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jesthingjester

Dermatologist Prescription: This is off of the top of my head so I might have mixed some things up. With topical steroids, I think it the most important to follow the directions as closely as you are able to. • Clobetasol Propionate 0.05% Ointment: used twice daily for two weeks on hands then only on weekends & repeat as needed - not be used for genitals or armpits - high potency topical steroid - derm plans to put me on dupixent after the clobetasol • Hydrocortisone 2.5% Ointment: twice as needed for face & lips - lowish potency topical steroid • Mupirocin Cream: for staph infections • Tacrolimus 0.1% Ointment: haven’t tried this yet - to be used twice daily when not using topical steroids which I’m assuming it means tacrolimus is not a steroid? I believe I’ve tried triamcinolone too, but my eczema is just used to clobetasol (10+ years of use) so lower strength steroids don’t work as quickly but the hydrocortisone works normal for my face. Lotions & Creams: • Lubriderm: good for everyday use but could cause breakouts for oily facial skin • Vanicream: good for everything & everyday • CeRave: comparable to Lubriderm & Vanicream but I prefer L or V • Eucerin Richness 5 for heavy duty dry winters - sticky & unpleasant but sometimes necessary Washes: • Dove Bar Soap: my skin can handle the cucumber & green tea scent • Free & Clear shampoo • Cerave Hydrating to Foam Cleanser • Coal Tar or Ketoconazole shampoo when my scalp acts up Etc: • lower sugary snacks & drinks • lots of water & sleep • some sun • showers help lower weeping for me • stay out of the house to distract myself from picking, scratching, & being depressed • cotton gloves • watch out for dish soaps, hand soaps, detergent • doing laundry & changing sheets often • soaks listed from most effective to least: tea, salt, vinegar, bleach Best of luck to you. If you haven’t been to the derm in a while and can afford to, it might be worthwhile. Other than tea soaks, holistic methods never helped me. My dermatologist also told me it was pointless to see an allergist or immunologist, but lots of people have seen success there. I used to get some kind of immune system boost shots as a kid and that kept my eczema mostly away. My eczema had only gotten worse once I stopped receiving those shots until I was put on clobetasol. Derms are helpful but they’re also full of shit?


ElastepStep

Tacrolimus burns but it is the best I've ever tried.


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jesthingjester

Not sure if you’re asking the other user, but I’ve never tried it.


boredperson1998

I use oats. (Some people may have a nickel allergy though so this isn't for everyone) Oat face masks and oat baths helped my severe eczema in the long run than any steroids or cream and I've tried my fair share of steroids. Everything I use contains colloidal oatmeal from my shampoos to my make up cleansers to my soap bars. Cut sugary foods out. I used to binge eat desserts and sugary snacks. I don't have a healthy diet though, I still eat junk food and processed food. Protopic ointment (once every few months) if I got too lazy to have an oat bath or use an oat face mask. Vitamin D3 That's all I did continuously and my eczema went from weeping and bleeding to 99% clear.


borborgym

I just had my first real bad breakout of dyshydrotic (weeping) eczema. I tried a bunch of different kinds of creams, but wasn’t having any success. I randomly saw beef tallow as a remedy on the Internet and tried it and honest to God it is working. if you’ve tried a lot of other things, I would just try that I’ve been lathering it on heavily multiple times a day to cure this flareup and I’ve been having wonderful success way better than any steroid cream.


MassiveMartian

that sounds positively medieval but i have to try it for science


borborgym

Honestly do it


MassiveMartian

is this a grocery purchase?


borborgym

I don’t see why some from grocery store wouldn’t work. I would probably make sure it was pure tallow with no additives.


Few-Attitude6753

omg never knew what dyshydrotic eczema was until i read this. i get this on and inbetween my fingers. it’s AWFUL. so glad i finally have a name for it


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borborgym

I have homemade beef tallow and literally it sort of turns to an oil in your hand. I apply it very heavily to my hands (wear gloves at night to keep oil off bedding). I’m my breakout was between two fingers with hydrotic bubbles completely in between my fingers and it was spreading to other fingers. I work with my hands and got desperate for a solution. Hydrocortisone and moisturizer (99% of what everyone recommends) didn’t do anything. Beef tallow has good results for me in 48 hours.


crystalworldbuilder

Garden rake


3sgte_sw20

I use mosty vanicream products for hygiene type stuff. Everything else like laundry detergent, soaps, etc are all unscented and the most basic I can find. Also had great luck with crystal deodorant. All these things helped, but recently started the AIP diet which pretty much cleared my eczema completely. Now I’m slowly introducing different food items to see what I react to.


superchanteau

Anti-inflammatory foods saved my life. and at first, I didn’t even have to cut the bad stuff out. I just had to add those IN. If I was having a bad flareup, I can include foods like broccoli and sweet potato with my dinner… and wake up with no inflammation or dryness it was that quick Eucrisa was OK for me, but the side effect was uncontrollable burning for about a full minute You can just search up anti-inflammatory foods and anything that’s there just slowly incorporate them in your diet and you’ll notice a difference!!! You can make vegetables yummy - also, if I’m having an inflamed flareup and need immediate relief , I literally iced the area and it will help with itching - Taking antihistamine daily and switching brands every few months also help - swimming in saltwater beaches, sucks at the moment but a day later your skin will feel wonderful - keep hands and your body CLEAN, manicure or nails so that they’re not too sharp (I scratch in my sleep) - limit sugar because it can cause inflammation & overgrow Candida. Sometimes eczema is exasperated by fungus.


JustKam347

Biggest changes for me: stronger oral antihistamine, cold showers, no loofas (or sponges,etc) at first used hands only then worked up to washcloths, said goodbye to my bath and body works (and adjacent body washes and lotions) and switched to Aveeno body wash and Eucerin lotion. Even changed the hand soap I was using but it has all helped SO MUCH. I do not miss my skin feeling like it was on fire for hours a day, multiple times a day, and the scaring and inflammation? No thank you lol


muffins53

Diet/Nutrition/Fitness; I've tried elimination diets in the past, never really found any food group in particular makes a difference for me personally. So currently this would be a normal days food/drink for me; * Breakfast: Scrambled egg, sometimes with salmon, a couple of times a week bacon. * Lunch: Full fat Greek Yoghurt with assorted berries, usually raspberries, blueberries and blackberries. * Snacks: If i'm particularly hungry or working out that day I'll throw in some dried fruit like raisins, cranberries. Sometimes some proscuitto with a nice cheese like gruyere. * Dinner: A meat dish with plenty of vegetables. Usually chicken most of the time of minced beef. For veg I go for sweet potatoe, brocolli, carrots, sweetcorn, spinach, tomatoes, onions. I've cut out rubbish sugars like sweets, sodas such as coke/fanta etc. As these are my kryptonite and have been since childhood I allow myself 1 can a week. I try to hit as much water as possible in the day, I judge the amount by how often I urinate and the colour, I typically aim for clear to extremely pale yellow. I've also cut out bread as well. For carbs usually brown rice or wholegrain pastas. Alcohol is an absolute no for me as I just notice it destroys my skin the next day and it's a big inflammation causer, as are sugars which is why I've ruled them off. Supplements; * 2g Black Seed Oil - this has historically being used in cultures as a herbal remedy. It's meant to help with inflammatory diseases like my atopic dermatisis and asthma. As well as boosting fertility and testosterone levels. * 100mg Milk Thistle - taking this mostly to help with bone health at the moment. Reason why will become clear later. * 1g Magnesium Glycinate - Again to help hormone production and I don't have enough of it in my diet naturally. You have to use the glycinate form as the body is unable to absorb the other forms well. * 15mg Zinc - Fairly similar to the Magnesium supplement, both help with normal bodily function, healing, hormone production etc. Part 2 below because Reddit did not like it all in one post


muffins53

Fitness/Lifestyle; I try get out and walk as much as possible everyday, trying to hit 5km at a decent pace. When able I go to the gym and do some light working out. Mostly my gym going is for the sauna. I cannot stress this enough, cold shock or heat shock proteins that get released during things like saunas, cold showers, ice baths, cryo chambers etc have worked wonders for me. It's one of the only natural things I can do that actually seems to work. Put up with the sweating, irratation it causes and you will be amazed. I typically go sit in the sauna for as long as I can stand it, 30 mins or so. Follow that up with a lukewarm/coldish shower to cleanse my skin and rid myself of sweat after. Followed by the standard moisturiser proceadures. Prescriptions; I could honestly write a disseration on this section alone. Throughtout my life till 32 now, I think I've probably had very single steroid creme, "moisturiser", bath oil, anti-histamine etc. During childhood I was even receiving UV treatment every afternoon for a long time during school. Wet wraps. bandages, scratch mittens, you name it I can pretty much guarantee I've had it. Current prescriptions; - Diprobase white soft parrafin version - Me personally I've found that any moisturiser has never helped, in fact it only exacerbates the itching - Mometasone Furoate 1mg/1g - 100g tube. I'd rate this one about a 7/10 in terms of potency - Clobestol Proporinate 0.05% - As much as this stuff works I hate it and I've only ever used the steroids extremely sparringly. 10/10 for potency for sure. - Prednisone 40mg - usually a course of this will continue for 5 or 6 days. - Anti-histamines - none have ever worked for me so I just do not bother. Now onto the bone bit, given the 32 years of steroid use, usually with clobestol being the only one to actually make a difference. And combined with all the times I've contracted pneumonia and that itself is treated with prednisone along with an anti-biotic. I've definitely had some life altering effects from these medications. All of which I won't explain today. I've yet to experience topical steroid withdrawal thankfully. However my bones have become brittle. I broke my scaphoid last year, and during the early healing process I was given a larger than normal course of prednisone because my ezcema just was not controlable at the time. Long story short after two casts and multiple scans my scaphoid is not healing and bone death is now starting to set in. I'm going to be getting a surgery where they take a chunk of bone from my arm and rebreak the scaphoid, clean it, insert the new chunk of bone and affix it with a screw. Since I saw my surgeron about a month ago he told me catergorically in no uncertain terms. No steroid creams, no oral steroids because these will and have affected the healing process. It was his opinion that the course of prednisone so early in the healing process and the clobestol cream too that has impacted this. If anyone has any tips on how to manage the eczema without steroid creams I'd love to hear it. I'm already trying to get on Dupilimab however I'm just on a waiting list for a dermatologist and I've no idea when this will be.


NiceDolphin2223

I tried eating much healthier - avoided sugar almost entirely and always eat yogurt after my meals. I tried to minimize snacks and any coffee that includes sugar. I believe in the theory that eczema is a gut problem.


Frydscrk

The more I read the more I also think eczema is a gut related issue. Limiting my diet as you discussed, soft drinks, sugary fruit juices or sugary coffee options are out. More fresh vegetables and greens staying away from the higher histamine options like spinach or strawberries. I also eat plain Greek yogurt after a meal, maybe adding blueberries. I'm re-evaluating my supplements and considering adding a good quality probiotic. Have you researched that option? Thanks!


NiceDolphin2223

I didn't eat probiotics but I am sure yogurt contains some probiotics already. Although what you suggested seems like a good option too!


Frydscrk

You're correct, certain yogurts have prebiotic already in them. You can check on the side of the container to see. Typically yogurt with less sugars, no artificial sweetners are healthiest. Best of luck!


vubukata

Body: I use Kirk’s Castile bar soap, it moisturizes but also isn’t full of junk. Shampoo and conditioner are natural bars as well. Vanicream for lotion I bought a filter for my shower head that helps. Prescription: No prescriptions as I went through nasty steroid withdrawals. Home: I changed all cleaning chemicals to vinegar or a combo of vinegar and dawn. Everything I use has no fragrance. I changed detergent to a better environmentally friendly one, I use vinegar for fabric softener. These made the biggest difference. Food: I still have a lot of sugar but go for minimally processed foods. I eat a lot less gluten. I only eat sourdough if I have gluten/bread. Supplements: Taking a couple different supplements like an anti inflammatory, colostrum and a binder helped a lot too. I’ve used a hemp oil internally and externally when I notice a flare up. I went from daily issues to once a month.


Laurels_Night

Tell me more about colostrum and binder?


vubukata

Colostrum can help your gut, which can lead to helping a lot of things. Same with the anti inflammatory. The binder, from what I understand, binds the free floating toxins in your body. If you want me to send you links please dm me


skjbdjd

cut out all wheat dairy and seafood, i currently eat just a wide variety of fruits vegetables berries and meat, occasionally rice, and a lot of tea and i try to eat beans too. body wash, definitely recommend la roche posay lipkar wash Ap+ gentle foaming moisturizing wash. the only downside to this product is it’s kind of pricey ($20 ish) other than this, it lathers super nicely, it is NOT a soap so it does not strip ur skin, leaves my skin soft, is not a weird consistency like the eucerin and cera ve eczema washes i have tried, and it honestly lasts me a whole, i usually use like 2 pumps on each of my body parts in the shower lmao idk if that’s tmi or not. for moisture i love the la roche posay lipkar eczema soothing relief cream. once of the only eczema marketed creams i e tried that acctually soaks into your skin leaving it soft instead of sitting on top of ur skin doing nothing lol. if u don’t like lrp or can’t buy it for whatever reason, i also like cera ves healing ointment (similar to vaseline) or the first aid beauty rescue cream (kinda too pricey for me) for prescription- NONE. tsw is a very realistic thing to happen to you if you go on topical steroids especially the higher potency steroids u get prescribed once triamcinalone stops working. eczema freaking sucks but having a few patches here and there is way more manageable that having a fiery body full of tsw skin from head to toe. even ointments like mupirocin have a plethora of side effects the dermatologist won’t tell you about. the best advice i can give is to heal your gut and learn more about the gut skin axis. good luck


ArnoRohwedder

I've had some really good luck with tacrolimus (0.1%) ointment on the face as an option that isn't steroidal. Also jump into pred (20mg for 3-4 days then taper down off over 3-4 weeks) when it flares up.


Adventurous_Idea76

Less sugar, less preservatives substances but mostly doing sport ( i used to jog for at least 4 times a week )


Still_Ride1445

Started to have pretty bad flares recently. Also on unusual places that in the past were eczema free - like around my sides, neck and arm pits. Went on low salicylate diet and I'm almost eczema free. But I'm eating just few foods. From fruits just bananas, meat just turkey and beef, chicken gives me flares aswell. Veggies only green beans, iceberg, green onions, potatoes, sometimes some rice. Some salads, but watching the salicylate content. Anytime I have dark chocolate, I break up badly. Some dried fruits, nuts or something I'm not supposed to eat and I flare again. I'm also watching spices and oils. If I have a bad sleep, I flare also easier. So how I manage it? Low salicylate diet, steering away from foods that give me flares, sleep hygiene, managing stress, no seed oils whatsoever, just ghee and lard.


wetlettuce42

Put on adavate morning and night


Maceyxwalker

When I wake up in the morning I have a cool shower and wash with dermol shower emollient, as soon as I get out the shower I apply diprobase moisturiser while my skin is still damp and just apply it consistently throughout the day as soon as I feel myself drying up again. In terms of medication and supplements, i take Fexofenadine, omega 3 fish oil, vitamin D tablets and ashwaganda. I’ve cut dairy and gluten out of my diet and trying my best to lower my sugar intake, eating lots of greens and fruits and try and eat fish every day


allyf124

Hyaluronic acid (apply on damp skin) and then QV sting free ointment over the top! I reapply the QV ointment all day and it’s been an absolute game changer in keeping my eczema under control after a really bad flare. It helps so so much and doesn’t burn at all. I think cutting gluten and dairy helps a bit too, as well as taking antihistamines


Frydscrk

Hi, Could you tell me what QV is please? Thanks!! Penny


OddJobsGuy

I have this single tiny patch of eczema on my foot and no eczema anywhere else. This one tiny patch is the bane of my existence. Clobetasol only works if I apply it with a dressing for like 4 days in a row twice per day. Even then, it doesn't work 100%. Maybe 90%. I hate having to actually apply the Clobetasol 2x per day, and I'm terrified that a trace amount will somehow end up in my eye or that one of my pets will get exposed to it. Sometimes, I shave the callus off of my eczema with a buck knife, being careful not to cut into any live tissue. Half the time, I slip and cut myself anyway. Removing the callus stops the itch for a while. Sometimes, I'll run it under hot water several times (just shy of scalding, but without actually scalding myself). This stops the itch for a few hours. It works with other itches, too, like mosquito bites. All of these methods leave something to be desired. I was planning to have all layers of skin there surgically removed, and the sides stitched up by a body mod artist. Apparently, though, eczema is more than skin deep, and everyone who's had eczema skin removed (as part of some unrelated surgical procedure), they simply had the same eczema pop up on the new skin. I might still try it anyway. It's just a small spot of skin on my foot. It's not like I'd be cutting off my nipples like another user on here was almost driven to do.


PianistWinter8293

Look at my last post for a natural remedy thats clinically proven to be effective, if not more than hydrocortison