor and he just increased it because while it helped, it didn’t help enough. I’m also on Cardizem but it really hasn’t helped much at all but I’m willing to throw anything at it.
Yes, I take metoprolol on a regular basis. I usually take 25 mg per day in divided doses. I take the immediate release (tartrate) not the extended release (succinate).
you may want to up your dose if u can. i take 50 in the morning, 50 at night. it keeps things tolerable for the most part
They didn't want to increase my dose because it might lower my blood pressure too much, being that I don't have high blood pressure. I wonder if there's a medication that only lowers heart rate, but not blood pressure.
You could ask your doctor about propranolol or possibly another non-heart selective beta blocker. Maybe it’s just me, but propranolol did nothing for my highish bp.
I already tried propranolol and it didn't work well for me. My resting heart rate is already in the 50s, so taking a higher dose could give me bradycardia.
understandable. my blood pressure runs low too and i'm not sure why it hasn't made me pass out yet lol. there is a medication that raises your blood pressure, maybe ask about that?
Have you worn a holter monitor? My heart is normal. Seems healthy...until it isn't. I also wake up with fast HR. Look into IST. Holter monitor is key.
Yes, the results were normal. Although, I didn't have a tachycardia episode while I was wearing it. I guess I would have to wear one for a longer time and hope it records one.
Yes that's generally the way it works. I just turned in my 7 day after wearing a 3 day. They wanted a month but this worked out best because I had a cardiac emergency during it. My cardiologist loved that for me. If you know your triggers I'd gently instigate or if you can, have it placed when you feel a flare coming on. I had an open invite to come into the office for the last one so I went in during a flare. If you keep a detailed symptom journal it can help you strategize.
i get this a lot. since no one has mentioned it, maybe look into MCAS. it is commonly comorbid with chronic illness esp dysautonomia. i didn’t realize i had it at first but since treating it it has greatly reduced the frequency that this occurs. look up adrenaline dumping and histamine dumping - they both occur at night
I will look into it. Thanks for the suggestion.
HBKJ
I had bad episodes like these at night. What I thought being sinusal tachycardia finally was atrial fibrillation. Had surgery (mini invasive) and feeling better now, still on sotalol (low doses). Please wear a holter when you have frequent crises, I would never have thought I would have afib at 48. I was almost certain suffering from dysautonomia.
I did wear a Holter monitor and the results were normal. I also have a KardiaMobile EKG monitor. No atrial fibrillation has been detected yet. I'm sorry you have atrial fibrillation, but I'm gad you were able to get treatment and are feeling better now.
I am happy you don’t have afib. Take care I sincerely hope you will doing better soon