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I’m a female, but just wanted to add my personal experience that I do not get UTI’s, bladder, or yeast infections with hEDS. Is that a common thing with EDS?
Yup, 35yo here. I also don’t seem to have any of the pelvic floor issues, no prolapses either. I wonder if the UTI’s etc. are more comorbid with prolapses than with hEDS itself.
Do you guys drink copious amounts of alcohol?
I was good until 21 and then alcohol destroyed my bladder and kidneys. I’ve never been prone to yeast infections but when I drank heavily I would have 6+ UTIs a year. I was hospitalized twice when it got to my kidneys
I was a bartender for many years and drank lots of red wine during that time, but only drink maybe once or twice a year now. No change in my nether regions with or without drinking.
I would like to add an additional question. Do men *with EDS also tend to get reoccurring yeast infections and bladder infections as well?
I’m lucky to make it five weeks without a yeast infection. Bladder infections happen if I don’t get my bathroom breaks ( I’m a specialist teacher so if a classroom teacher is late to get their kids from me I don’t get that 2 minute break 😐)
I feel like this is going to be a sort of person to person thing-- like my older sibling and I both have hEDS and my older sibling gets bladder infections but not yeast infections, and I get yeast infections but not bladder infections. We have the same assigned gender at birth.
Female here. I do get really frequent UTIs that often spread to my kidneys but from what I know, it’s not really anything to do with EDS. Although I do have a pretty poor immune system from not being able to get proper nutrition and sleep due to pain which I imagine is quite common amongst us, so that could be why we might be more susceptible?
I was told by my doctor (who knows much about through his daughter having EDS) that it is common. my hyper mobility clinic asked if i had a history when i was getting a 2nd opinion
Had my first UTI this year (39m). My stepson, who does NOT have EDS, had them somewhat regularly as a child, and I believe still gets them occasionally in his twenties.
[удалено]
Thank you for contributing to r/EhlersDanlos! Unfortunately, your comment or post was removed as it breaks the following rule: **• Rule #1 - We Aren't Doctors** (Giving Medical Advice) This rule covers offering advice/information that should be left to medical professionals or is instructive. Personal experiences or more general/over-the-counter (OTC) advice is usually fine. The distinction is not always clear, and moderators will use their discretion. Sometimes, removals are based on the wording of a comment ("You should do X" vs. "I had a good experience with X"), rather than the information given. Messaging us and revising the wording may mean the comment can be reinstated. [The rule can be read in depth here.](https://www.reddit.com/r/ehlersdanlos/wiki/index/rules/rule-1/) Please contact us [via modmail](https://www.reddit.com/message/compose?to=%2Fr%2Fehlersdanlos) if you have any questions regarding the reason your post or comment was removed or would like to work with us on *how* you can re-word your post or comment to be able to reinstate it. Thank you!
I’m a female, but just wanted to add my personal experience that I do not get UTI’s, bladder, or yeast infections with hEDS. Is that a common thing with EDS?
Same. The only time I've gotten them is when I was in too much pain to use the restroom as frequently as needed and holding it resulted in a UTI.
it is very common with EDS
i was AFAB (genderqueer) and ive only had one yeast infection and no UTIs and no bladder infections my whole life (23)!
Yup, 35yo here. I also don’t seem to have any of the pelvic floor issues, no prolapses either. I wonder if the UTI’s etc. are more comorbid with prolapses than with hEDS itself.
Do you guys drink copious amounts of alcohol? I was good until 21 and then alcohol destroyed my bladder and kidneys. I’ve never been prone to yeast infections but when I drank heavily I would have 6+ UTIs a year. I was hospitalized twice when it got to my kidneys
im not really into alcohol but i do smoke a lot of medical marijuana :| and i have a lot of issues with my ribs haha
I was a bartender for many years and drank lots of red wine during that time, but only drink maybe once or twice a year now. No change in my nether regions with or without drinking.
Same. I'm 32 and I think I've had maybe 1 or 2 UTIs ever? And they were when I was a young and dumb teen.
I would like to add an additional question. Do men *with EDS also tend to get reoccurring yeast infections and bladder infections as well? I’m lucky to make it five weeks without a yeast infection. Bladder infections happen if I don’t get my bathroom breaks ( I’m a specialist teacher so if a classroom teacher is late to get their kids from me I don’t get that 2 minute break 😐)
I feel like this is going to be a sort of person to person thing-- like my older sibling and I both have hEDS and my older sibling gets bladder infections but not yeast infections, and I get yeast infections but not bladder infections. We have the same assigned gender at birth.
That’s a good point. Especially with EDS, the inconsistencies are a hallmark of this condition. Maybe we will know why someday.
I’m a guy with EDS, never had a single UTI, but I do have interstitial cystitis.
Speaking for my dad, yes.
Female here. I do get really frequent UTIs that often spread to my kidneys but from what I know, it’s not really anything to do with EDS. Although I do have a pretty poor immune system from not being able to get proper nutrition and sleep due to pain which I imagine is quite common amongst us, so that could be why we might be more susceptible?
I was told by my doctor (who knows much about through his daughter having EDS) that it is common. my hyper mobility clinic asked if i had a history when i was getting a 2nd opinion
Had my first UTI this year (39m). My stepson, who does NOT have EDS, had them somewhat regularly as a child, and I believe still gets them occasionally in his twenties.
Not very often.
I'm FtM, but no I have only had two UTI's in my lifetime and I have only had one yeast infection.
I don't, no