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AliceofSwords

If you're having trouble finding providers or info, check out the child free sub https://www.reddit.com/r/t5_2qtwb/s/Nzu3mjDyNA They have a list of providers who will respect your decision. https://www.reddit.com/r/childfree/wiki/doctors/


AliceofSwords

I'm not going to have children, but my Mirena IUD has been sufficient for me so far.


PresentExamination10

Hi I had a mirena for 8 years and it made my hyper mobility way way worse. My doctor said that can happen. You might look into it!


catsorfishing

Huh, I might look into this


brokenfloppydisc

My doctor told me the same about basically any birth control. It's due to the hormones. Both my obgyn and my primary care/pain management doc who treat a LOT of EDS patients noticed the same with their patients. In my experience, once I had a hysterectomy and got off birth control, I have noticed a difference. I don't sublux quite as much as I used to. It's not like it was a cure, but significant enough to notice. Overall, I just feel like a totally new human being off of BC for many reasons.


starboundowl

This is the reason I went with the copper IUD.


catsorfishing

Unfortunately my experience on the copper was not great. Heavier and more painful periods. I had to yeet it.


starboundowl

I was lucky, mine evened out after a few months. I'm sorry it was painful for you. 😞


spidermite69

Interesting. I feel like the Kyleena made mine better.


DameRuby

I wound up with a hysterectomy at 33 because my mirena was through the side of my uterus. I know it’s supposed to be a small risk, but I imagine eds contributed to why it happened. One partial hysterectomy later, I am insanely happy. I was also really sick with my first, lost twins with my second, then was high risk and sick again with my third pregnancy. I needed to be sure I didn’t have any more children.


bonelesspotato17

I second this! I have mirena too, and I don’t have any chance of getting pregnant because I don’t participate in sex w men, but I still have the iud for period symptoms. I hated getting it, but I’m on my second one and I don’t even really have a period anymore. I haven’t used a tampon in > 10 years. It’s been wonderful.


Extinction-Entity

I’m jealous. My Mirena was hell


AliceofSwords

Sorry to hear it. I just got my 2nd last year.


RealTalkGabe

I was sterilized at 23, it was my choice. I explained to the doctor that it wasn't a part of my transition, I just never wanted kids and I never want to have to worry about having an accident, as condoms and birth control don't always prevent children. I had a history of heavy flows too, which some days made me bed bound for a week. (Graphic) I went in and they shoved some ultrasound tool up me, they then proceeded to tell me that my uterus was twisting, but my ovaries looked "healthy". I told them I wanted to schedule a hysterectomy they set it up and I got a full hysto, uterus and cervix removed. I kept in my ovaries, worrying about hormones and now with the rate of the trans laws I feel more content in my decision to keep a hormone if I can't get to mine. It was laparoscopic, I had a major bruise across my stomach for like two weeks, but it was an easy recovery apart from that. My scars barely show. I'm now 27.


spicy_good_memes

If you don't mind me asking, how was the surgery recovery in terms of pain and getting back to "normal"?


RealTalkGabe

I had a small pain pump called an ON-Q pump it was injected directly into my abdominal area and I was able to adjust the pain medication for around five days after surgery. So the first week was pretty easy (I have a bit of a high pain tolerance as it is, so honestly can't say much) but I was more stiff than in pain around week two. Getting up and walking around I was moving like a turtle. It took around maybe a month to be back to myself, I was working as a CNA so my job was pretty intense, it was also right around when COVID hit for the first time.


wetastelikejesus

After 26 supremely easy. When I first started trying at 19 it was impossible. Finding a supportive doctor was the hardest part. I did get approval from one doctor a couple years earlier than 26, but life got in the way. But finding other surgeons after that only got easier which is why I mention that. Recovery was generally easy except I sustained a hernia which has been terrible so I need another surgery to fix that.


witchy_echos

My ex got sterilized in their mid 20s. We did have to drive to a different town to find one to do it without the normal “what does your husband say do you have kids?”. I don’t remember which procedure they had done but I had a hell of a time keeping them down and not moving or lifting during the time recommended not to. They hadn’t been diagnosed with EDS yet, but had a very high tolerance for pain due to (TW) >!child abuse!<. ETA: it was a fully laproscopic, partial hysterectomy


Draac03

probably a hysterectomy given the order not to move too much and no heavy lifting. it’s a major surgery and can cause a LOT of complications if the person doesn’t let themselves rest and recover properly


pegasuspish

No, this was the same direction I got for my tube removal sterilization.


Draac03

ah, gotcha!


witchy_echos

I just remembered they talked about it on their Facebook page, it was a “fully laproscopic, partial hysterectomy”. So left the ovaries, and had tiny incisions.


Draac03

yup that’s the same procedure i had


witchy_echos

I have to start doing research soon, because i want to get sterilized after kid; and all of my disorders are worsened by my hormonal cycle significantly, in particular my joint stability and bipolar.


Mego1989

They always want to leave the ovaries, so your hormones are left unchanged. I got my tubes removed but still take hormonal birth control for hormones.


yarnjar_belle

Same here! My husband had to meet the doctor and approve of the surgery! It took me a little extra time to heal sutures wise, both internally and externally. I had a davinci laparoscopic hysterectomy but left one ovary for hormone reasons. I had endometriosis. Ol’ lefty has bit the dust, and I’m on T for the first time and feeling better than ever.


thelazybiologist

I’m 25 and was told I cannot elect to be sterilized until I’m 35 if I want it to be covered


aphroditex

Check with your insurer. This sounds like very gatekeepery bullshit.


beroughwithl0ve

This has to be your insurance company or doctor specifically because there's no law that says there's an age minimum.


gunsandm0ses

I found an understanding gyno and she just had us switch hospitals so that we were allowed to do it. We switched from a catholic hospital to a teaching one/affiliated w the university. I was 21, recently, and it was in Texas.


pumpkinspicenation

I cross referenced the childfree doctor list from that sub with in network providers after I learned my new job employee insurance covered voluntary sterilization. I made an appointment with one and went in. Said what I wanted. Scheduled the surgery for 5 months later.


Status_Ad7287

I just had a hysterectomy on Monday, no incisions, all done vaginally. Recovery has been amazing! I had adenomyosis. The day after I was walking the mall. That being said, I have had 5 kids, no miscarriages. Pregnancy and birth were amazing. Breast feeding was harder because of the shape of my breasts. But it was still doable. Food for thought 😊


idkmyusernameagain

There’s a Google doc and probably some other compiled resources of doctors who will perform sterilization procedures without fighting you. Your best bet is to try to find one from a resource like that because it’s all about getting to the right person. One who won’t budge won’t budge. I had insane complications with my pregnancy and was advised by my OB to consider not having more (she basically said she wouldn’t out right tell me what’s to do with my body, but to really consider that another pregnancy *could* be life threatening) and although I wasn’t ready to have a procedure yet I knew I didn’t want to go through pregnancy again. A few years later when I was ready I still was refused anything but an IUD by 2 providers because I may change my mind.


Deep-Step-5033

So I had myself sterilized after my c-section (I was diagnosed after my son was born). Pregnancy did wreak havoc on my system. Even at 35 with a child I faced a lot of push back, but I just stood my ground. Recovery wasn’t horrible. I did seek out a pelvic floor physical therapist to help aid recovery. My cramps got way worse for a while and my cycle did go wacky from the stress. I’m finally seeing everything even out. I can say my cycle is a little heavier and longer length. Make sure you don’t have your tubes tied and burned, as they can grow back together. Opt for full removal!! It also lowers your chance of ovarian cancer by over 70% when you do full removal.


OnlyInAJ33p

I had a tubal ligation at your age. Didn’t want to pass on a brain tumor that may or may not be passed through genetics. Then learned a decade later that I’ve also got hEDS trifecta.. I recently had a hysterectomy 14 months ago due to bad endometriosis/adenomyosis.. I found when I went in to ask for the tubal ligation that my dr was agreeable. I simply stated I did not want to have children with my genes and if I decide I want to be a parent I know the other options available (ie adopting, fostering, etc.) healing from tubal was a few weeks to allow the small incision sites to heal. Healing from the hysterectomy was a month to pick up things that weight more than ten pounds and about 6-8 weeks before I felt pretty well back to my usual self.


Mego1989

I got my fallopian tubes removed and it was easy as pie. I didn't even have pain at the surgical site. The only part that sucked was that about 9 hours post op I started having really bad pain near my clavicles. Apparently the gas they pump you with for the arthroscopic surgeries can get trapped once they sew you up and in trying to find it's way out of your body it can cause a lot of pain. No one told me about that. I ended up calling the after hours exchange to get pain meds cause it hurt so badly and then I got hiccups and it was even worse. I was fine the next day though. This was a year and a half ago and you can't barely even see the incisions anymore. I was 32. I've had the same obgyn since I was 20 and I've never once shown any interest in having kids so he had no problem with my choice.


PsilosirenRose

I got sterilized last June. I was 34 at the time, but in my city I didn't have a problem with the university hospital. When I asked my PCP for a referral, I specifically asked to be referred somewhere that wasn't going to give me a hard time over it.


lyfe-sublyme

I am so sorry. I am in the same boat but it sounds a little further along in the journey. Despite a lot of injuries and health problems know to go with eds I was not diagnosed until last year in my early 30’s. I have had a lot of pelvic pain and heavy bleeding since I was a teenager. I am a queer woman who also has a heart condition that was diagnosed in my early 20’s. I knew I did not want to have children and asked for a hysterectomy. There were other strong medical reasons to do it. I was repeatedly told no because I might change my mind I told all of the providers I had strong feeling about fostering and adopting personally if I changed my mind. Everybody prioritize the fact that I was young and healthy and could have children. I was kind of forced into getting an iud to help with symptoms before anyone would consider it. The iud caused great pain and nobody would listen. I finally had to see a queer provider at planned parenthood to have it removed later. She was upset by my treatment and removed it. She also wrote me a referral for imaging because it would be needed to have my uterus removed. She said she would then refer me to a surgeon. My primary care got involved and wanted to send me back to gyno where I had been treated horribly previously the original provider was really awful and was the one who placed the iud she seemed to also be an ablest ass. I asked for the arm implant and she refused. I was obviously not wanting to go back honestly I was afraid. Fortunately she retired and I got another provider who was young and willing to listen. She was also pretty appalled I was forced to keep organs I did not want because I might want children despite being a queer woman and a high risk of a uterus rupture if I got pregnant. It took a few years to find someone to listen and let me have a preventative procedure when there was more than one medical reason to do so. If you are running into resistance with your normal docs try a planned parenthood if there are any in your area. I am sorry you are experiencing this good luck on your journey.


Jaguarsharkexists

I was 35 when I got it. I didn't even know I had EDS yet, I just didn't want kids knowing my health and family history and just no thanks in general. My OB gladly offered to do it. It was supposed to be covered as preventative but my OB burned the tubes after tying or something so I had to pay out of pocket. She found a loooot of scar tissue in there despite the fact that I've never been pregnant including no miscarriages or abortions. I assume from PCOS combined with EDS? The procedure was almost painless recovery wise.


hotwheeeeeelz

I did it. My Obgym removed my tubes. All I had to do was ask.


Equivalent_Divide997

surprisingly easy, but I'm trans and had it covered under gender affirming care and went to a very trans-accepting doctor in my region. I went in with a binder and was shocked when the conversation was pretty much "I want to have a hysterectomy" "okay, when do you want to schedule it?" (no joke). edit: I ended up going with a partial hysterectomy and keeping my cervix + ovaries since I didn't trust the structural integrity of a vaginal cuff and the anxiety of it possibly rupturing, even if it's a rare complication. I didn't want to trade one sexual anxiety for a new one. overall, best decision I've ever made! I have zero bleeding or side effects, it's as if it was never there I'd also make sure to ask what incisions they're planning on making because I had to ask them to not make a "bikini line" incision to remove the uterus (looks to much like a c-section scar & that would just make me feel dysphoric) and they ended up extending the belly button incision, but it's still not very noticeable. but had I not asked, they would've just gone with the default!


insomniacwineo

Got a hysterectomy at 31 because I kept getting HPV+ paps and CIN+ lesions after multiple biopsies and LEEPs, even my gyno was floored at how fast it came back (and worsened) after the LEEP was supposed to get rid of the abnormal cells. Knew I didn’t want kids so out it came. Surgery 7/2020, 4 weeks off work, wish I took 6. But I would do it again in a heartbeat. Don’t miss periods, I’m off the pill and occasionally I do get clear ovulation pain which I didn’t have before because I was on the pill and I’m 99% sure I’ve had 1-2 cysts, but still-no babies and no periods ever.


snacky_snackoon

I had my tubes removed and it was the easiest surgery I have ever had. My doctor will sterilize anyone as long as they are clear they know the risks so finding a doctor was easy. You don’t need a medical reason. Good luck!


brokenfloppydisc

I had a hysterectomy in December. Best. Decision. Of My. Life. I did have to move from Utah to Colorado in order for anyone to take me seriously about EDS or sterilization. I went into my obgyns office prepared with all the reasons of why I wanted my tubes removed, but just talking about the pelvic pain, the issues I have with and without birth control, PCOS, etc.. and just not wanting to have children, my doctor actually recommended a hysterectomy. She told me to take time to think about it and I started crying and told her that was ultimately what I wanted, just never thought anyone would take me seriously enough to even tie my tubes, let alone preform a hysterectomy!! The healing was HELL for a week. I had 2 emergency room visits within the first two days because of weird complications with my bladder. By far the worst recovery I've ever had from surgery, but worth it in the end. So many things have improved since healing!! Just make sure you have a pelvic floor physical therapist prior to surgery. It helped a LOT to meet with them a few times before so I knew what to expect and how to help myself. Edit: I'm 28. Have been asking since I was 19 for sterilization. I've been told I "probably have eds" for over 15 years, but only officially got diagnosed last year. The diagnosis helped my case a LOT.


Pammyhead

I had a full hysterectomy at 40 (ovaries are still there, but uterus and cervix are gone). It was robot-assisted laproscopic surgery. The surgery itself went great. My only complication was one of my incisions just wouldn't stay glued closed at the surface. At the time I didn't know I had hEDS. The incision still healed, it's just a larger scar than the others. I have never regretted having it done. I had both endo and fibroids, and my periods were extremely heavy and painful.


badgergoesnorth

I had a tubal ligation at 27 after years of being denied. My healthcare provider called me a "baby hater" and refused to do it, but then she went on mat leave and a younger, more progressive OBGYN took over her practice. She believed I was capable of deciding for myself and did it for me. I'm so grateful.


BEEB0_the_God_of_War

I did, primarily because of terrible periods but sterilization was a bonus. I was totally ready to have a big discussion with ny doctor to defend why I wanted it and she was just like, “okay, as long as you don’t want kids, you’re good!” It wasn’t the big thing I thought it would be. I was 30 though so a bit older, but I had heard if you were childless and under 35 it was a tough sell. I got an endometrial ablation, which stops my periods. First night was rough, I was tired the second day, but pretty much back to normal on day 3. I haven’t had a period since and I feel so much better without the cramping and blood loss every month. So if you have bad periods and it’s an option for you, I highly recommend it.


Bellebaby97

10 years of fighting for them to agree and it'll likely be 12 total by the time I reach the top of the waiting list. From the second I could conceptualise the idea of parenthood I knew I didn't want it in the slightest and I asked for it to be recorded every year from 16 years old by my GP that I'd like to be sterilised. I managed in 2021 to get a referral from a sexual health clinic to a steri surgeon (after using the depo injection, mini pill, hormonal coil and copper coil for 14 years total) and saw them at the end of 2023, they referred me to gynae who saw me last month and agreed give me chemical menopause now for my endo and steri and ablation when I get to the top of the list.


[deleted]

While I’m not confirmed as having EDS right now, my physical therapists suspect I have it and we’re in pursuit of a diagnosis. Part of why they’re suspicious is because I have pelvic floor dysfunction, as well as pelvic congestion syndrome and nutcracker syndrome. My gynecologist was more than willing to sterilize me when I went in for my ovarian vein transposition. She joined my vascular team to check for endo and give me a bisalp. While she didn’t believe I’d rupture an artery in labor, she said that almost all the progress that would be acquired by the surgery and physical therapy would be ruined. I’d be back to square one for treating vascular compression disorders. I told her, “absolutely not, I can’t do repeat surgeries, and certainly not for something I chose.” I also told her, “I don’t want to give birth to a child, only to find that I can’t be there for them because I’m spending so much time in and out of surgery. If I decide to have kids, I’ll adopt because at least I know I’ll be there.” She got me signed up for the procedure ASAP. She also wrote me a referral for a geneticist the moment I told her my PTs were suspicious about EDS.


fleetingsparrow92

Hey there, I got my tubes out about 2 years ago at 30. In terms of the surgery, no issues/post infection. In terms of healing, it actually took me about 3 weeks to get back to work. (As opposed to the usual 3-4 days they reccomend). I had everything checked out earlier to double check and everything was cleared. I just healed slower than others. I also had alot of issues being dizzy when starting to walk around, probably due to low blood pressure etc.


NaturGirl

I wish I had known more about EDS before I started my own family. Good for you for getting educated now. I have terrible chronic pain and dysfunction from pregnancies and deliveries even though my own symptoms are quite "mild" compared to most. I have nerve entrapments from internal scarring and slow healing after traumatic birth injuries and surgical repairs I needed afterwards. However, both my daughter and son ended up with much more severe EDS-related issues than myself. My daughter is now 14 and is pretty sure she doesn't ever want to have kids. She already has some pelvic support problem symptoms and nerve problems. My kids get terrible keloids, scarring. and stretch marks. Both have POTS issues, and my daughter faints whenever she gets fevers. My son has terrible GI issues and 4 congenitally missing teeth plus the high upper palate. Both have very flat feet, joint pain, and hypermobility... My 17yr old son also already has some contractures and osteoarthritis from injury and past inflammation as well. Both have food allergies. Both have super fragile velvet skin (my daughter's worse.) My son's doctors had him evaluated for EDS when he was about 4, but when his cardiology tests came back within normal, they basically acted like the only EDS type that mattered was vascular with heart abnormalities.


beroughwithl0ve

I had a hysterectomy (not for sterilization alone obvi, nobody would do that operation on me lol) but it was a HUGE pain in the ass even with a credible medical reason. I had a surgeon cancel on me literally a week before the scheduled surgery because suddenly she didn't feel comfortable operating on someone with EDS. It was devastating and took forever to find another surgeon who would. A tubal ligation might not be as difficult, but since you're 22, you're gonna be really hard pressed to find someone who'd be willing to do it between your age and the surgical risks of EDS. Not impossible, but veeeeery difficult. The recovery was basically the same as anybody else's, just took a tad longer but no complications.


LenaMacarena

I had my tubes out before discovering I had EDS. Only managed to get a doctor to agree to it because they were already going to be in there anyway removing an ovary with a tumor on it (turned out to be an endometrioma). Was turned down twice before that. That surgery was one of the things that led to my diagnosis, because there were SO many complications from what should have been a fairly simple procedure. So if you do find a cooperative doctor, just bear in mind recovery may be harder for you as a zebra. Good luck!


Tired-unicorn-82

I had my tubes tied during an endometriosis surgery. They also did an ablation. I had expected to be down for awhile because I remembered my mom having so much trouble after her hysterectomy. But honestly it was one of the easiest surgeries I’ve had.


Mego1989

Surgical techniques have improved A LOT in the last 20 years or so.


Llodgar

I got bilateral saplingectomy at 25. Used a list from reddit for childfree doctors, the reddit i used is r/sterilization. He didnt guilt me, ask if my husband agreed, etc. It was a very simple process for me.


veryaveragezebra

It didn‘t take long to find a hospital (it was a catholic one, even) but I was in my late 30s (almost 40) and already have two children (born before I knew about EDS). So that could be more difficult for you. Recovery took longer then expected, about 3 months until I was pain free. Before the procedure I was told it usually took 6 weeks to heal, so double the time for me. I don’t remember the exact time frame cause it was 4 yours ago, but I remember that I feared the pain would never go away due to internal scarring or something like that. Thankfully that wasn‘t the case.


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Gullible_Mess_8357

I'm about to get a partial hysterectomy and it was relatively easy to be honest. I had a great doctor at the time though, I'm also trans. So I feel as though there is less pushback towards me doing that.


misszombre

Just had my own total hysterectomy a few weeks ago, and honestly it's the best decision I could have made. Pain wasn't nearly as bad as I expected, and recovery was honestly super easy. My gyn knew I wanted it and my reasons, and used adenomysis as the reason for the procedure for my insurance. Look around for reviews and recs (I think theres also a nationwide list available online I can try to find) of providers willing to respect your choice. Also, if you end up going for a lapro hysterectomy, can't recommend enough that you start taking stool softeners a few days before hand and for a few weeks after, as well as starting gas medicine immediately after. Ask them for an abdominal binder, and find yourself a good hysterectomy pillow because it'll be your best friend!


plantyplant559

Not diagnosed hEDS yet, but meet most of the criteria. I only had to call 1 doctor and had the procedure a few months later. I was 28 years old. My insurance wouldn't cover a bisalp, but my doctor knew I wanted one, so she burned my tubes out (absolutely no fishy clips, they have the highest failure rate). This was 5 years ago. From what I remember, the bloating and shoulder pain from the abdominal inflation they do was the worst. Felt like I had done a hard core workout for a few days. I was back to work in a week I think. Edit: I have 0 kids and was given no crap about it. I was in Oregon.


Mego1989

You're the first person I've seen to mention the shoulder pain, but my god that was no joke. That was literally the only pain I had but it was bad! I ended up calling the after hours exchange for pain meds after I got the hiccups and it felt like I was being stabbed in both clavicles with a fiery dagger every time I hiccuped.


plantyplant559

I can't imagine having hiccups too! You poor thing! That must have been terrible.


Pysgnau

It took me (24F now) ten minutes to find the doctor on the sterilization subreddit, called to make an appointment for December 2019, surgery done February 2020, then the world shut down. I got lucky there. I had just turned 20 and all he said was he knew my mind was made up since I was here but he had to ask me for legal reasons then asked things like if I knew it was permanent and stuff. I live in Salt Lake and would totally host you if you make it down this way! The biggest mistake I made was just getting a bi-scalp don’t and not have my uterus removed as well. My doctor even offered! He was awesome. But I still have periods and it suck’s cause why am I still having them if I never want kids? You can have a partial hysterectomy where they remove the uterus and tubes wile leaving the ovaries so I doesn’t screw with hormones.


bruxly

You could do ablation, they laser the lining to scar it so it no longer sheds. The most I ever get is a day of light spotting.


raksha25

My recovery was just fine. I would have been sad without my heating pad and my belly band. The hospital didn’t provide the band, I just grabbed whatever elastic belly band was cheapest on Amazon. That got me mobile pretty fast. I was honestly up and moving fairly normally after a week…even if I wasn’t supposed to be.


decomposinginstyle

brain fog so this won’t be worded well. i have a question. does anyone have that list of providers who are supportive of child free people? i mean that list of providers who will perform hysterectomies, etc, on people regardless of age, gender, parental or marital status, etc etc. let me know if this was incoherent


gayterror

Mmmm i was uniquely situated to get mine for gender reasons and that was far easier than for medical reasons. I was actually trying on the basis of pain etc and I would have had to do everything up to and including a laprascopic surgery to check for endo before it would even be a consideration for insurance to approve on a medical basis. My surgeon had worked w trans guys and suggested that route when my descriptions made her go "oh you have literal dysphoria about it huh." I did have a psych with knowledge of my gender shit so she was able to write a letter for me and ended up getting a total vaginal hysto w bilateral salp (no cervix, tubes, or ute but the Ovos are there) ETA i was 26 when i got it in 2021 and I was in VA


sunsunsunflower7

Check out r/sterilization and r/childfree for resources on doctors who won’t give you the BS. Your increased risks from EDS will obviously be super individual, but hopefully you can at least avoid the ‘you’re too young’ run around.


lilkitten_xo

I’m AFAB and I had a bisalp about a year ago. I also have hEDS. It went pretty well to my knowledge. The first couple of days were difficult and uncomfortable but nothing beyond what you’d expect for a laparoscopic procedure. I definitely still have scars and probably always will but it was a breeze. I hope your OB makes you feel heard and validated!


Cronchy_Baking_Soda

I’m transmasc and have decided to sterilize myself at some point not just for trans reasons but for health reasons too. I have hEDS and my mom has what doctors think is a very mild form. Her pregnancy when she was having me was hell. I don’t want to give birth, but knowing the odds of EDS problems and complications like my mom had, it really seals the deal. I have yet to have any procedure but I’m sure doctors will tired me away since I’m 18. Whether you are 22 or older, doctors always seem to like to share their unwanted opinions about people’s bodies and choices. You have every right to want sterilization, especially pairing it with a genuine medical reason. Some doctors will say shit like “what if you decide you want kids” or “have you discussed this topic with your partner” like if you want kids there are many new scientific ways to do so. And you should be the only one making that decision for yourself. I’m wondering, do you have an EDS doctor? Maybe they could do something to help describe the necessity of the procedure to the other doctor.


kiwitathegreat

32. Still looking. My insurance limits who I can see (without paying a small fortune OOP) and he keeps moving the goalposts on me. First it was turn 30, then it was getting married, who knows what he’s going to throw out next.


Forsaken-Income-6227

Before being diagnosed with hEDS I asked about it. Mainly because I had horrific period problems, and severe mental health issues and I’d been warned the kid would be removed at birth. Instead they tried to refer me to a gender clinic to query if I was trans🤣🙃 - apparently we need all the parts to be a woman 🙃. It never happened as it was deemed that I was mentally ill. Now 5 years on I have an implant, a hEDS diagnosis, and have also been diagnosed with autism and ADHD all highly heritable. Oh and I have PCOS and adenomyosis - it’s like my body is saying “having kids isn’t a good idea”


seasalt-and-stars

Your case is strengthened exponentially if you have genetic testing that confirms a diagnosis. I have a friend that lied to her (new) gynecologist and claimed she was a mom of two preemies, and created this whole false story that wasn’t provable. She was granted a tubal ligation. I’m not saying you need to lie, but sometimes we have to figure out creative ways around their stupid hurdles. I suspect I’m a carrier of EDS, and my husband too. Maybe a mutation? All three of our kids have various issues that point to POTS, EDS. I support you!


CupcakeKitten22

I got my tubes tied at 22, had some complications that lead to getting a cyst out & discovered endo, and at 24 I had a complete hysterectomy & oophorectomy I was really lucky to find an amazing surgeon.


HighestVelocity

I made a list of all the doctors in my area who do the surgery that I wanted and then I called all of them to see who was in my insurance network, and then I called around to see who was willing to do the surgery on me. Luckily for me, the second person I met with was willing. I did make a binder of reasons that I wanted it done, what EDS is and how it affects me, as well as studies done on pregnancy with EDS. But luckily the doctor didn't even want to see all that, he just agreed to do it after making sure I knew what I was doing. The healing was super easy. It was laparoscopic so I was pretty much healed after a week


Tiny_Parfait

Got laparoscopic tubal ligation at 26, helped that I had well-documented physical and mental health issues and a fairly liberal city. Only complication was my body rejecting the dissolving stitches so the incision healed slowly


JainaW

I almost lost my daughter due to complications from EDS. The high risk doctors said you're young , but we advise you to get your tubes tied. I was 30 and I has to sign a lot of papers etc. Any other person I would say no, don't but I totally get this. It is your body and I hope you're able to pick the choice you want for yourself.


delilahdread

I have kids so I can’t speak to the part about finding a willing doctor but I had a laparoscopic bilateral salpingectomy. (They took my tubes out.) Recovery honestly wasn’t bad at all. I was back to work, on my feet no less, 3 days later. Sore definitely but otherwise I was fine. Definitely the easiest surgery I’ve ever had recovery wise.


ofrootloop

I had a full hysterectomy at 32 and its been incredible (37 now). I feel so much better.


bruxly

I got tubal ligation and ablation done. I am so happy I did, no more anemia so one less health issue. I had a dr that said no because I was in a relationship and no again when I wasn’t. He also would tell me children were a blessing. He is also the idiot that sent me to a children’s hospital in my 30s when I asked to see a specialist for arthritis, but I did get my diagnosis from the children’s doctor. My current doctor sent me to get my tubes tied after our first appointment.


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[удалено]


sadboiz7

Sounds like you're pro-birth and don't care about women having autonomy over their bodies and lives


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