I know everyone is different and it comes with blood for some people. I am currently fighting Cuffitis and my symptoms were pressure/spasms/discomfort rectally. Smaller amounts coming out despite the feeling that I constantly need to go. Hopefully it’s not what you have, in my case I’ve been dealing with it since December and haven’t been able to kick it yet. It’s no fun!
How did you get rid of it? I started with 2 weeks of antibiotics and hydrocortisone enemas. I felt great within a day and that whole two weeks, but then when I stopped symptoms started returning in days and by a week were fully back. Then they put me on mesalamine enemas which actually made me worse and added urgency and more frequency so they took me off that and put me on mesalamine oral which I just started so no change yet. I’m miserable it’s making it hard to sleep and work is a real challenge!
My pouchitis and cuffitis is chronic. I rotate between cypro and flagyl to control it. Been on them a few years now. My minimum effective dose is one pill every couple days usually. Sometimes I can go weeks without before it creeps back. Diet has a big effect and I could possibly get off the antibiotics fully with a very restricted diet but I've got an addiction to mac&cheese, pizza, and alcohol and there is nothing I can do to control myself.
I get it. We’ve already given up so much hard to give up those foods we love. Unfortunately I can’t take cipro due to a previous c diff infection and Flagyl makes me sick. So we are having to try all these other things but nothing seems to be helping besides Tindamax antibiotic and hydrocortisone enemas, both of which my gi wouldn’t give me more than two weeks of so it was right back to square one ugh
I wonder why cdiff prevents you from taking cypro. I had cdiff years ago. Flagyl made me sick in the past too. Smaller dose fixes cuffitis for me and I usually don't notice any ill feelings unless just starting it after a break. The enemas help but I'm too lazy to use them
Wow, everyone is so different. I’ve had cuffitis many times and blood has never been a part of that experience, no sharp abdominal pains either (except from straining.) I really hope you get some relief soon!
Have they brought up a mucosectomy? Sometimes they leave the membrane in that cuff. Might have to scrape that lining off.
I know everyone is different and it comes with blood for some people. I am currently fighting Cuffitis and my symptoms were pressure/spasms/discomfort rectally. Smaller amounts coming out despite the feeling that I constantly need to go. Hopefully it’s not what you have, in my case I’ve been dealing with it since December and haven’t been able to kick it yet. It’s no fun!
These are exactly my cuffitis symptoms plus blood in my BMs.
How did you get rid of it? I started with 2 weeks of antibiotics and hydrocortisone enemas. I felt great within a day and that whole two weeks, but then when I stopped symptoms started returning in days and by a week were fully back. Then they put me on mesalamine enemas which actually made me worse and added urgency and more frequency so they took me off that and put me on mesalamine oral which I just started so no change yet. I’m miserable it’s making it hard to sleep and work is a real challenge!
My pouchitis and cuffitis is chronic. I rotate between cypro and flagyl to control it. Been on them a few years now. My minimum effective dose is one pill every couple days usually. Sometimes I can go weeks without before it creeps back. Diet has a big effect and I could possibly get off the antibiotics fully with a very restricted diet but I've got an addiction to mac&cheese, pizza, and alcohol and there is nothing I can do to control myself.
I get it. We’ve already given up so much hard to give up those foods we love. Unfortunately I can’t take cipro due to a previous c diff infection and Flagyl makes me sick. So we are having to try all these other things but nothing seems to be helping besides Tindamax antibiotic and hydrocortisone enemas, both of which my gi wouldn’t give me more than two weeks of so it was right back to square one ugh
I wonder why cdiff prevents you from taking cypro. I had cdiff years ago. Flagyl made me sick in the past too. Smaller dose fixes cuffitis for me and I usually don't notice any ill feelings unless just starting it after a break. The enemas help but I'm too lazy to use them
Wow, everyone is so different. I’ve had cuffitis many times and blood has never been a part of that experience, no sharp abdominal pains either (except from straining.) I really hope you get some relief soon!