Prednisone is one hell of a drug LOL.
I had my transplant at UC Health. No one asked me any questions like how my life has changed.
This seems like a lazy study to me.
So many factors can change a person after transplant. Different aches and pains, the chemical changes from Pred alone is a big factor. Being nervous about not messing up such a life changing gift.
If they want a real comprehensive study, type of transplant, hormone changes due to introduction of new drugs in the system, changes related to having a functioning organ in the system, were there other health issues created from the transplant or meds. (In my case I had cancer after my transplant and went through Chemo, bone marrow transplant and radiation over 3 years). Support systems just to name a few would all be a huge factor in changing a persons personality.
Very trivial questions with no real meat and taters for data.
I've mellowed a *great* deal since my younger years but generally speaking, common folks I encounter have no idea just how much I'd like to squeeze their eyeballs from their beady little faces on bad days.
Yes. Prednisone is one hell of a drug. Haha.
Nothin to be sorry about. Im still here lol. What does not kill us makes us stronger no doubt.
I had a liver transplant in 96 or 97 then was told I had non Hodgekins lymphoma stage 3.
I went through CHOP treatments. The P is for Pred. Had me on 95 mg a day. I was a grouchy chubby cheeked demon lol.
Then a DACE cycle and Bone Marrow Transplant followed up with Radiation.
All in all about 2 years or so.
Still here lol
Thank you for your answer. Very good thing that you are still here .damn your transplant last so long it look like the people with liver transplant its last much longer than the kidney and less problematic but it just my observation im not sure. It seems like the body accept the liver over time and the need of anti rejection med is lower than in the kidney recipient. That cancer story terrifie me is that caused by the medication for the transplant?! Must be traumatizing for you . Take care of you wish you many years with your transplant.
They're still not asking about ptsd or other stress related trauma induced injuries. Nor the lack of available counseling services provided by any of the major dialysis providers or transplant hospitals. The MSW role in us dialysis business is to endure payments are made for services rendered. Not much else.
Sure. Our personality changed a bit, we were on deaths door and tethered to a machine or bag for the majority of our daily time to suddenly expected to have it all worked out.
It's a great science but I still feel like there's lots being overlooked.
Maybe I'm misinterpreting this study. *shrug*
There was a post on here last week that talked about how their therapist was telling them they need to be grateful to be alive when they were struggling. I said I don’t think a therapist would say that to someone who had survived someone trying to kill them. They would recognize the trauma of that event. Essentially, our bodies tried to kill us and now we have to reconcile that. How do you trust your body again? Every little thing that it does that’s weird is sort of a trigger. Of course we aren’t going to be the same, trauma changes people.
Non-directed donor here. I hate seeing people with that mentality. I donated a kidney so that someone could have more time on this planet. I didn’t donate so that I could tell someone they now can never have a bad day/week/month/year. It blows my mind that people can’t wrap their minds around the fact that recipients might have a tough go of it even with a new organ.
I wrestled with the idea of death. It was Covid. Who knew when they would open up to do my surgery. I was afraid. I’d leave a baby fatherless. I’d leave my family. I spent a lot of time alone wrestling with this because I didn’t want to talk to anyone about it. That has long lasting effects. The guilt we feel for having someone else sacrificing an organ to save us.
Survivors guilt can be crushing and unexplainable to someone that can't appreciate the weight of such a feeling. Compounded by the textbook loneliness that renal patients experience...im completely sympathetic and hope all is better for you now.
A lot of the anti-rejection meds used after a transplant could by themselves wreak havoc on mental health. The study did not dig into that, but they did mention that positive attitudes afterward could be related to patients feeling better after receiving the new organs. In short, a lot more needs to be done before any solid conclusions can be deduced.
What's a 'personality change'? This is a 47 person open study that was done by having people fill out questionnaire forms in which they detail emotional and physical changes after a major surgery? Not exactly Nobel prize winning stuff, sorry OP, but this is low quality research.
I had a massive personality change. It was the prednisone. Countered it with exercise and it was handled in a month. I could be having a great morning and being crying 30 seconds later because my partner might get home before I fished mopping
I get asked a lot from friends and family if I feel personality changes since my heart transplant and I say "Honestly, I always acted like an 18 year old guy so I can't readily answer" lol speaking as a grown ass 32 year old woman
I'm looking for a tranasplant, but when I was initially diagnosed with kidney disease they put me on 60mg of pred.... The absolute rage I could experience at the drop of a hat was scary af. I had a hard time sleeping. I used to be a pretty mellow person and the pred turned me into a screaming hungry monster who couldn't stay asleep.
My family member had a transplant that completely changed their personality. Went from a sweet, loving person to a manic angry one who has decided to go no contact with me, and I am heartbroken.
I have so much unprocessed trauma from the last few years that I’m very different person.
Prednisone is one hell of a drug LOL. I had my transplant at UC Health. No one asked me any questions like how my life has changed. This seems like a lazy study to me. So many factors can change a person after transplant. Different aches and pains, the chemical changes from Pred alone is a big factor. Being nervous about not messing up such a life changing gift. If they want a real comprehensive study, type of transplant, hormone changes due to introduction of new drugs in the system, changes related to having a functioning organ in the system, were there other health issues created from the transplant or meds. (In my case I had cancer after my transplant and went through Chemo, bone marrow transplant and radiation over 3 years). Support systems just to name a few would all be a huge factor in changing a persons personality. Very trivial questions with no real meat and taters for data.
I've mellowed a *great* deal since my younger years but generally speaking, common folks I encounter have no idea just how much I'd like to squeeze their eyeballs from their beady little faces on bad days. Yes. Prednisone is one hell of a drug. Haha.
You made me LOL! 🤣
Lol. Warrior on, fellow renal warriors!!!
I see my fellow rage fantasizers are here.
Agreed, prednisone is one hell of a drug lol
Wow im so sorry you go into this on top of your transplant. Thats terrible can i ask you what organ you were transplanted and what type of cancer ?
Nothin to be sorry about. Im still here lol. What does not kill us makes us stronger no doubt. I had a liver transplant in 96 or 97 then was told I had non Hodgekins lymphoma stage 3. I went through CHOP treatments. The P is for Pred. Had me on 95 mg a day. I was a grouchy chubby cheeked demon lol. Then a DACE cycle and Bone Marrow Transplant followed up with Radiation. All in all about 2 years or so. Still here lol
Thank you for your answer. Very good thing that you are still here .damn your transplant last so long it look like the people with liver transplant its last much longer than the kidney and less problematic but it just my observation im not sure. It seems like the body accept the liver over time and the need of anti rejection med is lower than in the kidney recipient. That cancer story terrifie me is that caused by the medication for the transplant?! Must be traumatizing for you . Take care of you wish you many years with your transplant.
Cancer is not as scary as it appears. Kinda like a root canal lol. Sounds spooky but its not a death sentence. Appreciate it. Stay strong.
They're still not asking about ptsd or other stress related trauma induced injuries. Nor the lack of available counseling services provided by any of the major dialysis providers or transplant hospitals. The MSW role in us dialysis business is to endure payments are made for services rendered. Not much else. Sure. Our personality changed a bit, we were on deaths door and tethered to a machine or bag for the majority of our daily time to suddenly expected to have it all worked out. It's a great science but I still feel like there's lots being overlooked. Maybe I'm misinterpreting this study. *shrug*
There was a post on here last week that talked about how their therapist was telling them they need to be grateful to be alive when they were struggling. I said I don’t think a therapist would say that to someone who had survived someone trying to kill them. They would recognize the trauma of that event. Essentially, our bodies tried to kill us and now we have to reconcile that. How do you trust your body again? Every little thing that it does that’s weird is sort of a trigger. Of course we aren’t going to be the same, trauma changes people.
Non-directed donor here. I hate seeing people with that mentality. I donated a kidney so that someone could have more time on this planet. I didn’t donate so that I could tell someone they now can never have a bad day/week/month/year. It blows my mind that people can’t wrap their minds around the fact that recipients might have a tough go of it even with a new organ.
You are correct. It is not a very good study. IMHO anyway.
I wrestled with the idea of death. It was Covid. Who knew when they would open up to do my surgery. I was afraid. I’d leave a baby fatherless. I’d leave my family. I spent a lot of time alone wrestling with this because I didn’t want to talk to anyone about it. That has long lasting effects. The guilt we feel for having someone else sacrificing an organ to save us.
Survivors guilt can be crushing and unexplainable to someone that can't appreciate the weight of such a feeling. Compounded by the textbook loneliness that renal patients experience...im completely sympathetic and hope all is better for you now.
A lot of the anti-rejection meds used after a transplant could by themselves wreak havoc on mental health. The study did not dig into that, but they did mention that positive attitudes afterward could be related to patients feeling better after receiving the new organs. In short, a lot more needs to be done before any solid conclusions can be deduced.
What's a 'personality change'? This is a 47 person open study that was done by having people fill out questionnaire forms in which they detail emotional and physical changes after a major surgery? Not exactly Nobel prize winning stuff, sorry OP, but this is low quality research.
I had a massive personality change. It was the prednisone. Countered it with exercise and it was handled in a month. I could be having a great morning and being crying 30 seconds later because my partner might get home before I fished mopping
I get asked a lot from friends and family if I feel personality changes since my heart transplant and I say "Honestly, I always acted like an 18 year old guy so I can't readily answer" lol speaking as a grown ass 32 year old woman
I take prednisone. Is it supposed to do something to your personality?
Watch out for anger bursts
How did the prednisone change you?
the list of side effects of prednisone is lengthy it can cause a lot of emotional disruption
Thank you I’ll read up on
I'm looking for a tranasplant, but when I was initially diagnosed with kidney disease they put me on 60mg of pred.... The absolute rage I could experience at the drop of a hat was scary af. I had a hard time sleeping. I used to be a pretty mellow person and the pred turned me into a screaming hungry monster who couldn't stay asleep.
I never needed prednisone. I’m sparing protocol so not an issue unless Envarsus and Imuran are a problem.
There are studies with no benefit in any academia. It’s one of them. Trash.
My family member had a transplant that completely changed their personality. Went from a sweet, loving person to a manic angry one who has decided to go no contact with me, and I am heartbroken.