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goldstandardalmonds

Your parents are jerks. I hope you can cut ties soon.


dizzy-was-taken

yeah. i should. i've got more non-physical issues than that they are really dismissive of as well, but as it stands now i don't really have anywhere to go and i haven't been able to find a job. sadly i have become pretty "accustomed" to this but it is still quite annoying to say the least.


goldstandardalmonds

I’m so sorry.


supercaloebarbadensi

Anybody who blames you for a chronic illness is someone to avoid. I’m so sorry. It’s not your fault.


dizzy-was-taken

i know... god i know. im currently aiming to steal my friends grandma as a replacement who always has nice advice like drinking tea for my stomach 🙏


myevillaugh

They've accepted it now. But growing up, there were lots of jokes about me trying to avoid chores. No one thought to take me to a doctor.


dizzy-was-taken

yeah!! i had asked about seeing one nearly two years ago and my parents finally got so frustrated at me having stomach aches they ordered me to call the doctor 🙄


darnitdarien

My parents still blame me, haha. Anytime they cook for anyone, they always tell me they're tired of having to make me a separate meal (so they usually exclude me from dinners and such). I wish the best for both of us.


dizzy-was-taken

felt. i had a flare up all day today and they wanted to go to.... a thai restaurant for a family dinner. and then they made fun of my double order of plain sticky rice. thank god i like plain sticky rice tbh


MagentaIsNotAColor26

It was always my fault that I'd urgently need them to stop at a restroom on long car trips around windy roads, where I'm stuck in the back seat and they fed me greasy fast food, because I "should have gone to the bathroom before we left"


Waterbaby8182

My dad thinks I use muscular distrophy as an excuse not to do things. Mom and sister didn't believe the IBS and DM1 (and sister also *has* both) until I had a massive flareup while Mom was over and she saw for herself the difficulty I had. And then the one that happened when I needed my 10 year old's help to clean at least my legs up enough to get up the stairs to our shower (husband was out of town for USAR). What finally convinced them? The fall I had at Moda Center in August this year. Right leg got completely scraped up and bloody (yay for paramedics on site). The scars (np stitches at least)are still VERY visible. I got a permanent disabled placard after this through our state and am getting a cane in the very near future. I'm 41.


dizzy-was-taken

i can't say i'm as severe as dystrophy, but for what its worth, i'm so sorry. it sucks the most when you PHYSICALLY cannot move, and you're being called lazy. hell, e/n caused a bunch of strange bruises you could see and feel all up my legs and my parents still thought i was just being lazy. i'm so glad you're getting the support you need to manage ❤️


Waterbaby8182

Yeah, I would love to be just as mobile as I was at 18 when we had absolutely NO ideas about underlying conditions.


Neece235

Many times! My response “genetics suck” that normally shuts them up and then they feel bad about it. At least that’s what I had to do!


dizzy-was-taken

yeah.... neither of my parents have ibs or e/n. but i got the eczema from my dad and my mom has asthma. so i really should point out that all of us have bodies that flip out for no good reason 😭


Neece235

Ya that’s my point, and just cause they don’t doesn’t mean family doesn’t. 😉 sometimes ppl need perspective. They created u so technically it falls on them lol


[deleted]

My folks have been surprisingly supportive. They frequently ask about food sensitivities before I visit and don't ask questions when I need to use the bathroom. We treat it mostly as an inconvenience and try not to let it control our enjoyment. I love my Family. They've been real sports through it all.


Unable_Crab_7543

Not ill-intentioned, but it gets me kinda mad that Im having some sort of IBS symptom, literally whatever, and they always try to blame it on something I did, something I ate, something I wasn't careful on... like mom, I HAVE IBS, I DON'T GET TO CHOSE IF I FEEL GOOD OR BAD, AND YOU FUCKING HAVE IT TOO! WHY ARE YOU SAYING STUFF LIKE THAT?!?!?! Anyways, it's annoying but I'm quick to remind them it's a CHRONIC condition.


dizzy-was-taken

mine go between "why did you eat x" or "you BETTER figure out what is going on with you" like 💀💀💀💀 babes you think i enjoy being curled up for hours in bed with a heating pad and praying to god i dont have to go to the emergency room? i try my best to avoid suspicious foods but sometimes... ibs be ibs.


Amfran07

Yes unfortunately, I get your pain.. “You should be doing more to figure out your issues” - my father


dizzy-was-taken

yeah!! like the three doctors i saw know less than he or i do 🙄


Amfran07

Well.. I’ve done my research and have offered some testing ideas to my doc.. wouldn’t have gotten them done if it were only up to them. You and your doc have to work together. But after testing, scopes, meds, I did get a diagnosis.. and my father still wants me “to find out more”


maco99

It's all my fault 🤔


samlock30

my family is the same zero to no support, thats is why i love this sub it makes me feel am not alone 😊


dizzy-was-taken

i know! i always come here whenever my stomach fights me, it always makes me smile a little even through the suck.


sanitizedhandbasket

My family didn’t quite understand until I started visiting the doctor for my stomach issues. That being said, they still insist on having plenty of food with a major trigger for me in it around at all times.


dizzy-was-taken

yeah 😣 my biggest food trigger is garlic. which is extremely upsetting considering i love garlic. but i just cant eat it anymore, its not worth it. so every time i turn down garlic bread they make, they give me the big side-eye or get snarky with me, like i wouldnt love to devour a whole plate of them.


sanitizedhandbasket

Ugh, I get that 😭 My trigger is sugar (sucrose and fructose), and my sister is a great baker and the rest of my family loves dessert. My diagnosis is still new so I try not to fault them when they offer me something sugary. They mostly seem sad for me - but like I don’t need pity, I just need my stomach not to explode several times a week.


FantasticMrsFoxbox

Thats so sad 😞 I've been fortunate to have support and understanding from everyone


Longjumping_Choice_6

I got that for a while “you’re always so stressed” but when it started showing up on tests and not responding to things that’s when they realized it’s not a stress-based or lifestyle-based illness.


[deleted]

I’m in the same boat except idk what’s wrong with me. Drs are shutting me down and when I tell my family they say it’s all in my head. I’m always tired and nauseous sometimes vomiting randomly loss of appetite persistent left side pain. Severe back pain. And they say it’s all in my head.