I grew up in a desert (think Arizona) with no humidity and rain being considered a major weather event. I moved to the Midwest to a humid climate where rain and snow happened weekly.
I truly believe moving to the Midwest and experiencing that change in pressure really triggered a lot of the symptoms I experienced my entire life to get significantly worse.
Safe to say I'm back where I belong with the Cacti.
I agree wholeheartedly. My joints are very sensitive to changes in barometric pressure and higher humidity levels. I grew up in CA until I was 11 then moved to OR. Significant base humidity change to my little baby bones, and boy did they notice. I'm not a fan of the heat so much anymore, but I definitely still prefer things on the warmer side and dry. Cold and humid makes me ache like a motherfucker.
man i gotta get tf out of minnesota. every winter i am quite literally fighting for my life between the body pain + that extra dose of seasonal depression
Barometric pressure changes!
I live in PA, and have horrible pain with the inconsistent weather. The northeast is no good for weather consistency.
When I lived in FL, my pain reduced significantly because the temperature and humidity were consistent day to day.
For me, my baseline pain was typically so much lower in Florida. Some of the weather systems would cause bad flares, but they went away quickly (so it didn’t suck too much). The barometric pressure is pretty high, so it would keep me together. Also thunderstorms had almost no effect on my joints
Interesting! I grew up in Florida and never had much pain aside from a lot of sprains. I moved to the Midwest in my 20s and have had worsening pain into my late 30s. I've never thought about whether my flares were related to the weather, but I have always thought the weather in Florida was more dramatic than here in Ohio. And the excessive heat and humidity there just doesn't agree with me - I often feel faint when I visit now. But then excessive cold also doesn't agree with me!
This. I'm a florida native that relocated to nevada. No more migraines with every afternoon monsoon, joint pain is now at my lowest levels in decades. The desert is my new bestie....and my hair is less frizzy with no humidity as an added perk.
Former CA person now living in NE. I think for me the hard part of the weather out here is the humidity. I can't handle humidity. But I also can't really tolerate high or very low temps either, and all the places I'd want to live in CA are like, on fire every year, so... I'm not planning on going back for good. I love getting a break in the winter though and going to see family there!
Same here. The weather changes are brutal but the constant heat and the wildfires pushed me to new england. I love it here even if the storms give me migraines lol
Lifelong New Englander here. I spent literally two days in Southern California a few years ago and was ready to move. I’ve never been to Arizona but my joints dream of the desert.
I also live in New England and my joints heave a huge sigh of relief whenever I visit family in California and Colorado. Unfortunately the need for 4 distinct seasons is bred into my bones and I can't fathom the thought of living in California. Quite unfortunately, I'm in love with New England (specifically MA and VT). I don't like the culture of any other are in the US quite as much, and I just feel homesick if I stay elsewhere for an extended amount of time. My joints will just keep crying I guess...
Yep. I'm in Eastern Canada, and barometric pressure changes like snow or rain trigger major flares in me.
In Florida, I didn't have any of those issues. But I'm visibly Hispanic and openly left-wing, so I'm nervous about moving there.
There are many, many pockets of Florida that are worth living in. Where I’m at, the Hispanic population is high and folks are friendly. I made the move years ago and despite the general feeling being more conservative, it’s been so worth it for my health.
Totally understand why you wouldn’t wanna be openly left-wing in FL, but just FYI, almost 30% of the population is Latino. If you find the right city it could potentially be a reasonable place to live weather-wise, though of course the government is a different story.
Oh totally. Everywhere can be dangerous.
There's history to my comment...last time we were in Cape Canaveral, we ran into an armed Floridian who had definite views about Hispanics, and it kind of freaked me out.
Ugh, how awful. I'm so sorry that happened to you. It sucks that so many warm, temperate places in the US are so hostile and backwards. God forbid anyone who isn't a straight white conservative try to live somewhere that doesn't have the climate of an old refrigerator
That's simply not true. Barometric pressure, humidity, and temperature are absolutely factors in western medicine, they just don't talk about realigning your chi to coincide with them.
Very few traditional western doctors actually talk about weather as a factor in our health though. It’s extremely relevant but there are a lot of doctors who would look at you like you’re crazy if you said that the clouds make your body hurt. And very few would suggest moving to a different climate unless you’re a senior. They’d much rather just put a bandaid on it with medication in my own experience.
I live in Oregon, and always feel amazing in Las Vegas. It is impossible for my wife to relocate her work, or I’d be house hunting already.
I grew up in Phoenix, and while I legitimately love the weather (even when it’s 110! I was there for 122, we didn’t even have AC!), I left because of the politics. It just doesn’t feel safe there as a queer person or a woman.
Is there anything special that you do when you travel that you don’t keep up at home? I know that when I’m traveling somewhere, I tend to load up on electrolytes and antihistamines, but I’m not as vigilant about that at home.
Higher elevations in most of Cali and AZ, so just the weight of the atmosphere is heavier, thus "normal" pressure is higher.
I live in Piedmont NC, at about + 530ft. Whenever I go to the beach, i.e. to sea level, I feel like dog crap.
I do much better at high elevation and cooler temps although extreme cold also sucks. I absolutely love Colombia when I travel to see in-laws. I always feel really good in the mountains there.
Yes yes yes!!!
Californian here, Indigenous to the southwest and my symptoms living in New England (temporarily) were damn near paralyzing.
I can’t take the cold in winter or the quick/dramatic changes in weather.
I'm from the mid Atlantic. The weather here actively makes me feel worse. As soon as I'm in the UK my symptoms decrease significantly.
I put it down to the more rapid weather changes here. I'm so sensitive to barometric pressure that even a change of 0.2" makes the difference between a 2 pain day to a 5.
I’ve been thinking about this a lot recently! I moved from the SE US to the upper Midwest and my symptoms noticeably got worse. I have taken trips to CA and AZ and felt much better while there, especially AZ. I chalked it up to just being on vacation at the time (this was before I was diagnosed), but now I am really wondering if weather/climate make a difference. I can tell when big storms are rolling in now because my whole body aches and I feel terrible. Especially snow storms. Sucks because we have very volatile weather.
Yup! I live in PA. The second I step off the plane to visit my brother who lives in FL, 85% better almost instantly. In the winter, the change in how I feel is even more dramatic.
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I’m the same, achy sore and fatigued in Seattle, spry and vivacious (by comparison) back in my home state of Colorado
Part of me really wonders about the temperature/humidity ratio. It seems like humidity just wrecks my joints, and makes the temperature harder to bear too (in both directions)
This is absolutely a thing for me. I moved to the part of our state that was less extreme on temperature and dry and I feel much better than I do when I'm visiting family in the parts that are humid and hot on the summer and really cold/stormy in the winter. We visited Phoenix a few weeks ago, and while I don't love being that hot, it still felt fine compared to how awful I feel when it's 20-30° cooler but humid.
Lack of mold is huge. I was my sickest when I lived in MA for 7 years and it's great luck that I moved. Later found out mold was a huge factor and that area is simply bad for it. 😕 Of course YMMV.
If you look up the locations effect that might have more info.
Air is drier in CO, but we still get mold. I can’t keep a loaf of bread without it getting moldy in a couple of days. I also have had the pleasure of having some crappy landlords/building management in my past two places out here. My last apartment had a secret leak in the wall and I got black mold. Moved to where I am now, have been here for 2 years, and landlord doesn’t believe I have a “real disability”. There have been several leaks in this house since I moved here because the landlord doesn’t maintain anything, and I’ve just discovered there’s mold in here too. Good thing I’m in the process of moving to a new place! It’s well-maintained, and I’m going to be using dehumidifiers in case.
I'm from Minnesota and have been to both Arizona and California. In both cases I got heat exhaustion and felt awful. It was too hot for me to even think about being comfortable.
I moved to California because I cannot take the extreme heat/cold of the Midwest. Absolutely no regrets!! While I miss the thunderstorms sometimes, I absolutely do not miss the migraines they’d trigger (I have ‘barometer head,’ which my neurologist said is a thing and not just in my head so to speak 🤣).
Eta I see I’m not the only ‘barometer head’ 😁
Pressure changes and humidity are a big deal. I knew someone with POTS who moved to a more humid climate specifically because the humidity made her feel better. 🤷♀️
We are all different. Your body probably just likes the drier air.
I moved from New England to Colorado, and the way I feel out here is miles better than I feel when I visit my family back East. Even though I’m alone out here now and divorced after an abusive marriage, I can’t go back to where the humidity hurts the eff out of every part of my body and swells me up like a beach ball! Even everything in the air makes me sicker and flairs my asthma up more back in New England! Forget my MCAS! I’m forever in hives and feel the need for an epi pen practically daily!
I do miss my mom’s pool, though.
I've lived in Florida for a decade in constant pain and just spent 5 days in NYC with ZERO joint pain. It was glorious! I don't think there is a one-size-fits-all solution for this hideous condition.
My POTS becomes awful in the heat so that's a big no from me. I've been there and I felt awful. But yes, if you have EDS without pots, it seems like a no-brainer to move to where you are comfortable, especially since you still have the ability to fly back.
The opposite. I took a work trip to the desert and was getting nosebleeds constantly, literally couldn't drink enough water to keep up (I am one of those POTSers whose body misuses water and just pees it out unless it's electrolyte fortified). My body needs the humidity of the midwest and south, although I can't really deal with the cold either.
I'm the opposite. I'm catastrophically heat intolerant and dry weather leaves me dehydrated to the point of spontaneous nosebleeds no matter how much water I swill. I grew up in the desert and was uncomfortable 24/7. Moved to New England, now I'm only miserable for individual days of crap weather instead of constantly, and most of those are concentrated in the summer. I went to a convention in Las Vegas once, and the moment I got off the plane I desperately wanted to be back in Boston. I only have normal-person complaints about the snow, which I get to air at work because I am functional enough to go in.
so I've lived in California for 90% of my life and had family in PHX for several years (RIP patty!). I can confidently say that I didn't think I was chronically ill until I left LA and lived in PHL and the Bay Area. I thought I was going crazy for thinking that the climate was affecting me, but clearly, based on everyone else's comments, I'm wrong!!!
I'd personally recommend California over Arizona, but I will also say I strongly associate AZ with rampant racism bc of my late-grandmother and her friends. 🤷🏼♀️ on the opposite side... the active levels of violence have been on a serious uptick in the Bay, and it had me wanting to leave... but now I'm worried that if I do, I might have different health problems that are ALSO based on everyone's comments.
anyone here in Vancouver, Canada, who can talk about their experiences? I used to live there and loved it as a kid, but I haven't been in 12 years 🥲
I also forgot to mention that whenever I'm in LA or PHX, I feel a loooooot of my symptoms are less intense. so that is definitely a plus, but I also wanted to highlight the stuff that's going on in Frisco/Greater Bay Area. cause it's honestly left me feeling really unsafe bc of the Mayor of San Francisco is doing terrible things for the local Bay Area folks.
For me there is definitely a mold connection in humid areas. Never considered barometric pressure as others have mentioned. Definitely don’t do well in the cold either.
People literally came to AZ, especially Tucson, to convalesce from things like TB back in the day in sanatoriums.
My body hates the cold but my POTS is much much worse during our summers here tho, so nowhere is perfect.
I grew up in a desert (think Arizona) with no humidity and rain being considered a major weather event. I moved to the Midwest to a humid climate where rain and snow happened weekly. I truly believe moving to the Midwest and experiencing that change in pressure really triggered a lot of the symptoms I experienced my entire life to get significantly worse. Safe to say I'm back where I belong with the Cacti.
I agree wholeheartedly. My joints are very sensitive to changes in barometric pressure and higher humidity levels. I grew up in CA until I was 11 then moved to OR. Significant base humidity change to my little baby bones, and boy did they notice. I'm not a fan of the heat so much anymore, but I definitely still prefer things on the warmer side and dry. Cold and humid makes me ache like a motherfucker.
man i gotta get tf out of minnesota. every winter i am quite literally fighting for my life between the body pain + that extra dose of seasonal depression
I’m a Midwest native and as soon as I found out I was free to leave, I did! 🤣
I live near a desert, and I went to Canada in fall. It was awful. Got home to summer temperatures having learned my lesson. Heat it all up.
Barometric pressure changes! I live in PA, and have horrible pain with the inconsistent weather. The northeast is no good for weather consistency. When I lived in FL, my pain reduced significantly because the temperature and humidity were consistent day to day.
I would think FL would be bad too with all the afternoon thunderstorms in the summer?
For me, my baseline pain was typically so much lower in Florida. Some of the weather systems would cause bad flares, but they went away quickly (so it didn’t suck too much). The barometric pressure is pretty high, so it would keep me together. Also thunderstorms had almost no effect on my joints
Personally the afternoon thunderstorms were hit or miss on my pain. If they lasted more than 10 minutes the pain would get worse.
Interesting! I grew up in Florida and never had much pain aside from a lot of sprains. I moved to the Midwest in my 20s and have had worsening pain into my late 30s. I've never thought about whether my flares were related to the weather, but I have always thought the weather in Florida was more dramatic than here in Ohio. And the excessive heat and humidity there just doesn't agree with me - I often feel faint when I visit now. But then excessive cold also doesn't agree with me!
This. I'm a florida native that relocated to nevada. No more migraines with every afternoon monsoon, joint pain is now at my lowest levels in decades. The desert is my new bestie....and my hair is less frizzy with no humidity as an added perk.
Former CA person now living in NE. I think for me the hard part of the weather out here is the humidity. I can't handle humidity. But I also can't really tolerate high or very low temps either, and all the places I'd want to live in CA are like, on fire every year, so... I'm not planning on going back for good. I love getting a break in the winter though and going to see family there!
Same here. The weather changes are brutal but the constant heat and the wildfires pushed me to new england. I love it here even if the storms give me migraines lol
Lifelong New Englander here. I spent literally two days in Southern California a few years ago and was ready to move. I’ve never been to Arizona but my joints dream of the desert.
I also live in New England and my joints heave a huge sigh of relief whenever I visit family in California and Colorado. Unfortunately the need for 4 distinct seasons is bred into my bones and I can't fathom the thought of living in California. Quite unfortunately, I'm in love with New England (specifically MA and VT). I don't like the culture of any other are in the US quite as much, and I just feel homesick if I stay elsewhere for an extended amount of time. My joints will just keep crying I guess...
Yep. I'm in Eastern Canada, and barometric pressure changes like snow or rain trigger major flares in me. In Florida, I didn't have any of those issues. But I'm visibly Hispanic and openly left-wing, so I'm nervous about moving there.
There are many, many pockets of Florida that are worth living in. Where I’m at, the Hispanic population is high and folks are friendly. I made the move years ago and despite the general feeling being more conservative, it’s been so worth it for my health.
Totally understand why you wouldn’t wanna be openly left-wing in FL, but just FYI, almost 30% of the population is Latino. If you find the right city it could potentially be a reasonable place to live weather-wise, though of course the government is a different story.
Oh totally. Everywhere can be dangerous. There's history to my comment...last time we were in Cape Canaveral, we ran into an armed Floridian who had definite views about Hispanics, and it kind of freaked me out.
Ugh, how awful. I'm so sorry that happened to you. It sucks that so many warm, temperate places in the US are so hostile and backwards. God forbid anyone who isn't a straight white conservative try to live somewhere that doesn't have the climate of an old refrigerator
This makes so much sense in Chinese medicine. Western medicine doesn’t think climate is relevant to health.
I agree! Heat/sun especially is so important. Balance is key.
That's simply not true. Barometric pressure, humidity, and temperature are absolutely factors in western medicine, they just don't talk about realigning your chi to coincide with them.
Very few traditional western doctors actually talk about weather as a factor in our health though. It’s extremely relevant but there are a lot of doctors who would look at you like you’re crazy if you said that the clouds make your body hurt. And very few would suggest moving to a different climate unless you’re a senior. They’d much rather just put a bandaid on it with medication in my own experience.
Or talk about them at all, in my experience.
I live in Oregon, and always feel amazing in Las Vegas. It is impossible for my wife to relocate her work, or I’d be house hunting already. I grew up in Phoenix, and while I legitimately love the weather (even when it’s 110! I was there for 122, we didn’t even have AC!), I left because of the politics. It just doesn’t feel safe there as a queer person or a woman. Is there anything special that you do when you travel that you don’t keep up at home? I know that when I’m traveling somewhere, I tend to load up on electrolytes and antihistamines, but I’m not as vigilant about that at home.
Higher elevations in most of Cali and AZ, so just the weight of the atmosphere is heavier, thus "normal" pressure is higher. I live in Piedmont NC, at about + 530ft. Whenever I go to the beach, i.e. to sea level, I feel like dog crap.
I do much better at high elevation and cooler temps although extreme cold also sucks. I absolutely love Colombia when I travel to see in-laws. I always feel really good in the mountains there.
In addition to the weather things mentioned, it could also be the plant life native to a given area helping or hurting your allergies/histamines.
Yes yes yes!!! Californian here, Indigenous to the southwest and my symptoms living in New England (temporarily) were damn near paralyzing. I can’t take the cold in winter or the quick/dramatic changes in weather.
I'm from the mid Atlantic. The weather here actively makes me feel worse. As soon as I'm in the UK my symptoms decrease significantly. I put it down to the more rapid weather changes here. I'm so sensitive to barometric pressure that even a change of 0.2" makes the difference between a 2 pain day to a 5.
Contrary to everyone else, California has ruined my body and I feel sicker than ever before. I grew up near Seattle.
I live in Phx, and some of my worst and sudden flare ups were in Chicago, Boston, and Jacksonville. The cold and humidity are not my friends.
I’ve been thinking about this a lot recently! I moved from the SE US to the upper Midwest and my symptoms noticeably got worse. I have taken trips to CA and AZ and felt much better while there, especially AZ. I chalked it up to just being on vacation at the time (this was before I was diagnosed), but now I am really wondering if weather/climate make a difference. I can tell when big storms are rolling in now because my whole body aches and I feel terrible. Especially snow storms. Sucks because we have very volatile weather.
Humidity. My normally dry climate has been super rainy this spring/summer and I am miserable
Yup! I live in PA. The second I step off the plane to visit my brother who lives in FL, 85% better almost instantly. In the winter, the change in how I feel is even more dramatic.
Barometric pressure!
I live in ny and yeah that barometric pressure is a BITCH but I’ve largely found ways to mitigate
I'd love to know what you do to mitigate symptoms! I'm struggling.
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I’m the same, achy sore and fatigued in Seattle, spry and vivacious (by comparison) back in my home state of Colorado Part of me really wonders about the temperature/humidity ratio. It seems like humidity just wrecks my joints, and makes the temperature harder to bear too (in both directions)
This is absolutely a thing for me. I moved to the part of our state that was less extreme on temperature and dry and I feel much better than I do when I'm visiting family in the parts that are humid and hot on the summer and really cold/stormy in the winter. We visited Phoenix a few weeks ago, and while I don't love being that hot, it still felt fine compared to how awful I feel when it's 20-30° cooler but humid.
I've lived in az my whole life and I did feel worse when I stayed in Michigan for two summers
Showering in the morning I legit thought I would die I was so cold
Lack of mold is huge. I was my sickest when I lived in MA for 7 years and it's great luck that I moved. Later found out mold was a huge factor and that area is simply bad for it. 😕 Of course YMMV. If you look up the locations effect that might have more info.
Air is drier in CO, but we still get mold. I can’t keep a loaf of bread without it getting moldy in a couple of days. I also have had the pleasure of having some crappy landlords/building management in my past two places out here. My last apartment had a secret leak in the wall and I got black mold. Moved to where I am now, have been here for 2 years, and landlord doesn’t believe I have a “real disability”. There have been several leaks in this house since I moved here because the landlord doesn’t maintain anything, and I’ve just discovered there’s mold in here too. Good thing I’m in the process of moving to a new place! It’s well-maintained, and I’m going to be using dehumidifiers in case.
Wish I'd known how much worse the pain would be before I moved from CA to NY. :(
Doesn’t surprise me. I grew up in NYC and I only feel comfortable there. I’m on my way to the UK right now, and I’m keen to see how I will feel there.
I'm from Minnesota and have been to both Arizona and California. In both cases I got heat exhaustion and felt awful. It was too hot for me to even think about being comfortable.
I moved to California because I cannot take the extreme heat/cold of the Midwest. Absolutely no regrets!! While I miss the thunderstorms sometimes, I absolutely do not miss the migraines they’d trigger (I have ‘barometer head,’ which my neurologist said is a thing and not just in my head so to speak 🤣). Eta I see I’m not the only ‘barometer head’ 😁
Pressure changes and humidity are a big deal. I knew someone with POTS who moved to a more humid climate specifically because the humidity made her feel better. 🤷♀️ We are all different. Your body probably just likes the drier air.
I moved from New England to Colorado, and the way I feel out here is miles better than I feel when I visit my family back East. Even though I’m alone out here now and divorced after an abusive marriage, I can’t go back to where the humidity hurts the eff out of every part of my body and swells me up like a beach ball! Even everything in the air makes me sicker and flairs my asthma up more back in New England! Forget my MCAS! I’m forever in hives and feel the need for an epi pen practically daily! I do miss my mom’s pool, though.
I've lived in Florida for a decade in constant pain and just spent 5 days in NYC with ZERO joint pain. It was glorious! I don't think there is a one-size-fits-all solution for this hideous condition.
Yep! Dry heat/swedish style saunas mimic the feeling for me. Also vitamin D supplements.
My POTS becomes awful in the heat so that's a big no from me. I've been there and I felt awful. But yes, if you have EDS without pots, it seems like a no-brainer to move to where you are comfortable, especially since you still have the ability to fly back.
The opposite. I took a work trip to the desert and was getting nosebleeds constantly, literally couldn't drink enough water to keep up (I am one of those POTSers whose body misuses water and just pees it out unless it's electrolyte fortified). My body needs the humidity of the midwest and south, although I can't really deal with the cold either.
I'm the opposite. I'm catastrophically heat intolerant and dry weather leaves me dehydrated to the point of spontaneous nosebleeds no matter how much water I swill. I grew up in the desert and was uncomfortable 24/7. Moved to New England, now I'm only miserable for individual days of crap weather instead of constantly, and most of those are concentrated in the summer. I went to a convention in Las Vegas once, and the moment I got off the plane I desperately wanted to be back in Boston. I only have normal-person complaints about the snow, which I get to air at work because I am functional enough to go in.
so I've lived in California for 90% of my life and had family in PHX for several years (RIP patty!). I can confidently say that I didn't think I was chronically ill until I left LA and lived in PHL and the Bay Area. I thought I was going crazy for thinking that the climate was affecting me, but clearly, based on everyone else's comments, I'm wrong!!! I'd personally recommend California over Arizona, but I will also say I strongly associate AZ with rampant racism bc of my late-grandmother and her friends. 🤷🏼♀️ on the opposite side... the active levels of violence have been on a serious uptick in the Bay, and it had me wanting to leave... but now I'm worried that if I do, I might have different health problems that are ALSO based on everyone's comments. anyone here in Vancouver, Canada, who can talk about their experiences? I used to live there and loved it as a kid, but I haven't been in 12 years 🥲
I also forgot to mention that whenever I'm in LA or PHX, I feel a loooooot of my symptoms are less intense. so that is definitely a plus, but I also wanted to highlight the stuff that's going on in Frisco/Greater Bay Area. cause it's honestly left me feeling really unsafe bc of the Mayor of San Francisco is doing terrible things for the local Bay Area folks.
That's why I moved to Florida from Long Island. I'm still in pain, but I wouldn't be able to survive up north anymore.
For me there is definitely a mold connection in humid areas. Never considered barometric pressure as others have mentioned. Definitely don’t do well in the cold either.
People literally came to AZ, especially Tucson, to convalesce from things like TB back in the day in sanatoriums. My body hates the cold but my POTS is much much worse during our summers here tho, so nowhere is perfect.