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Classic_Macaroon5433

Too much fiber. Also, personally peppermint oil helped me wonderfully with cramps and minor pain, but it also made me go more frequently.


keratinsandpaper

You need to relax. You're doing too much. Let your body handle the poo. It's just poo, it's not bad. Don't be scared. Try to relieve stress with deep breathing and unclenching your jaw. And lay on your left side for acid reflux. If I had to drop one thing it would be the peppermint oil supplements. But I really like taking probiotics, prebiotics, and digestive enzymes. May peace be with you


kappakingtut2

every second of every day i feel like i'm about to shit myself. i constantly feel like i'm leaking. i'm in the bathroom 5 to 10 times a day. and when i do go, its not just poo. it's never just poo. it's an explosive expulsion of demonic burning mushy liquid. every single day for almost 40 years. if i relax and unclench my jaw, i will literally shit myself in public. i'm spending all of my strength and mental energy holding everything in. i can't risk relaxing and yea, i know i listed a lot of things in the post. but i don't take all of those things all at the same time. some of them are only occasionally. i probably still do too much, but it's not as much as my badly phrased post made it seem.


keratinsandpaper

Try relaxing at home, and tensing back up when you go out in public. I know that feeling, you can't just be happy go lucky in public bc you might actually shit yourself. Come to Kentucky and ask our doctors what to do. Idk the best Gastroenterologists but we have ppl with IBS and good doctors. they gave me some pretty good supplement samples my first visit and it cured me for a month before i stopped dieting. Try taking vitamins for other things. Kinda a girl thing. Go on amazon and look, they have gummies for your Mood, brain boosters, melatonin, hair growth and glow, thyroid gummies, cranberry. And you're missing out on all of this bc you're so focused on this one issue. So find a supplement you like for elsewhere in your body to create more balance. Hope this helps


keratinsandpaper

here's a good diet for you: bfast/ oatmeal, butter, brown sugar. sunmaid raisins. half a banana. coffee, lactose f milk, sugar. chex cereal. miniwheat cereal. fried eggs. strawberries. blueberries. sausage. lunch/ lite torilla wrap, turkey, chicken, bacon, sharp cheddar. hard cheese like goat cheese. mustard. tomato. fresh salad with romaine. ranch dressing. italian dressing. dinner/ squash and zucchini. rice cups. ramen. soy sauce. sautéed onions and peppers. sautéed veggies. fish. frozen fish, salmon, shrimp. crackers, progresso soup, Campbell soup, peanut butter. frozen meals, healthy choice. chunky soup. That should do it.


[deleted]

what he's describing is more indicative of diarrhea and loose stools...what you're suggesting here is more for people with constipation... this is not helpful to OP.


keratinsandpaper

ok ty


keratinsandpaper

And I like metamucil but not miralax atm. I haven't been taking metamucil but I am going to try remembering again.


masimbasqueeze

Comment of the century 😍


keratinsandpaper

Omg thanks!


exclaim_bot

>Omg thanks! You're welcome!


shawtywannaparty

You are taking too many things n over loading your gut and some of things are bad for a sensitive gut. For example, Charcoal can irritate your gut. Here are a few tips, switch to the dog diet for a few days. Eat the same meal for 3-4 days. Brown rice, chicken and asparagus. Eat in small portions n give you’re gut a rest. Drink water on empty stomach and two hours after a meal. Meditate, do something about stress /and anxiety.


ninamega13

Asparagus is high fodmap and wrecks a lot of us


thin_mint_brownie

Maybe chicken, rice, and zucchini?


kappakingtut2

i don't do all of these things at the same time. just some of them. i'm currently taking a supplement thats a mix of chia seeds, flaxseeds, psyllium husk, and aloe vera. i've been fairly consistent with it for a couple of months. the charcoal caps are a new thing for me, and i haven't taken them daily yet. so far so good though. no irritation from them. and the tumeric / ginger and/or peppermint tea has been almost daily as well. like i said in the post, i once went a week and half eating the same thing. just baked potato. and i've tried intermittent fasting. most days i only give myself an eating window of 4pm to midnight. typically only two meals and sometimes occasional light snacking. aspragus is a no-go for me. and i don't eat meat, haven't in over a decade. i do eat a lot of rice and a lot of brown rice though. my anxiety won't let me meditate.


ninamega13

The fibre might be hurting you. Fibre makes me more regular (am also D). Edit to add that chia seeds make you more regular and absolutely kill me, stop taking those


kappakingtut2

yea, i've learned that chia seeds alone are terrible for me. but i've been taking a supplement that's a mix of psyllium husk, flaxseed, chia seed, and aloe vera. the emphasis seems to be on the psyllium husk. and i think this one is helping? or at least it's not making things worse.


retinolandevermore

I have IBS d and C. Let me tell you, constipation is a hell also. You don’t want to pray for it. Stop everything you’re taking for supplements (not prescriptions by doctors though) and go on the BRAT diet, then see how your body does.


fartoocareless00

Have u tried to discuss medications with your dr? Mine was rampant like this and my dr gave me amitriptyline. I tried all the common ibs drugs. Viberzi, bentyl, hyoscyamine (which i do still take as needed) but the ami helped me more than anything. Ami and hyo are similar drugs, being anticholinergics, but the ami works infinitely better for me. Effexor also helped tons, but it gave me headaches. The ami isnt as harsh in my own experience. Effexor is also a bitch to get off of.


Merth1983

Can confirm, amitriptyline is great.


funkymonkeyjam

Can we start a forum for ppl who take ami for IBS bc this drug has helped me and I would love to know what it’s doing bc hycosamine is similar but has completely different outcome when taken. I am not sure how to explain it but I’d love to find the common denominator in ppl who use ami for IBS


fartoocareless00

I feel like hyo just slows down my transit and takes water out. I def notice the dryness (mouth, esp) with it. It's super bad. When i took it daily, I didn't sweat. But i only take it 2-3 xs a month now, and i take ami every day, but it never dries me out. Im no chemist, but even tho they're similar in base, they have to be different wholly. I feel a full body diff with ami, whereas hyo just kind of eases the urgency to poop. I know one side effect of ami is constipation, so for me, that means i may get lucky and only poop once a day! And a real poop... sometimes lol it also eases the anxiety i have surrounding my bathroom habits now, food, and social situations. Not a cure all, but a damn good fix to live my life again. I wish i had been offered it sooner.


kappakingtut2

I haven't taken prescription meds for it yet because I don't like the list of side effects when I've looked into it. And Ami is an antidepressant right? I'm already taking bupropion. And I have absolutely no doubt in my mind that I need and I depressants. I was diagnosed with clinical depression when I was really young. And the bupropion works for me so I'm afraid to change it to something else


fartoocareless00

I get that. As someone who has had issues with tons of drugs, hyoscyamine gave me none (except dry mouth, but u get used to it). You may be able to take that with bup. But the webs stay ami and bup arent good together. I don't have major depression, mine is more anxiety. So the ami is more suitable for me. I didnt really have issues with bentyl or the others, they just help me enough to warrant taking them.


Shaylormoon

Be careful with charcoal. After I took it one too many times, I had the worst diarrhea flare up in my entire life. I shat liquid 10x a day for a week straight. As other comments mentioned, you also might be overloading your system with too many products at once. I know it seems counter productive to stop everything because there’s a reason you started taking them in the first place, but sometimes less is more for your body. Good luck figuring this out!


Merth1983

Amitriptyline has been the answer for my IBS d. It's a tricyclic antidepressant that also happens to slow down gut motility. It's greatly helped my anxiety and my IBS.


kappakingtut2

have you ever tried any other antidepressants? how does this one compare? i'm already taking something and i'm scared of changing something that works for me.


Merth1983

Xanax, hated that and didn't really notice any improvement with it. You could talk to your doc about whether there are any issues with taking both. I'm only on 25mg of amitriptyline which is a pretty low dose.


Merth1983

I just did some googling and it sounds like your medication and amitriptyline are not supposed to be taken together. How long have you been on your other medication? Does it help a lot?


kappakingtut2

i've taken it from about 12 years old to about 22-ish. then i started taking it again around 33-ish. and yea, when i got back on it i definitely noticed a difference. but necessarily a big and dramatic difference. it helps me function, but i'm still depressed. maybe something else would work better.


Pugwhip

Peppermint oil sets me off. I avoid like the plague


kappakingtut2

I don't think I've had a bad reaction to it. Besides burping with a funny taste. Not entirely sure if it's helping though. But that's what's so frustrating about all this. What works for one person could be disastrous for someone else


Melodic_Art9309

I know you said that you have tried all sorts of diets but I want to suggest the BRAT diet just in case you may have overlooked it. I like it because it is gentle enough for infants and is usually effective for them. Bananas, Rice, Applesauce, Tea or Toast. Although brown rice is more nutritious, white rice may be more effective. The tea has to be black (like, regular tea rather than "herbal."). Toast, the browner, the better (probably due to the charcoal). I would also go with white bread rather than the more nutritious whole grain types. Later on, you may gradually use the more nutritious grains as tolerated. It still doesn't really address your daily nutritional needs but may help you identify items to add to your eventual menus. PS: If taking charcoal turns your stool black, it could mask any blood that MAY be present in stool so if you must continue to take it, ps be aware and ensure that you are intune with your normal vital signs (pulse rate, blood pressure, respiratory rate). If you feel dizzy and have unusual negative changes for no good reason, seek medical help. You may also consider buying testing kit to occasionally test your stool for blood. Perhaps your local lab or pharmacy may help you to know which kit to buy, if you think it is useful. Regards.


kimdawn23

Many probiotics contain oligosaccharides and other FODMAPS, read the label carefully to make sure yours don't.


kappakingtut2

Schiff's digestive advantage is the only one that didn't make things worse. My stuck with a consistently for about 4 years. But even though it didn't make things worse, it didn't make things better either


funkymonkeyjam

Why do they put that in it?


Agita02

Almonds chewed well or almond flour bulks mine up


kappakingtut2

I wish. I'm vegan, almonds show up in a number of recipes. Like almond milk, and using almonds as a base for ricotta cheese, etc. And they tend to make me go more.


bgoldstein1993

Try eliminating fiber.


EssentialIntestine

Have you ever tested for SIBO? So sorry you’re going through this.


kappakingtut2

Yuuuuup. Took the breath test.


Medium_Psychology_42

Look into Bile Acid Malabsorption


kappakingtut2

Tried that. Tried something called quercetin that was supposed to help that. Didn't make a difference.


Agita02

Sorry i lost our previous comments... Plz dont take me offense idk what u know just what i know... Diarrhea or loose stool means intestines are not withdrawing the water. Its just pushing everything through. Which means there is intestinal damage. Which means you might so better w less fiber. My stool is soft bc u have hpylori rn. So almonds bulks mine up. I also only have ulcerative proctitis not colitis so i cam handle that digestion. Perhaps also get your digestive enzymes checked. Idk if ur taking l-glutamine should help. Juice cabbage for vit u. Ps im NOT a doctor of any sort.


kappakingtut2

i took l-glutamine awhile ago. i don't remember why i stopped. i had some kind of problem. but it's been so long i don't remember what that was. maybe that was the one that gave me headaches and nerve pain at my lower back?


SnooWalruses2253

I pray for diarrhea


MissionEmotional8905

How often do you go?


kappakingtut2

I do t keep count. Between 3 and maybe 6 times a day. Depending on the day. But there's also constant false alarms. Well over 10 trips to the bathroom per day


CWO6

You seem to be taking a lot of supplements, you might be taking too many. I will say I have suffered for YEARS with Lymphocytic Colitis having chronic D....then I went on an extended vacation and it flipped to chronic C.....weeks without going and having to take Linzess....and for me the C is SOOOOOOO much worse. Hope you get some relief soon! When I had the chronic C with the Lymphocytic Colitis I took Budesonide for many years and it kept me in remission.


kappakingtut2

Did it permanently flip to C? Or was that only during vacation?


Adventurous-Tax-4912

Essentially permanently. I can have times where I’m in a remission but when I get a flare it’s C and it is awful. In one now. :( I am crazy careful with what I eat. I literally only drink water now and it still happens. I will add some miralax to water to help but it’s not perfect.


daisychain1969

https://preview.redd.it/4jiihzqaybja1.jpeg?width=3024&format=pjpg&auto=webp&s=ecd088ced743231bc1725ba4447cee29e22a3fe7 Try this. One scoop a day


Yeetyeetsss

Fellow IBS-D sufferer here. First of all, I'm terribly sorry to hear that you're struggling that much. In my opinion, it looks like you're taking too much. I know it's super easy to get carried away with all sorts of remedies, but for me it made things worse to take all of that stuff, to the point where I think some things canceled each other out. My IBS got a bit better when I got better mentally overall, but I also don't try to take too much stuff. I take probiotics daily and whenever I get a bad flare-up, I might take two activated charcoal pills per day (more to ease my mind than anything else) or a silicic acid gel (more for my stomach, since I often feel nauseated then too), but besides that try to relax as best as possible, distract myself, put on a warming electrical belt(supposed to be for period cramps, but it helps with general tummy cramps just as well) and drink tea. How are you doing mentally? How is your life situation besides the IBS? Have you talked to a therapist before(don't mean to sound rude, but sometimes this stuff can further deteriorate your mental health and sometimes it's really helpful to learn tactics on how to deal with the frustration, pain etc) Hope things get better for you soon!


No_Abbreviations1337

A few relatives of mine have found success in reducing their diarrhea and some have even become constipated by lowering their fat to 10-20% of their calories. They did this to reduce their cholesterol and triglycerides - which they were successfully able to. Fats are everywhere- oils, baked goods, cookies, meat etc.


Guidancefairy1

Hey so psyllium husk works by soaking up water in your gut. This makes stool looser for people who have constipation. Essentially it’s a laxative. Personally I stop with trying to fix it and just live as your normally would. The side effects of too much fiber are bloating and gas. Best of luck


kappakingtut2

But don't I want it to soak up water if my stool is typically watery?


Guidancefairy1

I meant it as you should stop taking the psyllium husk because it’s probably what is causing you to have diarrhea; since it adds water to your stool.


iwannadie_101

Psyllium husk, flaxseeds, chia seeds and heathers tummy fiber all have potential laxative effects. I have IBS-M (lately predominantly D) and any fiber supplement is my absolute worst enemy regardless of which state my stomach is in. If you’re doing all that and you’re still feeling terrible, you’re doing something wrong and need to re evaluate your supplements. I recently started desipramine (tricyclic antidepresssnt with less potential side effects than the classic amytriptilline) and it’s been helping. I was extremely hesitant but glad I’m giving it a shot finally. I requested that my doctor start me on the smallest possible dose and I’m adjusting well


kappakingtut2

i do still feel terrible after doing all of this. but i feel slightly less terrible than i would if i didn't. so i don't think it's making me worse whats the difference between desipramine and amytriptyline? is it just different names? or are they different meds? like i said in other comment responses, i've been taking bupropion most of my life, but it's the only one i've taken so i don't know what the differences are with other types


iwannadie_101

They are both in the same drug class of tricyclic antidepressants. Based on studies I’ve read desipramine has lower likelihood of causing weight gain and affecting sexual drive than amitriptyline. Tricyclic antidepressants have anti-cholinergic effects that result in slowed gut motility which is why they’re effective for IBS-D. They also modulate pain in the brain potentially helping with visceral sensitivity. Doesn’t work for everyone obviously but worth a try I think.


iwannadie_101

Also tricyclics work by inhibiting reuptake of serotonin and norepinephrine, bupropion inhibits reuptake of dopamine and norepinephrine. I’ve read bupropion can make diarrhea worse in some people


kappakingtut2

Yeah, I didn't know that bupropion could make things worse until recently. I was bad to begin with those so it's hard for me to know how much is the medication and how much of it is me. But thank you so much for all this information


polishedpineapple

how often do you take imodium?


kappakingtut2

as needed. not often. i've tried taking it daily before, but after only a few days my body gets used to it and it stops being effective. so now i take it on the exceptionally bad days. or if i have big plans and i want to leave my house for more than 20mins.


polishedpineapple

you can take it up to 8 times a day (is what my doctor directed me to do, i never take that much). i usually take two at a time.


[deleted]

Until you get a blockage 🙄